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    • 1 hour, 3 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 3 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 19 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 20 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 40 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 49 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 49 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 46 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 2 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)?

    Home > LC Polls > How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)?
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    Before making changes to your insulin management, do you check with your healthcare provider?

    Sarah Howard

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    26 Comments

    1. Bob Durstenfeld

      I’ve done all of those things in an airplane seat.

      2 years ago Log in to Reply
    2. Janis Senungetuk

      I’ve done all but change an infusion site in a variety of public places without any problems. I would not be comfortable changing an infusion set in public.

      2 years ago Log in to Reply
    3. Ahh Life

      Times are changing. And so am I. Years ago (50? – 60?), I would go to the privacy of a car to inject, trying to insure people didn’t observe me shooting up heroin or something. Nowadays, however, I will and have changed out tubing in a crowded Starbucks. I feel almost aggressively “in your face, guys!”

      2 years ago Log in to Reply
    4. Joan McGinnis

      Doubt I would change infusion/sensor sites in public but injections at restaurant yes or blood testing.

      2 years ago Log in to Reply
    5. Ernie Richmann

      My preference is to change infusion sets and sensors at home. When I was not using a cgm and before covid, I often tested for glucose at a restaurant. I Don’t think anyone ever noticed.

      2 years ago Log in to Reply
    6. Steven Gill

      Out of respect to “squeamish” people I’ll test before entering a restaurant and ask others their comfort. I’ve changed my pump’s cartridge in the van midway through the day but would prefer to change the inserts in a better environment (Friday cleaned HVAC systems at 2 homes contaminated from fires, definitely needed a shower first). I’ve always had either an insulin pen or this pump so injecting at a meal was never a big deal but with the pen I’d make a joke in case someone wondered. I’ve seen people make a scene to test/inject as if it’s a badge of honour. I detested shots of any kind (had teeth pulled with nothing) so ironic I injected 5-6 times a day, so I see no need to make others uncomfortable. The biggest compliment l want is “You don’t look/ act like a diabetic.” Unsure what folks expect but I’m not handicapped (just old any tired).

      2 years ago Log in to Reply
    7. Janice B

      My preference is to change infusion sets and CGM sensors at home. First for cleanliness second because of placement on my body. Testing blood sugar or doing a bolus or shot I am completely comfortable doing so in public. I am very discrete so most do not even know that I have done anything.

      2 years ago Log in to Reply
    8. connie ker

      It seems the diabetic is comfortable with caring for themselves in a public setting, but often times the people around the diabetic are not comfortable. I have dropped syringes in a public toliet stall, my husband was chased in an airport by security but got away. My response after 22 years of LADA, is just to say “Be thankful you don’t have to do this every day of your life”. Or if anyone shows any interest in what you are doing, make it a teachable moment. I feel most comfortable in my own home with meals I have made for myself, so this quarantine period of the last 10 months has been diabetic friendly for me. Lonely but no public settings to deal with.

      2 years ago Log in to Reply
    9. William Bennett

      Those are all different things. When I was doing injections, I had no problem with public spaces because you can do it in such a way that isn’t very noticeable. I only had someone make a comment once, and it was another T1. Finger-sticks are pretty much in that territory. Changing infusion sets/sensor sites is a whole different thing. Almost necessarily requires removing clothing, for one thing. “Are you comfortable dropping trou in public?” Not so much.

      2 years ago Log in to Reply
    10. Anthony Harder

      I feel relatively comfortable, actually closer to completely comfortable. However, I attempt to practice discretion and excuse myself to a restroom or quiet corner rather than perform these duties in the middle of a dining room or in the middle of the train station, etc.

      2 years ago Log in to Reply
    11. Kristine Warmecke

      While I prefer doing site changes at home, that isn’t always possible. Most people don’t even realize what I’ve, unless they are T1D too.

      2 years ago Log in to Reply
    12. Ken Raiche

      I’ve got to admit I’m proud of my condition wish I didn’t have it but I’ve learnt to accept and manage it. That being said I have never ever been bothered one bit from day to display my condition and what I have to do in order to survive with T1D. So if I have to test, inject, change sites for CGM or infusion in public so be it.

