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    • 7 hours, 46 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 8 hours, 36 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 9 hours, 32 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 15 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 34 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 6 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 10 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 5 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 6 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 35 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 44 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 12 hours, 48 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 4 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 21 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 5 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 7 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 8 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    Does your health care provider ask you what YOUR diabetes goals/priorities are during your visit or before the visit in prep?

    Home > LC Polls > Does your health care provider ask you what YOUR diabetes goals/priorities are during your visit or before the visit in prep?
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    Does your health care provider ask you if YOUR overall diabetes goals/priorities are aligned with your life goals during your visit or before the visit in prep?

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    37 Comments

    1. Ahh Life

      Geez. We are so numbers driven and data driven that, like an experienced football club, we huddle, call the play, and see how it works out.

      Maybe I should add, we also win some and lose some. Once in a while there’s even a tie.

      5
      12 months ago Log in to Reply
    2. Annie Wall

      I had to answer in the past tense since my endo of over 25 years has retired and I’m meeting a new one in November. I’m guessing he will ask about my goals but who knows what the future will bring me?

      12 months ago Log in to Reply
      1. Lawrence S.

        I hope you catch a good one 😉

        12 months ago Log in to Reply
    3. john36m

      I have been T1 for close to 60 years, so this is kind of a pointless question for me.

      2
      12 months ago Log in to Reply
    4. Robert Wilson

      My Endo and I have a collaborative appointment each and every time. This specific question isn’t asked because we are working together through my T1D management.

      3
      12 months ago Log in to Reply
    5. George Lovelace

      T1 58 yrs. 74 YO, lately my Endo has nothing but Praise as my A1c is at 5.4 and almost 0 Hypos. Thank you Tandem and Dexcom!!

      6
      12 months ago Log in to Reply
    6. Dennis Dacey

      Seven decades into this diabetes thing and I’ve never let diabetes rule my life, rather I’ve effectively managed my diabetes to allow me to reach – and surpass – LIFE GOALS.

      I’ve worked with many doctors, only two being endocrinology “certified” and several being awesome diabetologists, and together driven to keep me sufficiently healthy into my 80s so that I can live a full and very active life. DIABETES DOES NOT RULE!

      4
      12 months ago Log in to Reply
    7. Jeanne McMillan-Olson

      I have been seeing my endo for almost 30 years and have had type 1 for 67 years. He knows me so well that that we just discuss avoiding hypoglycemia and continue my good control at every visit. He also has Type 1.

      3
      12 months ago Log in to Reply
    8. Jane Cerullo

      You must be your own advocate or have a family member attend appointment with you. Sometimes I feel like I am educating my Endo office. I keep up on latest products that interest me. Some they have not heard of. I have commented before on what works for me but had to educate my Endo. I am on MDI using InPen. The app give me the same info as a pump. For injections have IPort which I rotate site every 3 days as a pump. All injections go through port. This works for me. Unfortunately I have copays for all of these. They are considered part D prescriptions. Unlike a pump which is covered under DME. Doesn’t seem fair to me but is what I have chosen. Love the freedom of no pump attached.

      12 months ago Log in to Reply
    9. Sheila Gilbert

      Ask if I have any concern and then address them accordingly

      2
      12 months ago Log in to Reply
    10. Mick Martin

      I selected “Yes – I am asked about my diabetes goals and priorities consistently”, but it’s not CONSISTENTLY. It’s more like every few months, but that option was not made available for respondents.

      12 months ago Log in to Reply
    11. Steve Gold

      I am only asked my Date of Birth and if I’ve changed my insurance since my last visit. I call this the “lets check your wallet to ensure we’re gonna get paid” phase of my visit. Then it’s a several month wait until my actual visit. I’m not kidding I just made an appointment this week. The earliest open they had was December 23’rd. Such is the state of medical care in the United States. I think Doctors, Politicians, and the Diabetes organization are going to have to do something about it, other than point fingers at each other. Seriously!

      2
      12 months ago Log in to Reply
      1. Joan McGinnis

        why not make your appt when you leave the one you are at?
        I always do that before I leave

        12 months ago Log in to Reply
    12. MARIE

      Unfortunately, patient goals seem quite secondary. Doctors and diabetes educators seem to have a magic key indicator that they follow… A1C<7.0. If you are higher than this, then they urge you to bring it down. If you are lower "Oh, you are doing great! You could eat more carbs. You know, you don't want that number to be too low." Having said that, some of them do seem to take patient goals into account somewhat once they learn that the patient is educated and takes responsibility for their own care.

      2
      12 months ago Log in to Reply
    13. kflying1@yahoo.com

      No. My endo care PA is very caring and amazingly ignorant and dismissive of things like gluconeogenesis , Very discouraging yet with the current shortage of medical professionals due to the Democrat’s tyranny for dictated experimental drugs on medical professionals
      we get what we get.

      12 months ago Log in to Reply
      1. ConnieT1D62

        Please keep political opinions and comments to yourself out of respect for everyone else. Thank you.

        8
        12 months ago Log in to Reply
    14. qachemist

      Neither endocrinologist nor educator have given enough knowledge for me to know what would be appropriate for my own goals.

      1
      12 months ago Log in to Reply
      1. Janis Senungetuk

        Ask them.

        12 months ago Log in to Reply
    15. Mary Dexter

      My goals have devolved to 3:
      Don’t arbitrarily change my diagnosis to T2.
      Keep my insulin prescriptions renewed and don’t arbitrarily reduce them.
      File the needed paperwork so I can keep my CGM.
      So basically my goal is to be able to survive the next 6 months.

