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    • 1 hour, 29 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Yes - many meter studies - and an actos study
    • 1 hour, 30 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Only a few. Mainly blood tests and surveys. The others often have restrictions that don’t allow me to participate.
    • 1 hour, 30 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in the Look Ahead program by Brown University and Miriam Hospital. It was about diabetes, heart disease and weight control. I was in the control group and the first year I gained weight and found out I had heart disease. The stress test at the beginning of the trial showed an abnormality, so I already had a cardiologist when I needed my first of 16 stents.
    • 1 hour, 30 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in Tandem's trial for ControlIQ and several Dexco. Adhesive trials. Long ago I participated in a study for non-invasive blood glucose testing using a technique called Ramen Spectrum Analysis using different frequenciesof light, that trial could not raise funds to continue.
    • 1 hour, 33 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Various studies at the Joslin Clinic, the first one back in 2010-2011 for CGMs to be covered by medical insurance companies. I also have done a pizza study to determine how to gauge the longer response by the body to eating pizzas with all its fats.
    • 6 hours, 49 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      Several times. Found out that my pancreas is about 25% of the size it “ought to be” for someone my age. Who knew? Just turned down an opportunity to transform into a lab rat for 8 months on tests of a new insulin product. Weekly clinic visits, four finger sticks a day, two additional devices to tote around and a change in CGM brand. Sorry, not for me.
    • 6 hours, 49 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      I’ve participated in a couple different ones. One was muscle biopsies on the legs…looking at how long term diabetes may affect muscles. Another on different pumps
    • 7 hours, 40 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever participated in diabetes-related research?
      I have taken surveys about diabetes care and participate in All of US DNA research and I am doing that now answering these questions each day.
    • 20 hours, 16 minutes ago
      lis be likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 1 hour ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      All we are doing is treating the symptoms. We need a cure that doesn't require anti rejection inections.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 4 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 4 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 4 hours ago
      Patricia Dalrymple likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 5 hours ago
      Carol Meares likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      The list is great. Medications need to be on the list too.
    • 1 day, 5 hours ago
      Kristi Warmecke likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 6 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 2 days, 2 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 2 days, 3 hours ago
      Patricia Dalrymple likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
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    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)
    Previous

    If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

    Next

    If you use a CGM, at what blood glucose level is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at midnight in your time zone.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Molly Jones

      4, as science always has observations to make that will seem so obvious in the future.

      4 years ago Log in to Reply
    2. Sherri Mason

      Lyumjev has increased my Time In Range, improved my Std Deviation and CV greatly. It also allows me much less waiting time before eating. Game Changer for me.

      1
      4 years ago Log in to Reply
      1. Lawrence S.

        Lyumjev? What is that?

        3
        4 years ago Log in to Reply
      2. TEH

        Lumajev is a fast acting insulin. It reaches full strength in about half the time as Novalog or Humalog. I tried it and every bolis burned for me.
        I saw imrovement in TIR, but am trying Fiasp now. My Endo gave me samples of both.

        4 years ago Log in to Reply
    3. ELYSSE HELLER

      I started using Dexcom one week ago and I am liking it. I am, however, anxiously awaiting Insulet’s Omnipod 5 system to be released to the general public. That way the closed loop Pump will adjust itself, instead of being woken up at night due to the alarms.

      1
      4 years ago Log in to Reply
      1. GLORIA MILLER

        I got an email a short time ago this morning saying Omnipod 5 is now available from several pharmacies. I am waiting on the Dexcom 7 before changing from Libre to 7. Hope it will be soon or they get the Omnipod 5 to work with Libre.

        4 years ago Log in to Reply
    4. Jane Cerullo

      I would say 5 only if I did t have diabetes. Took me awhile to go from pump to MDI. Had trouble figuring out basal. I settled on Tresiba twice a day. Works for me. My Endo ok with it. Does anyone use Lyumjev for bolus? Works so fast. I really like it.

      4 years ago Log in to Reply
      1. gary rind

        PBM is making me switch to Lyumjev from FIASP. good to hear that it works quickly. have to use up my remaining FIASP first

        4 years ago Log in to Reply
    5. TEH

      My current routine is the best I have ever had. But I see it could be better. A fast acting insulin and the better bolis response of the 780G pump and better sensors are also required.

