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    • 4 hours, 20 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I really think it just depends on the person who needs help. Some people may find it extremely useful and others may not find them of much help.
    • 4 hours, 20 minutes ago
      Lawrence S. likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I said helpful because unless they actually have first hand knowledge of your health condition they can't really know.
    • 4 hours, 25 minutes ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      Back in the 80's I was in an NIH study. But I think now my age (72) ages me out) and my A1C's (5.4-5.8 for the past 20 years or so) exclude me.
    • 4 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I am the only one in my household who has T1D, but both husband and I live with it.
    • 4 hours, 27 minutes ago
      Lawrence S. likes your comment at
      How many people in your household live with T1D?
      I always find questions like this one intriguing. I am the one and only T1D in my family, both sides, going up, down, and wide on my family tree. Then there are T1D warriors in this group (and others on social media) where the T1D with whom I'm interacting has children with T1D, parents, and aunts and uncles as well. In a sense, the data like this are suggesting more than one cause for T1D, possibly multiple conditions that result in T1D.
    • 5 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      ALL of them are forced, given a seat at my T1D "table" whether they wish to be or not. They endure my experiences, their after-effects, the events themselves. Living with us, they are unwilling voyeurs/particip[ents This appears to be a badly worded question. If you meant, does anybody living with you ALSO have the disease T1D as well, you should have asked it that way. The question you kids wrote asks a far different question, by semantic accident it appears....?
    • 5 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 5 hours, 20 minutes ago
      KCR likes your comment at
      How many people in your household live with T1D?
      I answered "1" as I have T1D. However, it could be said that if any one person has T1D, everyone in the household is living with T1D. It affects everyone in house, not just the person with it.
    • 5 hours, 39 minutes ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 22 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 22 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I fill out every survey I get and am currently participating in a phase 2 study of a new insulin. Note: I am 67 years old and I am seeing studies that allow up to age 89. Check out tektonresearch.com They have some exciting studies coming up. 😊
    • 23 hours ago
      KarenM6 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 1 day ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day ago
      John Barbuto likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 2 hours ago
      Deborah Wright likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 3 hours ago
      Alyne Branson likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 4 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I participate every time I find one that wants me.
    • 1 day, 5 hours ago
      Marthaeg likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      If you have never participated in a diabetes research study, what stops you? Select all that applies to you.
      I chose Other as the correct choices were not available. N/A — did not have I HAVE participated in diabetes research studies.
    • 1 day, 21 hours ago
      eherban1 likes your comment at
      How would you rate your overall health?
      I just have to say: Kudos to you. Your story is amazing. Congratulations and while it is simple to write this, I can only imagine the dedication, discipline, and hard work it took.
    • 1 day, 22 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      No opinion.
    • 1 day, 22 hours ago
      Derek West likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      I have never felt the need to see a mental health professional who has an understanding of lifelong health conditions. I've been T1D for 55 years, but no significant additional diabetic related issues, and have suffered no mental health issues.
    • 1 day, 22 hours ago
      Kathy Hanavan likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 2 days ago
      Pam Hamilton likes your comment at
      In your opinion, how helpful is it to see a mental health professional who has a deep understanding of lifelong health conditions?
      Seeing a mental health professional is essential to T1D’s when needed if you want to maintain your healthy relationships with those you love and not burden them with your difficulties. You may not realize how your intermittent anxiety or diabetes distress is affecting others. It is normal to be overwhelmed sometimes with things you cannot control.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How would you rate your overall health?
      My first thought is always Excellent. My A1C hovers around 6.2, TIR around 85%. I do yoga, walk an hour at least 3 times per week, garden, keep my own house very clean, eat pretty healthy, weight is below average, BP excellent. Doctors say my eyes and feet deny I have diabetes. But then, I am insulin dependent, so I always bring it down one notch. Oh! To be able to eat gelato everyday. But even with insulin, there are too many other factors that keep me on the straight and narrow. I will get vertigo if I up my sugar/sweets intake.
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    Before making changes to your insulin management, do you check with your healthcare provider?

    Home > LC Polls > Before making changes to your insulin management, do you check with your healthcare provider?
    Previous

    How comfortable do you feel giving injections, testing blood sugars and/or changing infusion/sensor sites in front of strangers (ex: at a restaurant, airport, on public transportation, etc.)?

    Next

    In your experience, what are the biggest barriers to accessing diabetes-related medical care? Select all that apply.

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Ahh Life

      I pull the pin on the grenade I hold. I pull the strap on the parachute I use. I buckle the seat belt on the cars I drive. Why shouldn’t I put the changes in insulin doses? It’s my body. It’s my life. The experts and professionals have been advising me for 70 years. Sometimes their wisdom rubs off, even on us slow learners. ( ͡°👅 ͡°) ( ͠° ͟ʖ ͡°) ( ͡°👅 ͡°)

      4 years ago Log in to Reply
    2. Molly Jones

      I see my endo my often now and wait to discuss changes with her. I used to make these changes on my own more often.

      4 years ago Log in to Reply
    3. Grey Gray

      Self management… real time decisions… Too many variables to wait for a doctors opinion… sometimes I tell him about it. My body. My pump. If it weren’t for needing scripts I would probably never see the doctor.

      4 years ago Log in to Reply
    4. Janis Senungetuk

      Sometimes, depends on how drastic a change. I’ve only been using the Control IQ app for 5 months, so right now I hesitate to make any big changes without first asking my CDE what she thinks. Before starting with Tandem last June I often altered basil rates on my Animas Vibe on my own.

      4 years ago Log in to Reply
    5. Michelle Tepley

      Never.

