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    • 1 hour, 39 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 39 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 55 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 56 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 16 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 25 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 25 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 22 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 38 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How would you best describe the daily burden of T1D? Please select 3 of the options below and share your own in the comments.

    Home > LC Polls > How would you best describe the daily burden of T1D? Please select 3 of the options below and share your own in the comments.
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    Sarah Howard

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    56 Comments

    1. John McHenery

      Been injecting/infusing for so long, 50 years plus, it is my norm. It is a nuisance but better than the alternative of being in a box.

      13
      1 year ago Log in to Reply
    2. ConnieT1D62

      I no longer consider it to be a daily burden. After living with it in my body for almost 60 years it is what it is – a complex 24/7 self care duty. I do what I need to do to experience all the beauty and wonder that a satisfying life has to offer. And I give thanks everyday for the gift of life.

      8
      1 year ago Log in to Reply
    3. Lee Johnson

      Xxx

      1 year ago Log in to Reply
    4. George Lovelace

      57 years but now with CIQ – I would add “Daring” to Constant and Challenging

      3
      1 year ago Log in to Reply
    5. TEH

      Ubiquitous. Always there. CGI helped my control significantly. But i think about my BG levels 15 or 20 times a day.

      4
      1 year ago Log in to Reply
    6. connie ker

      24/7/365 for the rest of your life. It’s a full time job you didn’t apply for, don’t get paid for with no time off from. Worse yet, you can’t quit. This constant crush can certainly lead to diabetes burnout.

      3
      1 year ago Log in to Reply
    7. dave hedeen

      Key positive word missing, innovative. I am waiting for newest closed loop system

      4
      1 year ago Log in to Reply
    8. RACHEL BLEVINS

      Overwhelming

      2
      1 year ago Log in to Reply
    9. Lawrence Stearns

      The first thing that came to mind was “life altering.” When I think about the many decisions in my life, my diabetes care always gets factored in. It’s not just diabetes, but other autoimmune issues as well. Such as, celiac disease, constantly factoring into my eating and social habits. It is a lifestyle that is often misunderstood by others who don’t have these limitations. Depending upon the circumstances, it is all of the word choices, except “impossible.”

      1
      1 year ago Log in to Reply
    10. Katherine Kiger

      (US-based) Expensive!

      4
      1 year ago Log in to Reply
    11. Carol Meares

      I checked all but impossible after not seeing the check 3 in the question. Managing with diabetes is not impossible but the daily burden is easily characterized by each of your other descriptors.

      1
      1 year ago Log in to Reply
    12. Ken Raiche

      As I’ve said for many years it can only get better depending on your point of view. It’s truly what you make of it and fortunately for anyone who’s fairly name at the T1D lifestyle much easier to manage with the right open minded doctor and more importantly the right equipment. Got to love the recent advancements with CGM and infusion just a few more improvements and it will almost be like not being a diabetic, yea right for us living with diabetes as the old saying there’s two certainties in life death a taxes and for those with diabetes three the never ending need for insulin which equates to $$$$.

      4
      1 year ago Log in to Reply
    13. P-O Heidling

      No burden at all. My diabetes has very little impact on my daily life anymore. I take 2-3 injections per day (often the same amount of insulin every day), which I compare to as much burden as brushing my teeth.
      I eat good delicious food, exercise when I want to and have no other “classic” diabetic injuries. HbA1c in non-diabetic range.

      T1D since 1981, keto/LCHF (<20 gr carb/day) since 2010.

      Before 2010, my life was very much affected, with constant "highs and lows", early eye problems, 80% more insulin compared to today, eating-planning-fixing with the roller coaster bg values. So glad those days are gone…

      2
      1 year ago Log in to Reply
    14. Sahran Holiday

      Choices are incomplete. Challenges are minimal. Except for insulin made much easier with pumps and CGMs a little monitoring and adjusting for activity. Exercise and eating properly same as everyone else.

