On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

Activity
- 48 minutes ago
  
  lis be likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 7 hours, 22 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  It's rare I have questions, but if I do, I send a message to my Endocrinologist, and she responds quickly.
- 7 hours, 25 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I use the patient portal to ask my doctor.
- 7 hours, 25 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
- 7 hours, 25 minutes ago
  
  Deborah Wright likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  When I come up with a question between visits, I usually just do some research.
- 8 hours, 58 minutes ago
  
  Mike S likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  I use the patient portal to ask my doctor.
- 8 hours, 58 minutes ago
  
  Mike S likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 9 hours, 15 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  How to avoid the rebounding effects of a low blood sugar.
- 9 hours, 15 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  After making pump setting changes due to new Mounjaro, why are my post meal glucose levels so high and how do we fix it?
- 9 hours, 15 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Will I be okay during pregnancy, especially now that I'm over 40?
- 9 hours, 18 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 9 hours, 19 minutes ago
  
  Lawrence S. likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Between regular T1D visits, I often wonder whether daily patterns—like changes in stress, sleep, or meals—affect my numbers more than I realize. Sometimes I take a short mental break with a quick game, such as subway surfers mod apk, before reviewing my data again. It helps me reset so I can ask clearer questions at my next appointment.
- 9 hours, 48 minutes ago
  
  Carrolyn Barloco likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
- 9 hours, 49 minutes ago
  
  Carrolyn Barloco likes your comment at
  Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
  Will I be okay during pregnancy, especially now that I'm over 40?
- 21 hours, 10 minutes ago
  
  kilupx likes your comment at
  Do you currently take metformin?
  Before I was correctly diagnosed the primary care physician said I must be type 2 due to my age of 36, even though I was always very thin and had rapidly lost even more weight. He prescribed metformin- I proceeded to get sicker and sicker. Finally got to an endocrinologist who tested and said I was T1D, and I was put immediately on insulin. What a game changer.
- 21 hours, 12 minutes ago
  
  kilupx likes your comment at
  Do you currently take metformin?
  Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
- 1 day, 4 hours ago
  
  ConnieT1D62 likes your comment at
  Do you currently take metformin?
  In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
- 1 day, 7 hours ago
  
  Kristi Warmecke likes your comment at
  Do you currently take metformin?
  Wow!
- 1 day, 7 hours ago
  
  Kristi Warmecke likes your comment at
  Do you currently take metformin?
  I've had T1D for 50 years. I started taking Metformin 9 months ago. I take full dose at bedtime to manage my morning glucose rise. It keeps the liver from releasing glucose. It has helped.
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  Do you currently take metformin?
  In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
- 1 day, 10 hours ago
  
  Lawrence S. likes your comment at
  Do you currently take metformin?
  I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
- 1 day, 10 hours ago
  
  Gerald Oefelein likes your comment at
  Do you currently take metformin?
  Other I took Metformim for 3 months when I was first incorrectly diagnosed with T2. I am very sensitive to insulin and don’t need it yet.
- 1 day, 10 hours ago
  
  Gerald Oefelein likes your comment at
  Do you currently take metformin?
  I took it for four years when I was diagnosed with T2. After four years of not being able to control my bs I asked my endocrinologist if I could go on insulin and he said yes and the T2 drugs stopped.
- 1 day, 10 hours ago
  
  Gerald Oefelein likes your comment at
  Do you currently take metformin?
  In the late 2010s, I began to become insulin resistant and started packing on a lot of weight. I believe using a pump facilitated this because of the abundance of insulin readily available. My doctor put me on metformin, then Jardiance, then Victoza. As a result, my insulin use went from 120-140 units per day to a minimum of 24, up to 40 depending on carb loads. I also lost 102 lbs. It may not be for everyone, but if you're starting to notice insulin resistance, it can be a good weapon to have.
- 1 day, 19 hours ago
  
  René Wagner likes your comment at
  Have you had to switch diabetes medications in the past year due to health insurance changes?
  I hate formulary changes mid year. They should not be allowed!
Clear All

On a scale of 1-5, how satisfied are you with your current overall T1D care routine? (1 = the least satisfied, 5 = the most satisfied)

If you were diagnosed with T1D as an adult, for how long did you notice symptoms before getting a T1D diagnosis?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

25 Comments

Molly Jones

4, as science always has observations to make that will seem so obvious in the future.

4 years ago Log in to Reply
Sherri Mason

Lyumjev has increased my Time In Range, improved my Std Deviation and CV greatly. It also allows me much less waiting time before eating. Game Changer for me.

1

4 years ago Log in to Reply
1. Lawrence S.
  
  Lyumjev? What is that?
  
  3
  
  4 years ago Log in to Reply
2. TEH
  
  Lumajev is a fast acting insulin. It reaches full strength in about half the time as Novalog or Humalog. I tried it and every bolis burned for me.
  I saw imrovement in TIR, but am trying Fiasp now. My Endo gave me samples of both.
  
