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  • Activity
    • 5 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 5 hours, 4 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 5 hours, 5 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 6 hours, 19 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 24 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 6 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 6 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 6 hours, 25 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 6 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 6 hours, 29 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 6 hours, 30 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 6 hours, 51 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 6 hours, 52 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 7 hours, 11 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 7 hours, 20 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 7 hours, 20 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 7 hours, 21 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 7 hours, 21 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 7 hours, 21 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 7 hours, 21 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 7 hours, 22 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

    Home > LC Polls > Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

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    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    39 Comments

    1. Cheryl Seibert

      Puberty was very hard for me back in the 70’s. No CGMs, no insulin pumps, no blood sugar meters. It is very different today for young people with T1D. I would recommend to not try to hide your condition. Be open with your friends and teachers. It takes a big weight off your shoulders and allows you to be more yourself. I found the more I tried to hide my condition more the bullies picked on me. Once I quit hiding and started focusing on the other areas of my life, puberty was a much better experience. Build a good support network of friends and teachers. Teachers who support you with T1D are valuable in navigating some of the challenges of school administrations.

      8
      8 months ago Log in to Reply
      1. Greg Felton

        Good point. I have no idea what my BG numbers were at that age, because there were no pumps, CGMs or meters. And being open about T1 would have helped me.

        1
        8 months ago Log in to Reply
      2. cynthia jaworski

        Same for me, but in the 1960s. In a way, there was less to worry about because there were so few actions we could take. awareness was the only monitor available. I was, perhaps, lucky that I was dx at 10, so that by the time puberty set in, I was pretty well accustomed to being t1.

        2
        8 months ago Log in to Reply
    2. Gary Taylor

      A few days ago, a poll asked the age we were diagnosed with T1D. From those responses, many of us were past puberty when diagnosed. I was 18 1/2.

      8 months ago Log in to Reply
    3. Steven Jerdee

      When you start working when you turn 16. If the job requires lifting or is physical, you’ll not need as much insulin as you will be burning off the sugar. Sounds simple now, but I didn’t adjust mine and was having insulin reactions everyday.

      3
      8 months ago Log in to Reply
    4. Stuart Pelcyger

      DX as an adult

      8 months ago Log in to Reply
    5. Kristen Clifford

      I wasn’t diagnosed until my early 20s, so I didn’t have to deal with T1D and puberty at the same time. Puberty was hard enough on its own, so I’m grateful for that.

      1
      8 months ago Log in to Reply
    6. Kevin Stephani

      I wasn’t a T1D until the age of 45 so can’t really say. I am glad I wasn’t back then as I didn’t handle authority well or make the best decisions back then despite knowing better

      1
      8 months ago Log in to Reply
    7. Tb-well

      The biggest thing with puberty and diabetes is that your blood glucose numbers will be crazy and no it won’t make any sense, that is just how it works.

      9
      8 months ago Log in to Reply
    8. Greg Felton

      Looking back, I think the social pressures were tougher on my diabetes management than any hormonal/physiological changes during adolescence. That is, partying and drinking, etc, were not great decisions as I tried to fit in with peers. My advice to my younger self and teens today is to never forget T1.

      1
      8 months ago Log in to Reply
    9. Drina Nicole Jewell

      Fortunately I figured out our first wndo was a lying POS and found a fabulous one shortly before we had to deal with puberty. Sure we struggled with the constant changes but our end of made it less stressful and helped us just kinda relax and roll with it.
      Puberty is hell on earth for everyone involved. Child and parent and care givers. She taught us, do our best but don’t stress it. And that was for us the hardest thing to do but in the end the best piece of advice. My oldest levels are settling down and my youngest is just now starting with puberty and while I’m not ready I am absolutely ready. The new endi told us diabetes has no rhyme or reason. Some days it’s just gonna do what it’s gonna do and just roll with it. We’ve been given the tools to handle it. We know the signs to look for when ER or urgent care is necessary. We know when we can handle it at home. We know when to call the doctors. Let me add, I was diagnosed at 18 soooo I have plenty of experience…

      3
      8 months ago Log in to Reply
    10. AnitaS

      I was pretty up-front with my friends about being diabetic when in my teens (in the 1970’s), but I do know I once felt awkward about asking a class-mate for some candy that he had when I felt myself going low. Don’t be afraid to explain your condition and ask for help if such a situation happens and you run out of carbohydrate-filled treatments.

