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    • 1 hour, 2 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 53 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 59 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 2 hours, 59 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 1 minute ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 2 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 3 hours, 10 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 16 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 3 hours, 17 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 19 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 35 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 35 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 36 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 37 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 55 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 56 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 58 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 28 minutes ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 42 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 50 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 53 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 5 hours, 16 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Home > LC Polls > How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.
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    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

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    19 Comments

    1. Carolann Hunt

      You can explain it over and over and they still choose to not understand. It’s up there with understanding vaccines.

      6
      4 months ago Log in to Reply
    2. M C

      As it doesn’t impact them directly/personally, they don’t care to know or understand anything about the condition…. most don’t even know/remember that I have T1D. Those who do ‘know’ remain blissfully ignorant. Such is life.

      3
      4 months ago Log in to Reply
    3. Lawrence S.

      Unless they are around a T1D diabetic most of the time, they don’t get it. My relatives know that I am a diabetic. Most don’t know that there is a difference between Type 1 and Type 2. If it is not an immediate part of their lives, they just don’t think about it. I have heard numerous times when I experience a low blood sugar around them, “do you need insulin?” They want to help, but they don’t know what to do.
      Regarding my pump, they know that it pumps insulin … that’s about it.

      4
      4 months ago Log in to Reply
    4. Jane Cerullo

      Bahaha some still think you take insulin for a low. And don’t start me on difference between type 1 and 2. Always telling me what study they read that will cure me.

      5
      4 months ago Log in to Reply
    5. Barbara Bubar

      As a very long-term person with Type 1 and with the addition of both a nephew and a great nephew years later with Type 1 AND a brother-in-law with Type 2, the entire subject of diabetes has been covered in great detail for many years with all of the members in my extended family–up, down and sideways!!!.

      4 months ago Log in to Reply
    6. Ahh Life

      Cruise control / autopilot. Isn’t that what everyone has in their cars and F-22 fighter jets?

      That is the assumption made about tSlim X2 control IQ God-perfect algorithms. Friends, relatives, and even my wife assume now that life is perfect. Oh, well. ā”( Ķ”ā›ā€ÆĶœŹ– Ķ”ā›)ā”›

      1
      4 months ago Log in to Reply
      1. Elissa Macher

        Same with me.

        4 months ago Log in to Reply
      2. Wanacure

        One of the critical computer models that was supposed to predict hurricane Ian is baffling meteorologists according to one of the TV news broadcast station I’m watching on 7 Oct 2022.

        4 months ago Log in to Reply
    7. Ernie Richmann

      To be fair I have limited knowledge of the various conditions, medications, and treatments of others in my extended family or of my friends and acquaintances. For those who are interested, I am happy to offer information about types of diabetes, the role of insulin, healthy life style choices, and more.

      3
      4 months ago Log in to Reply
    8. Elissa Macher

      Most of my relatives think that a pump IS an artificial pancreas that never needs to be touched.

      4 months ago Log in to Reply
      1. Karen Newe

        This is one reason why I do not like that term.

        4 months ago Log in to Reply
    9. Janice Bohn

      Sad but most of my extended family do not understand anything about T1D

      4 months ago Log in to Reply
    10. Liz Avery

      Even my siblings (56 year T1D) think I fake it when I experience a low and need to eat. That is the jealous mindset of ā€œLiz always gets her wayā€. Grow up.

      1
      4 months ago Log in to Reply
    11. AnitaS

      I have T-1, but even my type 2 diabetic relatives are unaware of some of the differences between types 1 & 2. And some of the relatives who understand diabetes fairly well still don’t realize I can go for hours without eating because the pump helps, but they still think I have to be on a strict eating schedule. Like some other person noted, I don’t know all about others’ diseases, so why do I expect them to know all about my disease? Heck, just the other day when my cgm beeped, my mom offered me a hard boiled egg. My father would have known I needed something like juice.

      2
      4 months ago Log in to Reply
    12. Mary Dexter

      Some think they know about my diabetes, but the knowledge makes them uncomfortable, so they avoid me. They don’t visit and rarely call me. I can forgive them. The doctors on whom I must rely I am less forgiving. I should not have to keep correcting their changing my diagnosis back to T2, nor should I endure their pompous explanation of the two types (T1 is little kids, etc.) I shouldn’t have to repeatedly fight for continued access to insulin and CGM. Switching doctors would do me no good. All the doctors in this town are in lockstep and I am labeled the problem.

      1
      4 months ago Log in to Reply
      1. Karen Newe

        So sorry you are struggling with your doctors.

        1
        4 months ago Log in to Reply
    13. Molly Jones

      As I have three members of extended family in the medical field, a few of them understand it quite well. The others are ignorant as I am of many conditions myself.
      Since only half a percent of the population has this type 1 of this condition, I can understand the ignorance.

      1
      4 months ago Log in to Reply
    14. Cheryl Seibert

      I have a small extended family. One grandmother was Type 2 so she knew about diabetes. While my extended family has a lot of Type 2, they really no nothing about my T1D devices, what insulin does or anything else about my T1D.

      1
      4 months ago Log in to Reply
    15. Wanacure

      I have many distant relatives on both sides of family but we are not in touch. Years after my brother and I were diagnosed I learned it was on my mother’s side as well as my father’s side. I think this helped my father feel less guilty. I think at least some of the extended family members felt diabetes was shameful, an indication of ā€œgenetic inferiority.ā€ My own mother had been a strong believer in eugenics…till her own sons developed diabetes.
      You would not believe how many ā€œeducatedā€ Americans and Europeans including doctors and even Supreme Court Justice Felix Frankfurter endorsed eugenic practices like sterilizing people classified as ā€œidiots,ā€ ā€œmorons,ā€ ā€œhomosexuals,ā€ ā€œinsane,ā€ epileptics, ā€œcriminals,ā€ the colonized indigenous people of color, ā€œcripples,ā€ ā€œhalf-breeds,ā€ etc. Thousands were sterilized in the US well into the 1960’s. Ever seen the movie, ā€œThe Bad Seed?ā€ Have you seen the PBS documentaries? Read any of the well-documented books? In ā€œliberalā€ Seattle I met a ā€œmixed-raceā€ couple who could not buy or rent outside of the redlined zone. The world’s largest ā€œdemocracyā€ still has a caste system based on the supposed superiority of lighter skin color. Today, look at the rise in popularity of ā€œanti-immigrantā€ politicians in many ā€œwhiteā€ ā€œso-called Christianā€ countries. How will YOU vote next month?

      4 months ago Log in to Reply

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you. Cancel reply

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