  4 years ago Log in to Reply
ELYSSE HELLER

I started using Dexcom one week ago and I am liking it. I am, however, anxiously awaiting Insulet’s Omnipod 5 system to be released to the general public. That way the closed loop Pump will adjust itself, instead of being woken up at night due to the alarms.

1

4 years ago Log in to Reply
1. GLORIA MILLER
  
  I got an email a short time ago this morning saying Omnipod 5 is now available from several pharmacies. I am waiting on the Dexcom 7 before changing from Libre to 7. Hope it will be soon or they get the Omnipod 5 to work with Libre.
  
  4 years ago Log in to Reply
Jane Cerullo

I would say 5 only if I did t have diabetes. Took me awhile to go from pump to MDI. Had trouble figuring out basal. I settled on Tresiba twice a day. Works for me. My Endo ok with it. Does anyone use Lyumjev for bolus? Works so fast. I really like it.

4 years ago Log in to Reply
1. gary rind
  
  PBM is making me switch to Lyumjev from FIASP. good to hear that it works quickly. have to use up my remaining FIASP first
  
  4 years ago Log in to Reply
TEH

My current routine is the best I have ever had. But I see it could be better. A fast acting insulin and the better bolis response of the 780G pump and better sensors are also required.

4 years ago Log in to Reply
KCR

Ordinarily I manage pretty well with my CGM and the Omnipod but the last couple of weeks have been a roller coaster due to issues with insulin absorption and unusual post-prandial BG patterns. 🤪

1

4 years ago Log in to Reply
Chrisanda

I am pretty satisfied with my Tandem and Dexcom G-6 as it stands now. I would like: a “do not disturb” alarm button for those non-critical alerts which come at 3am, such as “your sensor expires in 24 hours” (I can wait until 7 am to hear that!) or even the threshold for low cartridge alert. And I am looking forward to the ability to bolus on my phone, so I’m not having to pull the pump out of pocket or out from under my shirt (or skirt!) to bolus.
But with the current technology, I’m very satisfied 🙂

1

4 years ago Log in to Reply
Vivian Moon

I am expecting my new Tandem pump any day now. This with my Dexcom will improve my control big time! Closed loop system after 50+ years T1D.

4 years ago Log in to Reply
Steve Rumble

I would give it a 5 if my insurance covered CGMs. But the rest of my coverage makes up for that lack!

4 years ago Log in to Reply
George Lovelace

T1 58 years and Dex G6 and Tandem CIQ have given me the Best Numbers since 1963

1

4 years ago Log in to Reply
Pauline M Reynolds

Up until recently, I was very satisfied. But I just spent two weeks trying to get meds (Humalog, Lantus, Test strips) shipped. The test strips finally came one day before I was completely out.

4 years ago Log in to Reply
Mig Vascos

As far as time in range I’m getting the best numbers ever. My issue has to do with the tandem infusion sets that I can only used in my abdomen since the clasp is impossible to get in and out without seeing it. After 50 years of using this area is sometimes hard to find the right spot. I have been talking to tandem about this issue for 5 years and no new development have been made on his issue.

4 years ago Log in to Reply
1. kristina blake
  
  Have you tried TruSteel? I can place the infusion part around towards my back, and the anchor/connection piece is within easy reach. I also use my thighs
  
  4 years ago Log in to Reply
Mig Vascos

A fast insulin would also be great for the stubborn highs and the after meal peaks. If my big goes higher than 200 it takes for hours to bring it down. Sometimes I just inject 1 unit of humalog to help it go down faster.

4 years ago Log in to Reply
Don P

because of Covid restrictions I haven’t seen an Endo in 3+ yrs …the question now is satisfied with which care … personal & or health care team ??

1

4 years ago Log in to Reply
lis be

wish i could afford tandam iq and dexcom combo!

4 years ago Log in to Reply
mbulzomi@optonline.net

I checked off number four (4) because, unless you are a person with T1D. You have never lived in our SHOES. Doctor, CDE etc.

4 years ago Log in to Reply
Karen Brady

Need more context / specifics for this one. (Is this asking about the “care” as in the care I receive from healthcare providers? “Routine” as in my own T1D management?)

4 years ago Log in to Reply
M C

I put ‘other’ as I have no idea how to answer this vague question – Are you referring to the care we provide to ourselves, or to the care we receive from others, such as Endo, Diabetic educator, Ophthalmologist, etc. etc.???

4 years ago Log in to Reply
Juha Kankaanpaa

I’m satisfied with my care routine and chose 4. There is always things to improve, therefore I couldn’t have 5.

4 years ago Log in to Reply
Cheryl Seibert

I chose “4”. The insulin pump/CGM combo has been excellent for maintaining control. I am frustrated with all pumps’ failure to deliver insulin in a manner that controls my brittle diabetes post-meal rise. If my site is ‘perfect’ and I can move around, then it works. Pre-bolusing does not help. Most of my dissatisfaction is due to my own stress level and my lack of adequate ways to cope with the stress.

4 years ago Log in to Reply