      1 year ago Log in to Reply
    15. Andrew Stewart

      The 3 C’s: constant, challenging and complex best describe for me what the daily burden of T1D success is all about. I chose these over their synonyms because I’m optimistic and want to stay away from terms that connote failure because in spite of the constant, challenging and complex nature of T1D, we can do this, we are doing this, we are learning daily the nuance and variables of our T1D management and striving towards our success.

      Perfection does not exist; stay positive, learn, move forward, REPEAT.

      9
      1 year ago Log in to Reply
      1. Rose Lentzke

        Nicely stated.

        1 year ago Log in to Reply
      2. Rose Lentzke

        Nicely statutes. Staying positive is the key;)

        1 year ago Log in to Reply
    16. Mary Dexter

      Misunderstood

      5
      1 year ago Log in to Reply
      1. lis be

        agree 100%

        1
        1 year ago Log in to Reply
    17. BARRY HUNSINGER

      There is no est for the weary. It is a 24/7 never-ending problem. Even when you get to a good number it can spiral out of range in a heartbeat for no good reason.

      2
      1 year ago Log in to Reply
    18. KCR

      I wish the question had been worded a bit differently, using “management” instead of “burden” so as not to prime respondents to answer from a negative bias.

      When D management goes smoothly–no pump issues, blood glucose in range, adequate time to pre-bolus–then day-to-day management is just something I know I need to do. When I’m coping with post-exercise lows or unexplained highs, then taking care of my T1D can indeed feel burdensome or troublesome.

      5
      1 year ago Log in to Reply
    19. Kevin McCue

      Never ending

      2
      1 year ago Log in to Reply
    20. lis be

      exhausting

      2
      1 year ago Log in to Reply
    21. AnitaS

      Burdensome and challenging were up there for me. I take it in stride since I have been doing this for close to 50 years, but it can be challenging since my day to day activities can change so figuring out how much insulin I may need is not always easy. Always having to check your blood sugar level to see if it is advisable to eat or exercise now or later. Knowing if you exercised enough during the day that I may have to change my pump setting for the night. Remembering to turn on and off the activity setting at the correct times when deciding I want to go for a walk. There are just so many variables in a life that affect how much insulin I may need. I am so thankful for pumps and cgms.

      2
      1 year ago Log in to Reply
    22. Andrea Graebner

      Very scary, I test positive for insulin antibodies. 7.4

      1
      1 year ago Log in to Reply
      1. P J

        Are you a diagnosed Type 1 diabetic or possible future 1? If you are not check out ways to help keep your beta cells functioning- no one path, good luck and best wishes.

        1
        1 year ago Log in to Reply
    23. P J

      I am always striving to do my best and that gets tiring at the worst of times. I’ve been eating one meal a day for a while and my blood sugars are much more in line- eating according to ada just made me slave to my insulin and I felt like beef being prepared for market.

      1 year ago Log in to Reply
    24. Marla Peaslee

      I have never, ever, even considered T1D a burden. Who writes these daily questions? How to phrase a question 101 pops into my head. I am not discounting others who feel differently.

      3
      1 year ago Log in to Reply
    25. Pauline M Reynolds

      To me, it’s the blue balloon that I must keep in the air through my whole life at all times, no matter what I’m doing or thinking.

      3
      1 year ago Log in to Reply
    26. Judy Hampton

      It’s the only life I’ve known. When I was 10 years old my pediatrician told me it would be like brushing my teeth. That was in 1960. I think about that every time I take my morning injection – LOL. I am grateful to still be enjoying life.

      3
      1 year ago Log in to Reply
    27. Jana Wardian

      My husband has nailed this. He says diabetes is the math problem that never ends!

      8
      1 year ago Log in to Reply
    28. Kim Murphy

      On some days all of these words could be used.