      4 years ago Log in to Reply
    6. Patricia Dalrymple

      Agree with everyone: sometimes I do and sometimes I don’t consult with them. This really annoys me: they ask for my pump, make a change based on my numbers, hand it back to me with no comment. That pump is part of me. They wouldn’t touch me without telling me what they were going to do. Don’t grab at my pump. Tell me what you are doing and why. Sometimes they change things and I change them back. Funny part about that is they never seem to notice.

      4 years ago Log in to Reply
    7. HMW

      I make adjustments to my insulin to carb ratios as needed. Sometimes my endocrinologist makes suggestions when I see her. I let her tell me how to adjust my insulin sensitivity factor if needed.

      4 years ago Log in to Reply
    8. Amy Nance

      All on my own, my life and my body. If I contacted my diabetes specialist with every change I make, she would have time for her own life.

      4 years ago Log in to Reply
    9. Gene Maggard

      I do all the changes myself. I meet with my endo four times a year (apparently required by Medicare), and he and I discuss my TIR, my A1C, and he always asks me if I’ve made any changes in my basal and bolus settings. He sometimes makes suggestions based on my answers, but otherwise leaves it to me to make my own decisions.

      4 years ago Log in to Reply
    10. Chip Brookes

      In the legal profession there is a saying: “A person who represents himself has a fool for a client”. Treating diabetes yourself is analogous to the above. I regularly submit my data to my Endo so that he can make changes necessary.

      4 years ago Log in to Reply
    11. connie ker

      It depends on what the changes are before checking or not checking with your Drs. If you want to change insulins, or pumps, or size of syringes or medications – you need a script written by your health care provider. If it is a simple correction, you can do that without making an inquiry. Live and learn but controlling diabetes is a team effort for sure. I always see my Dr. with questions written down before the apt.

      4 years ago Log in to Reply
    12. Patty Harris

      I’ve only just started adjusting my basal rates up and down as they just don’t seem right since my stomach is emptying slower than it use it. I NEVER take insulin before a meal anymore as it seems to result in very low blood glucose up to an hour after eating. My endo just doesn’t seem to understand why.

      4 years ago Log in to Reply
    13. Britni Steingard

      Depends on the severity of the change. Changing my doses by 10-20%? I’ll do that on my own. Switching from MDI to pump or vice versa? I check with my doctor first.

      4 years ago Log in to Reply
    14. Jose Almodovar

      My Endo and I are on very good terms. Yes, I can make changes to my Basal rates without conferring but there are limits we have agreed upon.

      4 years ago Log in to Reply
    15. Becky Hertz

      I make small changes based on guidelines I’ve been given from my endo. I live with this 24/7 so should have some idea of what to do.

      4 years ago Log in to Reply
    16. Pat Reynolds

      I spend a _lot_ of my life in diabetes management. I have a PhD, so I know research … And the time involved … So I know that my doctor has both the skills and time to do the leading edge research (or at least follow it) which requires a knowledge and access to.paywalled resources that I don’t have. So I use him for that. The diabetes community is great for real.life experience of new tech, particular situations, etc.

      4 years ago Log in to Reply
    17. Stang777

      From day one of having this I have made my own adjustments as I have had to. If I had not made the changes on my own from the beginning is there is no way I would still be here as they started me off on way too much insulin and never had me call them with my levels or anything else. I learned to figure out what I need and just tell the doc at my appointment how much insulin I need the script written for. I have done well with it so only need to see my doc once a year to get scripts. I have gone in once or twice a year between visits for an A1c test but otherwise, only need the doc to write the scripts, which is all my appointments with them is for. In order to have good control, changes need to be made at the time the shots are being done, not continuing to do what doesn’t work well until one can have an appointment with a doc who is just guessing at how much one should do and setting a set amount to be done with no consideration for all the other factors that can go into making the determination of how much insulin one needs at various times due to various factors that are present at the time. In my opinion, when it come to diabetes management, docs are only needed for writing scripts.

      4 years ago Log in to Reply
    18. Sasha Wooldridge

      Just like many others have mentioned, I only use my doctor for prescriptions, authorizations, and tests. I had a good endo that would look at my information and discuss my BGs just to see if I needed any guidance, but he retired last year. Still on the hunt for a new endo that will write the prescriptions I need rather than what they decide I need.

      4 years ago Log in to Reply
    19. Daniel Bestvater

      I make all of my own insulin type and adjustments decisions. Things change day to day so it is important to be able to quickly adapt with basal and bolus changes for optimum control.

      4 years ago Log in to Reply
    20. Sherolyn Newell

      I only make changes occasionally and only after a couple of days of the same unexpected results. For instance, if the regular bolus leaves me high or low for a couple days in a row, I will adjust. Usually, I might have one bad day, but the next I go back to normal with no adjustments.

      4 years ago Log in to Reply
    21. Cheryl Seibert

      I usually don’t mess with basal patterns unless I review it with my endo. However, he is very open to my self-management. I will tweak carb ratios and frequently use the extended bolus for tighter control. Much of the spikes result from miscounting carbs and/or hidden carbs in home-prepared foods (I take care of an elderly relative and her food served is often made at home or by others). It can be a guessing game! LOL!

      4 years ago Log in to Reply
    22. Carlene Vaitones

      I do inform my doctor when I make a change, with a data sheet of BGs and notes to explain why I made a small change. I would consider it irresponsible to wait for a doctor to make a “hit or miss, trial and error” suggestion instead of taking care of myself.

      4 years ago Log in to Reply

    Before making changes to your insulin management, do you check with your healthcare provider? Cancel reply

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