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    • 5 hours, 43 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 5 hours, 49 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 5 hours, 55 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 2 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 8 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 9 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 3 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?

    Home > LC Polls > If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
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    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Lawrence S.

      I answered “Always”. But, the truth is that I never have to inform the staff that I have T1D. They already know. The correct answer to the question is “Not Applicable.” All of the doctors that I see are within the same hospital network. They all share my health records via the hospital’s patient portal.

      4
      3 years ago Log in to Reply
    2. Amanda Barras

      Always! It’s absolutely relevant to make sure they know so they can avoid prescribing anything that may conflict with insulin, or cause bs fluctuations. As well, they could easily misdiagnose something that could be potentially linked back to diabetes.

      3
      3 years ago Log in to Reply
    3. Jane Cerullo

      Should always give your complete health history with all providers.

      2
      3 years ago Log in to Reply
    4. Melinda Lipe

      It’s on all my health records

      1
      3 years ago Log in to Reply
    5. Sherolyn Newell

      I put usually, but I can’t think of any doctors I haven’t told.

      1
      3 years ago Log in to Reply
    6. KIMBERELY SMITH

      Rarely

      3 years ago Log in to Reply
    7. cynthia jaworski

      Always. But I still find that they frequently classify me as a T2 in their reports.

      I complain when this happens, because then my insurance starts questioning my 6 decade long diagnosis of T1, asking for tests.

      4
      3 years ago Log in to Reply
      1. Trina Blake

        Oh yeah, they (other HCP’s and insurance) like to believe that we can outgrow it and then scold us because we haven’t.

        1
        3 years ago Log in to Reply
    8. Shelly Smith

      It is in my best interest if they are aware. That way I don’t get prescribed something that doesn’t work with insulin, etc.

      1
      3 years ago Log in to Reply
    9. Tracy Jean

      It is a question asked in the patient paperwork.

      3 years ago Log in to Reply
    10. Chris Albright

      They usually ask for health history so rarely have to tell them

      3 years ago Log in to Reply
    11. Bob Durstenfeld

      Though I always disclose my T1D, the understanding of the impact of having it is very misunderstood by most doctors, they are either out of date or completely ignorant.

      6
      3 years ago Log in to Reply
      1. Jen Farley

        I agree, if they are not an endocrinologist they seem lost on any knowledge on diabetes information.

        4
        3 years ago Log in to Reply
      2. Andrea Hultman

        Yep, or so many of us, because of age and weight, are assumed to have type 2, even though T1D is in our EHR or chart. I have had to underscore multiple times that I have type 1 diabetes and have had it since childhood. In my 20s, I didn’t have to do this. So frustrating! Look at the bloomin’ chart, yo!!

        3 years ago Log in to Reply
    12. kim bullock

      It is is the computer that I have type 1 diabetes. If I am at the Er I speak up even more.

      1
      3 years ago Log in to Reply
    13. Trisha Oldenkamp

      kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can’t think of a time when it is not pertinent to at least mention it.

      3
      3 years ago Log in to Reply
    14. Jen Farley

      Sometimes I hate that I always tell them I have diabetes due to the fact that some doctors can be not paying attention and blame everything on my diabetes.

      6
      3 years ago Log in to Reply
    15. Trina Blake

      I put “usually” although I would rather njot. Why not? My T1D gives “them” and easy out – whatever medical issue I have that led me to their office is obviously “due to my poor D mgt” or “that’s what happens with T1D”. I try to view these things a opportunities to 1) educate and 2) know who not to see in the future.

      2
      3 years ago Log in to Reply
    16. Becky Hertz

      Only if it comes up in conversation or a recommended treatment is contraindicated due to the T1D.

      3 years ago Log in to Reply
    17. Jeff Balbirnie

      What on earth is a health related appointment which is NOT diabetes related fundamentally? This question needs better explained & reworked kids….

      3
      3 years ago Log in to Reply
    18. AnitaS

      All of my doctors are in the same health system so my medical records are available to all of them in the computer system. Even though my medical records are in the computer system, most doctors offices have people fill out a medical form asking all kinds of questions, one of which is do you have diabetes.

      3 years ago Log in to Reply
    19. T1D4LongTime

      ALL my doctors know I have T1D. I request all non-diabetic physicians to send a report of my appointment to my endocrinologist.

      3 years ago Log in to Reply
    20. Andrea Hultman

      It’s in MyChart, but I often remind them, because they see a 47-year-old fat woman and assume type 2. In fact, a local ER just this summer incorrectly “diagnosed” me with type 2. Really pisses me off when HCPs don’t listen!!

      3 years ago Log in to Reply

    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D? Cancel reply

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