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    • 7 hours, 24 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 7 hours, 24 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 7 hours, 25 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 7 hours, 26 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 38 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 12 hours, 10 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 14 hours, 4 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 15 hours, 29 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 16 hours, 12 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 16 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 16 hours, 47 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 4 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 5 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 12 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 13 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 13 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 14 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?

    Home > LC Polls > If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
    Previous

    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

    Next

    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Pat Sims

      Paxlovid was worse than Covid. I suffered from most of the secondary effects it has. Had to be taken to hospital for dehydration and 104f degree fever.

      1
      2 years ago Log in to Reply
      1. Eva

        : – ( I am so sorry to hear. Hope you final recovered without much incident.

        2 years ago Log in to Reply
    2. LizB

      I had COVID in August 2022 but had very mild symptoms and didn’t take any prescription or OTC medications for it. I was fully vaxxed & boosted at the time.

      2 years ago Log in to Reply
      1. Jian

        same here

        2 years ago Log in to Reply
    3. KIMBERELY SMITH

      None

      2 years ago Log in to Reply
    4. Chrisanda

      I have not had Covid, but if I do get it, I will not take Paxlovid. Too many stories of severe side effects, including hospitalization. I am also not going to get any more boosters.

      2
      2 years ago Log in to Reply
      1. Jennifer Bounds

        👍 and I also have never been/ or will be vaccinated for C19.

        3
        2 years ago Log in to Reply
    5. GLORIA MILLER

      I’ve had Covid twice. The first time I was asymptomatic so nothing was needed. The second time, in June, I took Paxlovid with no problem. It was 17 days before I tested negative though.

      2 years ago Log in to Reply
    6. Ginger Vieira

      Yes, I’ve taken Paxlovid twice. It made a HUGE difference in my symptoms. I went from being hardly functional to very functional. As a mom, yada yada, I ain’t got time to lie on the couch with COVID. Paxlovid was critical.

      2 years ago Log in to Reply
    7. Amanda Barras

      Other – I have never taken a C19 test.

      1
      2 years ago Log in to Reply
    8. Karen Tay

      I had covered last June and the doctor said that he would not give me Paxlovid. Not too sure why but I was assuming the side effects from it would make my symptoms worse than what they already were. My husband had covered the same time as me and he did get it and seem to help him to get over it quicker than me. But he is not T1D

      2 years ago Log in to Reply
      1. Karen Tay

        Covid
        Darn voice text 🙄

        2
        2 years ago Log in to Reply
    9. Jennifer Bounds

      I have T1. Was tested for Covid 2x per week (employer required) and always NEGATIVE! I was even exposed on 2 occasions and never got it. To this day I’ve never had the Covid 19 virus.

      3
      2 years ago Log in to Reply
    10. Brian Vodehnal

      Honestly, unless you are testing everyday or one a week…can you really answer this question accurately. It’s a 98% exposure rate.

      1
      2 years ago Log in to Reply
    11. Lawrence S.

      I got my first case of Covid 19 in May, 2023. My doctor prescribed Paxlovid, which I started immediately. I hope the Paxlovid helped, but I felt that the symptoms were harsh, similar to a very bad case of the flu. It took over 2 months for my lungs to clear up.

      2 years ago Log in to Reply
    12. Vince Shockney

      I have not been diagnosed with COVID-19, yet. Five boosters so far and I will get number six next week.

      2 years ago Log in to Reply
    13. Jane Cerullo

      I was diagnosed on a cruise (I think picked up in Miami prior to cruise). They did not offer paxlovid. I worked as a nurse during whole pandemic and got Covid on vacation last March. I was quite sick. Took about three months before I felt back to normal.

      2 years ago Log in to Reply
    14. Eva

      Everyone around me got COVID pneumonia – they need to take erythromycin, inhaler and steroids. They were boosted and vaxxed to schedule. So, it doesn’t seem very effective to me – perhaps due to Antibody-dependent enhancement (ADE)???

      2 years ago Log in to Reply
    15. Jneticdiabetic

      I had COVID in June 2022. Did not take Paxlovid. I don’t think I notified my doctor. I did take a few extra vitamins and baby aspirin based on doctor’s recommendations given to a friend who had recently had it. Was sick in bed a couple of days with what felt like a really bad cold. Took 11 days to test negative. I am fully vaccinated.

