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  • Activity
    • 1 hour, 51 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 51 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours, 6 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 28 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 37 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 37 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 34 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 50 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?

    Home > LC Polls > If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies?
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    If you use time in range reports, what BG level is set as your Low range? If you have different target range settings depending on time of day, please answer with the Low setting at noon in your time zone.

    Sarah Howard

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    35 Comments

    1. William Bennett

      Are there any T1s who *don’t* have a zombie apocalypse stash??? I have managed to get rid of some stuff, and once I was able to help out a T1 friend with some Fiasp when she was in the Medicare donut hole, but mainly it’s just really hard to fight that voice that says “You never know….” I have a few things that date back to the 90s.

      6
      1 year ago Log in to Reply
    2. Joan McGinnis

      Always kept and cave to patients who cd use them when I was still working. Now keep and provide to support group members who are in need

      2
      1 year ago Log in to Reply
    3. Nevin Bowman

      After running into insurance delays, and natural disasters etc, many of us are paranoid of running out of supplies and hang on to whatever we can.

      6
      1 year ago Log in to Reply
    4. Twinniepoo74

      I usually give them to family members who can use them. Especially since my family and my husband have diabetes. The expired ones I use to teach other people who are newly diagnosed in my circle of family and friends learn how to use it.

      1 year ago Log in to Reply
    5. George Rich

      Animas supplies are unusable with the discontinued technology. I toss them out and feel bad about doing it. Same with leftover Dexcom G5 sensors.

      1 year ago Log in to Reply
    6. Linda Zottoli

      I said “other” because, in addition to keeping enough MM supplies for my old MM pump as a backup, and giving a few to a neighbor who wanted to do something similar, I used some with my Tandem. I sometimes fill the cartridge (never in hot weather) with enough insulin to last about 6 days, so have extra tubing. I used the remaining MM infusion sets with my Tandem, attached to the tubing from the Tandem (they were all made by the same company, and had the same connector between the tubing and the set).

      Which left me with a lot of extra tubing, which, years ago, I used to decorate a small artificial Christmas tree (no one else seemed to appreciate it, though). And, once, having to make a clothesline to hang rinsed out clothes, used tied-together tubing.

      4
      1 year ago Log in to Reply
    7. David Smith

      I just switched from a Medtronic to a Dexcom pump and have Medtronic pump supplies I no longer need. Now I’m trying to find a way to get them to someone in need.

      1 year ago Log in to Reply
      1. Gerald Oefelein

        I did a similar switch a year ago. I donated my Medtronic supplies (plus an older pump) to the CR3 Diabetes Association. http://www.cr3diabetes.org/. They make the supplies available to people who need them.

        1
        1 year ago Log in to Reply
    8. Ahh Life

      I saved my very first PC for 30 years, an IBM Intel 8088 @ 4.77 MHz purchased in the early 1980’s. Then I donated it to a local museum of ā€œearly space age devices.ā€

      I will likely do the same with diabetic devices. And I have seen them all, including the dirty brown insulin bottles of the 1920’s. Museums love insecure gluttons like me. Because, you just never know . . . ( Ķ”ā›ā€Æļø¹ Ķ”ā›)

      4
      1 year ago Log in to Reply
    9. connie ker

      I gave them to the endocrinology department to give to other patients. They cannot be opened. I must say that the day my T1D husband passed away in a nursing home, I had enough gall to go up to the nurses station and ask for his insulin that I had already paid for. They all knew that I was a T1D too. By law they told me it the vials and pens had to go into the trash can. I said why don’t you give it to the Dr. who comes into this home and give it to her for her patients that cannot afford their insulin. We’re sorry but we have to follow the rules. So that was one of the saddest days of my life.

      2
      1 year ago Log in to Reply
      1. TEH

        I did the same thing.

        1 year ago Log in to Reply
      2. Marsha Miller

        Connie Ker, that so sad! There needs to be some common sense to that law.

        1 year ago Log in to Reply
      3. Jim Cobbe

        A few years ago I spent a night in a hospital because of a slight complication after a minor outpatient procedure. The hospital used different insulins from my usual ones, so prescribed and injected me with their formulary’s insulins. When I was discharged, the nurse who was looking after me at the time gave me the pens, saying she was not supposed to but she was just unwilling to throw away pens that had only one or two doses given from them.

        1 year ago Log in to Reply
    10. Marty

      I do have leftover supplies I’ll probably never need. This question is a reminder for me to ask my endo if she could use them to help someone in need.

      1 year ago Log in to Reply
    11. Patricia Kilwein

      I marked other. I take all extra supplies to my diabetic educator in my Doctor’s office. There they give them to ppl thru their charity side of the hospital my Dr works through.

      1
      1 year ago Log in to Reply
    12. Sue Martin

      I’d like to donate them but don’t know where to do so.

