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    • 13 hours, 42 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 32 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 3 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 3 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 4 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 29 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 31 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 10 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 10 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 13 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 15 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    Does your health care provider ask you what YOUR diabetes goals/priorities are during your visit or before the visit in prep?

    Home > LC Polls > Does your health care provider ask you what YOUR diabetes goals/priorities are during your visit or before the visit in prep?
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    Does your health care provider ask you if YOUR overall diabetes goals/priorities are aligned with your life goals during your visit or before the visit in prep?

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    37 Comments

    1. Ahh Life

      Geez. We are so numbers driven and data driven that, like an experienced football club, we huddle, call the play, and see how it works out.

      Maybe I should add, we also win some and lose some. Once in a while there’s even a tie.

      5
      8 months ago Log in to Reply
    2. Annie Wall

      I had to answer in the past tense since my endo of over 25 years has retired and I’m meeting a new one in November. I’m guessing he will ask about my goals but who knows what the future will bring me?

      8 months ago Log in to Reply
      1. Lawrence S.

        I hope you catch a good one 😉

        8 months ago Log in to Reply
    3. john36m

      I have been T1 for close to 60 years, so this is kind of a pointless question for me.

      2
      8 months ago Log in to Reply
    4. Robert Wilson

      My Endo and I have a collaborative appointment each and every time. This specific question isn’t asked because we are working together through my T1D management.

      3
      8 months ago Log in to Reply
    5. George Lovelace

      T1 58 yrs. 74 YO, lately my Endo has nothing but Praise as my A1c is at 5.4 and almost 0 Hypos. Thank you Tandem and Dexcom!!

      6
      8 months ago Log in to Reply
    6. Dennis Dacey

      Seven decades into this diabetes thing and I’ve never let diabetes rule my life, rather I’ve effectively managed my diabetes to allow me to reach – and surpass – LIFE GOALS.

      I’ve worked with many doctors, only two being endocrinology “certified” and several being awesome diabetologists, and together driven to keep me sufficiently healthy into my 80s so that I can live a full and very active life. DIABETES DOES NOT RULE!

      4
      8 months ago Log in to Reply
    7. Jeanne McMillan-Olson

      I have been seeing my endo for almost 30 years and have had type 1 for 67 years. He knows me so well that that we just discuss avoiding hypoglycemia and continue my good control at every visit. He also has Type 1.

      3
      8 months ago Log in to Reply
    8. Jane Cerullo

      You must be your own advocate or have a family member attend appointment with you. Sometimes I feel like I am educating my Endo office. I keep up on latest products that interest me. Some they have not heard of. I have commented before on what works for me but had to educate my Endo. I am on MDI using InPen. The app give me the same info as a pump. For injections have IPort which I rotate site every 3 days as a pump. All injections go through port. This works for me. Unfortunately I have copays for all of these. They are considered part D prescriptions. Unlike a pump which is covered under DME. Doesn’t seem fair to me but is what I have chosen. Love the freedom of no pump attached.

      8 months ago Log in to Reply
    9. Sheila Gilbert

      Ask if I have any concern and then address them accordingly

      2
      8 months ago Log in to Reply
    10. Mick Martin

      I selected “Yes – I am asked about my diabetes goals and priorities consistently”, but it’s not CONSISTENTLY. It’s more like every few months, but that option was not made available for respondents.

      8 months ago Log in to Reply
    11. Steve Gold

      I am only asked my Date of Birth and if I’ve changed my insurance since my last visit. I call this the “lets check your wallet to ensure we’re gonna get paid” phase of my visit. Then it’s a several month wait until my actual visit. I’m not kidding I just made an appointment this week. The earliest open they had was December 23’rd. Such is the state of medical care in the United States. I think Doctors, Politicians, and the Diabetes organization are going to have to do something about it, other than point fingers at each other. Seriously!

      2
      8 months ago Log in to Reply
      1. Joan McGinnis

        why not make your appt when you leave the one you are at?
        I always do that before I leave

        8 months ago Log in to Reply
    12. MARIE

      Unfortunately, patient goals seem quite secondary. Doctors and diabetes educators seem to have a magic key indicator that they follow… A1C<7.0. If you are higher than this, then they urge you to bring it down. If you are lower "Oh, you are doing great! You could eat more carbs. You know, you don't want that number to be too low." Having said that, some of them do seem to take patient goals into account somewhat once they learn that the patient is educated and takes responsibility for their own care.

      2
      8 months ago Log in to Reply
    13. kflying1@yahoo.com

      No. My endo care PA is very caring and amazingly ignorant and dismissive of things like gluconeogenesis , Very discouraging yet with the current shortage of medical professionals due to the Democrat’s tyranny for dictated experimental drugs on medical professionals
      we get what we get.

      8 months ago Log in to Reply
      1. ConnieT1D62

        Please keep political opinions and comments to yourself out of respect for everyone else. Thank you.

        8
        8 months ago Log in to Reply
    14. qachemist

      Neither endocrinologist nor educator have given enough knowledge for me to know what would be appropriate for my own goals.

      1
      8 months ago Log in to Reply
      1. Janis Senungetuk

        Ask them.

        8 months ago Log in to Reply
    15. Mary Dexter

      My goals have devolved to 3:
      Don’t arbitrarily change my diagnosis to T2.
      Keep my insulin prescriptions renewed and don’t arbitrarily reduce them.
      File the needed paperwork so I can keep my CGM.
      So basically my goal is to be able to survive the next 6 months.

      5
      8 months ago Log in to Reply
      1. cynthia jaworski

        You have listed what you wish your doctor would achieve. Getting the health provider to follow through can often be on the top of my list of priorities, too.