      2 years ago Log in to Reply
    13. Sherolyn Newell

      I’ve never had to change a pod in a public place, but I would if needed. I would just put the new one on my abdomen where it only requires slight lifting of my top. If I have to test at restaurants, I do it out of sight. I don’t care if people see, but don’t want others to have to look at blood while they are eating.

      2 years ago Log in to Reply
    14. Helen Saez Deverter

      There is no need to feel uncomfortable about keeping yourself alive, with having T1D! No one has ever given me dirty looks.

      2 years ago Log in to Reply
    15. Amanda Barras

      I have no problem checking bloodsugar anywhere. But changing whole sets I prefer privacy because I usually lift my shirt way up or have to drop my pants a bit to access the sites I intend to use. So, that’s not appropriate in public most of the time.

      2 years ago Log in to Reply
    16. Britni Steingard

      Depends a little on the situation. I don’t mind doing that stuff in public but I want to be discreet about it. I don’t like it when the strangers are really close, like when the waiter happens to deliver our drinks in the middle of an injection or when I’m crammed in next to a stranger on an airplane. As long as there’s a little distance so I can maintain the illusion of privacy, I don’t mind at all.

      2 years ago Log in to Reply
    17. Meghan Larson

      I feel comfortable with injections and testing blood sugar. But, when I was on a pump, I did not feel comfortable with infusion set changes in front of people I did not know.

      2 years ago Log in to Reply
    18. Becky Hertz

      I said relatively comfortable because if my insertion sites are in such a place I have to partially disrobe, I’d prefer to not do that in public and I’m sure the public thanks me for that šŸ˜†

      2 years ago Log in to Reply
    19. Patricia Dalrymple

      Agree with the very few comments I can see here. I use a pump and never hesitate to give insulin or check blood sugar but I am discreet. Some people don’t like the site of blood. But I would never change an infusion site in public. As someone said below, I raise my top and lower my pants. Inappropriate. Now, if I were in real trouble and NEEDED to do it, then I would. Common sense.

      2 years ago Log in to Reply
    20. Pat Reynolds

      I have no difficulty with things that can be done without showing flesh where to do so would offend the culture I’m in, or qoyl be against my culture/sensibilities. I am mindful of those with blood and needle phobias, and they to avoid distressing people.

      2 years ago Log in to Reply
    21. Mick Martin

      Although I selected “I feel completely comfortable” I am fully aware of how this might affect SOME people, and choose to carry out these tests/set changes, etc. somewhere private. I’ve been situations, in the past, where someone that I know collapsed when she saw me testing my blood glucose level, and on another occasion where someone witnessed me injecting insulin, to be asked to leave the Public House as they believed that I was ‘shooting up’ illicit drugs … even though someone that was with me attempted, in vain, to reassure the owner that I am diabetic.

      2 years ago Log in to Reply
    22. Chester Oby

      I have changed infusion sets and sensors on airplanes. No problem.

      2 years ago Log in to Reply
    23. Carol Meares

      It’ not so much about the strangers but about the filth in such places. I will give injections at the table but not in a bathroom. I don’t change sites in public place like that for my pump. I did have to do it it on a plane once in a restroom and I was fearful of contamination. I have given shots in my airplane seat quietly and unobtrusively with a pen. With a pump and CGM I do everything pretty easily. I have no problem talking with people about T1D although I used to a long time ago.

      2 years ago Log in to Reply
    24. Donald Cragun

      I have no problem testing blood sugar anytime, anywhere. But, since I put infusion sets in my leg, I’m not going to undress in front of others when I’m inserting an infusion set.

      2 years ago Log in to Reply
    25. Greg Felton

      I use a pump and CGM these days so it is rare that I need to show the diabetes. I’m comfortable in public but if I can have privacy I’ll prefer that.

      2 years ago Log in to Reply
    26. Molly Jones

      I chose “I feel somewhat comfortable” as changing my infusion sites require taking off my bottom clothing and changing my sensor sometimes require showing my colostomy. Public injections and testing BG is fine and has been done often in the past.

      2 years ago Log in to Reply

    How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)? Cancel reply

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