      1
      1 year ago Log in to Reply
    13. Matthew Miller

      This is a wide spread problem, especially with expired supplies. I knew of a nonprofit (many years ago) in the Boston area that was sending used/expired medical equipment overseas to countries that could use them (their laws would allow expired equipment) but I lost track of them. Does anyone know of companies / nonprofits that do this type of work?

      1 year ago Log in to Reply
    14. Louise Robinson

      When I transitioned from Medtronic to Tandem, I asked my endocrinologist if he had patients who might need the infusion sets and reservoirs I had left. He said he did, so I delivered them to his office.

      1 year ago Log in to Reply
    15. Janis Senungetuk

      I have unopened boxes of Animas Vibe supplies, disposable syringes and pen needles that I’ve repeatedly tried to find homes for. Liability issues = no health care organizations or diabetes support groups are interested. I’m not comfortable offering the syringes and pen needles to anyone online. I don’t know what to do with them.

      1
      1 year ago Log in to Reply
      1. ConnieT1D62

        Doctors Without Borders is a noble cause (www.doctorswithoutborders.org) that accepts donations of unopened, unexpired insulin and unused insulin delivery supplies to redistribute in third world countries. They often accept meters as well.

        A large medical practice I was employed with as a CDE used to donate boxes and boxes of excess free sample meters that the sales reps left for distribution to patients. Most of our clinic patients had decent insurance and did not need another free meter. Even when we gave away a free meter to have as back-up we still had an over abundance of product, so we would periodically clear out the supply rooms and donate the excess.

        1 year ago Log in to Reply
    16. Sherrie Johnson

      I tried to find a way to re-distribute some supplies but was told once they’re in your hands they can’t hand them out to someone else even the doctors office would not take them unopened boxes just a few but I had to throw them out

      1 year ago Log in to Reply
    17. Glenda Schuessler

      I donated to my Joslin Center/endo if they were useful.

      1 year ago Log in to Reply
    18. Eve Rabbiner

      Gave them to my endo to give to patients who might need them.

      1 year ago Log in to Reply
    19. LizB

      I have been using Medtronic pumps for 16 years and the basic supplies have stayed the same (reservoirs & infusion sets) so no matter what model pump I had, I can continue using those supplies. The sensors/transmitters for the CGM is the only thing that changed. I had good luck with the original sensors & current sensors but not the Enlite sensors. I only recently found 4 boxes of them, long expired, that I threw away. I don’t even know if they still make pumps/transmitters that work with those sensors. I wish I had thought to find a new home for them back when I stopped using the Enlite sensors.

      1 year ago Log in to Reply
    20. Molly Jones

      Previously I donated them, a few different pumps and their supplies, right now I have an overabundance of supplies for my device that I am using and keeping them just in case I can find a place to donate them during this pandemic time. I wish there was not a minimum requirement so high for insulin in Tandem’s cartridges.

      1 year ago Log in to Reply
    21. Wanacure

      Some stuff I threw out, some things, like all my old bg meters, I’ve kept. Thanks to organizations promoting safe injection sites, I can safely dispose of used syringes in my own neighborhood in a metal bin. There’s also a grocery store with bathrooms where used syringes can be safely disposed of in privacy.

      1 year ago Log in to Reply
    22. Becky Hertz

      Have also given to endos office/diabetes clinic.

      1 year ago Log in to Reply
      1. Jim Cobbe

        I did that too, overseas. Here in the US they refuse to take them — liability issues I suspect.

        1
        1 year ago Log in to Reply
    23. Mary Dexter

      Medtronic required me to send the pump back to them.

      1 year ago Log in to Reply
    24. KarenM6

      I ended up throwing it all out because no one wanted them. The meters, I was told, were given out like candy and were not needed… I also asked at an organization, but they did not respond, so I just threw it all out. Seemed quite wasteful.

      1 year ago Log in to Reply
    25. kilupx

      Occasionally my doctor changes my insulin and I am left with perfectly good tamperproof unexpired packages. Doctor says he is prohibited from giving to a patient who needs them, which is so sad because ideally he would know and trust both donor and recipient. I have heard about Insulin for Life, a nonprofit that will accept a mailed shipment if you send in icepacked cooler. It seems so wasteful to spend money on shipping but I know so many people struggle to pay for their drugs and I would like them to get good vials that I no longer need. Has anyone tried Insulin for Life? I have Humalog to donate and plan to do it after the Christmas rush, when the shipping services won’t be so busy.

      1 year ago Log in to Reply
    26. Lenora Ventura

      Passed them onto my Endo so he could give to another T1D in need

      1 year ago Log in to Reply
    27. marmcs@yahoo.com

      Took to my endocrinologist.

      1 year ago Log in to Reply
    28. ermcmullin

      I have donated items, testing kits and supplies, to a local community college to use when teaching.

      1 year ago Log in to Reply
    29. Cheryl Seibert

      If not expired, my endo’s office will take a few of them to give as emergency supplies or samples for patients wanting to try a new infusion set, etc.

      1 year ago Log in to Reply

    If you have ever had extra supplies from a device you no longer use, what did you do with those extra supplies? Cancel reply

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