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    • 1 hour, 44 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 45 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 1 minute ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 22 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 27 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 43 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
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    29 Comments

    1. GLORIA MILLER

      The kids that I knew who developed diabetes when young were all excellent students.

      5 months ago Log in to Reply
    2. Christine Gran

      High blood sugars causes my child migraines and he has missed numerous days of school due to that.

      5 months ago Log in to Reply
    3. Kristine Warmecke

      At times, yes my performance was affected. While in grade school urine testing was all that was available. So knowing where one’s blood sugar level was unheard of.

      2
      5 months ago Log in to Reply
    4. Jeff Balbirnie

      Net to my knowledge, T1D had zero known effect(s) re: my academic performance directly. Hospitalized/more I’ll from XYZ due to diabetes occasionally, but causal to academic issues never, not once

      5 months ago Log in to Reply
    5. AnitaS

      I am not sure. It possibly could have as I went to school with diabetes from third grade through 12th grade without the benefit of blood sugar monitoring. In college is when blood glucose meters came into play for me. There were times my sugar level went low during class so maybe I couldn’t concentrate as well at those times?

      1
      5 months ago Log in to Reply
    6. Ahh Life

      I am compelled to say, no, since I have known no other life. 18 years of school plus kindergarten. I, like so many other people, got my real education after I got out of school. You know, the place where they give the test first and the lesson afterwards. ︡⚈ ︵⚈︠

      1
      5 months ago Log in to Reply
    7. kflying1@yahoo.com

      My kid’s were all out of school when I was first diagnosed as being diabetic. All are now have been diagnosed as being pre-diabetic. 3 with PCOS (and 1 miracle grandson!)

      5 months ago Log in to Reply
    8. pru barry

      I don’t think it affected me academically, but this shy kid entered high school with the shame of someone like a drug addict. Letting anyone know I lived on daily injections felt mortifying. So much better being an adult, and knowing all that horror is behind me. Times have changed for the better :^} !

      1
      5 months ago Log in to Reply
    9. Jneticdiabetic

      Diagnosed in college. Succeeded despite the challenges T1D and being on NPH insulin sometimes posed. Highs sometimes made me drowsy during lectures I loved. Lots and highs and lows trying to avoid NPH peaks and crashes during 2-3hr science labs. These surely affected my performance at times. Overall, I think living with T1D has made me resilient and an effective and creative problem solver, so also enhanced my performance.

      2
      5 months ago Log in to Reply
      1. Lyn McQuaid

        I was diagnosed in college too and perhaps about the same time period as you as I have the same memories of problems with NPH timing. Timing was difficult back then! But I never said a word about it to any of my professors.

        I have now been a college professor myself for 22 years and have only had two students who revealed to me that they were T1 and hence may need to eat during class, leave the room, etc.

        2
        5 months ago Log in to Reply
    10. Drina Nicole Jewell

      My son says it does when he has to miss school due to an early morning low that knocks him on his behind or a stubborn high we can’t get down throughout the night. Or when he has to leave early. He doesn’t feel lows so those don’t affect him more than the few minutes it takes to treat. Highs at school are typically from his gym class, that Carson spike I think he called it. But drops on its own so he does t do a correction dose. He is really good at communicating to his teachers about his needs so other than missing school due to his type 1, he says no it doesn’t affect him.

      5 months ago Log in to Reply
    11. Janis Senungetuk

      Yes, I definitely think all the lows and highs I experienced from 1955 on made a difference. From 3rd grade until 8th grade I was taking one AM injection a day of beef/pork Regular insulin. I tested my urine twice a day…and that was the available glucose management. The years from 8th grade thru my undergraduate studies included a carousel of different insulins resulting in frequent sudden lows that made taking notes, paying attention to lectures and demonstrations and taking exams difficult. I did well in most subjects, with math being an exception, but I have no way of knowing if I could have done better.

      3
      5 months ago Log in to Reply
    12. Mary Ann Sayers

      Because I was only 7 years old when dx with T1D, dealing with a shot every day and no longer able to eat sweets, school curriculum and my performance was the last thing I was thinking about. Was it effected? I don’t think so. NOT UNTIL I GOT TO BE THIRTEEN!!! Who wants to go through puberty and deal with T1D at the same time?!!! And add high school curriculum and the personality changes that are part of that experience and you’re asking if T1D affected my performance? I don’t have anything to compare it to!!! I’ve been T1D since the 2nd grade!!!

      1
      5 months ago Log in to Reply
    13. Lawrence S.

      I did not have T1D while I was in school. But, I can definitely tell you that T1D did affect my performance at work and during work related trainings. Especially before blood testing was available, before insulin pumps, and before CGM’s. I was constantly fighting off low blood glucoses multiple times daily throughout those years, and my brain was in a constant fog. Once I got on an insulin pump, using blood test strips, I was able to stay up with my peers.

      2
      5 months ago Log in to Reply
      1. Amanda Barras

        I agree! Had no problems in school as far as grades etc were concerned but at work through the end of high school and college I had plenty of lows at work that interrupted my ability to do my job. I do not miss those pre-pump/CGM days!

