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    • 14 hours, 24 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      The hospital made me disengage my pump and promised to monitor my BG. After 10 hours with an incorrect basal my BG was high and going up. No nurse or doctor was available to administer insulin. I finally reinstalled my pump and forced the hospital to acknowledge that they could not monitor my BG. After appealing to the hospital Board, after my stay, they started using CGM's in all the wards for diabetic patients.
    • 14 hours, 25 minutes ago
      Jeanne McMillan-Olson likes your comment at
      If you have been hospitalized for a reason unrelated to T1D and you were alert during your hospital stay, were you allowed to manage your own insulin dosage? (If you have been hospitalized for reasons unrelated to T1D multiple times, please select the option that describes your most recent hospital stay.)
      During my hospitalizations for cardiac issues, my endocrinologist (who does not do hospitals) told the attending endo that I was capable of managing the diabetes. I was allowed to mange pump and CGM without any problems. For one stay, I had a pump-using T1D nurse. This was the premier cardiac hospital in the western part of my state, so their handing of diabetes may be more advanced. There are two rules for handing the type 1 diabetic in a hospital setting. 1) Never separate the Type 1 diabetic from his or her insulin. 2) Let the expert in the room handle the diabetes. And bring your own supplies, because the hospital will not have pump supplies, CGM replacements, or your insulin.
    • 15 hours, 16 minutes ago
      Jan Masty likes your comment at
      Have you (or your loved one with T1D) been diagnosed with retinopathy?
      No retinopathy... But AMD both eyes last 2 years...No treatment available... Unable to wright... bareley able to read only large type... use the talking guy hideing in my computer to read for me... Almost 91 years OLD.... 70 years T1D...
    • 15 hours, 43 minutes ago
      mojoseje likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I didn't have a stopwatch out, but it was about 12 to 15 minutes. There was a lot to go over (new devices, etc.). I probably got everything I needed, but, for some reason, I always feel rushed at this office.
    • 15 hours, 56 minutes ago
      KarenM6 likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 16 hours, 48 minutes ago
      Janis Senungetuk likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was over 20 minutes but since my Endo has me so well Regulated (A1c 5.4 - 5.6) even Medicare is allowing a Visit every 4 Months. Dex 6 and Tandem CIQ is my Cure!
    • 16 hours, 55 minutes ago
      Judy Hampton likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      My A1C is normally in the 5 to 6 range also, but I am lucky to have an Endo who answers any questions I may have and discourse on new technologies. He also checks my feet and eyes. He spends up to 40 minutes with me. I have been T1D for 59 years and have been through a pregnancy (hellish) also. I still have many questions about this disease and it’s effects on the rest of my body as I am very active.
    • 17 hours, 17 minutes ago
      Patricia Dalrymple likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 19 minutes ago
      cynthia jaworski likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      I believe if you have good control and your A1C's prove it, maybe 10 to 20 minutes is enough. My A1C's are in the high 5's / low 6's so my session is usually complete within minutes tops, but there are probably other patients that should require a little more time from their endo to get them on a 'well managed' A1C path.
    • 17 hours, 26 minutes ago
      Anneyun likes your comment at
      If you are an adult with T1D, how much has type 1 diabetes affected your thought-process and decision to have/not have children?
      I was diagnosed at age 12 and I don’t remember anyone talking to me about having or not having children. I married at 23, had an unplanned pregnancy that began when I was 24. I was not seeing an endocrinologist at the time (in 1979), but my OB doctor sent me to one. Both of the doctors made comments to me about maybe ending the pregnancy, but my answer was a definite NO!!! It was a hard pregnancy without the better insulin and technology that is available today. I went into labor approximately 6 weeks before my estimated due date. Since a Caesarian had been planned, no one had explained anything to me about going through labor, so that took longer and was harder on me than it should have been. Anyway I delivered a 7 pound, 11 ounce boy. He had jaundice and a slight heart murmur at first , but that cleared up after a short stay in the hospital. My son is 42 now and bloodwork has indicated he will not become a T1D. Same with his 2 children. That was my only pregnancy. I am now 67.
    • 18 hours, 51 minutes ago
      Joan Fray likes your comment at
      During your most recent appointment, about how much time did you spend with your main T1D health care provider?
      It was so long ago, I don't remember...
    • 1 day, 9 hours ago
      TS likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 14 hours ago
      jo likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      InsulinPumpers.com does a great job of distributing supplies to those in need.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I tried to donate them to my healthcare system but was told they were not allowed to take them. I tried a couple of other places- same story so I now will have to put them in the garbage
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I'm still looking for someone to give them to.
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 14 hours ago
      KarenM6 likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My other was gave them to the Endocrinologist office to give to people who needed them
    • 1 day, 15 hours ago
      Trina Blake likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Amanda Barras likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have decided to give them to my endo's office. They have a nice supply closet of donations, that they give to people in trouble. Since i have had to dip in that closet once, I now know how important that can be.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I would love to learn of places to give/donate supplies!
    • 1 day, 17 hours ago
      Janis Senungetuk likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I gave insulin to a friend for her cat who used the same as I did.( she also checked with her vet).
    • 1 day, 17 hours ago
      pru barry likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      I have given most to my doctor to give to someone in need. Some I gave to my chiropractor for his son.
    • 1 day, 18 hours ago
      Sue Martin likes your comment at
      If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Please select all that apply.
      My unused diabetes supplies like meters, that I was given but don’t use, just sit in a drawer. I wish there was someplace to send them. Any ideas, folks?
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    Do you (or your loved one with T1D) typically eat gluten-free?

