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    • 11 hours, 59 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 12 hours, 5 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours, 11 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 6 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 12 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 14 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 7 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 9 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 9 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. Ahh Life

      No. 72 years T1D and have the exact opposite–acute awareness.

      I am ready to eat lions, tigers, bears, crow bars, thumb tacks, table legs — anything! — to relieve the symptoms. Needless to say, I am very poor at the 15 carbs wait 15 minutes rule. Otherwise, I am quite disciplined. Sigh! 🙃

      6
      3 years ago Log in to Reply
      1. mojoseje

        Same. How is that even possible? Lol

        3 years ago Log in to Reply
      2. Kristine Warmecke

        @Ahh Life I wish I had that keen alertness. I’m only 40 years into it.

        3 years ago Log in to Reply
    2. Jordan Harshman

      I go through phases where I’m too low too often and get desensitized to it (about a month) followed by another month where I’m really sensitive to lows as I’ve brought my time in range back to (more) ideal

      2
      3 years ago Log in to Reply
    3. Jane Cerullo

      Always feel but I tolerate pretty low readings. Just because 😼 don’t run high a lot.

      1
      3 years ago Log in to Reply
      1. Lyn McQuaid

        Same here. I don’t really feel low until I’m in the 50’s so I’m not sure if that means I’m “unaware” if I don’t feel anything until then?

        1
        3 years ago Log in to Reply
    4. Barbara Bubar

      After 72 years, yes, like Ahh Life, my eyesight changes and I see a sort of yellow shape when I’m around 55 or lower. It’s actually handy that it happens in case the Dexcom is not quite there yet.

      3
      3 years ago Log in to Reply
    5. Mike Plante

      Was 61 on Dexcom and 51 on Contour Next last night, but I just felt normal.

      1
      3 years ago Log in to Reply
    6. Steve Rumble

      It used to be a problem before I started using a CGM

      1
      3 years ago Log in to Reply
    7. mojoseje

      I have to be in my 40s and my vision going dark before I feel low. A lot of times I feel normal and CGM is the only way I know I’m going low.

      1
      3 years ago Log in to Reply
    8. Sherolyn Newell

      In the last couple weeks, I’ve noticed feeling the lows sooner. I don’t know why, it will probably change back. That’s the way T1D seems to work, likes to keep you guessing.

      1
      3 years ago Log in to Reply
    9. Lawrence S.

      I have occasional unawareness. Usually, when my blood glucose drops quickly.
      Other times I feel light headedness, occasionally a “hole” in my vision. Usually, by the time I’m sweating profusely, it’s too late. I’m deep into it.

      1
      3 years ago Log in to Reply
    10. Rick Martin

      Yes I have complete unawareness. AND, I thank God everyday for my CGM.

      5
      3 years ago Log in to Reply
    11. Joan Fray

      I wear my Dexcom all the time so I very rarely go low. Only when exercising. Then I just get more tired than warranted, so I check if I’m low. Glucose tabs and some food do the trick. Lows aren’t my problem. My ‘icky’ stomach is my problem. Eat to live, 15 units of humalog for 24 hours, plus .3 basal all the time. Is that a lot?

      3 years ago Log in to Reply
    12. Judy Hampton

      Until I started using a cgm I was very aware of dropping blood sugar. Now it seems my body depends on the cgm to alert me. I really wish I could still recognize LBS without the cgm.

      3 years ago Log in to Reply
    13. Daniel Bestvater

      T1D for about 45 years, I seem to feel a low BG around 3(54).
      I have been down to 1.8(34) recently before detecting any symptoms. I don’t think my stomach works properly after 45 years! Some days are normal and other days it seems only liquid carbohydrates are absorbed.

      3 years ago Log in to Reply
    14. Claude Laforest

      No, because my CGM alerts have replaced my symptoms, alerts are much more reliable than symptoms and less variable!

      1
      3 years ago Log in to Reply
    15. kenneth brooks

      I used to have hypoglycemic unawareness but in ten years since CGM, my sugar never gets low enough to be a problem

      3 years ago Log in to Reply
    16. Sue Martin

      This is one of the reasons I got a CGM. The other reason is that my symptoms didn’t always manifest the same way.