      5
      12 months ago Log in to Reply
      1. cynthia jaworski

        You have listed what you wish your doctor would achieve. Getting the health provider to follow through can often be on the top of my list of priorities, too.

        1
        12 months ago Log in to Reply
    16. TEH

      I answered I bring it up. But my PA will look at my TIR data and trends. Lte last 2 visits there were no major issues.

      12 months ago Log in to Reply
    17. AnitaS

      I wasn’t quite sure how to answer because I never thought of them as goals. For instance, if I am having a difficult time with blood sugars during exercise, I bring that up during my appointment. I never think of it as a goal of keeping blood sugars fairly stable during exercise. I think of it as a problem I am having keeping blood sugars stable during exercise and I am looking for suggestions from the endo to help with my problem. She also will look over blood sugars on my cgm reports and give suggestions on areas that she believes can be tweaked a little bit.

      4
      12 months ago Log in to Reply
    18. ConnieT1D62

      I am very clear about my health related priorities and goals. With each provider I see for whatever reason, I bring it up myself because most of them (except for the endocrine NP and the podiatrist I see), are too busy to really listen or pay attention, and are absolutely clueless when it comes to recognizing or caring for the issues and needs of concern for a baby boomer adult with T1D since early childhood.

      2
      12 months ago Log in to Reply
    19. Marty

      I don’t recall any specific questions about my goals/priorities, but I think it must be obvious that I want to manage my diabetes well enough to live a full, active life.

      2
      12 months ago Log in to Reply
    20. Henry Renn

      My goals have been established for a long time so it would be repetitive & superfluous to review them at every visit. I see my Endo, C-PA, every 3 months as required by Medicare in order to have the cost of pump supplies & insulin paid by Medicare. We review readouts from my pump each time & make adjustments to pump settings. I also can use secure texting with my care provider between visits.

      2
      12 months ago Log in to Reply
    21. cynthia jaworski

      This kind of question needs context. It would make sense if asked in the setting of a first visit with a new doctor. Otherwise, it seems obvious that my goal is to be healthy and feel good, which requires keeping my management as close too a normal profile as possible.
      My blue cross/shield plan keeps offering me various coaches through a variety of different programs. When I have agreed to give these a try, I am always asked about goals. I sa my goal is to be healthy. But they want specifics. They encourage me to discuss a “game plan” with my doctors. (What do these coaches think medical management has been all these years?) I reply that we will keep doing what we are already doing (and maybe a bit better), since it is basically working pretty well.
      Sometimes I wish blue cross would not waste money on this touch feely sort of thing with t1 veterans. The people who really need support are the newly diagnosed.
      Sorry for the rant.

      2
      12 months ago Log in to Reply
      1. Lawrence S.

        I very much appreciate your rant, and agree with all of what you said. Thank you.

        12 months ago Log in to Reply
    22. Pauline M Reynolds

      I am not asked, but I am told what my goals should be. (No lows, but under a certain number, etc.) That is what I expect.

      1
      12 months ago Log in to Reply
    23. Janis Senungetuk

      When I first met my current endo, 8+ years ago, we discussed “goals”. As it was our initial appointment, I specifically stated that I expected her to consider me an equal partner in diabetes management decisions. She readily agreed and has kept her word. Before each appointment I make a list of subjects/concerns and send it to her via MyChart. I also hand the list to the nurse who asks me a variety of questions for the first half of the appointment. On the paper chart notes I’m given after each appointment her management goals are listed, not mine.

      12 months ago Log in to Reply
    24. Melinda Lipe

      I’ve been seeing the same provider for a few years, and this has been discussed before, so we each understand our goals for T1D care. No issues here.

      12 months ago Log in to Reply
    25. Brian Vodehnal

      Had to switch endos after 19 years due to insurance. Will see how new endo is. Previous endo was with me from the beginning so we were in tune. Not happy that insurance gets to dictate who I HAVE to use for my care.

      2
      12 months ago Log in to Reply
    26. Amanda Barras

      I have good control on my own. My endo merely reviews my labs and smiles and nods mostly. But, I always want to do better and always ask for a new medication or therapy that I become aware of to achieve that. Sometimes it’s a battle, other tim
      es she immediately says yes and gives me what I want.

      1
      12 months ago Log in to Reply
    27. Lawrence S.

      I can’t remember being asked my goals or priorities in recent years. My endo knows that I am very active with exercise, and that I watch my diet very closely. She routinely asks me if I have any concerns that I want to discuss. We review the blood test results, and whether any adjustments need to be made. The rest is just a social visit.

      12 months ago Log in to Reply
    28. Jeff Balbirnie

      Choked laughter. 50+ years nobody has ever asked an “interesting” question.

      Give me the scripts I must have to stay alive and go away! I have no use for being micro managed by folks who don’t know squat.

      But never had an endo, a CDE, never had anyone ask ever.

      My Primary asking yeah good luck with that…..

      12 months ago Log in to Reply
    29. maggiemay7539

      Luckily I have a great endo that always knows my diabetes goals. She doesn’t have to ask she always knows where I want my numbers and agrees with me.

      1
      12 months ago Log in to Reply
    30. Trisha Oldenkamp

      They always focus on the information from my CGM which is helpful but I bring up questions about goals. My time in range is very good so I think they don’t feel they need to bring up goals.

      12 months ago Log in to Reply
    31. Joan McGinnis

      not specifically that way. But I feel comfortable asking anything I want. and he always asks if I have anything i am concerned about or want to discuss. I think having type 1 diabetes and being a nurse has made me pretty assertive as yo only get what you ask for in any relationship. You need to mention that you have concerns to discuss or something similar when you begin and then you will get attention to your concerns.

      3
      12 months ago Log in to Reply

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