    Home > LC Polls > Do you (or your loved one with T1D) typically eat gluten-free?
    Previous

    If you were diagnosed with diabetes as a child or teen, when did you transfer your care to an adult diabetes provider (e.g., adult endocrinologist, adult diabetes specialist, adult primary care provider for your T1D)?

    Next

    How long does it typically take for your durable medical equipment or pharmacy supplier to obtain prior authorization or chart notes from your T1D health care provider’s office?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Janice Bohn

      Most of the time I am gluten free because I typically do not eat bread or pastas. But only as a help to blood sugars.

      3
      7 months ago Log in to Reply
    2. Lena Selbrand

      No, why should I? I am not gluten intolerant, even been tested for it. I see no reason to omit more products from my diet.

      3
      7 months ago Log in to Reply
    3. Lawrence S.

      I have been diagnosed with Celiac disease for about 15 years. So, I have to eat gluten-free. I have not strayed from the diet.
      I DO NOT recommend that anyone eat a gluten-free diet unless they are diagnosed with Celiac disease or some gluten allergy. If it is not necessary, there is no reason to eat gluten free. I find the gluten free diet to be overly restrictive, and much, much more stressful than dealing with Type 1 Diabetes. There are so few foods that I can eat, further complicated by irritable bowel syndrome.

      2
      7 months ago Log in to Reply
    4. cynthia jaworski

      my husband is gluten-intolerant, so I eat the same gluten-free carbs as him. I eat carbs rather sparingly.

      7 months ago Log in to Reply
    5. Ms Cris

      I eat about 95% grain free, because I am so intolerant of carbs! I therefore, by default, eat gluten free. Gluten is a protein I tolerate just fine. I miss it.

      7 months ago Log in to Reply
    6. Patricia Kilwein

      Only if carbs, fiber content and protein are there. Otherwise it’s a pass.

      7 months ago Log in to Reply
    7. Eva

      My antibodies to gluten were tested a few years back due to 23andme saying I was at risk for Celiac disease. But it was negative. Yet, I tend to stay away from bread, pasta and other processed forms of food cause my blood sugar is much easier to manage without having so many carbs. I’m happy eating plain whole foods.

      1
      7 months ago Log in to Reply
    8. E24murph@gmail.com

      My 5 year old was just diagnosed with celiac disease last week. Our household is going mostly gluten-free but not entirely. He is not the one with T1D. I am.

      7 months ago Log in to Reply
    9. Carolann Hunt

      We ate gluten free for a year and it made no difference so we’re eating gluten again. No celiac dx

      2
      7 months ago Log in to Reply
    10. MARIE

      Yes, by default, because we eat a very low carb diet to control blood sugar and maintain a high time-in-range.

      7 months ago Log in to Reply
    11. kflying1@yahoo.com

      Being a t1D carries many diet restrictions – thank God that for me gluten isn’t one of them.

      7 months ago Log in to Reply
    12. Jeff Balbirnie

      Yup But not for me. There a whole bunch of allergies in the house

      7 months ago Log in to Reply
    13. Toddrich

      I answered No, but I do avoid bread since most commercially made bread has so much sugar, right Subway?