      7
      8 months ago Log in to Reply
    11. Bea Anderson

      No experience, but interested in others response. Thanks.

      8 months ago Log in to Reply
    12. Don P

      puberty today compared with my life 70 yrs ago is NO comparison, back then the medical community was years behind the times as of todays standards !!

      4
      8 months ago Log in to Reply
    13. kflying1@yahoo.com

      I was “lucky” – didn’t develop T1D until my mid 50s so I got nuthin useful to offer kids from my own experiences.

      1
      8 months ago Log in to Reply
    14. Kristine Warmecke

      I wish I’d have known that it wasn’t my fault when my hormones took over and blood sugars went haywire. I beat myself up bad when this would happen and even more when my parents would look at my Clinalog book and question me about it. As hard as it still is, giving myself some grace for thing’s beyond my control is the best way to deal with it.

      7
      8 months ago Log in to Reply
      1. Lawrence S.

        Excellent advise. Thank you.

        2
        8 months ago Log in to Reply
    15. Janis Senungetuk

      In the early 60’s the tech wasn’t available to do much more than urine testing and lots of guessing. My message to kids today is to keep honest communications open with your parents and healthcare providers, respect is a two way street. Try to start each day fresh and do the best you can without the weight of yesterday’s problems.

      4
      8 months ago Log in to Reply
      1. Teri Morris

        Love that!

        2
        8 months ago Log in to Reply
    16. Stephen Woodward

      CGM and CGM data…and patience.

      1
      8 months ago Log in to Reply
    17. GiGi

      I was diagnosed in 1972 when I was ten years old. T1D management was very simple then compared to today because we didn’t have glucose meters, pumps or CGMs. I took NPH and Regular mixed together before breakfast and before dinner, no carb counting. My Dr didn’t want to force the ADA diabetes diet on me. He told my mom that I’d do it on my own when I was mature enough. He was right! At 15 I started doing the exchange diet. Then it got easier in my 20s when Richard Simmons’ Deal a Meal cards came out.

      My advice to today’s teenagers is:
      * Learn all you can about T1D
      * Learn all you can about living a
      healthy lifestyle
      * Own your T1D. Learn all you can
      about managing your blood sugar in
      all situations because you might not
      have access to a Dr in some
      situations.
      * Enjoy life!

      4
      8 months ago Log in to Reply
    18. ELYSSE HELLER

      I thought I had to take insulin if I were to have a couple of beers with people because beers have carbs. This almost killed me due to a hypoglycemic event. Also, don’t be embarrassed because you are a diabetic. It is absolutely nothing to be embarrassed about; being a type 1 diabetic is simply the hand that we have been delt. Learn about the disease and how to manage it. Be strong and carry on.

      2
      8 months ago Log in to Reply
    19. Becky Hertz

      I was diagnosed after puberty at age 14.

      8 months ago Log in to Reply
    20. Bob Durstenfeld

      Puberty was the only time I have ever been hospitalized for T1D. It came my senior year of High school and the endo was worried about the extreme insulin resistance and high insulin load required. This was 1977. Before CGM, PUMPS, and BG meters, so rheu were drawing blood every two hours (which got old) to see what was going on. The positive outcome was adoption of early Carb Counting, using a system called TOTAL AVAILABLE GLUCOSE.

      2
      8 months ago Log in to Reply
    21. Joan Fray

      1962. I didn’t know much about it. My dad, a pediatrician, was Type1, so I pretty much followed his example. One shot in the morning, eat healthy meals, and forget about it until the next morning. Go about your day like everyone else. No testing, apple juice if I went low. Rinse and repeat until I left home for college. I guess my words to a teenager would be : “Don’t obsess about it.”

      4
      8 months ago Log in to Reply
    22. lis be

      I would say try to have as much support as possible, a great friend, family member, doctor or counselor. puberty is hard, but 300% harder with diabetic sugar swings. And other teens may not understand. it’s hard to be a teen!

