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    • 13 hours, 29 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 13 hours, 30 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 14 hours, 21 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 14 hours, 49 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 1 minute ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 15 hours, 54 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 1 minute ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 16 hours, 23 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 25 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 16 hours, 32 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 17 hours, 57 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 13 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 16 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 17 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    How many people do you know in your local community who have T1D?

    Home > LC Polls > How many people do you know in your local community who have T1D?
    Previous

    If you use a CGM, in what situations has a sensor accidentally been pulled off your body? Select all that apply and share your own in the comments.

    Next

    Do you currently use any of the following insulin pumps?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    29 Comments

    1. Bea Anderson

      Surprised! 7! Nephew, 3 adult,
      3 children under under 13.

      1 month ago Log in to Reply
    2. Janice B

      I belong to a Type 1 women’s group. I am blessed to know these women.

      2
      1 month ago Log in to Reply
    3. gary rind

      used to work with one but the rest I know thru our monthly meet-up.

      1 month ago Log in to Reply
    4. Jane Cerullo

      Sometimes people notice my Dexcom and start a conversation

      2
      1 month ago Log in to Reply
      1. William Bennett

        That’s often how it starts for me, too. Once in an elevator in a parking garage (“Hey, my kid has one of those”) and once on a hiking trail in New Hampshire (short sleeve shirts often lead to meeting other T1s!)

        4
        1 month ago Log in to Reply
    5. Mary Dexter

      I know there are others with T1, but I wouldn’t say I know them. Once upon a time I tried to make friends.

      1 month ago Log in to Reply
    6. Lori Lehnen

      I defined local community as my rural town, so 0. But if I extend out to my larger community ( city and suburbs), I personally know 2 with an additional 4 who I know of (relatives of friends) but I’ve never met them.

      1 month ago Log in to Reply
    7. GLORIA MILLER

      I am in the Joslin Medalist group for those of us who have survived 50 plus years. Through this group I know four in my city that has T1 for 50 plus years. I was diagnosed 66 years ago, another one was 67 years ago, 65 years ago and one lady in her upper 80s who has it had for more than 50 years.

      1 month ago Log in to Reply
    8. Liz Avery

      Worked with one, grew up with another. . . Both men

      1 month ago Log in to Reply
    9. Jeanne McMillan-Olson

      I was a Certified Diabetes Educator and Registered Dietitian so I saw a lot of type ones a lot. One of my very best friends is a type 1 and we have gone to see an endocrinologist together for more than 30 years.

      2
      1 month ago Log in to Reply
    10. William Bennett

      Always on the lookout for other members of the tribe but sightings are fairly rare. Recently moved, and the only other T1 I’ve met so far is the guy who owns/runs the Italian Ice cafe in town (kind of ironic). He’s also someone who got dx’d in his 20s, so we have that in common, though my dx was 40 years ago and his was in the last 10 yrs.

      1 month ago Log in to Reply
    11. Katrina Mundinger

      In 1994, 4 years after my dx at the age of 22, I joined a band in which 3 of us were T1! Two of us dx in their 20s, the other as a kid. We had a joke about joining our band because for a while all 7 of us was either T1D, named Jim, or dated someone named Jim!

      4
      1 month ago Log in to Reply
    12. Lawrence S.

      Currently, and since Covid started, I would say zero(0). Before Covid I knew one man with T1d, and was aware of a woman who was T1d, but I haven’t seen her in 10 years. The man who I knew passed away.

      1 month ago Log in to Reply
    13. Trina Blake

      I’ve met a few since moving to Portland OR (I knew more in San Diego – great pumpers group). If someone on a Facebook group or forum mentions they are in Portland, I reach out via messenger. I’ve met them in person and it’s lovel;y to have other tribe members. We have stepped up with the loan of a sensor, infusion sets etc when someone’s shipment is delayed. And, we are paid back in kind.

      4
      1 month ago Log in to Reply
    14. Ahh Life

      I am not sure how many diabetics qualify as a cookie taster in a cookie 🏭 factory. But probably about as many as T1D’s I know.

      2
      1 month ago Log in to Reply
    15. Melinda Lipe

      I chose 3-5, but they are members of the same local family. The father, his 2 children, and 2 grandchildren born to his daughter.

      1 month ago Log in to Reply
    16. Ernie Richmann

      Zero in my local community but many outside my local community.

      1 month ago Log in to Reply
    17. Tom Caesar

      None locally but several in the support group. Helps to realize you’re not alone in the struggle!

      1 month ago Log in to Reply
    18. Eva

      My tennis team captain has type 1.
      I also briefly joined Type One Run and I met a lot type 1 diabetics.

      1 month ago Log in to Reply
    19. Becky Hertz

      Kind of a tricky question. I’m involved with our “locals” JDRF group so have met quite a few T1D’s that way. I’ve met probably 4-5 in the wild that I call friends. I also live in a populated area.

      1 month ago Log in to Reply
    20. Janis Senungetuk

      For several years I tried to encourage and grow an effort by my CDE for a T1 support group. The healthcare organization she works for did not support it and would not allow her to use clinic or hospital conference rooms for meetings. All efforts to publicize meetings were not permitted, so after two years of her volunteer time/work to start a support group she gave up. There are established type 2 support groups funded by the same healthcare organization, but they are not welcoming to those of us living with T1.

      1 month ago Log in to Reply
    21. Pauline M Reynolds

      The only person that I know with Type 1 is my nephew who lives across the country.

      1 month ago Log in to Reply
    22. Alyne Branson

      I currently work at a place that including me has 4 T1D (of 140 employees). Feels like a high percentage and I have only worked with 1 other in the 35+ years of having T1D. My husband currently works with someone with T1D too.

      1 month ago Log in to Reply
    23. Tracy Jean

      They are all in the same support group.

      1 month ago Log in to Reply
    24. Kristine Warmecke

      Not including my family members with T1D.

      1 month ago Log in to Reply
    25. Henry Renn

      50 years ago the answer would have 6 or 7.

      1 month ago Log in to Reply
    26. Kate Kuhn

      It’s interesting, I don’t know anyone with T1D outside my family. Within my family, my Father, Aunt, Uncle, Sister, Cousin, Son and myself are all T1D. We are our own little support group!

      1 month ago Log in to Reply
    27. Carol Standish

      It’s lonely.

      4 weeks ago Log in to Reply
    28. PamK

      I am very open about my diabetes. I am not shy about it at all. So, people often come up to me with questions, which I answer the best I can – – without giving medical advice! This has led to coworkers and friends approaching me as well as other people who I don’t know as well. Once, when I was at work, a customer was acting funny and having seen me when my blood sugar was low, my coworker thought the customer might also have diabetes. So, they brought him up to me. I asked him if his sugar was low and he nodded. I gave him something to bring it up. So, I guess what I’m trying to say is, being open about my T1D has helped me to meet others with the disease. I’m really not sure how many I have gotten to know over the years, but for the purpose of responding to this question, I took a guess, probably on the low side.

      4 weeks ago Log in to Reply

    How many people do you know in your local community who have T1D? Cancel reply

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