        1
        8 months ago Log in to Reply
    16. TEH

      I answered I bring it up. But my PA will look at my TIR data and trends. Lte last 2 visits there were no major issues.

      8 months ago Log in to Reply
    17. AnitaS

      I wasn’t quite sure how to answer because I never thought of them as goals. For instance, if I am having a difficult time with blood sugars during exercise, I bring that up during my appointment. I never think of it as a goal of keeping blood sugars fairly stable during exercise. I think of it as a problem I am having keeping blood sugars stable during exercise and I am looking for suggestions from the endo to help with my problem. She also will look over blood sugars on my cgm reports and give suggestions on areas that she believes can be tweaked a little bit.

      4
      8 months ago Log in to Reply
    18. ConnieT1D62

      I am very clear about my health related priorities and goals. With each provider I see for whatever reason, I bring it up myself because most of them (except for the endocrine NP and the podiatrist I see), are too busy to really listen or pay attention, and are absolutely clueless when it comes to recognizing or caring for the issues and needs of concern for a baby boomer adult with T1D since early childhood.

      2
      8 months ago Log in to Reply
    19. Marty

      I don’t recall any specific questions about my goals/priorities, but I think it must be obvious that I want to manage my diabetes well enough to live a full, active life.

      2
      8 months ago Log in to Reply
    20. Henry Renn

      My goals have been established for a long time so it would be repetitive & superfluous to review them at every visit. I see my Endo, C-PA, every 3 months as required by Medicare in order to have the cost of pump supplies & insulin paid by Medicare. We review readouts from my pump each time & make adjustments to pump settings. I also can use secure texting with my care provider between visits.

      2
      8 months ago Log in to Reply
    21. cynthia jaworski

      This kind of question needs context. It would make sense if asked in the setting of a first visit with a new doctor. Otherwise, it seems obvious that my goal is to be healthy and feel good, which requires keeping my management as close too a normal profile as possible.
      My blue cross/shield plan keeps offering me various coaches through a variety of different programs. When I have agreed to give these a try, I am always asked about goals. I sa my goal is to be healthy. But they want specifics. They encourage me to discuss a “game plan” with my doctors. (What do these coaches think medical management has been all these years?) I reply that we will keep doing what we are already doing (and maybe a bit better), since it is basically working pretty well.
      Sometimes I wish blue cross would not waste money on this touch feely sort of thing with t1 veterans. The people who really need support are the newly diagnosed.
      Sorry for the rant.

      2
      8 months ago Log in to Reply
      1. Lawrence S.

        I very much appreciate your rant, and agree with all of what you said. Thank you.

        8 months ago Log in to Reply
    22. Pauline M Reynolds

      I am not asked, but I am told what my goals should be. (No lows, but under a certain number, etc.) That is what I expect.

      1
      8 months ago Log in to Reply
    23. Janis Senungetuk

      When I first met my current endo, 8+ years ago, we discussed “goals”. As it was our initial appointment, I specifically stated that I expected her to consider me an equal partner in diabetes management decisions. She readily agreed and has kept her word. Before each appointment I make a list of subjects/concerns and send it to her via MyChart. I also hand the list to the nurse who asks me a variety of questions for the first half of the appointment. On the paper chart notes I’m given after each appointment her management goals are listed, not mine.

      8 months ago Log in to Reply
    24. Melinda Lipe

      I’ve been seeing the same provider for a few years, and this has been discussed before, so we each understand our goals for T1D care. No issues here.

      8 months ago Log in to Reply
    25. Brian Vodehnal

      Had to switch endos after 19 years due to insurance. Will see how new endo is. Previous endo was with me from the beginning so we were in tune. Not happy that insurance gets to dictate who I HAVE to use for my care.

      2
      8 months ago Log in to Reply
    26. Amanda Barras

      I have good control on my own. My endo merely reviews my labs and smiles and nods mostly. But, I always want to do better and always ask for a new medication or therapy that I become aware of to achieve that. Sometimes it’s a battle, other tim
      es she immediately says yes and gives me what I want.

      1
      8 months ago Log in to Reply
    27. Lawrence S.

      I can’t remember being asked my goals or priorities in recent years. My endo knows that I am very active with exercise, and that I watch my diet very closely. She routinely asks me if I have any concerns that I want to discuss. We review the blood test results, and whether any adjustments need to be made. The rest is just a social visit.

      8 months ago Log in to Reply
    28. Jeff Balbirnie

      Choked laughter. 50+ years nobody has ever asked an “interesting” question.

      Give me the scripts I must have to stay alive and go away! I have no use for being micro managed by folks who don’t know squat.

      But never had an endo, a CDE, never had anyone ask ever.

      My Primary asking yeah good luck with that…..

      8 months ago Log in to Reply
    29. maggiemay7539

      Luckily I have a great endo that always knows my diabetes goals. She doesn’t have to ask she always knows where I want my numbers and agrees with me.

      1
      8 months ago Log in to Reply
    30. Trisha Oldenkamp

      They always focus on the information from my CGM which is helpful but I bring up questions about goals. My time in range is very good so I think they don’t feel they need to bring up goals.

      8 months ago Log in to Reply
    31. Joan McGinnis

      not specifically that way. But I feel comfortable asking anything I want. and he always asks if I have anything i am concerned about or want to discuss. I think having type 1 diabetes and being a nurse has made me pretty assertive as yo only get what you ask for in any relationship. You need to mention that you have concerns to discuss or something similar when you begin and then you will get attention to your concerns.

      3
      8 months ago Log in to Reply

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