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    • 10 hours, 53 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 10 hours, 54 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 12 hours, 36 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 45 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 54 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 14 hours, 42 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 17 hours, 18 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 53 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 18 hours, 8 minutes ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 11 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 8 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    If you have T1D, have you also been diagnosed by a health care provider with ADHD?

    Home > LC Polls > If you have T1D, have you also been diagnosed by a health care provider with ADHD?
    Previous

    At your most recent appointment with your T1D healthcare provider, did you fill out a questionnaire about your mental health during the appointment?

    Next

    Do you approach strangers in public who have visible diabetes devices?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Ahh Life

      No for myself. However, if someone around you has ADHD, it is most certainly one of those Genies you wish could be returned to their bottles.

      2
      3 years ago Log in to Reply
    2. AimmcG

      My father and my children have ADHD. I am fairly confident I have it and due my MS, my Neurologist prescribed medication to help.

      1
      3 years ago Log in to Reply
    3. Lawrence S.

      No. But, sometimes I wonder. When I was younger, my mind wandered a lot. I also did a lot of running around. I cannot focus on what I’m doing (i.e., reading) with the television on.

      3
      3 years ago Log in to Reply
    4. Kelly Wilhelm

      I have some ADD tendencies but would classify as ADHD.

      1
      3 years ago Log in to Reply
    5. Kristen Clifford

      I’m 90% certain that I have ADHD. I’m pretty sure I’ve always had it. My mom always suspected that I was on the autism spectrum, as my younger brother has autism, but ADHD makes a lot more sense. My husband and sister-in-law have it, too. My mother-in-law once showed me a pamphlet about adult ADHD, trying to make the case that my husband had it. After reading through it, not only was I certain that he had it, but it made me think I might have it, too.

      2
      3 years ago Log in to Reply
    6. Lauren Carey

      I was recently diagnosed, at 42, with ADHD. It makes a lot of sense but has been a struggle to accept and try to make the changes necessary to control it. I am working with my psychiatrist and a therapist, which has helped.

      2
      3 years ago Log in to Reply
    7. james zellerhoff

      What is ADHD — ?

      3 years ago Log in to Reply
      1. Ahh Life

        james zellerhoff–

        It’s a disease with no brakes. You are always on and going 125 mph. Thoughts race constantly equally fast.

        1
        3 years ago Log in to Reply
      2. ConnieT1D62

        Attention Deficit Hyperactive Disorder

        1
        3 years ago Log in to Reply
    8. Lynn Smith

      I have a son who is extremely ADHD. He was diagnosed when he was around 7. He is 42 now. Somewhere along the way, one of his psychiatrists pointed out my traits that seem to indicate some level of ADHD, but he never gave me that diagnosis. These days, many years later, I take meds for anxiety and depression. So that helps with those symptoms. I have been on those same meds for many years now.

      2
      3 years ago Log in to Reply
    9. ConnieT1D62

      I have had Attention Deficit Disorder ADD, now referred to as ADHD, non-attentive type, since childhood. In fact the tendencies to daydream and seem like I wasn’t paying attention, and the opposite to hyper-focus on something, showed up at around the same time I was diagnosed with T1D at age 8 in the 3rd grade. The ADD and hyper-focus brain patterns have been with me my whole life but it wasn’t until I was an adult in my 50s that I was finally given a formal diagnosis and have been treated with a very low dose of Adderall that helps tremendously to reorganize synapse disruption. Even before being prescribed meds, I have worked with deep relaxation, meditation, focused attention, and visualization practices since my twenties to harness the wandering mind tendencies.
      BTW, I celebrated my 60 year diaversary on Dec 28, 2002. ADD and T1D have been with me for a very long time. They have been challenging, but neither has stopped me from living a fulfilling and interesting life and I am still going at it full steam.

      5
      3 years ago Log in to Reply
    10. Henry Renn

      Is there some hypothesis that T1 & ADHD are connected? Family doc put me on pheno-barkatol to save Mom’s sanity before I was dx with T1. As if T1 + another autoimmune issue didnt make life complicated enough.

      3
      3 years ago Log in to Reply
    11. Nichole Pleisch

      I put down other because I have all the symptoms but no formal diagnosis yet however my boyfriend who is type 1 as well is also diagnosed with ADHD

      4
      3 years ago Log in to Reply
    12. Kristine Warmecke

      I had extensive testing in grade school, during the 1970’s, no ADHD diagnosed; just dyslexia.

      3 years ago Log in to Reply
    13. KarenM6

      I have had a psychiatrist who wanted to test me. I don’t the test happened, though. It was long enough ago and I don’t really remember the details.
      It’s been awhile since I knew what the symptoms are… although, I know I can hyperfocus like crazy. Had a co-worker who stood in front of my desk calling my name for a reported 10 minutes before I looked up to see her.
      And, there are a lot of occasions where I can’t focus at all that aren’t related to blood sugar values.
      So, my answer is “Other – possibly, I don’t remember/I don’t know”.

      2
      3 years ago Log in to Reply
      1. Henry Renn

        ADHD is more about attentional inconsistency. When child/adult has high degree of interest they can have laser like concentration. The difference is that most students can attend to subjects with average to low degree of interest enough to get a passing grade. For students with untreated ADHD paying attention is a huge problem. That is compounded with other issues like poor organization, prioritizing input, holding memory, quickly losing interest,, etc. ADHD is also such a wide diagnostic category that 2 students with ADHD rarely present in the same manner.

        1
        3 years ago Log in to Reply
      2. KarenM6

        Thank you, Henry Renn!
        That is a great short description.

        1
        3 years ago Log in to Reply
    14. sweet charlie

      The Doc didn’t tell me… I told him…

      3 years ago Log in to Reply
    15. Jen Farley

      I am a very hyperactive person and been told I act like a person with adhd, it is mainly anxiety and a a high energy level I have to keep in check because my mouth can move faster than my brain.

      1
      3 years ago Log in to Reply
      1. Henry Renn

        Jen, It is true that a person with anxiety and/or depression can present symptoms suggesting ADHD. It is also true that compared to the general population people who have ADHD have a higher than average comorbidity for anxiety and depression. One test is an indicator but not sufficient for making the diagnosis of ADHD. Tests & checklists would be parts of a good diagnostic workup.

        3 years ago Log in to Reply
    16. T1D4LongTime

      LOL! Interesting question! I have never been diagnosed with ADHD. Doctors asked my mother to test me in first grade, but she refused. I was born and still am, very high energy. Type A personality, but I do not have concentration or behavioral/outburst problems. Just inpatience with inefficiency! LOL!

      3 years ago Log in to Reply

    If you have T1D, have you also been diagnosed by a health care provider with ADHD? Cancel reply

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