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    • 33 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 21 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 14 hours, 4 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 30 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 27 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 50 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 47 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 22 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    Does proximity to your T1D health care provider impact where you choose to live?

    Home > LC Polls > Does proximity to your T1D health care provider impact where you choose to live?
    Previous

    CGM users: When you have a sensor that does not last for its full approved session duration, on average, how many days early does your sensor fail or fall off?

    Next

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. mbulzomi@optonline.net

      With Medicare Part “B” covering all my DEX and Tandem stuff, including Insulin. Along with my Federal Blue Cross Blue Shield, secondary Insurance. All’s well for me, nothing out of pocket.

      3 years ago Log in to Reply
    2. Pat Martin

      Since going on MEDICARE – I am told I must see my provider every 90 days or no supplies will be dispensed from my DME provider. I have been going to a provider that lives 5 hours from me & I have been seeing this provider since the early 1990’s..
      I may need to change now as since retired my income has changed anad i am unsure if I can afford
      the gas to make the 5 hour trip. I have moved several times since starting to see this excellent provider(s). The state that my provider lives in requires that he/she be licensed in the state where they provide telehealth. They are not licensed in the state where I reside. It would not be cost effective for them to obtain this license at this time. So I may be looking for a new provider in the near future with the cost of gas & inflation! Sad!

      3 years ago Log in to Reply
    3. pru barry

      I guess it’s age and diabetes going in tandem that led me to live in a city. I love being out in the country, but the time has come to be closer to providers and the drug store. Tomorrow is the 82nd birthday, and 68th anniversary since being diagnosed. Time sneaks up when you’re having fun!

      9
      3 years ago Log in to Reply
      1. AnitaS

        Happy birthday!

        3 years ago Log in to Reply
    4. Louise Robinson

      Sadly, it did not when we relocated from New England to Florida nearly 20 years ago. I had excellent access to board certified endocrinologists when I lived in New England. They were affiliated with University hospitals and located within a 30-minute drive. We relocated to a more rural county about 90 minutes north of Tampa. There are NO board -certified endos in my county. In general, unless I wish to travel over 1 hour (to either Tampa or Gainsville), I feel that the quality of health-care here is not up to the level I enjoyed up north….and, as we age, access to quality health-care becomes even more critical.

      3 years ago Log in to Reply
    5. Ernie Richmann

      I live near Cleveland Ohio. This area has world class medical services along with wonderful parks, sports, cultural events, and more not to mention we have the worlds largest fresh water reserve- the Great Lakes.

      3 years ago Log in to Reply
    6. Dennis Dacey

      OTHER: I do insist on finding the best medical providers, including people who know diabetes, but that didn’t prevent me from leaving the world’s leading diabetes professionals [decades at Joslin Clinic in Boston] and move 1,700 miles away. After moving, I did seek out and find good medical care including two who understand T1D.

      If I make any future move of residence, diabetes specific medical care will not be a primary deterrent as long as there is a relatively closeby facility with a physician who is open and able to listen.

      1
      3 years ago Log in to Reply
    7. Sue Herflicker

      I thought I hit no and when I hit the submit button I saw yes! I do not worry about the proximity of my health care provider. I will travel as far as I need to for good medical care.

      3 years ago Log in to Reply
    8. Linda Zottoli

      I know that I considered it 50 years ago, more specifically public transportation access, when I was moving while pregnant. And now, no longer driving and considering moving closer to one of my children, available health care is certainly a consideration.

      3 years ago Log in to Reply
    9. Lawrence S.

      I said “other”. When I was young, and working, “no”. I used to drive 10 hours, round trip to see my Endocrinologist at Joslin in Syracuse, NY. I’m sure there were other Endo’s closer to me. I chose where to live based upon where my employment was located.
      Since retirement, we moved to a warmer climate, and living near access to an Endocrinologist was an important part of where we chose to live.

      3 years ago Log in to Reply
    10. megwood805@yahoo.com

      I travel 75 miles each way to continue care since he moved. Absolutely worth it!

      3 years ago Log in to Reply
    11. TEH

      We had chosen a location that had 2 medium sized medical complex 30 miles a way, where my Endo’s office is located. UVA is 90 minutes away….

      3 years ago Log in to Reply
    12. Hieromonk Alexis

      Usually that was not a problem, since I have lived mostly in urban areas with plenty of endocrinologists. But I did live for 12 years in a rural area where the nearest sizable town was an hour away, and it had only one endocrinologist for that county and a few surrounding ones. Boy, was he ever busy! That town, Redding CA, with its population of around 100,000, could certainly use another endocrinologist.

      3 years ago Log in to Reply
    13. Sue Martin

      Definitely. We have been considering moving to a different state. I live in the Seattle area and have had world-class care through the University of Washington Medical center. Proximity to health care is very high on the list of criteria. I have other health issues, kidney transplant, and a meningioma in the brain, which was benign; so a high-class health complex is important where we move next.

      4
      3 years ago Log in to Reply
    14. Natalie Daley

      I’m willing to drive 170 every 3-4 months. When he retires, this may be a different story.

      3 years ago Log in to Reply
    15. Janis Senungetuk

      Yes, it certainly does now, it didn’t as much when I was younger. Transportation to/from medical appointments has become a major consideration now that I’m no longer driving and the pandemic eliminated the volunteer transportation assistance organization I had previously used. Even living in this urban environment with a relativity large number of physicians it’s still difficult to get consistent knowledgeable care on a timely basis. It requires making appointment far in advance and then being able to keep them.

