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    • 24 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 28 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 29 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 hour, 16 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 18 hours, 22 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 18 hours, 22 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 22 hours, 59 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 23 hours, 36 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 10 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 10 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 18 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 18 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 18 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 18 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 22 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 22 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 23 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 23 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 3 days ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 1 hour ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 14 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
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    If you have T1D, have you also been diagnosed by a health care provider with ADHD?

    Home > LC Polls > If you have T1D, have you also been diagnosed by a health care provider with ADHD?
    Previous

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Next

    Do you approach strangers in public who have visible diabetes devices?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Ahh Life

      No for myself. However, if someone around you has ADHD, it is most certainly one of those Genies you wish could be returned to their bottles.

      2
      3 years ago Log in to Reply
    2. AimmcG

      My father and my children have ADHD. I am fairly confident I have it and due my MS, my Neurologist prescribed medication to help.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      No. But, sometimes I wonder. When I was younger, my mind wandered a lot. I also did a lot of running around. I cannot focus on what I’m doing (i.e., reading) with the television on.

      3
      3 years ago Log in to Reply
    4. Kelly Wilhelm

      I have some ADD tendencies but would classify as ADHD.

      1
      3 years ago Log in to Reply
    5. Kristen Clifford

      I’m 90% certain that I have ADHD. I’m pretty sure I’ve always had it. My mom always suspected that I was on the autism spectrum, as my younger brother has autism, but ADHD makes a lot more sense. My husband and sister-in-law have it, too. My mother-in-law once showed me a pamphlet about adult ADHD, trying to make the case that my husband had it. After reading through it, not only was I certain that he had it, but it made me think I might have it, too.

      2
      3 years ago Log in to Reply
    6. Lauren Carey

      I was recently diagnosed, at 42, with ADHD. It makes a lot of sense but has been a struggle to accept and try to make the changes necessary to control it. I am working with my psychiatrist and a therapist, which has helped.

      2
      3 years ago Log in to Reply
    7. james zellerhoff

      What is ADHD — ?

      3 years ago Log in to Reply
      1. Ahh Life

        james zellerhoff–

        It’s a disease with no brakes. You are always on and going 125 mph. Thoughts race constantly equally fast.

        1
        3 years ago Log in to Reply
      2. ConnieT1D62

        Attention Deficit Hyperactive Disorder

        1
        3 years ago Log in to Reply
    8. Lynn Smith

      I have a son who is extremely ADHD. He was diagnosed when he was around 7. He is 42 now. Somewhere along the way, one of his psychiatrists pointed out my traits that seem to indicate some level of ADHD, but he never gave me that diagnosis. These days, many years later, I take meds for anxiety and depression. So that helps with those symptoms. I have been on those same meds for many years now.

      2
      3 years ago Log in to Reply
    9. ConnieT1D62

      I have had Attention Deficit Disorder ADD, now referred to as ADHD, non-attentive type, since childhood. In fact the tendencies to daydream and seem like I wasn’t paying attention, and the opposite to hyper-focus on something, showed up at around the same time I was diagnosed with T1D at age 8 in the 3rd grade. The ADD and hyper-focus brain patterns have been with me my whole life but it wasn’t until I was an adult in my 50s that I was finally given a formal diagnosis and have been treated with a very low dose of Adderall that helps tremendously to reorganize synapse disruption. Even before being prescribed meds, I have worked with deep relaxation, meditation, focused attention, and visualization practices since my twenties to harness the wandering mind tendencies.
      BTW, I celebrated my 60 year diaversary on Dec 28, 2002. ADD and T1D have been with me for a very long time. They have been challenging, but neither has stopped me from living a fulfilling and interesting life and I am still going at it full steam.

      5
      3 years ago Log in to Reply
    10. Henry Renn

      Is there some hypothesis that T1 & ADHD are connected? Family doc put me on pheno-barkatol to save Mom’s sanity before I was dx with T1. As if T1 + another autoimmune issue didnt make life complicated enough.

      3
      3 years ago Log in to Reply
    11. Nichole Pleisch

      I put down other because I have all the symptoms but no formal diagnosis yet however my boyfriend who is type 1 as well is also diagnosed with ADHD

      4
      3 years ago Log in to Reply
    12. Kristine Warmecke

      I had extensive testing in grade school, during the 1970’s, no ADHD diagnosed; just dyslexia.

      3 years ago Log in to Reply
    13. KarenM6

      I have had a psychiatrist who wanted to test me. I don’t the test happened, though. It was long enough ago and I don’t really remember the details.
      It’s been awhile since I knew what the symptoms are… although, I know I can hyperfocus like crazy. Had a co-worker who stood in front of my desk calling my name for a reported 10 minutes before I looked up to see her.
      And, there are a lot of occasions where I can’t focus at all that aren’t related to blood sugar values.
      So, my answer is “Other – possibly, I don’t remember/I don’t know”.

      2
      3 years ago Log in to Reply
      1. Henry Renn

        ADHD is more about attentional inconsistency. When child/adult has high degree of interest they can have laser like concentration. The difference is that most students can attend to subjects with average to low degree of interest enough to get a passing grade. For students with untreated ADHD paying attention is a huge problem. That is compounded with other issues like poor organization, prioritizing input, holding memory, quickly losing interest,, etc. ADHD is also such a wide diagnostic category that 2 students with ADHD rarely present in the same manner.

        1
        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Henry Renn!
        That is a great short description.

        1
        3 years ago Log in to Reply
    14. sweet charlie

      The Doc didn’t tell me… I told him…

      3 years ago Log in to Reply
    15. Jen Farley

      I am a very hyperactive person and been told I act like a person with adhd, it is mainly anxiety and a a high energy level I have to keep in check because my mouth can move faster than my brain.

      1
      3 years ago Log in to Reply
      1. Henry Renn

        Jen, It is true that a person with anxiety and/or depression can present symptoms suggesting ADHD. It is also true that compared to the general population people who have ADHD have a higher than average comorbidity for anxiety and depression. One test is an indicator but not sufficient for making the diagnosis of ADHD. Tests & checklists would be parts of a good diagnostic workup.

        3 years ago Log in to Reply
    16. T1D4LongTime

      LOL! Interesting question! I have never been diagnosed with ADHD. Doctors asked my mother to test me in first grade, but she refused. I was born and still am, very high energy. Type A personality, but I do not have concentration or behavioral/outburst problems. Just inpatience with inefficiency! LOL!

      3 years ago Log in to Reply

    If you have T1D, have you also been diagnosed by a health care provider with ADHD? Cancel reply

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