If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?
No, why should I? I am not gluten intolerant, even been tested for it. I see no reason to omit more products from my diet.
I have been diagnosed with Celiac disease for about 15 years. So, I have to eat gluten-free. I have not strayed from the diet.
I DO NOT recommend that anyone eat a gluten-free diet unless they are diagnosed with Celiac disease or some gluten allergy. If it is not necessary, there is no reason to eat gluten free. I find the gluten free diet to be overly restrictive, and much, much more stressful than dealing with Type 1 Diabetes. There are so few foods that I can eat, further complicated by irritable bowel syndrome.
my husband is gluten-intolerant, so I eat the same gluten-free carbs as him. I eat carbs rather sparingly.
I eat about 95% grain free, because I am so intolerant of carbs! I therefore, by default, eat gluten free. Gluten is a protein I tolerate just fine. I miss it.
My antibodies to gluten were tested a few years back due to 23andme saying I was at risk for Celiac disease. But it was negative. Yet, I tend to stay away from bread, pasta and other processed forms of food cause my blood sugar is much easier to manage without having so many carbs. I’m happy eating plain whole foods.
My 5 year old was just diagnosed with celiac disease last week. Our household is going mostly gluten-free but not entirely. He is not the one with T1D. I am.
We ate gluten free for a year and it made no difference so we’re eating gluten again. No celiac dx
Yes, by default, because we eat a very low carb diet to control blood sugar and maintain a high time-in-range.
I answered No, but I do avoid bread since most commercially made bread has so much sugar, right Subway?
No. I avoid most starchy carbs (trying to be low carb to lose weight in addition to my T1D). When I read the nutrition info on gluten free items, they often have more carbs than I like to ingest. Substituting rice for wheat doesn’t work for me.
I’m gluten intolerant. I normally don’t eat pasta because of the amount of carbs in them, but I do love all kind of breads and pastries. Unfortunately, every time I indulge in these items, the gluten messes up my stomach. Its not really worthy.
I’m also dairy intolerant so the variety of foods I eat without either increasing my sugar or messing up my stomach is limited.
Preparing a meal is difficult and discouraging.
I generally eat grain free but not always. I find that I feel better when I eat no grains and it is easier to manage BS. I don’t have to worry so much about hidden gluten so I am sure I get gluten when I don’t even know it. On special occasions I will enjoy something that is not grain free. I am not a purist:) and luckily, don’t have to be.
Typically gluten free because typically I don’t eat bread products, pastas, etc because of the effect on my bg levels.
I eat 40 grams or less of carbs a day. The only grain product I eat is three corn taco shells once a week.
I thought “gluten-free” was just another bourgeoisie food fad diet like the zen macrobiotic diet that turned out to be a hoax. Then my brother claimed he was gluten free years ago and tried to warn me. Still, I thought it was just another hoax, because he didn’t show me any western medicine lab test. This year my doctors ordered an endoscopy for me. The results convinced my doctors to recommend I go gluten free. I’d already cut out a lot of carbs to maintain better glucose control, to cut down insulin doses, and to reduce hypoglycemia risk as recommended in Dr. Richard K. Bernstein’s books, himself a T1D. I’m not on a full ketogenic diet…yet. But I’m very low carb, and don’t feel deprived at all. Nuts, seeds, butter, cream, plain unsweetened full fat yoghurt, veggies, sardines, salmon, and cheeses are very satisfying. I want to thank the people on ketogenic diets who’ve provided us with so much info in their replies on this website. I understand that the first month on a ketogenic diet I’ll pee copiously and may lose vitamins or minerals. I might have to take vitamin-mineral supplements, at least during one month transition period. Can blood tests reveal if continued dietary supplements are needed? I guess I should get a complete blood work up to find my present baseline. My present lab bloodwork doesn’t test for vitamins and minerals, just for cholesterol, HbA1c, and IGA. If I go fully ketogenic, ketones will show up in my blood and urine causing possibly causing lab techs and my doctors to freak out. They may not be very supportive. I’m pretty sure they’ll try to dissuade me. They don’t even like my low carb diet! Do ketogenic diets require vitamin and mineral supplements beyond the one month transition period?
Diagnosed with celiac four years ago. Probably had it most of my life. Damn internist kept saying “you’ve had Type1 for so long, of course you’re going to have problems with your stomach. Neuropathy probably. “. Got so I couldn’t eat anything but cottage cheese. Lost 15 pounds in six weeks. Finally got referred to Gastroenterologist. Grrrr!
Our son was diagnosed with Celiac, so when he is joining us for a meal it is gluten free. We do not eat gluten free all of the time though.
I answered “no”because we do not TYPICALLY avoid gluten. However, I have noticed that our T1D daughter’s blood glucose levels ususally do not spike when eating gluten-free food, so I occationally try to buy that.
Mary Ann Sayers
My GRANDDAUGHTER has celiac disease! (She was asked if any relatives had it or diabetes) She kiddingly? blamed me for getting it. I’ve had T1D since I was 7, her grandfather was dx at 70 with type 2 about 10 years ago. She knows no one is to blame.
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Most of the time I am gluten free because I typically do not eat bread or pastas. But only as a help to blood sugars.