      3 years ago Log in to Reply
    16. Chris Albright

      I live in a small city about 65 miles north of Austin Tx. The town I live in does not have an endo so I prefer to just go to the endo that I used when living in the Austin area. If I could find a good endo closer to me, I would consider switching (i.e., $5.00 / gal gas……)

      1
      3 years ago Log in to Reply
    17. Beckett Nelson

      I chose “other” because I changed endos after relocating. I haven’t stayed in a location because of an endo

      3 years ago Log in to Reply
    18. Molly Jones

      Most definitely. I have a multitude of health concerns one of which causes me not to drive and that need specialists, not GPs. We live in a city with many hospitals less than twenty minutes away that I can use buses for whose transportation keep improving.

      1
      3 years ago Log in to Reply
    19. Amanda Barras

      No! We live where the work and good schools are for our son. I will commute to an Endo as necessary since I only see mine 1x a year.

      3 years ago Log in to Reply
    20. Lori Lehnen

      Interesting question. I recently switched from a local endo to one in NYC, about an 8 hour drive or short flight away.
      When I was first diagnosed, I used the endo assigned to me at the hospital. They were good, but not a good fit for me. When a bad snowstorm forced me to use telehealth, it got me thinking… why am I using an okay doctor when telehealth works for most appointments and my insurance covers any doctor in the state. So, I found an endo that is perfect for me. I’ve been incredibly pleased with my teleheath appointments with her and her staff is amazing. Although she’s not requiring it, I’m having my first face-to-face visit with her in July, followed by a long NYC weekend. Finally, T1D is an excuse to do something fun!
      p. s. My local primary care doctor approved that this set up is medically sound before I transitioned to the new endo.

      3 years ago Log in to Reply
    21. Jillmarie61

      No it doesn’t. My Endo is an hour and a half away. BUT, it does have an impact on how close to a hospital I am, in case of an emergency.

      3 years ago Log in to Reply
    22. Marcia Pulleyblank

      I would say yes in principle, but I does take me at least 90 minutes in order to get to see him. I can however communicate via phone or email if necessary.

      3 years ago Log in to Reply
    23. Drina Nicole Jewell

      It does and it doesn’t. I moved to a huge area with tons of endo’s and couldn’t find one I could tolerate. So I drive 6 hours round trip to see my Endo once a year and the rest are video or phone call appts. 💯 Worth it.

      3 years ago Log in to Reply
    24. Ahh Life

      I’ve lived in areas where the closest endocrinologist was a 140-mile drive to Reno, Nevada with few towns, people or even cacti in between. Easy-peezie in the good ol’ days.

      Then as the ravages of age take their toll – diminished eyesight, diminished public transport, diminished cognitive abilities – and guess what? Proximity matters.

      So now, the answer becomes, Yes. Talis est via mundi. ╭ (o ㅇ‿ o#)ᕗ

      3 years ago Log in to Reply
    25. PamK

      While I have not let this affect where I live, I do miss my old doctors. It is very difficult to find new doctors in my current area that “measure up.”

      3 years ago Log in to Reply
    26. Steven Gill

      From what I’m reading I’ve only seen one “good” endocrinologist in 24 years, and the lone knowledgeable primary physician died during first year of diabetic care. I’ve seen 5 specialists, the only one I’d consider efficient was during those medical trials when my diagnosed mysteriously changed from TYPE 2 to TYPE 1.

      These two stressed never let anyone dictate my diet, meds, exercise, or life because they don’t work my hours, cook my meals, nor live my life. I had two specialists before those medical trials, two afterwards; but at least the last got me to consider the pump with a CGM.

      I now see a GP 5 minutes from my home for convenience, altho he offered to send me to the local hospital to see a specialist (his first visit said he doesn’t see TYPE 1 patients because of their needs, until we talked and he saw my a1C, he agrees to all my requests including my last to add metformin to my care). I’ve since found the end~ that refused my request to start insulin 21 years ago saying I was too old to be a TYPE 1, with instructions to lose more weight (already 20 lbs underweight) is considered a top board certified endocrinologist. I follow the instructions of those two doctors and read everything on diabetes: now listen to various podcasts and blogs on TYPE 1. Thanks to the internet I visit boards from the ADA, I read literature and periodicals, and news releases. With UAB and the Babtist Health system Birmingham I’d considered a top tiered medical community but results vary, sometime I feel better educated than those educated.

      3 years ago Log in to Reply
    27. Lyn McQuaid

      I’ve had the same endo for 30 years and he has changed practices more times than I can remember but has always stayed in the same general vicinity.

      3 years ago Log in to Reply
    28. Wanacure

      Just the opposite. I choose the facility closed to me, but actually now there are three different providers within the same 20’ walking distance.

      3 years ago Log in to Reply
    29. Cheryl Seibert

      40 years ago, yes it did. But now, with Telehealth and CGM/Pump data available via websites, proximity is not a requirement. I am blessed that the community I moved to after college had one of the best endos in the state.

      3 years ago Log in to Reply

    Does proximity to your T1D health care provider impact where you choose to live? Cancel reply

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