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    • 14 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 38 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 38 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 38 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 53 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 54 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 1 hour, 55 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 16 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 16 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 43 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 22 hours, 43 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 43 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 54 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 22 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 22 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
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    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?

    Home > LC Polls > If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms?
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    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

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    Diabetes burnout – feeling run down and not managing your diabetes in the way you normally would – happens for many people living with T1D. Which statement best describes the way you currently feel diabetes burnout impacts you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Pat Sims

      Paxlovid was worse than Covid. I suffered from most of the secondary effects it has. Had to be taken to hospital for dehydration and 104f degree fever.

      1
      3 years ago Log in to Reply
      1. Eva

        : – ( I am so sorry to hear. Hope you final recovered without much incident.

        3 years ago Log in to Reply
    2. LizB

      I had COVID in August 2022 but had very mild symptoms and didn’t take any prescription or OTC medications for it. I was fully vaxxed & boosted at the time.

      3 years ago Log in to Reply
      1. Jian

        same here

        3 years ago Log in to Reply
    3. KIMBERELY SMITH

      None

      3 years ago Log in to Reply
    4. Chrisanda

      I have not had Covid, but if I do get it, I will not take Paxlovid. Too many stories of severe side effects, including hospitalization. I am also not going to get any more boosters.

      2
      3 years ago Log in to Reply
      1. Jennifer Bounds

        👍 and I also have never been/ or will be vaccinated for C19.

        3
        3 years ago Log in to Reply
    5. GLORIA MILLER

      I’ve had Covid twice. The first time I was asymptomatic so nothing was needed. The second time, in June, I took Paxlovid with no problem. It was 17 days before I tested negative though.

      3 years ago Log in to Reply
    6. Ginger Vieira

      Yes, I’ve taken Paxlovid twice. It made a HUGE difference in my symptoms. I went from being hardly functional to very functional. As a mom, yada yada, I ain’t got time to lie on the couch with COVID. Paxlovid was critical.

      3 years ago Log in to Reply
    7. Amanda Barras

      Other – I have never taken a C19 test.

      1
      3 years ago Log in to Reply
    8. Karen Tay

      I had covered last June and the doctor said that he would not give me Paxlovid. Not too sure why but I was assuming the side effects from it would make my symptoms worse than what they already were. My husband had covered the same time as me and he did get it and seem to help him to get over it quicker than me. But he is not T1D

      3 years ago Log in to Reply
      1. Karen Tay

        Covid
        Darn voice text 🙄

        2
        3 years ago Log in to Reply
    9. Jennifer Bounds

      I have T1. Was tested for Covid 2x per week (employer required) and always NEGATIVE! I was even exposed on 2 occasions and never got it. To this day I’ve never had the Covid 19 virus.

      3
      3 years ago Log in to Reply
    10. Brian Vodehnal

      Honestly, unless you are testing everyday or one a week…can you really answer this question accurately. It’s a 98% exposure rate.

      1
      3 years ago Log in to Reply
    11. Lawrence S.

      I got my first case of Covid 19 in May, 2023. My doctor prescribed Paxlovid, which I started immediately. I hope the Paxlovid helped, but I felt that the symptoms were harsh, similar to a very bad case of the flu. It took over 2 months for my lungs to clear up.

      3 years ago Log in to Reply
    12. Vince Shockney

      I have not been diagnosed with COVID-19, yet. Five boosters so far and I will get number six next week.

      3 years ago Log in to Reply
    13. Jane Cerullo

      I was diagnosed on a cruise (I think picked up in Miami prior to cruise). They did not offer paxlovid. I worked as a nurse during whole pandemic and got Covid on vacation last March. I was quite sick. Took about three months before I felt back to normal.

      3 years ago Log in to Reply
    14. Eva

      Everyone around me got COVID pneumonia – they need to take erythromycin, inhaler and steroids. They were boosted and vaxxed to schedule. So, it doesn’t seem very effective to me – perhaps due to Antibody-dependent enhancement (ADE)???

      3 years ago Log in to Reply
    15. Jneticdiabetic

      I had COVID in June 2022. Did not take Paxlovid. I don’t think I notified my doctor. I did take a few extra vitamins and baby aspirin based on doctor’s recommendations given to a friend who had recently had it. Was sick in bed a couple of days with what felt like a really bad cold. Took 11 days to test negative. I am fully vaccinated.