      2 years ago Log in to Reply
    16. pru barry

      So far, so good. Covid clear, with an abundance of precautions. Still being respectful, but enjoying more freedom, to be sure.
      Here’s to good health!

      2 years ago Log in to Reply
    17. Sealani Weiner

      I am still getting over the side effects of the paxlovid now. It was a mess when I returned from travel by air and tested positive the next day. At the same time as I got COVID, my CGM readings were low, constantly low. In my foggy head I didn’t think to use a meter to compare, I just sort-of enjoyed the experience of stuffing sweet stuff into myself to raise up my blood sugar. After low after low with no abatement, I called Dexcom, and it was a sensor fail, which I’ve never experienced with that problem before in at least 10 years of using a cgm. The sensor read “43, then LOW”, but the meter recorded 545. Which explained why I was sleeping so much and not thinking clearly. I called my healthcare provider for paxolovid, took it the required days, and after the described incident, now have terrible itching and pain in my eyes. I don’t know that I will ever be able to determine what was COVID symptoms versus high blood sugar effects.

      2 years ago Log in to Reply
    18. Karen DeVeaux

      I said no, but I didn’t actually go to my HCP while I had it. I just took OTC medications.

      2 years ago Log in to Reply
    19. Marty

      I’m am fully vacc’d and boosted and have never had COVID, at least not symptomatic COVID. I’ve been taking precautions to avoid it since the start of the pandemic to be ready for knee surgery as soon as the opportunity arose and because I just don’t want to get sick. I find I don’t mind masking to stay healthy and protect others. When I see people masking, it feels like a warm gesture of mutual concern. I would take Paxlovid if I did test positive. My neighbor took it and hated her gastrointestinal side effects, but I don’t think everyone experiences that.

      2 years ago Log in to Reply
    20. Angela Naccari

      My endo discussed this with me but we both decided not to because I thought I may have had for several days before being tested positive. It works best when taken early is what I undertood.

      2 years ago Log in to Reply
    21. Trisha Oldenkamp

      I was offered rather than suggested Paxlovid but together we decided I didn’t need it.

      2 years ago Log in to Reply
    22. Mark Schweim

      I never had COVID until after I was “fully vaxed” against it. After getting the full faccine dosages, I’ve had COVID 3 times and every time my Doctors have told me to just treat it the same as I’d treat a bad cold or mild flu with OTC meds for the symptoms, so the heaviest medication I’ve ever taken for any of my 3 bouts with COVID has been Alka-Seltzer Plus and ibuprofen.

      2 years ago Log in to Reply
    23. Patricia Kilwein

      Had COVID in 2021. After having both vaccines. Was given an infusion of monoclonal thru an IV. Haven’t been sick since! Not a cold or flu either!

      2 years ago Log in to Reply
    24. Yaffa Steubinger

      I wasn’t prescribed Paxlovid because I didn’t want it. I would have if symptoms went into my lungs within their 5-day recommendation of when to get Paxlovid

      2 years ago Log in to Reply
    25. Linda Summerfield

      Yes. But I opted to take Ivermectin instead and within 2 hours after first dose temperature was gone and chilling stopped and other than tiredness couldn’t tell that I had been sick as a dog.

      1
      2 years ago Log in to Reply
    26. Kris Sykes-David

      I got Covid for the first time just a week ago upon arriving home from Norway/Sweden. Since I had been fully vaccinated prior to the trip, I feel like I didn’t have a bad case. So, Paxlovid or even calling my Doctor didn’t happen.

      1
      2 years ago Log in to Reply
    27. Jen Farley

      My provider handed me the prescription right there at the office. I have had it twice and each time they have just given Paxlovid to me. Normally I just go to the urgent care

      2 years ago Log in to Reply
    28. T1D4LongTime

      Yes, Paxlovid prescribed within 24 hrs of symptoms and positive test. Minimal symptoms and quick recovery.

      2 years ago Log in to Reply

    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms? Cancel reply

    You must be logged in to post a comment.




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