        1
        5 months ago Log in to Reply
    14. Ms Cris

      …but it sure has impacted my job performance.

      5 months ago Log in to Reply
    15. Britni

      I said no mostly because there wasn’t an “unsure” option. I definitely struggled through a few standardized tests (wet myself during one, had to cope with bigoted proctors during another), but I scored well despite the distractions. Who’s to say if I might have scored better without them?

      5 months ago Log in to Reply
    16. Pauline M Reynolds

      Other because there should have been a category that indicated a diagnosis of T1D after leaving school.

      5 months ago Log in to Reply
    17. Kim Murphy

      It was affected if I had a low blood sugar but not all the time.

      5 months ago Log in to Reply
    18. Bob Durstenfeld

      In the 1960s I often went to school both high and low. My granddaughter with T1D uses a Dexcom G6 with Follow. So much easier.

      1
      5 months ago Log in to Reply
    19. Lynn Smith

      I said no because other than the 3-4 weeks I missed of 7th grade when I was first diagnosed, I don’t remember missing any school due to my diabetes.

      5 months ago Log in to Reply
    20. M C

      I waffled while deciding ‘how’ to answer…. I eventually went with ‘no’, as overall it really had little impact. On the ‘yes’ side, it impacted me only in the 1st year I was diagnosed, as it caused me to miss a good portion of the last 1/3 of that school year. It also caused me to be demoted by a gym teacher, who decided through her ignorance, that I wouldn’t be ‘able’ to cope remaining on the top field hockey (1st- 11’s) team due to my T1D diagnoses and demoted me to the 2nd team (2nd-11’s). What was bizarre, in the extreme, was the fact that I not only played on the 2nd-11’s, but asked to fill in on the 1st-11’s for most of their games. Made no sense then – still makes no sense today! After that year, school wasn’t impacted by my T1D. Went on to earn 3 university degrees after finishing with high school – so, overall, diabetes did not affect my performance.

      1
      5 months ago Log in to Reply
    21. Amanda Barras

      No, I was dx at age 4, was an honor student my entire schooling career. If anything it made me more responsible.

      1
      5 months ago Log in to Reply
    22. mbulzomi@optonline.net

      I answered “NO”. I was 23 years old and just discharged from USN.

      5 months ago Log in to Reply
    23. Wanacure

      Before onset of T1D in Jr. High School (9th grade) I didn’t like to exercise much. After diagnosis I learned to enjoy exercise as much as I enjoyed reading books, always a good student. Really enjoyed HS Honor Classes and friends there. Always did great on tests, scored high on SATs, but found college disappointing at first. Eventually attended grad school. As a kid & young adult I was on beef/pork NPH and big carbo ADA diet with easy to understand exchange system. I kept my diabetes a secret, because I wanted to fit in, didn’t want to be treated differently. But fortunately my mom probably informed school system and school nurses and some parents of my closest friends (w/o telling me). I did my best to avoid lows, usually not a problem. Used Clinitest tablets and test tube at home, and when testape was invented, I relied heavily on that for convenience to avoid sugar in urine (180 mg/dL accepted as threshold for sugar appearing in urine). Finger-tip drop-of-blood glucose meter/strips a huge step forward, instead of the once per year lab test! With diabetes injections and no more candy, I felt more in control, more responsible for my life. That confidence was undermined at times as young adult and in adulthood by unexpected nighttime hypoglycemic tongue-biting seizure episodes. No longer a problem with seizure med and now a CGM. Maybe I don’t need seizure med after all for borderline “epilepsy?”
      Suggested Question of The Day:
      Using a pump have you been able to go off seizure medication? This would probably have to be addressed to a much larger audience that included the “seizure disorder” community to get any answers.

      5 months ago Log in to Reply
    24. Steve Rumble

      My T1D was diagnosed when I was in my early 20s. It did not affect my time in college.

      5 months ago Log in to Reply
    25. Cheryl Seibert

      No my performance was not affected. I had T1D throughout all my school years. I had a near perfect GPA (the 0.02 below a perfect GPA was NOT due to T1D: LOL!) and I was co-valedictorian of a class of over 400. T1D caused me issues in my school years, but I don’t remember it holding me back on anything. I have more trouble now that I’m retired, with extended family health concerns.

      5 months ago Log in to Reply
    26. PamK

      My senior year of high school my blood sugars were out of control. I felt sick for most of the first semester and missed a lot of classes as a result. When I asked for help getting caught up, several teachers said it wasn’t possible. Most let me switch to easier classes, except one. This teacher insisted I stay in his class, but would offer no assistance. As a result, I failed his class and was not allowed to graduate until after summer school.

      5 months ago Log in to Reply
    27. kathy Granzow

      i know they were affected by MY diabetes – I wound up having a DKA a few months before my daughter was to graduate HS and she missed an important assignment because she just couldn’t do it with my hospitalization – I was in a coma for at least three days

      4 months ago Log in to Reply

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