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    • 3 hours, 33 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 4 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 4 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 7 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 7 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 7 hours, 56 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 19 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 16 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 10 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?

    Home > LC Polls > If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D?
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    Do you store your unopened insulin in the refrigerator?

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    How many days in the past week have you had at least one blood glucose reading below 70 mg/dl (3.9 mmol/l)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Lawrence S.

      I answered “Always”. But, the truth is that I never have to inform the staff that I have T1D. They already know. The correct answer to the question is “Not Applicable.” All of the doctors that I see are within the same hospital network. They all share my health records via the hospital’s patient portal.

      4
      2 years ago Log in to Reply
    2. Amanda Barras

      Always! It’s absolutely relevant to make sure they know so they can avoid prescribing anything that may conflict with insulin, or cause bs fluctuations. As well, they could easily misdiagnose something that could be potentially linked back to diabetes.

      3
      2 years ago Log in to Reply
    3. Jane Cerullo

      Should always give your complete health history with all providers.

      2
      2 years ago Log in to Reply
    4. Melinda Lipe

      It’s on all my health records

      1
      2 years ago Log in to Reply
    5. Sherolyn Newell

      I put usually, but I can’t think of any doctors I haven’t told.

      1
      2 years ago Log in to Reply
    6. KIMBERELY SMITH

      Rarely

      2 years ago Log in to Reply
    7. cynthia jaworski

      Always. But I still find that they frequently classify me as a T2 in their reports.

      I complain when this happens, because then my insurance starts questioning my 6 decade long diagnosis of T1, asking for tests.

      4
      2 years ago Log in to Reply
      1. Trina Blake

        Oh yeah, they (other HCP’s and insurance) like to believe that we can outgrow it and then scold us because we haven’t.

        1
        2 years ago Log in to Reply
    8. Shelly Smith

      It is in my best interest if they are aware. That way I don’t get prescribed something that doesn’t work with insulin, etc.

      1
      2 years ago Log in to Reply
    9. Tracy Jean

      It is a question asked in the patient paperwork.

      2 years ago Log in to Reply
    10. Chris Albright

      They usually ask for health history so rarely have to tell them

      2 years ago Log in to Reply
    11. Bob Durstenfeld

      Though I always disclose my T1D, the understanding of the impact of having it is very misunderstood by most doctors, they are either out of date or completely ignorant.

      6
      2 years ago Log in to Reply
      1. Jen Farley

        I agree, if they are not an endocrinologist they seem lost on any knowledge on diabetes information.

        4
        2 years ago Log in to Reply
      2. Andrea Hultman

        Yep, or so many of us, because of age and weight, are assumed to have type 2, even though T1D is in our EHR or chart. I have had to underscore multiple times that I have type 1 diabetes and have had it since childhood. In my 20s, I didn’t have to do this. So frustrating! Look at the bloomin’ chart, yo!!

        2 years ago Log in to Reply
    12. kim bullock

      It is is the computer that I have type 1 diabetes. If I am at the Er I speak up even more.

      1
      2 years ago Log in to Reply
    13. Trisha Oldenkamp

      kI think my Type 1 diabetes my affect any other medical issue whether it is added risks, medicine interactions or affects, healing time etc. Since diabetes affects basically the entire human body I can’t think of a time when it is not pertinent to at least mention it.

      3
      2 years ago Log in to Reply
    14. Jen Farley

      Sometimes I hate that I always tell them I have diabetes due to the fact that some doctors can be not paying attention and blame everything on my diabetes.

      6
      2 years ago Log in to Reply
    15. Trina Blake

      I put “usually” although I would rather njot. Why not? My T1D gives “them” and easy out – whatever medical issue I have that led me to their office is obviously “due to my poor D mgt” or “that’s what happens with T1D”. I try to view these things a opportunities to 1) educate and 2) know who not to see in the future.

      2
      2 years ago Log in to Reply
    16. Becky Hertz

      Only if it comes up in conversation or a recommended treatment is contraindicated due to the T1D.

      2 years ago Log in to Reply
    17. Jeff Balbirnie

      What on earth is a health related appointment which is NOT diabetes related fundamentally? This question needs better explained & reworked kids….

      3
      2 years ago Log in to Reply
    18. AnitaS

      All of my doctors are in the same health system so my medical records are available to all of them in the computer system. Even though my medical records are in the computer system, most doctors offices have people fill out a medical form asking all kinds of questions, one of which is do you have diabetes.

      2 years ago Log in to Reply
    19. T1D4LongTime

      ALL my doctors know I have T1D. I request all non-diabetic physicians to send a report of my appointment to my endocrinologist.

      2 years ago Log in to Reply
    20. Andrea Hultman

      It’s in MyChart, but I often remind them, because they see a 47-year-old fat woman and assume type 2. In fact, a local ER just this summer incorrectly “diagnosed” me with type 2. Really pisses me off when HCPs don’t listen!!

      2 years ago Log in to Reply

    If you go to a non-diabetes-related health care appointment, do you inform the staff that you have T1D? Cancel reply

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