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    • 13 hours ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 32 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 50 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 21 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 22 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 48 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 50 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    If you have T1D, have you also been diagnosed by a health care provider with ADHD?

    Home > LC Polls > If you have T1D, have you also been diagnosed by a health care provider with ADHD?
    Previous

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Next

    Do you approach strangers in public who have visible diabetes devices?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    21 Comments

    1. Ahh Life

      No for myself. However, if someone around you has ADHD, it is most certainly one of those Genies you wish could be returned to their bottles.

      2
      5 months ago Log in to Reply
    2. AimmcG

      My father and my children have ADHD. I am fairly confident I have it and due my MS, my Neurologist prescribed medication to help.

      1
      5 months ago Log in to Reply
    3. Lawrence S.

      No. But, sometimes I wonder. When I was younger, my mind wandered a lot. I also did a lot of running around. I cannot focus on what I’m doing (i.e., reading) with the television on.

      3
      5 months ago Log in to Reply
    4. Kelly Wilhelm

      I have some ADD tendencies but would classify as ADHD.

      1
      5 months ago Log in to Reply
    5. Kristen Clifford

      I’m 90% certain that I have ADHD. I’m pretty sure I’ve always had it. My mom always suspected that I was on the autism spectrum, as my younger brother has autism, but ADHD makes a lot more sense. My husband and sister-in-law have it, too. My mother-in-law once showed me a pamphlet about adult ADHD, trying to make the case that my husband had it. After reading through it, not only was I certain that he had it, but it made me think I might have it, too.

      2
      5 months ago Log in to Reply
    6. Lauren Carey

      I was recently diagnosed, at 42, with ADHD. It makes a lot of sense but has been a struggle to accept and try to make the changes necessary to control it. I am working with my psychiatrist and a therapist, which has helped.

      2
      5 months ago Log in to Reply
    7. james zellerhoff

      What is ADHD — ?

      5 months ago Log in to Reply
      1. Ahh Life

        james zellerhoff–

        It’s a disease with no brakes. You are always on and going 125 mph. Thoughts race constantly equally fast.

        1
        5 months ago Log in to Reply
      2. ConnieT1D62

        Attention Deficit Hyperactive Disorder

        1
        5 months ago Log in to Reply
    8. Lynn Smith

      I have a son who is extremely ADHD. He was diagnosed when he was around 7. He is 42 now. Somewhere along the way, one of his psychiatrists pointed out my traits that seem to indicate some level of ADHD, but he never gave me that diagnosis. These days, many years later, I take meds for anxiety and depression. So that helps with those symptoms. I have been on those same meds for many years now.

      2
      5 months ago Log in to Reply
    9. ConnieT1D62

      I have had Attention Deficit Disorder ADD, now referred to as ADHD, non-attentive type, since childhood. In fact the tendencies to daydream and seem like I wasn’t paying attention, and the opposite to hyper-focus on something, showed up at around the same time I was diagnosed with T1D at age 8 in the 3rd grade. The ADD and hyper-focus brain patterns have been with me my whole life but it wasn’t until I was an adult in my 50s that I was finally given a formal diagnosis and have been treated with a very low dose of Adderall that helps tremendously to reorganize synapse disruption. Even before being prescribed meds, I have worked with deep relaxation, meditation, focused attention, and visualization practices since my twenties to harness the wandering mind tendencies.
      BTW, I celebrated my 60 year diaversary on Dec 28, 2002. ADD and T1D have been with me for a very long time. They have been challenging, but neither has stopped me from living a fulfilling and interesting life and I am still going at it full steam.

      5
      5 months ago Log in to Reply
    10. Henry Renn

      Is there some hypothesis that T1 & ADHD are connected? Family doc put me on pheno-barkatol to save Mom’s sanity before I was dx with T1. As if T1 + another autoimmune issue didnt make life complicated enough.

      3
      5 months ago Log in to Reply
    11. Nichole Pleisch

      I put down other because I have all the symptoms but no formal diagnosis yet however my boyfriend who is type 1 as well is also diagnosed with ADHD

      4
      5 months ago Log in to Reply
    12. Kristine Warmecke

      I had extensive testing in grade school, during the 1970’s, no ADHD diagnosed; just dyslexia.

      5 months ago Log in to Reply
    13. KarenM6

      I have had a psychiatrist who wanted to test me. I don’t the test happened, though. It was long enough ago and I don’t really remember the details.
      It’s been awhile since I knew what the symptoms are… although, I know I can hyperfocus like crazy. Had a co-worker who stood in front of my desk calling my name for a reported 10 minutes before I looked up to see her.
      And, there are a lot of occasions where I can’t focus at all that aren’t related to blood sugar values.
      So, my answer is “Other – possibly, I don’t remember/I don’t know”.

      2
      5 months ago Log in to Reply
      1. Henry Renn

        ADHD is more about attentional inconsistency. When child/adult has high degree of interest they can have laser like concentration. The difference is that most students can attend to subjects with average to low degree of interest enough to get a passing grade. For students with untreated ADHD paying attention is a huge problem. That is compounded with other issues like poor organization, prioritizing input, holding memory, quickly losing interest,, etc. ADHD is also such a wide diagnostic category that 2 students with ADHD rarely present in the same manner.

        1
        5 months ago Log in to Reply
      2. KarenM6

        Thank you, Henry Renn!
        That is a great short description.

        1
        5 months ago Log in to Reply
    14. sweet charlie

      The Doc didn’t tell me… I told him…

      5 months ago Log in to Reply
    15. Jen Farley

      I am a very hyperactive person and been told I act like a person with adhd, it is mainly anxiety and a a high energy level I have to keep in check because my mouth can move faster than my brain.

      1
      5 months ago Log in to Reply
      1. Henry Renn

        Jen, It is true that a person with anxiety and/or depression can present symptoms suggesting ADHD. It is also true that compared to the general population people who have ADHD have a higher than average comorbidity for anxiety and depression. One test is an indicator but not sufficient for making the diagnosis of ADHD. Tests & checklists would be parts of a good diagnostic workup.

        5 months ago Log in to Reply
    16. T1D4LongTime

      LOL! Interesting question! I have never been diagnosed with ADHD. Doctors asked my mother to test me in first grade, but she refused. I was born and still am, very high energy. Type A personality, but I do not have concentration or behavioral/outburst problems. Just inpatience with inefficiency! LOL!

      5 months ago Log in to Reply

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