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    • 1 hour, 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour, 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
    Previous

    During which month were you (or your loved one) diagnosed with T1D?

    Next

    If you use time in range reports, what BG level is set as your Low range? If you have different target range settings depending on time of day, please answer with the Low setting at noon in your time zone.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. William Bennett

      Are there any T1s who *don’t* have a zombie apocalypse stash??? I have managed to get rid of some stuff, and once I was able to help out a T1 friend with some Fiasp when she was in the Medicare donut hole, but mainly it’s just really hard to fight that voice that says “You never know….” I have a few things that date back to the 90s.

      6
      4 years ago Log in to Reply
    2. Joan McGinnis

      Always kept and cave to patients who cd use them when I was still working. Now keep and provide to support group members who are in need

      2
      4 years ago Log in to Reply
    3. Nevin Bowman

      After running into insurance delays, and natural disasters etc, many of us are paranoid of running out of supplies and hang on to whatever we can.

      6
      4 years ago Log in to Reply
    4. Twinniepoo74

      I usually give them to family members who can use them. Especially since my family and my husband have diabetes. The expired ones I use to teach other people who are newly diagnosed in my circle of family and friends learn how to use it.

      4 years ago Log in to Reply
    5. George Rich

      Animas supplies are unusable with the discontinued technology. I toss them out and feel bad about doing it. Same with leftover Dexcom G5 sensors.

      4 years ago Log in to Reply
    6. Linda Zottoli

      I said “other” because, in addition to keeping enough MM supplies for my old MM pump as a backup, and giving a few to a neighbor who wanted to do something similar, I used some with my Tandem. I sometimes fill the cartridge (never in hot weather) with enough insulin to last about 6 days, so have extra tubing. I used the remaining MM infusion sets with my Tandem, attached to the tubing from the Tandem (they were all made by the same company, and had the same connector between the tubing and the set).

      Which left me with a lot of extra tubing, which, years ago, I used to decorate a small artificial Christmas tree (no one else seemed to appreciate it, though). And, once, having to make a clothesline to hang rinsed out clothes, used tied-together tubing.

      4
      4 years ago Log in to Reply
    7. David Smith

      I just switched from a Medtronic to a Dexcom pump and have Medtronic pump supplies I no longer need. Now I’m trying to find a way to get them to someone in need.

      4 years ago Log in to Reply
      1. Gerald Oefelein

        I did a similar switch a year ago. I donated my Medtronic supplies (plus an older pump) to the CR3 Diabetes Association. http://www.cr3diabetes.org/. They make the supplies available to people who need them.

        1
        4 years ago Log in to Reply
    8. Ahh Life

      I saved my very first PC for 30 years, an IBM Intel 8088 @ 4.77 MHz purchased in the early 1980’s. Then I donated it to a local museum of “early space age devices.”

      I will likely do the same with diabetic devices. And I have seen them all, including the dirty brown insulin bottles of the 1920’s. Museums love insecure gluttons like me. Because, you just never know . . . ( ͡❛ ︹ ͡❛)

      4
      4 years ago Log in to Reply
    9. connie ker

      I gave them to the endocrinology department to give to other patients. They cannot be opened. I must say that the day my T1D husband passed away in a nursing home, I had enough gall to go up to the nurses station and ask for his insulin that I had already paid for. They all knew that I was a T1D too. By law they told me it the vials and pens had to go into the trash can. I said why don’t you give it to the Dr. who comes into this home and give it to her for her patients that cannot afford their insulin. We’re sorry but we have to follow the rules. So that was one of the saddest days of my life.

      2
      4 years ago Log in to Reply
      1. TEH

        I did the same thing.

        4 years ago Log in to Reply
      2. Marsha Miller

        Connie Ker, that so sad! There needs to be some common sense to that law.

        4 years ago Log in to Reply
      3. Jim Cobbe

        A few years ago I spent a night in a hospital because of a slight complication after a minor outpatient procedure. The hospital used different insulins from my usual ones, so prescribed and injected me with their formulary’s insulins. When I was discharged, the nurse who was looking after me at the time gave me the pens, saying she was not supposed to but she was just unwilling to throw away pens that had only one or two doses given from them.

        4 years ago Log in to Reply
    10. Marty

      I do have leftover supplies I’ll probably never need. This question is a reminder for me to ask my endo if she could use them to help someone in need.

      4 years ago Log in to Reply
    11. Patricia Kilwein

      I marked other. I take all extra supplies to my diabetic educator in my Doctor’s office. There they give them to ppl thru their charity side of the hospital my Dr works through.

      1
      4 years ago Log in to Reply
    12. Sue Martin

      I’d like to donate them but don’t know where to do so.

      1
      4 years ago Log in to Reply
    13. Matthew Miller

      This is a wide spread problem, especially with expired supplies. I knew of a nonprofit (many years ago) in the Boston area that was sending used/expired medical equipment overseas to countries that could use them (their laws would allow expired equipment) but I lost track of them. Does anyone know of companies / nonprofits that do this type of work?

