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  • Activity
    • 41 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 1 hour, 18 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 1 hour ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 1 day, 12 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 1 day, 12 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 1 day, 20 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 20 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 20 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 20 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 1 hour ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 1 hour ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 2 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 16 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 18 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 2 days, 21 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 2 days, 21 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 2 days, 21 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 2 days, 23 hours ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 3 days ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
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    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Home > LC Polls > At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Jen Farley

      I already see a therapist and psychiatrist, my endocrinologist is well aware.

      2
      3 years ago Log in to Reply
    2. Stephen Woodward

      Being diagnosed thirty years earlier would have beeb better than suffering all those year. The difference after starting treatment was amazing.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      I get a questionnaire about health and mental health before each visit. Also, My visit last week was on video. But, I still filled out my pre-visit questionnaire.

      3 years ago Log in to Reply
    4. Scott Rudolph

      They always ask me those questions verbally.

      3 years ago Log in to Reply
      1. KCR

        Me, too, plus discuss any concerns I bring to the appointment.

        3 years ago Log in to Reply
    5. Steve Rumble

      I filled out such a questionnaire on line prior to the appointment

      1
      3 years ago Log in to Reply
    6. Saraha

      Looks like the medical community needs to address mental health for their patients.

      1
      3 years ago Log in to Reply
      1. Dave Akers

        It’s not reimbursable, so the only ones that will take action are those that care about patients over profits for the Healthcare system.

        3 years ago Log in to Reply
    7. Karen Taylor

      No for my endo doc but I did have a questionnaire at my primary care facility that gave me that survey.

      2
      3 years ago Log in to Reply
      1. TEH

        I did too. It was part of my Medicare anual wellness check.

        2
        3 years ago Log in to Reply
    8. Mick Martin

      It’s been years since I was last asked to fill out a questionnaire on my Mental Health, and this was NOT by anyone employed within the Diabetes Centre, but someone who was from top management within the hospital. To be frank, if you don’t mind me changing my name for a second, I firmly believe it was a ‘ticking boxes’ exercise. i.e. to show that this was something that they do.

      3
      3 years ago Log in to Reply
      1. Kayci Marr

        That sucks to hear 🙁 and I can definitely see that happening. I have always been followed up with in my experiences and I wish, wherever you are, your healthcare providers would do the same with genuine care and follow through. I hope if** you do need help, then you reach out to a professional. Be well

        1
        3 years ago Log in to Reply
      2. Mick Martin

        @Kayci Marr,

        Bless you, ma’am.

        During my ‘working years’ I used to be a Social Worker and was in a position to ‘refer’ myself for appointments, none of which served any useful purpose. (I referred myself to see a psychologist and it was arranged for someone to visit me at home. Unfortunately, the person who visited me was already known to me on a professional level. She did ask if I wanted someone else to visit me instead of her good self, but I refused that option. The ‘homework’ she gave me to do sent my mind running back to my own Social Work training and what was required of assignments/essays so I simply wrote what I KNEW the psychologist wanted to ‘hear’.) We never actually got around to talking about what the REAL problem was.)

        3 years ago Log in to Reply
    9. Jeanne McMillan-Olson

      Not with my endo the last time, but I did with my last visit with my PCP.

      3 years ago Log in to Reply
      1. Tracy Jean

        Me too.

        1
        3 years ago Log in to Reply
    10. cynthia jaworski

      What is supposed to be asked?

      3 years ago Log in to Reply
    11. Kim Davis

      But it was a Tele-Health apt.

      3 years ago Log in to Reply
    12. Janis Senungetuk

      I completed a pre-appointment questionnaire on my MyChart account that asked mental health questions in addition to Covid symptom questions. The questionnaire is included in every pre-appointment confirmation response. if it isn’t answered on-line it has to be answered during appointment registration before seeing the provider.

      3 years ago Log in to Reply
    13. Jeff Balbirnie

      Gasping for breath, tears streaming uncontrollably from laughing so hard at the question.

      Not once in 50+ years, not once

      3
      3 years ago Log in to Reply
    14. Chris Albright

      Diabetic for 32 years and I have never had an endo ask me about my mental health. I do think they should since T1D can be ‘challenging’ over an extended length of time.

      3
      3 years ago Log in to Reply
    15. Tb-well

      Kind of. They ask 3 general mental health questions, nothing diabetes specific.

      3 years ago Log in to Reply
    16. mbulzomi@optonline.net

      I believe this is a new process, for me It’s not necessary. My doctor sits down, and we have a lengthy conversation on many subjects other than Diabetes. My Endo. is a HAM Radio operator, and I sat a Second Radio position in the US Navy, as an Anti-Submarine Warfare Crew member. I’m sure he senses my Mental Health.

      3 years ago Log in to Reply
    17. Steven Gill

      Of the 5 endocrinologists I’ve seen, during the med trial, (#2) and the last had such a form. I guess my curse of optimism the others just ask general questions, but diabetes to me is just a part.

      3 years ago Log in to Reply
    18. T1D4LongTime

      No, the doctor does a verbal questionnaire. This allows him to expand on any concerning answers.

      3 years ago Log in to Reply
    19. Andrea Hultman

      I have never had a T1D healthcare provider ask me to fill out a mental health questionnaire, and that’s sad.

      1
      3 years ago Log in to Reply

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment? Cancel reply

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