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    • 9 hours, 49 minutes ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 10 hours, 11 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 11 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 11 hours, 1 minute ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 11 hours, 28 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 11 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 11 hours, 33 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 12 hours, 20 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 1 day, 5 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 10 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 11 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 21 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 21 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 3 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 3 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 3 days, 5 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 9 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 9 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 11 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 11 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 11 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 11 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?

    Home > LC Polls > For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use?
    Previous

    Did you add, remove, or change T1D devices in 2022? Select all that apply!

    Next

    If you use a CGM, where do you most prefer to view your sensor readings?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Jen Farley

      I tried Medtronic closed loop system. What a nightmare. The CGM I was told could have a + or – 70 variation. I was also not told about the calibration, I thought insulin would stop. Training on the new system would have fixed it all. I had 2 car accidents, lost my license and kept asking questions with different explanations to explain defects with the equipment. I hear the CGM is no longer used and and keeps getting recalled. I threw it away when I found out I paid cash for the junk and my insurance would cover my Tandem pump which has greatly improved.

      1
      3 years ago Log in to Reply
      1. Deyait Watson-Irvine

        Im sorry to hear about you issues with your pump! I had Medtronic and switched to Tandem because of my new Endocrinologist preference. I have not been disappointed. You are correct in the training aspect. If you don’t understand the equipment it’s just a worthless device. I hope you can find a good diabetes educator to help adjust your pump settings so you can feel more confident. I am still making adjustments to my settings as well. Just know you are not alone in feeling frustrated or confused. We are all doing the best we can to stay on top of this disease. Stay well!

        3
        3 years ago Log in to Reply
    2. C B

      Libre 3 is not on my drug formulary

      1
      3 years ago Log in to Reply
      1. MT

        Same here. Paying cash for the 3 and checking weekly to see if it’s been added.

        3 years ago Log in to Reply
    3. Lawrence S.

      I had to wait for Medicare to approve the Dexcom G6 before I could order it. I don’t remember how long I waited. Seemed like a year or two.

      3 years ago Log in to Reply
    4. TEH

      I answered other since I am going through the process of switching from Medtronic to Omnipod/Dexcom system.
      Medtronics would call and email me asking how many sensors I had left before they would send more. This I believe is a Medicare requirement. We’ll see what Dexcom process is like. Comments welcome.

      3 years ago Log in to Reply
      1. Tom Caesar

        Get my D6 covered by Medicare through US Med, easy and painless. Medicare does require having a 10 day supply before reordering, supplier is on top of it and sends 90 day supply promptly with very little efforts on my part.

        3 years ago Log in to Reply
    5. Steve Rumble

      The first and only time I started using a CGM a Dexcom G6 was provided so I could participate in a study. Through the study I learned to rely on the CGM and started purchasing them after the 6-month study ended. I now get the supplies through the VA.

      3 years ago Log in to Reply
    6. trisha

      Switched to Dexcom before I was allowed by insurance to switch pumps (from Medtronic). It was night and day. Doing something through insurance is never easy. I kept being reminded dexcom would not work with Medtronic by medical staff. I appreciated that- but the part they couldn’t understand from lack of excess was that Medtronic’s cgm was the pits.

      3
      3 years ago Log in to Reply
      1. trisha

        *experience

        3 years ago Log in to Reply
    7. Meghan Larson

      It was easy for me- the CGM I wanted was the only one covered by my insurance at the time.

      3 years ago Log in to Reply
    8. Daniel Bestvater

      No problem! I pay cash so I just ordered it and paid.

      3 years ago Log in to Reply
    9. KCR

      When I originally got my Dexcom G5 several years ago, the process went pretty smoothly. The supplier worked with my provider when the G6 became available and I really didn’t have to do anything.

      3 years ago Log in to Reply
    10. Annie Wall

      When I first started with Dexcom, it hadn’t yet been approved by Medicare so I paid for it. Once it got Medicare approval, it was totally easy obtain it without hassle.