      3 years ago Log in to Reply
    17. Kathy Morison

      The only time I experienced hypoglycemia unawareness was when I was using humalog insulin

      3 years ago Log in to Reply
    18. Janis Senungetuk

      Yes, both hypo and hyperglycemia unawareness. If I’ve dropped to the low 40’s my vision becomes impaired and I’ll see light yellow amorphous blobs in my central vision. Fortunately that rarely happens now because of CGM alerts.

      3
      3 years ago Log in to Reply
    19. William Bennett

      Important to note that hypo awareness is a threshold thing that changes depending on what your average BG is like. People who run very high–up around 200–can start feeling low at levels a lot of us with tight control would consider high in their own rate. 120-50 e.g. Before getting a CGM, back when I was on MDI, I’d feel trembly and my knees would start locking up in the 70s. Now that I have much tighter control (last A1C was 5.8) I don’t feel low above 60, and even below that if it’s a slow drop I’m now aware of it until I start getting that flash-bulb effect in the center of my vision. Speed of descent also seems to have a lot to do with it. The old insulins could make you crash very hard all of a sudden because of the very long effect curves and the practice of taking both types in one shot. So shaking OMG I’m gonna pass out lows were far more of a fact of life back then than they are for me now.

      1
      3 years ago Log in to Reply
    20. Jneticdiabetic

      Hypo unaware and appreciative of my CGM. Rarely feel symptoms unless I’m dropping quickly. Recently had a middle of the night CGM alarm that I was 80 and dropping. Got up, stumbled and could tell I was already much lower than that. Required a mega carb binge to correct. CGM may lag, but it saved the day again this time.

      1
      3 years ago Log in to Reply
    21. John Williamson

      Prior to going on a pump 14 years ago I had sever hypoglycemia unawareness. After a year on the pump (and much better control than on MDI) I began to detect even low 70’s.

      3 years ago Log in to Reply
    22. LuckyPineapple

      I FEEL every second of being low..that’s why I try so hard not to get that way ever. I have very sever hyper-unawareness though. I can’t even tell if I’m 400+

      3 years ago Log in to Reply
    23. Robert Kovalik

      I wear a CGM.

      3 years ago Log in to Reply
    24. Bob Durstenfeld

      I am thankful CGM alarms.

      3 years ago Log in to Reply
    25. pru barry

      I think my nervous system is losing its mojo. Lots of neuropathy, lots of not feeling highs or lows. So glad to have my Dexcom with the Tandem! I’m making an effort to rely more on this technology.

      3 years ago Log in to Reply
    26. Nancy Burgess

      Since I’ve had T1D since 1960, I’ve lost the ability to feel hypoglycemia. I totally rely on my Dexcom to keep me in the range.

      1
      3 years ago Log in to Reply
    27. Kristine Warmecke

      I’ve been hypo unaware since the early 90’s. It’s not fun. I wish I’d aware, even though it was scary and made me feel like crap. I was made to get Medtronics CMG in July 2007 because I had my first and only car accident due to being unaware of my hypo. I couldn’t stand all the alarms, false low & high’s, need to calibrate it, etc. and stopped using it. I was introduced to Dexcom a couple years later and started with the G4, far more accurate for me and still use Dexcom but it doesn’t catch my fast falling or rising numbers as well my DAD dose now.

      1
      3 years ago Log in to Reply
    28. Carol Meares

      I put “sometimes.” It depends generally on the speed of which I am dropping.

      3 years ago Log in to Reply
    29. Amanda Barras

      Sometimes I can keep on trucking down to the 40s, self treat and keep going on about my day. Other times I feel terrible, super lethargic and irritable and it stops me in my tracks.

      1
      3 years ago Log in to Reply
    30. Donna Condi

      I always feel it but that doesn’t happen until I hit about 42.

      3 years ago Log in to Reply
    31. George Lovelace

      I am surprised sometimes by the Dexcom warning but in combination with Tandem CIQ I have about eliminated All Hypos even with a 5.4 A1c

      3 years ago Log in to Reply
    32. Bonnie Lundblom

      Yes and I’m thankful for having my Dexcom.

      3 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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