      1 year ago Log in to Reply
    29. Becky Hertz

      You sure set up a negative mindset by using the term daily burden. T1D actually saved my life! I was in a kidney study and due to frequent blood draws the staff noticed my rbc’s were increasing. Long story short, I had a renal tumor (unrelated to T1D) that they thought was stage 4 but turned out to be stage 3a. I’m down one Kidney now but I’m still living my best life!

      2
      1 year ago Log in to Reply
    30. Louise Robinson

      I was dx’d while in my late 20’s in 1976. In my 45 years living with Type 1, I’ve concluded that the only ā€œconstantā€ of Type 1 diabetes is that it will be variable. What works on one day, may not work the next. We need to monitor our BGs and adapt accordingly. The more knowledge we acquire about diabetes and how it affects us, the better prepared we become to take the needed actions to control and manage our disease. Luckily, the tools and technology we now have make that easier than it was 45 years ago. I’m not happy that I have diabetes but I’ve accepted my diagnosis, tried to learn as much as possible about it and am determined to make those lifestyle choices that may help me avoid its debilitating complications.

      4
      1 year ago Log in to Reply
    31. Kristine Warmecke

      Why is this question so negative? I’ve never thought of T1D as a burden. Anyone can make anything a burden with an attitude like this. smh
      The only burden is the US Pharma companies making it impossible for us to afford/obtain the one thing we need to live.

      5
      1 year ago Log in to Reply
    32. Virginia Barndollar

      It’s certainly 24/7, but that’s ok. Been living with T1DM for 56 years. Still hiking, mountaineering, climbing and running. Denali 2023.

      1 year ago Log in to Reply
    33. Ahh Life

      Challenging, complex, complicated: the big 3, as someone else mentioned. That’s because of my personality type and how I view the world in general. 怐 Ķ”ā›ā€ÆĶœŹ– Ķ”ā›ć€‘

      However, unlike others, I invariably first read the answers trying to guess which question is being asked. I assumed the question was about the burden of navigating the American health care system. 怐 Ķ ā›ā€ÆāØ Ķ ā›ā€Æć€‘

      4
      1 year ago Log in to Reply
      1. ConnieT1D62

        Ahh Life, you stated ” … the burden of navigating the American health care system”
        HAH!!! that encapsulates the most challenging, complex, complicated, and fearsome aspects of managing a life with T1D in today’s world.

        1
        1 year ago Log in to Reply
    34. Molly Jones

      I chose 24/7, constant, and challenging.

      I need to pay attention constantly to my insulin and BG or it can go out of control. This may happen at times for unknown reasons, but as long as supplies are available my BG can be controlled.

      This condition and it’s cause is understood, which I am very grateful for! It can be controlled. I would rather have T1D than so many other conditions if I had the choice.

      2
      1 year ago Log in to Reply
    35. David Smith

      I don’t consider T1D a burden. It’s simply a medical condition that my genes set me up for. The constant management of it isn’t a burden, either. What other chronic condition can be managed so closely? The ability to manage it at all is a gift that has prolonged my life, and the technology to facilitate that management has been steadily improving. But I also recognize that not everyone with T1D has access to that technology, and that needs to change!

      6
      1 year ago Log in to Reply
    36. BOB FISK

      I’m struck by the fact that all of your descriptors are negative, or at least border on negative. I guess that you could describe T1D as “relentless,” but I chose to use the “constant” choice. Even there, I am not focused on it every minute of the day. It is something that I have in the back of my mind most of the time, and use the data I have to manage my blood glucose level.

      4
      1 year ago Log in to Reply
      1. BOB FISK

        In addition, I’m wondering why you didn’t include descriptors such as “satisfying” or “feeling of accomplishment” in the list. I get positive feedback when I keep my glucose levels where I want them.