      3 years ago Log in to Reply
    11. Marty

      I had been using the Dexcom G6 system for months when I started on Medicare. Since Medicare was only covering the G5 at the time, I couldn’t get replacement G6 supplies. Dexcom also refused to let me revert to the G5 system. I was trapped in a frustrating run around that lasted weeks. I was finally able to get G6 supplies by complaining directly to a Dexcom rep at a local diabetes conference. I think Dexcom learned a lesson about having enough supplies for everyone before they transition to a new system.

      3 years ago Log in to Reply
    12. betsy valian

      I was given the G5,although the G6 Dexcom was available through other insurers. I have Medicare. They only give the older left over devices to Medicare patients; I suppose this will also be the same when the G7 is available. I did eventually get a G6, but it took over a year plus after they were released. I’m hoping the G7 will be easier. However, bottom line is, I’m just thankful I can get a CGM period!

      1
      3 years ago Log in to Reply
    13. Janis Senungetuk

      At the time I applied for the Dexcom 5 it was the only CGM system approved by my insurance, so I didn’t encounter any problems receiving it. The problems started immediately after that with Dexcom refusing to bill my insurance correctly and lack of adequate training in use of the system.

      3 years ago Log in to Reply
    14. Jane Cerullo

      Started a new Medicare advantage insurance. I was on Dexcom but they only covered FSL. I switched. Was not too bad but did not like other restrictions with this insurance provider. Changed insurance and went back to Dexcom. Have never had any supply problems with either device.

      3 years ago Log in to Reply
    15. cynthia jaworski

      freestyle was easy toget

      3 years ago Log in to Reply
    16. Carol Meares

      I guess I will find out when it comes time to upgrade to the G7

      3 years ago Log in to Reply
    17. Sandra Rosborough

      The problem is always communications with insurance and the CGM companies, not the doctor.

      2
      3 years ago Log in to Reply
    18. Ahh Life

      Humans may not be the smartest creatures God ever created.

      But why did he place so many of the dumber ones in administrative areas?

      1
      3 years ago Log in to Reply
    19. Russell Buckbee

      Very difficult as it was before Medicare approved CGMs. I had to purchase key first one by cash. Then Medicare was difficult. I had to get two tests to prove I wasn’t producing any pancreatic insulin. Then my cost were incorrect and I had to appeal to an administrative law judge to get reimbursed. Now days it is easy. Medicare standard

      3 years ago Log in to Reply
    20. RegMunro

      The process of getting the CGM was simple. Getting it covered as part of my medical aid scheme was impossible. As long as I pay, I can use!

      3 years ago Log in to Reply
    21. qachemist

      I’m on my first one, obtained at first visit to endocrinologist (after referral from PCP who diagnosed). Didn’t know enough to have a preference so went with endocrinologist recommendation. Now I know more and would likely not make that choice.

      3 years ago Log in to Reply
    22. Wanacure

      My Kaiser tech accurately described difference between Dexcom & Free Style Libre. I chose Dexcom for more accuracy. Kaiser & Byram and Medicare all work smoothly together. BUT Kaiser only offers Advantage plans so no Medigap coverage. Only Original Medicare can permit Medigap coverage. No Medicare Advantage plan offered by anybody can let you get Medigap. SHIBA alerted me to this deficiency.

      3 years ago Log in to Reply
    23. Andrea Hultman

      From what I remember, getting the Medtronic devices I wanted and needed have always been easy on Medtronic’s end. I’ve been a customer of theirs (and MiniMed’s) for 26 years. Getting insurance approval has been the obstacle, but I never had to go with a different brand—for which I am thankful.

      3 years ago Log in to Reply

    For those who have gone through the process of getting a CGM: Last time you started using a new CGM, how easy or difficult was it for you to get the brand and model you most wanted to use? Cancel reply

    You must be logged in to post a comment.




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