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    • 13 hours, 9 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 15 hours, 5 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 15 hours, 7 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 17 hours, 59 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 18 hours, 15 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 19 hours, 11 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 19 hours, 33 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 15 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 16 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 19 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 14 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 16 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 17 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 18 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 19 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 19 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 19 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 7 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
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    How many people do you know in your local community who have T1D?

    Home > LC Polls > How many people do you know in your local community who have T1D?
    Previous

    If you use a CGM, in what situations has a sensor accidentally been pulled off your body? Select all that apply and share your own in the comments.

    Next

    Do you currently use any of the following insulin pumps?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Bea Anderson

      Surprised! 7! Nephew, 3 adult,
      3 children under under 13.

      8 months ago Log in to Reply
    2. Janice B

      I belong to a Type 1 women’s group. I am blessed to know these women.

      2
      8 months ago Log in to Reply
    3. gary rind

      used to work with one but the rest I know thru our monthly meet-up.

      8 months ago Log in to Reply
    4. Jane Cerullo

      Sometimes people notice my Dexcom and start a conversation

      2
      8 months ago Log in to Reply
      1. William Bennett

        That’s often how it starts for me, too. Once in an elevator in a parking garage (“Hey, my kid has one of those”) and once on a hiking trail in New Hampshire (short sleeve shirts often lead to meeting other T1s!)

        4
        8 months ago Log in to Reply
    5. Mary Dexter

      I know there are others with T1, but I wouldn’t say I know them. Once upon a time I tried to make friends.

      8 months ago Log in to Reply
    6. Lori Lehnen

      I defined local community as my rural town, so 0. But if I extend out to my larger community ( city and suburbs), I personally know 2 with an additional 4 who I know of (relatives of friends) but I’ve never met them.

      8 months ago Log in to Reply
    7. GLORIA MILLER

      I am in the Joslin Medalist group for those of us who have survived 50 plus years. Through this group I know four in my city that has T1 for 50 plus years. I was diagnosed 66 years ago, another one was 67 years ago, 65 years ago and one lady in her upper 80s who has it had for more than 50 years.

      8 months ago Log in to Reply
    8. Liz Avery

      Worked with one, grew up with another. . . Both men

      8 months ago Log in to Reply
    9. Jeanne McMillan-Olson

      I was a Certified Diabetes Educator and Registered Dietitian so I saw a lot of type ones a lot. One of my very best friends is a type 1 and we have gone to see an endocrinologist together for more than 30 years.

      2
      8 months ago Log in to Reply
    10. William Bennett

      Always on the lookout for other members of the tribe but sightings are fairly rare. Recently moved, and the only other T1 I’ve met so far is the guy who owns/runs the Italian Ice cafe in town (kind of ironic). He’s also someone who got dx’d in his 20s, so we have that in common, though my dx was 40 years ago and his was in the last 10 yrs.

      8 months ago Log in to Reply
    11. Katrina Mundinger

      In 1994, 4 years after my dx at the age of 22, I joined a band in which 3 of us were T1! Two of us dx in their 20s, the other as a kid. We had a joke about joining our band because for a while all 7 of us was either T1D, named Jim, or dated someone named Jim!

      4
      8 months ago Log in to Reply
    12. Lawrence S.

      Currently, and since Covid started, I would say zero(0). Before Covid I knew one man with T1d, and was aware of a woman who was T1d, but I haven’t seen her in 10 years. The man who I knew passed away.

      8 months ago Log in to Reply
    13. Trina Blake

      I’ve met a few since moving to Portland OR (I knew more in San Diego – great pumpers group). If someone on a Facebook group or forum mentions they are in Portland, I reach out via messenger. I’ve met them in person and it’s lovel;y to have other tribe members. We have stepped up with the loan of a sensor, infusion sets etc when someone’s shipment is delayed. And, we are paid back in kind.

      4
      8 months ago Log in to Reply
    14. Ahh Life

      I am not sure how many diabetics qualify as a cookie taster in a cookie 🏭 factory. But probably about as many as T1D’s I know.

      2
      8 months ago Log in to Reply
    15. Melinda Lipe

      I chose 3-5, but they are members of the same local family. The father, his 2 children, and 2 grandchildren born to his daughter.

      8 months ago Log in to Reply
    16. Ernie Richmann

      Zero in my local community but many outside my local community.

      8 months ago Log in to Reply
    17. Tom Caesar

      None locally but several in the support group. Helps to realize you’re not alone in the struggle!

      8 months ago Log in to Reply
    18. Eva

      My tennis team captain has type 1.
      I also briefly joined Type One Run and I met a lot type 1 diabetics.

      8 months ago Log in to Reply
    19. Becky Hertz

      Kind of a tricky question. I’m involved with our “locals” JDRF group so have met quite a few T1D’s that way. I’ve met probably 4-5 in the wild that I call friends. I also live in a populated area.

      8 months ago Log in to Reply
    20. Janis Senungetuk

      For several years I tried to encourage and grow an effort by my CDE for a T1 support group. The healthcare organization she works for did not support it and would not allow her to use clinic or hospital conference rooms for meetings. All efforts to publicize meetings were not permitted, so after two years of her volunteer time/work to start a support group she gave up. There are established type 2 support groups funded by the same healthcare organization, but they are not welcoming to those of us living with T1.

      8 months ago Log in to Reply
    21. Pauline M Reynolds

      The only person that I know with Type 1 is my nephew who lives across the country.

      8 months ago Log in to Reply
    22. Alyne Branson

      I currently work at a place that including me has 4 T1D (of 140 employees). Feels like a high percentage and I have only worked with 1 other in the 35+ years of having T1D. My husband currently works with someone with T1D too.

      8 months ago Log in to Reply
    23. Tracy Jean

      They are all in the same support group.

      8 months ago Log in to Reply
    24. Kristine Warmecke

      Not including my family members with T1D.

      8 months ago Log in to Reply
    25. Henry Renn

      50 years ago the answer would have 6 or 7.

      8 months ago Log in to Reply
    26. Kate Kuhn

      It’s interesting, I don’t know anyone with T1D outside my family. Within my family, my Father, Aunt, Uncle, Sister, Cousin, Son and myself are all T1D. We are our own little support group!

      8 months ago Log in to Reply
    27. Carol Standish

      It’s lonely.

      7 months ago Log in to Reply
    28. PamK

      I am very open about my diabetes. I am not shy about it at all. So, people often come up to me with questions, which I answer the best I can – – without giving medical advice! This has led to coworkers and friends approaching me as well as other people who I don’t know as well. Once, when I was at work, a customer was acting funny and having seen me when my blood sugar was low, my coworker thought the customer might also have diabetes. So, they brought him up to me. I asked him if his sugar was low and he nodded. I gave him something to bring it up. So, I guess what I’m trying to say is, being open about my T1D has helped me to meet others with the disease. I’m really not sure how many I have gotten to know over the years, but for the purpose of responding to this question, I took a guess, probably on the low side.

      7 months ago Log in to Reply

    How many people do you know in your local community who have T1D? Cancel reply

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