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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you ever used glucagon? If so, when was the last time used it?

    Home > LC Polls > Have you ever used glucagon? If so, when was the last time used it?
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    Do you consider the glycemic index of different foods before deciding what to eat?

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    How would you best describe the daily burden of T1D? Please select 3 of the options below and share your own in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Steve Rumble

      I have used glucagon many years ago. I have however used Baqsimi within the last year.

      4 years ago Log in to Reply
    2. Patricia Dalrymple

      I was going into surgery and couldn’t eat or drink anything and I went low right before it. I called ask-a-nurse what I should do and they told me to call my surgeon (at 5:30am). I did and he told me to go to the hospital right away. My husband came up with the idea to use the “red needle” as he calls it. My surgeon said that was an excellent idea. And I was exactly 140 BG going into surgery, exactly where they wanted me. Problem solved.

      1
      4 years ago Log in to Reply
      1. KarenM6

        Same thing happened to me. I did not expect to go as low as I did.

        I felt that managing blood sugar right before surgery (or a colonoscopy) was a complicated and stressful thing!

        4 years ago Log in to Reply
    3. Clare Fishman

      I have had glucagon used on me a few times in my life. Last year I used Baqsimi on myself because my blood sugar was dropping too fast to stop it with glucose tablets or gels.

      1
      4 years ago Log in to Reply
    4. Dave Barden

      Way too expensive. Dextrose is just as effective and pennies on the dollar cheaper

      1
      4 years ago Log in to Reply
    5. Louise Robinson

      I’ve been a Type 1 since 1976. I am currently in my 70’s. Once I reached my mid-50’s, I began experiencing more frequent and sever hypoglycemic episodes requiring glucagon at east once or more times per year. Once I transitioned to a pump 10 years ago, I haven’t needed glucagon. I do still get some low BG episodes but none so bad that I experience severe hypos where I can’t help myself. Pumping has given me and my husband (who became adept at glucagon administration) much greater peace of mind.

      1
      4 years ago Log in to Reply
    6. Sahran Holiday

      Subject to severe hypoglyemia many times each week, sometimes each day and overnight. No need for an overpriced pharmaceutical. Always have chocolate candy everywhere. At work and the dance sudio individually wrapped enough for everyone to help themselves. They watch me for signs and the CGM alarm.

      1
      4 years ago Log in to Reply
    7. Annie Wall

      My husband tried to use it once, probably more than 20 years ago, after an event that led him to call 911. The EMTs gave me dextrose and I finally awoke to find about 5 men in uniforms surrounding our bed and I asked for Dad! Even though they got my blood glucose up, their protocol was to take me to the hospital! What an extraordinary waste of time and resources that was.

      It was after that when my doctor gave me a prescription for glucagon and at some point, I was dropping fast so my husband tried to give it to me but had such a hard time reading the instructions, that the orange juice he had somehow gotten me to swallow began to work so we ended up not using the glucagon that he had opened up in his attempt to adminster it. As I recall, he had to change the juice-ridden sheets before we could safely get back to sleep. After that we simply had a supply of glucose gel that he could skirt in my mouth. The pump got me in better control and Dexcom even better and now that I have Tandem with Control IQ, I simply never get that low. Low alarms don’t even happen all night long. Thank goodness those scary days are over!

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        Ah – I have recall of orange juice soaked pajamas and sheets! We didn’t have a glucagon kit at home back then to treat severe lows. Just OJ and Karo syrup, thus the sticky mess! As a kid I my mom would throw me into a tub of warm bubble bath to warm my shivering body and clean me up.
        Yes indeed I too thank goodness for the technology of Dexcom and Tandem CIQ!

        4 years ago Log in to Reply
    8. Ahh Life

      No. GVoke is in the refrigerator. Historically, these emergency remedies have been so complicated to use I am the only one in the house or neighborhood capably of administering them properly. GVoke seems (SEEMS!) to be easier to use, if required. ( ͡❛ 👅 ͡❛)

      2
      4 years ago Log in to Reply
    9. GLORIA MILLER

      T1 for 64 years. Any time I would go on long hikes when I was on injections I would have convulsions at night so I had glucagon many times. Since the early 1990s when I got a pump (and later a CGM), I have used Baqsimi once. Dextrose just doesn’t cut if for me with extreme lows.

      4 years ago Log in to Reply
    10. Stephen Woodward

      Never used in 51+ T1D yrs.

      4 years ago Log in to Reply
    11. Amy Wolk

      The last time I had to use was when I was 16 years old. That’s 39 years ago.

      4 years ago Log in to Reply
    12. ConnieT1D62

      Self-administered Glucagon has saved me from slipping into hypoglycemia oblivion several times in my adult life with diabetes. We didn’t have it when I was a kid on NPH shots and subject to hypoglycemic seizures if I was too physically active and/or didn’t eat enough to feed the insulin peak at the right times. I grew weary of having to eat obligatory snacks of graham crackers and milk and would often skip them!

      These days I keep Baqsimi and Gvoke on hand. During the past two years I have used one or the other in very rare and infrequent incidents of my BG trending below 50 >> 40. My insurance covers Gvoke and I pay out of pocket for Baqsimi – and believe me it’s worth it!

