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    • 49 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 50 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 51 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      No one has the time to measure how much time we spend actively thinking about or managing diabetes tasks. It's a constant, ongoing part of my life. For me, it's 24/7. It never stops. Especially later in life, I find that I must stay on top of diabetes management constantly.
    • 51 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 52 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 52 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 53 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 53 minutes ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 4 hours, 30 minutes ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 6 hours, 30 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      No one has the time to measure how much time we spend actively thinking about or managing diabetes tasks. It's a constant, ongoing part of my life. For me, it's 24/7. It never stops. Especially later in life, I find that I must stay on top of diabetes management constantly.
    • 6 hours, 30 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 6 hours, 30 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 6 hours, 31 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 6 hours, 31 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 6 hours, 31 minutes ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 7 hours, 34 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 7 hours, 34 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 7 hours, 35 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 7 hours, 35 minutes ago
      Mike S likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 7 hours, 52 minutes ago
      Anita Stokar likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 8 hours, 7 minutes ago
      Amy Schneider likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 8 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 8 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 8 hours, 47 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 8 hours, 48 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
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    At what age could you (or your child) set up a new infusion site independently without help?

    Home > LC Polls > At what age could you (or your child) set up a new infusion site independently without help?
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    Have you ever changed your insulin delivery routine because of insulin absorption issues? Select all that apply, and share what has worked for you in the comments.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Joan Fray

      Igave myself my 1st shot in doctor’s office when diagnosed. 1962, age 12.

      1
      3 years ago Log in to Reply
    2. Lawrence S.

      I got my first insulin pump in 1998, when I was 45 years old. Prior to that, I took insulin shots 3+ times per day for 21 years.

      3 years ago Log in to Reply
    3. Nevin Bowman

      I began giving my own shots at age 6, when BS testing was still done with urine in a test tube. This was long before the consumer version of insulin pumps hit the market.

      4
      3 years ago Log in to Reply
    4. Amanda Barras

      No insulin pump as child. First learners to shots on own to be able to go to sleepovers around age 9.

      3 years ago Log in to Reply
    5. chlyn

      Started diabetes treatment at 35 years old and no issues with setting up infusion sites.

      3 years ago Log in to Reply
    6. Sue Martin

      This question relates to pumps. There should be an answer that says I don’t use an insulin pump, regardless of age.

      1
      3 years ago Log in to Reply
    7. Bob Durstenfeld

      I started giving and preparing my own injections around age 8. My son did not get a pump until he was 16 and my granddaughter with T1D is only 5.

      3 years ago Log in to Reply
    8. Becky Hertz

      More like, there were no insulin pumps when I was a child.

      3 years ago Log in to Reply
    9. Janis Senungetuk

      I didn’t get a pump until 60 years after dx. At the age of 68 I did need extensive assistance with the infusion set because I lacked the reach and strength to insert it correctly. I’m only 4’8.5″ tall . My hands weren’t large enough to reach the injector button on the first type of infusion set that had been sent with the pump. Once I tried different types of sets I found one I could comfortably use.

      3 years ago Log in to Reply
    10. Cheryl Weaver

      I didn’t start using insulin until I was an adult.

      3 years ago Log in to Reply
    11. Cheryl Weaver

      I didn’t start using an insulin pump until well into my adulthood, so I could do it from the beginning. I did receive pump training.

      3 years ago Log in to Reply
    12. Georgina Sokol

      When I was a child there were no insulin pumps

      3 years ago Log in to Reply
    13. Joan Benedetto

      My son just turned eleven. He has filled the cartridge a few times, and loaded it, but finds it tedious. He has, however, been putting in his own sites for about three months which includes removing old one, removing all adhesive residue, and conditioning skin with Aquaphor.

      3 years ago Log in to Reply
    14. Sherrie Johnson

      There was no such thing as an insulin pump until I was 43. Been on one ever since going on 34 years.

      3 years ago Log in to Reply
    15. TS

      Ha! I was 15 or 16 when I got my first pump… that was in 1982! I went to Joslin Clinic DTU and the put me on one of the first wearable pumps. They made sure I could change it myself. Now that I think about it, I don’t remember how often I had to change out! Those metal needles were killer though. I still have the scars from them!

      3 years ago Log in to Reply
    16. Mick Martin

      What a ridiculous question! Surely this question should have been worded differently. i.e. how long had you (or your child) been suffering with diabetes before being able to set up a new infusion site independently without help? OR how long had you (or your child) been using a CSII (Continuous Subcutaneous Insulin Infusion, or pump) before you were able to set up a new infusion site independently without help?

      3 years ago Log in to Reply
    17. Mary Ann Sayers

      I was dx in 1954 and I gave myself a shot two years later at the age of 9. At age of 59, I got my first insulin pump and learned how to change the infusion set. Period.

      3 years ago Log in to Reply

    At what age could you (or your child) set up a new infusion site independently without help? Cancel reply

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