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    • 22 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 23 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 38 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 39 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 2 hours, 59 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 8 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 9 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 5 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 21 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 31 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider?

    Home > LC Polls > Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider?
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    For people who use a CGM that does not typically require calibrations: If you were to spend 4 hours away from home but still in your local area (e.g., an afternoon of running errands around town, or going out for dinner and a movie), would you bring a glucose meter with you just in case?

    Next

    Do you keep a low treatment close enough to your bed that you do not have to get out of bed at night when treating a low?

    Sarah Howard

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    34 Comments

    1. Wanacure

      If my provider suggests a lab test, I get it done ASAP. Makes no difference if it’s before or after I see my provider. Sometimes a lab test is suggested before an appointment, I try to comply. Regular tests like eye exams, cholesterol, kidney function, blood glucose levels, and regular downloads of CGM monitor, etc. are vital. If you don’t test, you don’t know. Sometimes I request a test, like for testosterone levels. Beware of BS like, ā€œWell, that’s normal for your age.ā€ Or, ā€œYour insurance won’t pay for that.ā€ Beware of privatizing/financilization of Medicare. Beware of privatizing/financialization of Hospice. See the latest issue of The Retiree Advocate. Or search for Puget Sound Advocates for Retirement Action.

      1
      5 months ago Log in to Reply
    2. Clare Fishman

      At Joslin, bloodwork is drawn at the start of the appointment and shows up on the computer while I am chatting with my endo.

      1
      5 months ago Log in to Reply
    3. Don P

      I usually receive lab requests 6 months prior, will get work done one week prior to visit so that I have lab results on my desk before Endo visit. This way I know the results & any concerns I may have.

      2
      5 months ago Log in to Reply
      1. TEH

        This is what I do also.

        5 months ago Log in to Reply
    4. Tim Shoppa

      I’ve had different endo practices do it different ways. My current endo visits have a blood test at the end, and a few days later my endo uses the patient portal to get the results to me. I would prefer it if I had my labwork a week before the endo visit, and previous docs I had did it that way, but that’s not the way my current endo’s practice does it.

      5 months ago Log in to Reply
    5. Drina Nicole Jewell

      Can I choose all of the above. Sometimes I forget and sometimes I remember to get it done a few weeks before my appt and sometimes I do it the morning of ,šŸ¤·šŸ¼ā€ā™€ļø

      5 months ago Log in to Reply
    6. Lawrence S.

      I get my lab work done anywhere from 4 hours before the Endo appointment to several days before. The only negative is that I have to either drive twice most times to get it done days prior, or spend the entire day at MAYO Clinic for blood work on the same day. We always review my lab results at the Endocrinologist visit. It is the main focus of the visit.

      5 months ago Log in to Reply
    7. Eva

      My answer really depends on the type of test. My endo checks my A1C on the spot and we discuss it along with my daily glucose values during the visit. However, when it comes to routine bloodwork for lipids, cholesterol, and vitamins (b12, D, b1, b6), those tests are run after my visit and his office will call if they find issues. My test results are posted online so that all my physicians (GP, OB/GYN) have access to them, which is vital.

      1
      5 months ago Log in to Reply
    8. Sherolyn Newell

      My original (retired) endo put in the lab order so that I could go in ahead of my appointment and she had the results. My current endo sends me across the hall for labs after my appointment. I preferred the first way.

      1
      5 months ago Log in to Reply
      1. KarenM6

        Same here!

        5 months ago Log in to Reply
    9. Kristen Clifford

      All of the above! It depends on the occasion. Lately I’ve been getting my A1Cs done upon arrival the day of the appointment, but there are times when, for whatever reason, they have me wait and do it another time between appointments.

      5 months ago Log in to Reply
    10. Mary Dexter

      Sometimes I get my labs done before, sometimes after. Sometimes the doctor decides they want something else that requires another blood draw. Although it would be nice to have the results discussed, sometimes the doctor just reads the numbers aloud. Or they focus on some slight variation to justify pushing what they do for everybody and dismiss larger variations that I would prefer to have addressed.
      Another reason to wait: the reason I attend the appointment is to have continued access to insulin and CGM. Last time I dropped by reception after my blood draw to ensure the previous day’s physician notes had been faxed to Edwards. Of course they assured me they had, but I think my physical and vocal presence was more effective than multiple phone calls over several weeks.

      5 months ago Log in to Reply
    11. gary rind

      drives me nuts when my endo doesn’t do the lab order until after the appointment!

      1
      5 months ago Log in to Reply
      1. gary rind

        he does do the A1C at the appointment.

        5 months ago Log in to Reply
    12. Jane Cerullo

      I get labs done in office two weeks before Endo appointment. That way I can see them and know what I want to discuss.

      5 months ago Log in to Reply
    13. Robin Melen

      It’s complicated. My endocrine oncologist has me do lab work and he reviews with me remotely every four months or so. And he does that only because I’m in cancer treatment (which caused the T1D in the first place). But my regular endocrinologist has not yet asked for blood work. I started seeing her in Oct, a month after my diagnosis. She just looks at my Dexcom/t.connect numbers during a telehealth call. Weird, huh?

