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    • 31 minutes ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 5 hours, 1 minute ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 6 hours, 4 minutes ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 6 hours, 5 minutes ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 1 hour ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 1 day, 5 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 1 day, 6 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 1 day, 6 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 1 day, 17 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 1 day, 17 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 2 days, 1 hour ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 2 days, 6 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
    • 2 days, 7 hours ago
      Meerkat likes your comment at
      Over the past week, what percent of the time have you been within your glucose target range?
      Around 95%
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It’s usually at the end of my sensor session. Day 8 or 9
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      I tried to answer all of them but it wouldn’t let me. Or maybe my answer should be-for no apparent reason. It happens any time from day five on with no particular reason.
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Methinks the question doth another answer require. I almost clicked "out of range," but the occurrences often happen when withing 6 feet of CGM and the *#($% thing still has a signal loss. I re-orient so both devices are face to face. It STILL indicates signal loss. Then, after considerable time, these digital devices change their minds and say to each other, "OK, let's communicate again." My patience and frustration are suffering. 🗣˙◠˙
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Day 5 of 7, 4 out of 5 sensors in that box.
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
    • 3 days, 2 hours ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 3 hours ago
      Lauren T likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      for no discernable reason.
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      CindyGoddard likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
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    If you are currently using an insulin pump, where on your body is your pump site placed right now?

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    If you have moved away from your T1D care provider, how challenging was it to find a new T1D care provider who was accepting new patients?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. GLORIA MILLER

      The kids that I knew who developed diabetes when young were all excellent students.

      3 years ago Log in to Reply
    2. Christine Gran

      High blood sugars causes my child migraines and he has missed numerous days of school due to that.

      3 years ago Log in to Reply
    3. Kristine Warmecke

      At times, yes my performance was affected. While in grade school urine testing was all that was available. So knowing where one’s blood sugar level was unheard of.

      2
      3 years ago Log in to Reply
    4. Jeff Balbirnie

      Net to my knowledge, T1D had zero known effect(s) re: my academic performance directly. Hospitalized/more I’ll from XYZ due to diabetes occasionally, but causal to academic issues never, not once

      3 years ago Log in to Reply
    5. AnitaS

      I am not sure. It possibly could have as I went to school with diabetes from third grade through 12th grade without the benefit of blood sugar monitoring. In college is when blood glucose meters came into play for me. There were times my sugar level went low during class so maybe I couldn’t concentrate as well at those times?

      1
      3 years ago Log in to Reply
    6. Ahh Life

      I am compelled to say, no, since I have known no other life. 18 years of school plus kindergarten. I, like so many other people, got my real education after I got out of school. You know, the place where they give the test first and the lesson afterwards. ︡⚈ ︵⚈︠

      1
      3 years ago Log in to Reply
    7. kflying1@yahoo.com

      My kid’s were all out of school when I was first diagnosed as being diabetic. All are now have been diagnosed as being pre-diabetic. 3 with PCOS (and 1 miracle grandson!)

      3 years ago Log in to Reply
    8. pru barry

      I don’t think it affected me academically, but this shy kid entered high school with the shame of someone like a drug addict. Letting anyone know I lived on daily injections felt mortifying. So much better being an adult, and knowing all that horror is behind me. Times have changed for the better :^} !

      1
      3 years ago Log in to Reply
    9. Jneticdiabetic

      Diagnosed in college. Succeeded despite the challenges T1D and being on NPH insulin sometimes posed. Highs sometimes made me drowsy during lectures I loved. Lots and highs and lows trying to avoid NPH peaks and crashes during 2-3hr science labs. These surely affected my performance at times. Overall, I think living with T1D has made me resilient and an effective and creative problem solver, so also enhanced my performance.

      2
      3 years ago Log in to Reply
      1. Lyn McQuaid

        I was diagnosed in college too and perhaps about the same time period as you as I have the same memories of problems with NPH timing. Timing was difficult back then! But I never said a word about it to any of my professors.

        I have now been a college professor myself for 22 years and have only had two students who revealed to me that they were T1 and hence may need to eat during class, leave the room, etc.

        2
        3 years ago Log in to Reply
    10. Drina Nicole Jewell

      My son says it does when he has to miss school due to an early morning low that knocks him on his behind or a stubborn high we can’t get down throughout the night. Or when he has to leave early. He doesn’t feel lows so those don’t affect him more than the few minutes it takes to treat. Highs at school are typically from his gym class, that Carson spike I think he called it. But drops on its own so he does t do a correction dose. He is really good at communicating to his teachers about his needs so other than missing school due to his type 1, he says no it doesn’t affect him.

      3 years ago Log in to Reply
    11. Janis Senungetuk

      Yes, I definitely think all the lows and highs I experienced from 1955 on made a difference. From 3rd grade until 8th grade I was taking one AM injection a day of beef/pork Regular insulin. I tested my urine twice a day…and that was the available glucose management. The years from 8th grade thru my undergraduate studies included a carousel of different insulins resulting in frequent sudden lows that made taking notes, paying attention to lectures and demonstrations and taking exams difficult. I did well in most subjects, with math being an exception, but I have no way of knowing if I could have done better.

      3
      3 years ago Log in to Reply
    12. Mary Ann Sayers

      Because I was only 7 years old when dx with T1D, dealing with a shot every day and no longer able to eat sweets, school curriculum and my performance was the last thing I was thinking about. Was it effected? I don’t think so. NOT UNTIL I GOT TO BE THIRTEEN!!! Who wants to go through puberty and deal with T1D at the same time?!!! And add high school curriculum and the personality changes that are part of that experience and you’re asking if T1D affected my performance? I don’t have anything to compare it to!!! I’ve been T1D since the 2nd grade!!!