      7 months ago Log in to Reply
    14. kristina blake

      No. I avoid most starchy carbs (trying to be low carb to lose weight in addition to my T1D). When I read the nutrition info on gluten free items, they often have more carbs than I like to ingest. Substituting rice for wheat doesn’t work for me.

      7 months ago Log in to Reply
    15. Mig Vascos

      I’m gluten intolerant. I normally don’t eat pasta because of the amount of carbs in them, but I do love all kind of breads and pastries. Unfortunately, every time I indulge in these items, the gluten messes up my stomach. Its not really worthy.
      I’m also dairy intolerant so the variety of foods I eat without either increasing my sugar or messing up my stomach is limited.
      Preparing a meal is difficult and discouraging.

      1
      7 months ago Log in to Reply
    16. Carol Meares

      I generally eat grain free but not always. I find that I feel better when I eat no grains and it is easier to manage BS. I don’t have to worry so much about hidden gluten so I am sure I get gluten when I don’t even know it. On special occasions I will enjoy something that is not grain free. I am not a purist:) and luckily, don’t have to be.

      7 months ago Log in to Reply
    17. Becky Hertz

      Typically gluten free because typically I don’t eat bread products, pastas, etc because of the effect on my bg levels.

      1
      7 months ago Log in to Reply
    18. sdimond

      I eat 40 grams or less of carbs a day. The only grain product I eat is three corn taco shells once a week.

      1
      7 months ago Log in to Reply
    19. Wanacure

      I thought “gluten-free” was just another bourgeoisie food fad diet like the zen macrobiotic diet that turned out to be a hoax. Then my brother claimed he was gluten free years ago and tried to warn me. Still, I thought it was just another hoax, because he didn’t show me any western medicine lab test. This year my doctors ordered an endoscopy for me. The results convinced my doctors to recommend I go gluten free. I’d already cut out a lot of carbs to maintain better glucose control, to cut down insulin doses, and to reduce hypoglycemia risk as recommended in Dr. Richard K. Bernstein’s books, himself a T1D. I’m not on a full ketogenic diet…yet. But I’m very low carb, and don’t feel deprived at all. Nuts, seeds, butter, cream, plain unsweetened full fat yoghurt, veggies, sardines, salmon, and cheeses are very satisfying. I want to thank the people on ketogenic diets who’ve provided us with so much info in their replies on this website. I understand that the first month on a ketogenic diet I’ll pee copiously and may lose vitamins or minerals. I might have to take vitamin-mineral supplements, at least during one month transition period. Can blood tests reveal if continued dietary supplements are needed? I guess I should get a complete blood work up to find my present baseline. My present lab bloodwork doesn’t test for vitamins and minerals, just for cholesterol, HbA1c, and IGA. If I go fully ketogenic, ketones will show up in my blood and urine causing possibly causing lab techs and my doctors to freak out. They may not be very supportive. I’m pretty sure they’ll try to dissuade me. They don’t even like my low carb diet! Do ketogenic diets require vitamin and mineral supplements beyond the one month transition period?

      1
      7 months ago Log in to Reply
    20. Jane Cerullo

      Don’t have a gluten allergy that I am aware of

      7 months ago Log in to Reply
    21. Joan Fray

      Diagnosed with celiac four years ago. Probably had it most of my life. Damn internist kept saying “you’ve had Type1 for so long, of course you’re going to have problems with your stomach. Neuropathy probably. “. Got so I couldn’t eat anything but cottage cheese. Lost 15 pounds in six weeks. Finally got referred to Gastroenterologist. Grrrr!

      2
      7 months ago Log in to Reply
    22. PamK

      Our son was diagnosed with Celiac, so when he is joining us for a meal it is gluten free. We do not eat gluten free all of the time though.

      1
      7 months ago Log in to Reply
    23. Velika Peterson

      I answered “no”because we do not TYPICALLY avoid gluten. However, I have noticed that our T1D daughter’s blood glucose levels ususally do not spike when eating gluten-free food, so I occationally try to buy that.

      7 months ago Log in to Reply
    24. Mary Ann Sayers

      My GRANDDAUGHTER has celiac disease! (She was asked if any relatives had it or diabetes) She kiddingly? blamed me for getting it. I’ve had T1D since I was 7, her grandfather was dx at 70 with type 2 about 10 years ago. She knows no one is to blame.

      6 months ago Log in to Reply

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