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  • Activity
    • 3 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 18 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 4 hours, 34 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 34 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 51 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 4 hours, 51 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 51 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 53 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 6 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 6 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 6 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 6 hours, 16 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 6 hours, 16 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 6 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 6 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 6 hours, 19 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 9 hours, 15 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 9 hours, 15 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 9 hours, 16 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 9 hours, 16 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 10 hours, 2 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 10 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 10 hours, 31 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 10 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 10 hours, 32 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
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    If you use time in range reports, what BG level is set as your Low range? If you have different target range settings depending on time of day, please answer with the Low setting at noon in your time zone.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    35 Comments

    1. William Bennett

      Are there any T1s who *don’t* have a zombie apocalypse stash??? I have managed to get rid of some stuff, and once I was able to help out a T1 friend with some Fiasp when she was in the Medicare donut hole, but mainly it’s just really hard to fight that voice that says “You never know….” I have a few things that date back to the 90s.

      6
      1 year ago Log in to Reply
    2. Joan McGinnis

      Always kept and cave to patients who cd use them when I was still working. Now keep and provide to support group members who are in need

      2
      1 year ago Log in to Reply
    3. Nevin Bowman

      After running into insurance delays, and natural disasters etc, many of us are paranoid of running out of supplies and hang on to whatever we can.

      6
      1 year ago Log in to Reply
    4. Twinniepoo74

      I usually give them to family members who can use them. Especially since my family and my husband have diabetes. The expired ones I use to teach other people who are newly diagnosed in my circle of family and friends learn how to use it.

      1 year ago Log in to Reply
    5. George Rich

      Animas supplies are unusable with the discontinued technology. I toss them out and feel bad about doing it. Same with leftover Dexcom G5 sensors.

      1 year ago Log in to Reply
    6. Linda Zottoli

      I said “other” because, in addition to keeping enough MM supplies for my old MM pump as a backup, and giving a few to a neighbor who wanted to do something similar, I used some with my Tandem. I sometimes fill the cartridge (never in hot weather) with enough insulin to last about 6 days, so have extra tubing. I used the remaining MM infusion sets with my Tandem, attached to the tubing from the Tandem (they were all made by the same company, and had the same connector between the tubing and the set).

      Which left me with a lot of extra tubing, which, years ago, I used to decorate a small artificial Christmas tree (no one else seemed to appreciate it, though). And, once, having to make a clothesline to hang rinsed out clothes, used tied-together tubing.

      4
      1 year ago Log in to Reply
    7. David Smith

      I just switched from a Medtronic to a Dexcom pump and have Medtronic pump supplies I no longer need. Now I’m trying to find a way to get them to someone in need.

      1 year ago Log in to Reply
      1. Gerald Oefelein

        I did a similar switch a year ago. I donated my Medtronic supplies (plus an older pump) to the CR3 Diabetes Association. http://www.cr3diabetes.org/. They make the supplies available to people who need them.

        1
        1 year ago Log in to Reply
    8. Ahh Life

      I saved my very first PC for 30 years, an IBM Intel 8088 @ 4.77 MHz purchased in the early 1980’s. Then I donated it to a local museum of “early space age devices.”

      I will likely do the same with diabetic devices. And I have seen them all, including the dirty brown insulin bottles of the 1920’s. Museums love insecure gluttons like me. Because, you just never know . . . ( ͡❛ ︹ ͡❛)

      4
      1 year ago Log in to Reply
    9. connie ker

      I gave them to the endocrinology department to give to other patients. They cannot be opened. I must say that the day my T1D husband passed away in a nursing home, I had enough gall to go up to the nurses station and ask for his insulin that I had already paid for. They all knew that I was a T1D too. By law they told me it the vials and pens had to go into the trash can. I said why don’t you give it to the Dr. who comes into this home and give it to her for her patients that cannot afford their insulin. We’re sorry but we have to follow the rules. So that was one of the saddest days of my life.

      2
      1 year ago Log in to Reply
      1. TEH

        I did the same thing.

        1 year ago Log in to Reply
      2. Marsha Miller

        Connie Ker, that so sad! There needs to be some common sense to that law.

        1 year ago Log in to Reply
      3. Jim Cobbe

        A few years ago I spent a night in a hospital because of a slight complication after a minor outpatient procedure. The hospital used different insulins from my usual ones, so prescribed and injected me with their formulary’s insulins. When I was discharged, the nurse who was looking after me at the time gave me the pens, saying she was not supposed to but she was just unwilling to throw away pens that had only one or two doses given from them.

        1 year ago Log in to Reply
    10. Marty

      I do have leftover supplies I’ll probably never need. This question is a reminder for me to ask my endo if she could use them to help someone in need.

      1 year ago Log in to Reply
    11. Patricia Kilwein

      I marked other. I take all extra supplies to my diabetic educator in my Doctor’s office. There they give them to ppl thru their charity side of the hospital my Dr works through.

      1
      1 year ago Log in to Reply
    12. Sue Martin

      I’d like to donate them but don’t know where to do so.

