Every year, many people engage in volunteer service in honor of the Dr. Martin Luther King Jr. Day of Service. Have you ever volunteered with a diabetes-related organization?

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- 1 hour, 20 minutes ago
  
  Jeremy Hanson likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
- 3 hours, 13 minutes ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
- 3 hours, 17 minutes ago
  
  ConnieT1D62 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
- 4 hours, 53 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 4 hours, 55 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 4 hours, 55 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 4 hours, 57 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 4 hours, 57 minutes ago
  
  Janis Senungetuk likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 5 hours, 6 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 5 hours, 7 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 5 hours, 8 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 5 hours, 9 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 5 hours, 9 minutes ago
  
  KarenM6 likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yeah. Totally agree! This is totally unnecessary and extremely annoying.
- 5 hours, 14 minutes ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Why isn't going to the bathroom not on this list?
- 5 hours, 18 minutes ago
  
  Wanacure likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 5 hours, 34 minutes ago
  
  TEH likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
- 5 hours, 57 minutes ago
  
  Steven Gill likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  My pump, "I need to BG! I need to BG!" Such a cry baby it is!
- 6 hours, 51 minutes ago
  
  Robin Melen likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 7 hours, 38 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 7 hours, 40 minutes ago
  
  Mick Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
- 8 hours, 5 minutes ago
  
  Anneyun likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 8 hours, 46 minutes ago
  
  Sue Martin likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
- 9 hours, 18 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  I get a notice of high glucose levels that occurred several hours ago!! WHY?
- 9 hours, 19 minutes ago
  
  T1diabetic likes your comment at
  When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
  The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
- 9 hours, 40 minutes ago
  
  Velika Peterson likes your comment at
  Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
  I stopped using those sites and paid more attention to rotation of available ones.
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Every year, many people engage in volunteer service in honor of the Dr. Martin Luther King Jr. Day of Service. Have you ever volunteered with a diabetes-related organization?

How many nights in the past week has T1D disturbed your sleep?

Sarah Howard

Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

11 Comments

Linda Murphy

I would like to help others who are adapting to being diabetic or not comfortable with the equipment, but not sure I’m allowed since I’m not a nurse or diabetes educator.

2 years ago Log in to Reply
Chris Deutsch

I volunteered with the local chapter of the ADA for many years, but it was not in response to M. L. King Day.

2 years ago Log in to Reply
Janice B

I have volunteered before but not specifically for Martin Luther King’s birthday.

2 years ago Log in to Reply
Mick Martin

The volunteering I’ve done was based on Local Diabetes Support Group. I have, many years ago, raised money for Diabetes-Related Charities as I used to run marathons and decided that this would be a worthwhile cause … nothing at all to do with Dr. Martin Luther King, Jr. however. 😉

2 years ago Log in to Reply
Richard Vaughn

I volunteered for the research being done on long term type 1 diabetics at the Joslin Diabetes Center in Boston. I have participated there on two occasions, and will do so again.

2 years ago Log in to Reply
Lorri McLuckie

I attended a meeting with Congressman John Dingell along with the local JDRF group to speak to him about my lifelong journey of 50+ years with Type 1. I have also walked in several JDRF fundraising walks.

2 years ago Log in to Reply
William Bennett

Pro-bono admin for a prominent site in the Diabetic Online Community. Does that count?

2 years ago Log in to Reply
Ernie Richmann

Yes- JDRF, Camp Ho Mita Koda- a camp for diabetic children and Lions Club. Many people may not know that Lions Club provides grants for diabetes related projects. Our Lions district was awarded a $60,000 grant to renovate the cabins at Camp Ho Mita Koda. Our Lions JDRF walk team raised over $7000.

2 years ago Log in to Reply
Kristine Warmecke

Yes the ADA first with their Bike-A-Thon, then local walk. I volunteered a few summers as a RN at Camp E.D.I.

2 years ago Log in to Reply
Virginia Barndollar

Yes I volunteer at the local ADA and Camp Courage (ADA camp for kids with T1DM). The week at Camp Courage is one of my best weeks of the summer.

2 years ago Log in to Reply
Patricia Dalrymple

Yes, many years ago but we met to organize at a pizza parlor and they served pizza and real coke and I was like – they don’t get it. I used to love Pepsi but I haven’t had one since I was diagnosed 20 years ago and am healthier for it. But I do contribute.

2 years ago Log in to Reply