      3
      8 months ago Log in to Reply
    23. Jim Cobbe

      I knew nothing about T1D when I was going through puberty, and had no reason to know anything until I was diagnosed in my late 20s (47 years ago)

      8 months ago Log in to Reply
    24. Jennifer Wilson

      Keep a log of when BG levels start to change just before, during, and just after your period. That will help you communicate the noticeable changes to your doctor, who can then help you adjust your insulin to keep the BG levels more stable. My levels tend to run higher and there is more insulin resistance, so the doctors recommend a slight % increase, but you need to know how your levels change through the day to see when the adjustments need to be made.

      2
      8 months ago Log in to Reply
    25. Mick Martin

      I’m sorry, but I can’t inform you of my experience of having Type 1 during puberty as I didn’t develop it until the age of 22. What I can, however, advise is that you TRY to follow the guidelines advised by your Diabetes Support Team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … as they have, in all likelihood, come across diabetes patients that have developed diabetes-related complications.

      Complications come in a whole range of existences, and tend to ‘creep up on you’. i.e. they’re not normally sudden. They develop over a period of months or years, and sometimes decades.

      Try to think of your future life and how you would like it to be, NOT about how life has already dealt you a ‘poor hand’. Things CAN get worse if you don’t take a grip on the realities.

      I wish you all well, and truly do hope that you don’t succumb to diabetes-related complications.

      1
      8 months ago Log in to Reply
    26. BOB FISK

      I was a teenage diabetic back in the 60s, when HGM was just a dream. As a result, I was constantly living in the insecurity of an imminent low BG or a high glucose level. The tools now available for monitoring glucose levels are unbelievably valuable, so don’t ignore them even though it might seem like a bother.

      2
      8 months ago Log in to Reply
    27. Stephanie Cruickshank

      Nobody every told me that your menstrual cycle affects blood sugar levels

      1
      8 months ago Log in to Reply
    28. Teri Morris

      We didn’t have much money. I didn’t feel a part of anything. I wish I’d forced myself to play sports so I could have felt proud to be on a team. It would have given me something that I couldn’t find in food.

      2
      8 months ago Log in to Reply
    29. Meghan Larson

      Don’t give up and toss blood sugar management out the window. I did and it did not work well for me! I think now there are so many resources available to help with burnout. There are so many groups online and in person that offer support for the various situations that diabetics can experience. Facebook groups, podcasts, videos, all of these have helped me so much in my adulthood as they have developed!

      2
      8 months ago Log in to Reply
    30. Wanacure

      Let your school nurse, teachers and at least one trusted friend in each class know to identify low bg and which pocket or backpack compartment has sugar. One good thing about high testosterone levels: they can motivate you to exercise. In my case buying a 110 pound barbell set from Sears Roebuck and selecting a good book on safely weightlifting and keeping a record of my progress.

      1
      8 months ago Log in to Reply
    31. Mary Ann Sayers

      As a teenager, I thought “This won’t hurt me”, maybe not right away, but it affects your attitude in thinking your mind is stronger than the disease you have! Your body can’t handle it without you taking control of your own care!!!

      1
      8 months ago Log in to Reply
    32. PamK

      Blood sugar levels will vary as your hormone levels change. Don’t stress over this. It is not your fault! It is normal!

      1
      8 months ago Log in to Reply
    33. Randell Cole

      I don’t have a response to this

      8 months ago Log in to Reply
    34. Andrea Hultman

      I wish providers had known to tell me how fluctuating hormones throughout the month can affect blood sugar levels and the body’s responses to attempts to control the wide swings of blood sugar changes. I wish providers had known to evaluate me for endometriosis and adenomyosis. I had excruciatingly painful periods for 30 years until I had all my reproductive organs removed because of endometriosis and adenomyosis. These two conditions greatly impacted my BGs and BG management because they cause a lot of inflammation.

      8 months ago Log in to Reply
    35. Brad Larson

      My endocrinologist (the best), told me after 1-2 years of his training, that I would do well because “You have accepted diabetes .” I did not fight the diagnoses. Now in my 53rd year.

      7 months ago Log in to Reply

    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty? Cancel reply

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