      1
      4 years ago Log in to Reply
    13. Sue Herflicker

      I really didn’t know how to answer this, I haven’t used it on myself, but about 20 years ago I had to use it on my son. That was hopefully the last time ever!

      4 years ago Log in to Reply
    14. betsy valian

      I almost had to but the syringe and mix was too complicated when I finally hit the 34BG mark, and finally the juice kicked in, thankfully. Now I have Baqsimi (spelling?) for nasal use, which the next time should be much easier.

      4 years ago Log in to Reply
    15. Andrew Stewart

      Sometime in the last 1-3 years. It was around 7 am and my BG was in the low 70s and I had to do fasting blood work for an upcoming appointment with my endocrinologist and my lab appointment wasn’t for another two hours. I had recently filled a prescription for baqsimi, the nasal glucagon powder so I used one dose. My BG quickly rose to 130 and I didn’t violate the fasting mandate for the blood tests.

      Baqsimi is so easy to use, store, discreet and was very effective.

      4 years ago Log in to Reply
    16. Mary Dexter

      I refill the prescription when the current one expires, but have never needed it (knock on wood).

      4 years ago Log in to Reply
    17. TEH

      I needed it for split mix injections that were the worst. Needed it about 3 times over my first 10 years of T1D. Been on the pump for 20 years now and feel I don’t needed it. Now with CGM and low alarms I haven’t need it. Go low, get alarm, take some action.

      4 years ago Log in to Reply
    18. Kevin McCue

      Never had the need since any sugared food works so well

      4 years ago Log in to Reply
    19. dave hedeen

      Post closed loop, medics or EMS has not been required in last 10 tea

      4 years ago Log in to Reply
    20. Jeannie Hickey

      I use in “mini doses”, 5-10u in an insulin syringe. Works quickly & I don’t get the unwanted calories

      4 years ago Log in to Reply
    21. Wanacure

      Too bad my mom didn’t know about glucagon.

      4 years ago Log in to Reply
    22. Wanacure

      Today I think like a pancreas. I carry sugar cubes in backpack, coat, and in pocket in used plastic tubes that contained One Touch bg test strips. One sugar cube has 4 grams sugar and 16 calories. One or two cubes handles low bgs identified by Dexcom G6. Seattle EMTS gave me way too much glucose at last incident. They used to administer glucagon which was far more effective, or was that my own liver responding to low bg? You really do not need a quart of ice cream or a bacon cheese burger or an entire small pizza for the occasional low bg. On the other hand, if you’re hiking in the Cascades, or doing 40’’ on the elliptical after your 12 sets on the Nautilus…better to reduce insulin doses, and keep a Luna Bar crunchy granola handy.

      4 years ago Log in to Reply
    23. HMW

      Only used glucagon once in 32 years with T1. I was having repeated low alarms on my cgm after a meal and having juice, and then vomited. I called my endocrinologist and after a fingerstick check, she recommended I take glucagon.

      4 years ago Log in to Reply
    24. Molly Jones

      The lowest my BG has ever been is in the 20’s and I am still able to swallow after being forced/coerced to. It has not been that low in more than a decade.
      We have glucagon on hand every year just in case, but have never needed it.

      4 years ago Log in to Reply
    25. Megan W

      I used it once, but only used half of the syringe full. It was a time I was sick and couldn’t keep anything down, except my blood sugar!

      4 years ago Log in to Reply
    26. Glenda Schuessler

      It has been my practice to have glucagon on hand (now Baqsimi and Gvoke on the advice of my endo); thankfully there has not been an occasion for use.

      4 years ago Log in to Reply
    27. Stang777

      I have only had it used on me once and that was when I had a seizure while sleeping. That was about 7 years after being diagnosed and had never had anything like that happen before, or thankfully since. I feel if one is a awake, unless unable to eat or keep food down, there is no need for such things as glucagon as one should be able to treat their lows with food or drink, however, if one is seizing or unconscious, there really isn’t anything else that can/should be done so it is good to have glucagon on hand. If one is seizing or unconscious nobody should try to put anything in that persons mouth, so glucagon is a good thing to have. Much better than being in that state until EMT’s can arrive to save them, and much better than having to deal with EMT’s being there when they come to.

      I have since got Baqsimi, which I got right after it came out, but after recently reading many reviews on it, I am now afraid of it so my current script is for the Glucagon Kit that was used on me before. Too many people said in reviews how horrible it was when Baqsimi was used on them, how it felt like a lit sparkler had been shoved in their nose and how they had a lot of pain in both their nose and head for many hours, some even for days, after it was used. I no longer feel comfortable having it used on me and would like to just throw it in the garbage, but have kept it, for now, til I get a few Glucagon Kits stored up for just in case.

      I thought about getting Gvoke, but since it is new and there are not many reviews on it at all, I decided against it too and will just stick with the kit as it has been out long enough for us to know it works and what effects to expect from it. The reviews on Baqsimi have scared me away from trying any new meds until they have been out long enough to have reviews out from real users.

      4 years ago Log in to Reply

    Have you ever used glucagon? If so, when was the last time used it? Cancel reply

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