      4 years ago Log in to Reply
    6. KCR

      Ordinarily I manage pretty well with my CGM and the Omnipod but the last couple of weeks have been a roller coaster due to issues with insulin absorption and unusual post-prandial BG patterns. 🤪

      1
      4 years ago Log in to Reply
    7. Chrisanda

      I am pretty satisfied with my Tandem and Dexcom G-6 as it stands now. I would like: a “do not disturb” alarm button for those non-critical alerts which come at 3am, such as “your sensor expires in 24 hours” (I can wait until 7 am to hear that!) or even the threshold for low cartridge alert. And I am looking forward to the ability to bolus on my phone, so I’m not having to pull the pump out of pocket or out from under my shirt (or skirt!) to bolus.
      But with the current technology, I’m very satisfied 🙂

      1
      4 years ago Log in to Reply
    8. Vivian Moon

      I am expecting my new Tandem pump any day now. This with my Dexcom will improve my control big time! Closed loop system after 50+ years T1D.

      4 years ago Log in to Reply
    9. Steve Rumble

      I would give it a 5 if my insurance covered CGMs. But the rest of my coverage makes up for that lack!

      4 years ago Log in to Reply
    10. George Lovelace

      T1 58 years and Dex G6 and Tandem CIQ have given me the Best Numbers since 1963

      1
      4 years ago Log in to Reply
    11. Pauline M Reynolds

      Up until recently, I was very satisfied. But I just spent two weeks trying to get meds (Humalog, Lantus, Test strips) shipped. The test strips finally came one day before I was completely out.

      4 years ago Log in to Reply
    12. Mig Vascos

      As far as time in range I’m getting the best numbers ever. My issue has to do with the tandem infusion sets that I can only used in my abdomen since the clasp is impossible to get in and out without seeing it. After 50 years of using this area is sometimes hard to find the right spot. I have been talking to tandem about this issue for 5 years and no new development have been made on his issue.

      4 years ago Log in to Reply
      1. kristina blake

        Have you tried TruSteel? I can place the infusion part around towards my back, and the anchor/connection piece is within easy reach. I also use my thighs

        4 years ago Log in to Reply
    13. Mig Vascos

      A fast insulin would also be great for the stubborn highs and the after meal peaks. If my big goes higher than 200 it takes for hours to bring it down. Sometimes I just inject 1 unit of humalog to help it go down faster.

      4 years ago Log in to Reply
    14. Don P

      because of Covid restrictions I haven’t seen an Endo in 3+ yrs …the question now is satisfied with which care … personal & or health care team ??

      1
      4 years ago Log in to Reply
    15. lis be

      wish i could afford tandam iq and dexcom combo!

      4 years ago Log in to Reply
    16. mbulzomi@optonline.net

      I checked off number four (4) because, unless you are a person with T1D. You have never lived in our SHOES. Doctor, CDE etc.

      4 years ago Log in to Reply
    17. Karen Brady

      Need more context / specifics for this one. (Is this asking about the “care” as in the care I receive from healthcare providers? “Routine” as in my own T1D management?)

      4 years ago Log in to Reply
    18. M C

      I put ‘other’ as I have no idea how to answer this vague question – Are you referring to the care we provide to ourselves, or to the care we receive from others, such as Endo, Diabetic educator, Ophthalmologist, etc. etc.???

      4 years ago Log in to Reply
    19. Juha Kankaanpaa

      I’m satisfied with my care routine and chose 4. There is always things to improve, therefore I couldn’t have 5.

      4 years ago Log in to Reply
    20. Cheryl Seibert

      I chose “4”. The insulin pump/CGM combo has been excellent for maintaining control. I am frustrated with all pumps’ failure to deliver insulin in a manner that controls my brittle diabetes post-meal rise. If my site is ‘perfect’ and I can move around, then it works. Pre-bolusing does not help. Most of my dissatisfaction is due to my own stress level and my lack of adequate ways to cope with the stress.

      4 years ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied) Cancel reply

    You must be logged in to post a comment.




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