        1
        1 year ago Log in to Reply
    37. LizB

      I agree with other that calling it a “daily burden” is not the best. The three answers I chose are challenging, complex and complicated. I don’t think anyone would disagree that Type 1 is any of those three. I can count my carbs to the gram but some days my bolus seems to be too little and other days too much. It could be complex because I ignored the fat & protein and focused only on the carbs. Complicated because I might be under a lot of stress, or due to hormones. So many factors make T1D challenging.

      4
      1 year ago Log in to Reply
    38. Sharon Lillibridge

      45 years ago I had a nervous breakdown and was told that it “burned out” my pancreas but for 20 years I could eat and drink whatever I wanted with one shot of NPH and one shot of regular….knew what my blood sugar was always without a test, never was ill from it in any way and had NO complications. Until I caught a Norovirus, was in ICU for three days and have been disregulated for the last6 years. The J&J vaccine caused my blood sugars to yo yo between 30 and 500 for 68 days. I have recov ered from that but still can only eat a very limited diet.

      1
      1 year ago Log in to Reply
    39. Twinniepoo74

      I would also say the seizures that comes from having too many lows and high. Unfortunately I am a uncontrolled diabetic and in the past 7 years have seizures from my disease.

      1 year ago Log in to Reply
    40. Clare Fishman

      Using a DIY Loop with Omnipod and Dexcom I selected Challenging because regardless of the mode of delivery, using insulin and trying to be a pancreas without the tools that a pancreas has is challenging but none of the other words worked. I would have used “routine”,

      1 year ago Log in to Reply
    41. Amy Wolk

      I use TSlim Control IQ which has definitely decreased the the. burden. But until we have at least a working cure diabetes is always there 24/7

      1 year ago Log in to Reply
    42. Christina Trudo

      there may be shades of difference, but it seems to me that “24/7, unrelenting, relentless, and perhaps constant are more or less synonymous. maybe constant has a little less emotional shading.

      1 year ago Log in to Reply
    43. Jillmarie61

      I don’t describe it as a burden at all. It’s just something I have always dealt with all my my since I was diagnosed as a diabetic at 9mos old. I don’t ever remember not having diabetes, so it is just a part of my everyday life. To me it’s more like this is just normal. Not a burden at all.

      1 year ago Log in to Reply
    44. Leona Hanson

      My daily burden is my high and lows even with the cgm and always when I’m trying to do something like sewing it drives me crazy

      1 year ago Log in to Reply
    45. Rafaela

      Frustrating

      1 year ago Log in to Reply
    46. Vorisha

      The daily burden – nonexistent.
      I was diagnosed at age 10 in 1984 and what can I say, nothing in the list made sense to me to select. My treatment is not perfect but it is automatic. Very little conscious thought to it most days. I don’t worry about numbers (carb counts, A1C, blood glucose) but pay attention to how my body feels and react accordingly. I sometimes think we are taught to get too caught up with the numbers and that driving for perfect is the only way to treat. Yes it can be annoying when low blood sugar happens at an inconvenient time or you’re trying to figure out how to carry snack/insulin with you when you don’t have a pocket and you’re not in the mood to bring a bag … that’s all minor stuff to me.

      1 year ago Log in to Reply
    47. Velika Peterson

      Exhausting

      1 year ago Log in to Reply
    48. Steve Gold

      It’s the disease that never lets you forget it’s there. With better tools like glucometers and insulin pumps it’s come a long way. However, it’s always in the back of your mind, especially when eating.

      1 year ago Log in to Reply
    49. Chris Albright

      Hum…… In reality I could have selected all the options that were provided. T1 is a disease you wake up with, live through the day with, and you go to bed with (not to mention the number of days during the week it interrupts your sleep and wakes you up to just remind you….. YOU HAVE DISABETES……) OK, crying over…, suck it up and get back to the battle šŸ™‚

      1 year ago Log in to Reply
    50. Leona Hanson

      Since I don’t feel my lows or highs it gets difficult the cgm goes of like all day having uncontrollable diabetes but I try to keep it manageable

      1 year ago Log in to Reply

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