      5 months ago Log in to Reply
    14. Katrina Mundinger

      Blood draw when I get to the office. They usually pull an extra vial so that if the endo decides he wants something else, they’ll already be able to do that without another draw. A1C is done by the time my doc sees me.

      5 months ago Log in to Reply
    15. Sherrie Johnson

      Who writes these questions. Isn’t it common knowledge for your three month appointment to get your labs done for the next appointment I don’t know I guess that’s just the way my doctor does it then we can discuss it anything else she may order after her visit

      5 months ago Log in to Reply
      1. Sarah Austin

        These questions are for research purposes. They aren’t specifically tailored for one person. I’ve had it done differently by different endocrinologists and how their particular practice is run

        2
        5 months ago Log in to Reply
      2. Sherrie Johnson

        In order to get pump supplies and Dexcom G6 Medicare requires you to get an A1c and see your doctor every three months is this different in different states I don’t quite follow

        5 months ago Log in to Reply
      3. Ahh Life

        The most compelling reason I know of for doing research is the phrase “common Knowledge.” No it is not. Those of us who have been around the track a lap or two remember 1) no correlation between carbs and insulin, 2) no pumps, 3) no CGM’s, 4) blood glucose not measured at all, 5) blood work done in the endocrinologists office, 6) blood work done off site, 7) blood work done and shipped electronically, and finally, 8) blood work done immediately and on site.

        It reminds me of two lines from Macbeth. In one, Duncan states: “What bloody man is that? He can report, As seemeth by his plight.

        The other line? “And Fortune, on his damned quarrel smiling, . . . But all’s too weak.”

        5 months ago Log in to Reply
      4. Sherrie Johnson

        I remember it all 61 years for me. Medicare has us on a tightrope.

        5 months ago Log in to Reply
    16. Kristine Warmecke

      For the past 4 years it’s been done at my port draw (oncology) closest to my every 3 month check up.

      5 months ago Log in to Reply
    17. Joan Benedetto

      Annual lab work is done just prior to next scheduled appointment. Blood for A1c is done via finger stick onsite at time of appointment (every 4-5 mos), and results are given during that appointment.

      5 months ago Log in to Reply
    18. Pauline M Reynolds

      Covid has thrown a money wrench into when I get my lab work. My appointments have been in person or on the phone, and I can’t quite sync the labs so that they are just before my visit. Hoping this time is the charm.

      5 months ago Log in to Reply
    19. Sue Martin

      I haven’t seen my T1D provider in person for quite a while, only via video conference. Since I had a kidney transplant I’ve had lots of lab work due to that. I suspect that they look at those labs and add to the list what they want to see.

      5 months ago Log in to Reply
    20. Melissa Childers

      This depends on if it is yearly or just A1c. I get yearly labs: Thyroid, cholestrlerol, cbc, creatine, etc done before my appointment, but A1c is an in office fingerstick with results in about 5 min after arrival, between in tale and meeting with endo.

      5 months ago Log in to Reply
    21. T1D5/1971

      For A1c, the fingerstick is done prior to seeing the doc.
      For all the other fun and games, it just depends. Too many issues. Too many docs.

      5 months ago Log in to Reply
    22. KarenM6

      The process I’m being asked to follow is right smack dab in the middle of changing.
      My retired endo had me go to the lab a week or so before my appointment so that we could discuss all the results when I saw them.
      My new endo will draw blood at the appointment. I prefer having current/up-to-date results to talk about instead of talking about results from 3 months ago.
      I don’t know if it will just be an A1c or if I’ll get the “extras”: cholesterol, CBC, Vit D, calcium, etc. I hope I get the extras!!

      2
      5 months ago Log in to Reply
    23. Janis Senungetuk

      I try to get all labs done a couple days before my appointment because I want to know results and make a list of concerns/questions before the appointment. My endo appreciates knowing what I want to focus on, so I send her a note via MyChart the day before the appointment.

      5 months ago Log in to Reply
    24. Steven Gill

      I don’t see an endocrinologist , my doc ( a. GP) gets my a1C tested during the intake and we discuss this. Sometimes a blood draw and I’ll get a card mailed with instructions: generally “all normal, no changes needed.”

      In the past had blood drawn a week or so early but little was discussed.

      5 months ago Log in to Reply
    25. PamK

      I chose “other” because I like to get my lab work done before my appointment so that I can discuss the results with my doctor. However, given my work schedule I am not always able to as the lab is only open when I am at work. This means I have to take time off work to get it done and my employer is not always willing to let me do so without penalty. For the moment, I do what I can.
      I’d also like to point out that my previous endo had my blood drawn after I saw him and we would discuss the results via email between visits. I would sometimes have to wait to ask questions, because his PA did not always have the answers. This was frustrating!

      5 months ago Log in to Reply
    26. David Hedeen

      rapid A1c is done prior, I receive result in 15 minutes to share with provider at visit. Other blood work results are available next day

      5 months ago Log in to Reply
    27. Molly Jones

      My bloodwork is not done before my appointment, but my time in range is available to be looked at and discussed during my appointment. My bloodwork is available shortly thereafter by MyChart if necessary, which has never happened in difference to time in range.

      5 months ago Log in to Reply

    Do you typically have your lab work performed before, during, or after your appointments with your main T1D health care provider? Cancel reply

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