Jeannie Hickey – T1D Exchange

Activity
- 8 months ago
  
  Carolann Hunt has commented in the same post you commented in :
  If you use a CGM, have you ever used expired sensors? If so, did you notice any issues with the sensors?
  Sensors can expire but an expired transmitter does not work right, those you have to pay attention to.
- 8 months ago
  
  Rex Franklin has commented in the same post you commented in :
  If you use a CGM, have you ever used expired sensors? If so, did you notice any issues with the sensors?
  I am more likely to run out of sensors than have expired sensor.
- 8 months, 1 week ago
  
  Patricia Dalrymple has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  When I was first diagnosed 23 years ago I went to a planning meeting for a run/walk. They served real coke and pizza. Never went back.
- 8 months, 1 week ago
  
  Savanna Vance has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I have been a camp counselor for the ADA at a camp for kids with diabetes. I have also volunteered at JDRF One Walks and was an intern at the JDRF Advocacy Office
- 8 months, 2 weeks ago
  
  Bill Marston has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  Spectacular efforts & accomplishments, eherban1 wherever you are! Now you might help get Medicare’s $35/month insulin copay to apply to pump users. Ack!! I learned today that it doesn’t consider pump-delivered insulin to qualify under the brand new 2023 bill’s cap on copay!!! Impossible to imagine how IBX Keystone65HMO Basic Rx had their lawyers find that ‘loophole’ in the federal law! Just one of the grotesque idiocities that insurance layers over & through its plans IN CONTRAVENTION to what was indisputably the intent of Congress & the President – to cap the diabetic’s out-of-pocket spending for insulin. Here in Philly, I’ve become infuriated & expecting to put in my first ever volunteering as a “diabetes lobbyist”!
- 8 months, 2 weeks ago
  
  Bill Marston likes your comment at
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  57 years wt T1D. Have volunteered 19 years with Diabetes Youth & Families camps (camp nurse for the 2 month season) & Dogs4Diabetics since it started in 2004. Also several Zoom support groups in the SF Bay Area. I find it invigorating to have a Diabetes Community.
- 8 months, 2 weeks ago
  
  James Cheairs has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  With the release of DIY Loop 3.0, I can customize how much insulin is injected as part of the Omnipod pod change.
- 8 months, 2 weeks ago
  
  Bill Marston has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  Clinical research is important across the health care industry – it is how we have all the things we count on for our personal health care: appropriately educated and practice-tested physicians, nurse, technicians; medications & therapeutics; diagnostic criteria, identification, treatments et al; the entire range of devices from lab analyzers, thru ambulatory sensors/monitors, wearable/portable maintenance systems like pacemakers, insulin infusion pumps & continuous glucose monitors – just to skim the massive depth of what we all benefit from. One way that they all come to us is via human clinical trials. I have volunteered as a patient in a handful of such trials.
- 8 months, 2 weeks ago
  
  PamK has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I have also volunteered for the walks/runs and the Gala.
- 8 months, 2 weeks ago
  
  PamK has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I was a "mentor" for JDRF before they had mentors and were still called JDF. I had been helping out in the office near my home and after listening to me on the phone the director asked if I would be interested in speaking with newly diagnosed T1D's who had questions. I said, "Sure!" and so I started. A few years back I called my local chapter (I have moved, so new locale) to offer my help. I was told that this position is now called a mentor. Guess I was one of the firsts! :-)
- 8 months, 2 weeks ago
  
  Rebecca Jervey has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I sometimes think maybe I volunteer too much... but I can't imagine not doing so! I am on Camp Nejeda's walk-a-thon committee, I volunteer in the adult programming of the Children with Diabetes Friends for Life conference, I help moderate the Loop and Learn facebook group, I show up to help at local JDRF and ADA galas, walks, and rides. Diabetes is a huge part of my life and I like giving back so volunteering is a very natural way to do that!
- 8 months, 2 weeks ago
  
  lenglish@cimginc.com has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I work with DiabetesSisters! Love meeting with women who have either Type 1 or 2 and supporting/helping them on their diabetes journey!
- 8 months, 2 weeks ago
  
  Claude Laforest has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I figured after 36 years that, as a T1D, I needed a different approach than T2D. I got involved in a Québec association dedicated to decrease our mental load, which means to address any obstacle that stands in front of our physical and mental health. 70% of DT1 patients don't get below an average 8.5 mmol, T1D is still too complex to avoid related complications.
- 8 months, 2 weeks ago
  
  Dawn Adams has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  Yes. As a volunteer with DiabetesUKNI I present my lived experiences of having T1D to undergrad pharmacists and midwives; speak to people at agricultural shows about life with diabetes including signs, symptoms, challenges and peer support; also help develop peer support programs and social meet ups.
- 8 months, 2 weeks ago
  
  Steve Rumble has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  Years ago, while in college, I volunteered with a local chapter of the American Diabetes Association. Mostly involved with fundraising activities.
- 8 months, 2 weeks ago
  
  Virginia Barndollar has commented in the same post you commented in :
  Have you ever volunteered with a diabetes-related organization? Share more about your experiences in the comments!
  I have been a volunteer at our Pittsburgh chapter of the ADA, every year the ADA has a week long camp for kids with T1DM. I volunteer on the medical team and I can truly say that it is one of my favorite weeks of the summer.
- 8 months, 3 weeks ago
  
  Andrea Hultman has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  Usually experience a decline in sensor glucose after a site change. If it rises, that most often indicates a bad site, and lo and behold, a bent cannula.
- 8 months, 4 weeks ago
  
  Katie Craft has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I always experience a rise after a site change, and have started using Afrezza inhaled insulin to combat this once my bg reaches 200 after a site change. Brings it right down. Cannot take it before reaching 200 or I go low.
- 9 months ago
  
  Leona Hanson has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I've never noticed a big rose when changing my tubing it takes me only maybe 2 min. To change my tubing really not much of aa rise there is
- 9 months, 1 week ago
  
  Kristen Clifford has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  More often, I have a drop in my BGs after changing sites.
- 9 months, 1 week ago
  
  PamK has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I have noticed a slight rise in my blood sugar levels an hour or two after a site change. I adjusted my cannula fill setting from 0.5 to 0.7 units. This seems to take care of it!
- 9 months, 1 week ago
  
  Linda Zottoli has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I use 0.8 instead of the directed 0.7 for the cannula fill, and also bolus in the next few minutes -- for food (or occasionally correction), whether I had intended to eat or not (usually I'm changing the site before breakfast, so it isn't an issue). In the past, when I've noticed a problem with a rise after putting in a new set, it's always been when I didn't bolus for a while.
- 9 months, 1 week ago
  
  C B has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I always bolus for a site/pod change to avoid the rise
- 9 months, 1 week ago
  
  Adam Heath has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  We often give Adam a corrective SQ injection while waiting for the new site to work completely. The endocrinologist suggested trying inhaled insulin for these corrections, saying there would be less risk of rebound lows/stacked doses. Adam has Down syndrome and he is not great with the inhaler despite practice so I’m never sure how much insulin he’s getting. Other suggestions?
- 9 months, 1 week ago
  
  ELYSSE HELLER has commented in the same post you commented in :
  If you use an insulin pump, when changing your pump site, do your blood glucose (BG) levels rise afterwards? If so, please share in the comments if you take any steps to adjust for the rise when changing your site.
  I often go low after a pod change, not high.
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