      1
      3 years ago Log in to Reply
    13. Lawrence S.

      I did not have T1D while I was in school. But, I can definitely tell you that T1D did affect my performance at work and during work related trainings. Especially before blood testing was available, before insulin pumps, and before CGM’s. I was constantly fighting off low blood glucoses multiple times daily throughout those years, and my brain was in a constant fog. Once I got on an insulin pump, using blood test strips, I was able to stay up with my peers.

      2
      3 years ago Log in to Reply
      1. Amanda Barras

        I agree! Had no problems in school as far as grades etc were concerned but at work through the end of high school and college I had plenty of lows at work that interrupted my ability to do my job. I do not miss those pre-pump/CGM days!

        1
        3 years ago Log in to Reply
    14. Ms Cris

      …but it sure has impacted my job performance.

      3 years ago Log in to Reply
    15. Britni

      I said no mostly because there wasn’t an “unsure” option. I definitely struggled through a few standardized tests (wet myself during one, had to cope with bigoted proctors during another), but I scored well despite the distractions. Who’s to say if I might have scored better without them?

      3 years ago Log in to Reply
    16. Pauline M Reynolds

      Other because there should have been a category that indicated a diagnosis of T1D after leaving school.

      3 years ago Log in to Reply
    17. Kim Murphy

      It was affected if I had a low blood sugar but not all the time.

      3 years ago Log in to Reply
    18. Bob Durstenfeld

      In the 1960s I often went to school both high and low. My granddaughter with T1D uses a Dexcom G6 with Follow. So much easier.

      1
      3 years ago Log in to Reply
    19. Lynn Smith

      I said no because other than the 3-4 weeks I missed of 7th grade when I was first diagnosed, I don’t remember missing any school due to my diabetes.

      3 years ago Log in to Reply
    20. M C

      I waffled while deciding ‘how’ to answer…. I eventually went with ‘no’, as overall it really had little impact. On the ‘yes’ side, it impacted me only in the 1st year I was diagnosed, as it caused me to miss a good portion of the last 1/3 of that school year. It also caused me to be demoted by a gym teacher, who decided through her ignorance, that I wouldn’t be ‘able’ to cope remaining on the top field hockey (1st- 11’s) team due to my T1D diagnoses and demoted me to the 2nd team (2nd-11’s). What was bizarre, in the extreme, was the fact that I not only played on the 2nd-11’s, but asked to fill in on the 1st-11’s for most of their games. Made no sense then – still makes no sense today! After that year, school wasn’t impacted by my T1D. Went on to earn 3 university degrees after finishing with high school – so, overall, diabetes did not affect my performance.

      1
      3 years ago Log in to Reply
    21. Amanda Barras

      No, I was dx at age 4, was an honor student my entire schooling career. If anything it made me more responsible.

      1
      3 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I answered “NO”. I was 23 years old and just discharged from USN.

      3 years ago Log in to Reply
    23. Wanacure

      Before onset of T1D in Jr. High School (9th grade) I didn’t like to exercise much. After diagnosis I learned to enjoy exercise as much as I enjoyed reading books, always a good student. Really enjoyed HS Honor Classes and friends there. Always did great on tests, scored high on SATs, but found college disappointing at first. Eventually attended grad school. As a kid & young adult I was on beef/pork NPH and big carbo ADA diet with easy to understand exchange system. I kept my diabetes a secret, because I wanted to fit in, didn’t want to be treated differently. But fortunately my mom probably informed school system and school nurses and some parents of my closest friends (w/o telling me). I did my best to avoid lows, usually not a problem. Used Clinitest tablets and test tube at home, and when testape was invented, I relied heavily on that for convenience to avoid sugar in urine (180 mg/dL accepted as threshold for sugar appearing in urine). Finger-tip drop-of-blood glucose meter/strips a huge step forward, instead of the once per year lab test! With diabetes injections and no more candy, I felt more in control, more responsible for my life. That confidence was undermined at times as young adult and in adulthood by unexpected nighttime hypoglycemic tongue-biting seizure episodes. No longer a problem with seizure med and now a CGM. Maybe I don’t need seizure med after all for borderline “epilepsy?”
      Suggested Question of The Day:
      Using a pump have you been able to go off seizure medication? This would probably have to be addressed to a much larger audience that included the “seizure disorder” community to get any answers.

      3 years ago Log in to Reply
    24. Steve Rumble

      My T1D was diagnosed when I was in my early 20s. It did not affect my time in college.

      3 years ago Log in to Reply
    25. Cheryl Seibert

      No my performance was not affected. I had T1D throughout all my school years. I had a near perfect GPA (the 0.02 below a perfect GPA was NOT due to T1D: LOL!) and I was co-valedictorian of a class of over 400. T1D caused me issues in my school years, but I don’t remember it holding me back on anything. I have more trouble now that I’m retired, with extended family health concerns.

      3 years ago Log in to Reply
    26. PamK

      My senior year of high school my blood sugars were out of control. I felt sick for most of the first semester and missed a lot of classes as a result. When I asked for help getting caught up, several teachers said it wasn’t possible. Most let me switch to easier classes, except one. This teacher insisted I stay in his class, but would offer no assistance. As a result, I failed his class and was not allowed to graduate until after summer school.

      3 years ago Log in to Reply
    27. kathy Granzow

      i know they were affected by MY diabetes – I wound up having a DKA a few months before my daughter was to graduate HS and she missed an important assignment because she just couldn’t do it with my hospitalization – I was in a coma for at least three days

      3 years ago Log in to Reply

    Do you think your (or your child’s) performance in school was affected by T1D? Cancel reply

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