      3 years ago Log in to Reply
    16. pru barry

      So far, so good. Covid clear, with an abundance of precautions. Still being respectful, but enjoying more freedom, to be sure.
      Here’s to good health!

      3 years ago Log in to Reply
    17. Sealani Weiner

      I am still getting over the side effects of the paxlovid now. It was a mess when I returned from travel by air and tested positive the next day. At the same time as I got COVID, my CGM readings were low, constantly low. In my foggy head I didn’t think to use a meter to compare, I just sort-of enjoyed the experience of stuffing sweet stuff into myself to raise up my blood sugar. After low after low with no abatement, I called Dexcom, and it was a sensor fail, which I’ve never experienced with that problem before in at least 10 years of using a cgm. The sensor read “43, then LOW”, but the meter recorded 545. Which explained why I was sleeping so much and not thinking clearly. I called my healthcare provider for paxolovid, took it the required days, and after the described incident, now have terrible itching and pain in my eyes. I don’t know that I will ever be able to determine what was COVID symptoms versus high blood sugar effects.

      3 years ago Log in to Reply
    18. Karen DeVeaux

      I said no, but I didn’t actually go to my HCP while I had it. I just took OTC medications.

      3 years ago Log in to Reply
    19. Marty

      I’m am fully vacc’d and boosted and have never had COVID, at least not symptomatic COVID. I’ve been taking precautions to avoid it since the start of the pandemic to be ready for knee surgery as soon as the opportunity arose and because I just don’t want to get sick. I find I don’t mind masking to stay healthy and protect others. When I see people masking, it feels like a warm gesture of mutual concern. I would take Paxlovid if I did test positive. My neighbor took it and hated her gastrointestinal side effects, but I don’t think everyone experiences that.

      3 years ago Log in to Reply
    20. Angela Naccari

      My endo discussed this with me but we both decided not to because I thought I may have had for several days before being tested positive. It works best when taken early is what I undertood.

      3 years ago Log in to Reply
    21. Trisha Oldenkamp

      I was offered rather than suggested Paxlovid but together we decided I didn’t need it.

      3 years ago Log in to Reply
    22. Mark Schweim

      I never had COVID until after I was “fully vaxed” against it. After getting the full faccine dosages, I’ve had COVID 3 times and every time my Doctors have told me to just treat it the same as I’d treat a bad cold or mild flu with OTC meds for the symptoms, so the heaviest medication I’ve ever taken for any of my 3 bouts with COVID has been Alka-Seltzer Plus and ibuprofen.

      3 years ago Log in to Reply
    23. Patricia Kilwein

      Had COVID in 2021. After having both vaccines. Was given an infusion of monoclonal thru an IV. Haven’t been sick since! Not a cold or flu either!

      3 years ago Log in to Reply
    24. Yaffa Steubinger

      I wasn’t prescribed Paxlovid because I didn’t want it. I would have if symptoms went into my lungs within their 5-day recommendation of when to get Paxlovid

      3 years ago Log in to Reply
    25. Linda Summerfield

      Yes. But I opted to take Ivermectin instead and within 2 hours after first dose temperature was gone and chilling stopped and other than tiredness couldn’t tell that I had been sick as a dog.

      1
      3 years ago Log in to Reply
    26. Kris Sykes-David

      I got Covid for the first time just a week ago upon arriving home from Norway/Sweden. Since I had been fully vaccinated prior to the trip, I feel like I didn’t have a bad case. So, Paxlovid or even calling my Doctor didn’t happen.

      1
      3 years ago Log in to Reply
    27. Jen Farley

      My provider handed me the prescription right there at the office. I have had it twice and each time they have just given Paxlovid to me. Normally I just go to the urgent care

      3 years ago Log in to Reply
    28. T1D4LongTime

      Yes, Paxlovid prescribed within 24 hrs of symptoms and positive test. Minimal symptoms and quick recovery.

      3 years ago Log in to Reply

    If you are an adult with T1D and have tested positive for COVID-19 at some point since January 2022, did your health care provider prescribe Paxlovid to help with symptoms? Cancel reply

    You must be logged in to post a comment.




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