      4 years ago Log in to Reply
    14. Louise Robinson

      When I transitioned from Medtronic to Tandem, I asked my endocrinologist if he had patients who might need the infusion sets and reservoirs I had left. He said he did, so I delivered them to his office.

      4 years ago Log in to Reply
    15. Janis Senungetuk

      I have unopened boxes of Animas Vibe supplies, disposable syringes and pen needles that I’ve repeatedly tried to find homes for. Liability issues = no health care organizations or diabetes support groups are interested. I’m not comfortable offering the syringes and pen needles to anyone online. I don’t know what to do with them.

      1
      4 years ago Log in to Reply
      1. ConnieT1D62

        Doctors Without Borders is a noble cause (www.doctorswithoutborders.org) that accepts donations of unopened, unexpired insulin and unused insulin delivery supplies to redistribute in third world countries. They often accept meters as well.

        A large medical practice I was employed with as a CDE used to donate boxes and boxes of excess free sample meters that the sales reps left for distribution to patients. Most of our clinic patients had decent insurance and did not need another free meter. Even when we gave away a free meter to have as back-up we still had an over abundance of product, so we would periodically clear out the supply rooms and donate the excess.

        4 years ago Log in to Reply
    16. Sherrie Johnson

      I tried to find a way to re-distribute some supplies but was told once they’re in your hands they can’t hand them out to someone else even the doctors office would not take them unopened boxes just a few but I had to throw them out

      4 years ago Log in to Reply
    17. Glenda Schuessler

      I donated to my Joslin Center/endo if they were useful.

      4 years ago Log in to Reply
    18. Eve Rabbiner

      Gave them to my endo to give to patients who might need them.

      4 years ago Log in to Reply
    19. LizB

      I have been using Medtronic pumps for 16 years and the basic supplies have stayed the same (reservoirs & infusion sets) so no matter what model pump I had, I can continue using those supplies. The sensors/transmitters for the CGM is the only thing that changed. I had good luck with the original sensors & current sensors but not the Enlite sensors. I only recently found 4 boxes of them, long expired, that I threw away. I don’t even know if they still make pumps/transmitters that work with those sensors. I wish I had thought to find a new home for them back when I stopped using the Enlite sensors.

      4 years ago Log in to Reply
    20. Molly Jones

      Previously I donated them, a few different pumps and their supplies, right now I have an overabundance of supplies for my device that I am using and keeping them just in case I can find a place to donate them during this pandemic time. I wish there was not a minimum requirement so high for insulin in Tandem’s cartridges.

      4 years ago Log in to Reply
    21. Wanacure

      Some stuff I threw out, some things, like all my old bg meters, I’ve kept. Thanks to organizations promoting safe injection sites, I can safely dispose of used syringes in my own neighborhood in a metal bin. There’s also a grocery store with bathrooms where used syringes can be safely disposed of in privacy.

      4 years ago Log in to Reply
    22. Becky Hertz

      Have also given to endos office/diabetes clinic.

      4 years ago Log in to Reply
      1. Jim Cobbe

        I did that too, overseas. Here in the US they refuse to take them — liability issues I suspect.

        1
        4 years ago Log in to Reply
    23. Mary Dexter

      Medtronic required me to send the pump back to them.

      4 years ago Log in to Reply
    24. KarenM6

      I ended up throwing it all out because no one wanted them. The meters, I was told, were given out like candy and were not needed… I also asked at an organization, but they did not respond, so I just threw it all out. Seemed quite wasteful.

      4 years ago Log in to Reply
    25. kilupx

      Occasionally my doctor changes my insulin and I am left with perfectly good tamperproof unexpired packages. Doctor says he is prohibited from giving to a patient who needs them, which is so sad because ideally he would know and trust both donor and recipient. I have heard about Insulin for Life, a nonprofit that will accept a mailed shipment if you send in icepacked cooler. It seems so wasteful to spend money on shipping but I know so many people struggle to pay for their drugs and I would like them to get good vials that I no longer need. Has anyone tried Insulin for Life? I have Humalog to donate and plan to do it after the Christmas rush, when the shipping services won’t be so busy.

      4 years ago Log in to Reply
    26. Lenora Ventura

      Passed them onto my Endo so he could give to another T1D in need

      4 years ago Log in to Reply
    27. marmcs@yahoo.com

      Took to my endocrinologist.

      4 years ago Log in to Reply
    28. ermcmullin

      I have donated items, testing kits and supplies, to a local community college to use when teaching.

      4 years ago Log in to Reply
    29. Cheryl Seibert

      If not expired, my endo’s office will take a few of them to give as emergency supplies or samples for patients wanting to try a new infusion set, etc.

      4 years ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

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