      1
      1 year ago Log in to Reply
    13. Matthew Miller

      This is a wide spread problem, especially with expired supplies. I knew of a nonprofit (many years ago) in the Boston area that was sending used/expired medical equipment overseas to countries that could use them (their laws would allow expired equipment) but I lost track of them. Does anyone know of companies / nonprofits that do this type of work?

      1 year ago Log in to Reply
    14. Louise Robinson

      When I transitioned from Medtronic to Tandem, I asked my endocrinologist if he had patients who might need the infusion sets and reservoirs I had left. He said he did, so I delivered them to his office.

      1 year ago Log in to Reply
    15. Janis Senungetuk

      I have unopened boxes of Animas Vibe supplies, disposable syringes and pen needles that I’ve repeatedly tried to find homes for. Liability issues = no health care organizations or diabetes support groups are interested. I’m not comfortable offering the syringes and pen needles to anyone online. I don’t know what to do with them.

      1
      1 year ago Log in to Reply
      1. ConnieT1D62

        Doctors Without Borders is a noble cause (www.doctorswithoutborders.org) that accepts donations of unopened, unexpired insulin and unused insulin delivery supplies to redistribute in third world countries. They often accept meters as well.

        A large medical practice I was employed with as a CDE used to donate boxes and boxes of excess free sample meters that the sales reps left for distribution to patients. Most of our clinic patients had decent insurance and did not need another free meter. Even when we gave away a free meter to have as back-up we still had an over abundance of product, so we would periodically clear out the supply rooms and donate the excess.

        1 year ago Log in to Reply
    16. Sherrie Johnson

      I tried to find a way to re-distribute some supplies but was told once they’re in your hands they can’t hand them out to someone else even the doctors office would not take them unopened boxes just a few but I had to throw them out

      1 year ago Log in to Reply
    17. Glenda Schuessler

      I donated to my Joslin Center/endo if they were useful.

      1 year ago Log in to Reply
    18. Eve Rabbiner

      Gave them to my endo to give to patients who might need them.

      1 year ago Log in to Reply
    19. LizB

      I have been using Medtronic pumps for 16 years and the basic supplies have stayed the same (reservoirs & infusion sets) so no matter what model pump I had, I can continue using those supplies. The sensors/transmitters for the CGM is the only thing that changed. I had good luck with the original sensors & current sensors but not the Enlite sensors. I only recently found 4 boxes of them, long expired, that I threw away. I don’t even know if they still make pumps/transmitters that work with those sensors. I wish I had thought to find a new home for them back when I stopped using the Enlite sensors.

      1 year ago Log in to Reply
    20. Molly Jones

      Previously I donated them, a few different pumps and their supplies, right now I have an overabundance of supplies for my device that I am using and keeping them just in case I can find a place to donate them during this pandemic time. I wish there was not a minimum requirement so high for insulin in Tandem’s cartridges.

      1 year ago Log in to Reply
    21. Wanacure

      Some stuff I threw out, some things, like all my old bg meters, I’ve kept. Thanks to organizations promoting safe injection sites, I can safely dispose of used syringes in my own neighborhood in a metal bin. There’s also a grocery store with bathrooms where used syringes can be safely disposed of in privacy.

      1 year ago Log in to Reply
    22. Becky Hertz

      Have also given to endos office/diabetes clinic.

      1 year ago Log in to Reply
      1. Jim Cobbe

        I did that too, overseas. Here in the US they refuse to take them — liability issues I suspect.

        1
        1 year ago Log in to Reply
    23. Mary Dexter

      Medtronic required me to send the pump back to them.

      1 year ago Log in to Reply
    24. KarenM6

      I ended up throwing it all out because no one wanted them. The meters, I was told, were given out like candy and were not needed… I also asked at an organization, but they did not respond, so I just threw it all out. Seemed quite wasteful.

      1 year ago Log in to Reply
    25. kilupx

      Occasionally my doctor changes my insulin and I am left with perfectly good tamperproof unexpired packages. Doctor says he is prohibited from giving to a patient who needs them, which is so sad because ideally he would know and trust both donor and recipient. I have heard about Insulin for Life, a nonprofit that will accept a mailed shipment if you send in icepacked cooler. It seems so wasteful to spend money on shipping but I know so many people struggle to pay for their drugs and I would like them to get good vials that I no longer need. Has anyone tried Insulin for Life? I have Humalog to donate and plan to do it after the Christmas rush, when the shipping services won’t be so busy.

      1 year ago Log in to Reply
    26. Lenora Ventura

      Passed them onto my Endo so he could give to another T1D in need

      1 year ago Log in to Reply
    27. marmcs@yahoo.com

      Took to my endocrinologist.

      1 year ago Log in to Reply
    28. ermcmullin

      I have donated items, testing kits and supplies, to a local community college to use when teaching.

      1 year ago Log in to Reply
    29. Cheryl Seibert

      If not expired, my endo’s office will take a few of them to give as emergency supplies or samples for patients wanting to try a new infusion set, etc.

      1 year ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

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