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    • 1 hour, 40 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 3 hours, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 3 hours, 7 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 6 hours, 3 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 26 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 23 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

    Home > LC Polls > If you have T1D, have any of your family members listed below also had T1D? Select all that apply.
    Previous

    At your current job (or most recent, if you are not currently working), do the coworkers with whom you regularly interact know you have T1D?

    Next

    When did you last have your A1c measured?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Lawrence S.

      A cousin and her son.

      2 years ago Log in to Reply
    2. Nevin Bowman

      No parents, grandparents, cousins, or aunts and uncles have T1, but have a niece and nephew and a son of a niece that are T1.

      2 years ago Log in to Reply
    3. Ernie Richmann

      My mother and her mother. Was not sure who a non-first degree relative is.

      2 years ago Log in to Reply
    4. Jane Cerullo

      Years ago I had a first cousin with T1D. Did not manage well and had a lot of complications. He passed in his 50’s. I was diagnosed with LADA at 53.

      2 years ago Log in to Reply
    5. Kristine Warmecke

      Maternal Great Grandmother, brother, maternal uncle, myself, maternal second cousins grandson and then my oldest niece. All others with DM are T2D.

      2 years ago Log in to Reply
    6. William Bennett

      My second cousin–1st cousin’s daughter–is the only other relative I know of with T1D. At that degree of relationship it’s probably 50-80 people (big Catholic family!).

      The TUDiabetes website used to have a thread “Are you the lucky One?” for people who were the only person in their family singled out for T1. When I was dx’d (1983) I was told that this was one of the big differences vs T2, that it didn’t seem to track with families, though since then I’ve come to know that there are quite a few cases where it does. But definitely not in my case.

      2 years ago Log in to Reply
    7. Kristen Clifford

      This question or some variation of it has been asked multiple times before. Get new material!

      2 years ago Log in to Reply
    8. Katrina Mundinger

      Only person is my paternal grandmother’s brother. On my mom’s side, though, there is a history of autoimmune–my mom has RA and her dad had alopecia.

      2 years ago Log in to Reply
    9. Janice B

      The only known family member that had type 1 was my grandfather’s sister. She was diagnosed is the late 1920’s, and died in the early 1960’s.

      2 years ago Log in to Reply
    10. Keira Thurheimer

      None of my relatives have T1D but there are a lot of them with other autoimmune diseases.

      2 years ago Log in to Reply
      1. Molly Jones

        Same with my family.

        2 years ago Log in to Reply
    11. Tom Caesar

      I’m the only lucky one!

      2 years ago Log in to Reply
    12. Elizabeth Jones

      My third oldest brother got diagnosed while in high school. I got diagnosed with LADA when I was 29

      2 years ago Log in to Reply
    13. Yaffa Steubinger

      I have T1 and my son’s two sons have T1. What a thing to pass down to your grandkids. 🙁

      2 years ago Log in to Reply
    14. Eva

      Not. One. Other. Relative. As a first generation American, I was the first one ever to get vaccinated.

      1
      2 years ago Log in to Reply
    15. kim bullock

      I do have a uncle with type 2. I am the only type 1

      2 years ago Log in to Reply
    16. Janis Senungetuk

      My maternal grandfather and my first cousin’s daughter on my father’s side are two that were dx with T1. Before insulin was available and later, before there was knowledge of the various types of diabetes, there were relatives on both sides of my family who did not survive for long.

      2 years ago Log in to Reply
    17. lis be

      cousin on paternal side

      2 years ago Log in to Reply
    18. Edward Geary

      One nephew: y brother’s son.

      2 years ago Log in to Reply
      1. Donal Conway

        My Uncles two grandchildren one at ten years old and another three years ago at 25 years of age, both of course type 1. I was first in the blood line 54 years ago to be diagnosed and nobody knew when I was diagnosed which side of the family passed it on to me? So the later diagnosed cousins proved it came from my late Mothers family side and their granfather also got type 2 in his later years of life. But so far none of my eight siblings got any type of Diabetes.

        2 years ago Log in to Reply
    19. PamK

      When I was diagnosed, I had one uncle who had been diagnosed in his early twenties. Years later, after I had been living with T1D for over 25 years, my mother was diagnosed LADA.

      2 years ago Log in to Reply
    20. KCR

      My late dad was diagnosed as T2D but as I look back and think about my own experience with adult onset T1D and some of the similarities between us, I wonder if he was misdiagnosed.

      2 years ago Log in to Reply
    21. Pauline M Reynolds

      Closest relatives: one nephew and one uncle. But four of my five children have Type 2 !

      2 years ago Log in to Reply
    22. Gerald Oefelein

      My uncle had type 1.

      2 years ago Log in to Reply
    23. Annie Wall

      No one in my immediate family and none in either my mother’s or father’s side as far back as anyone can remember. No cousins on either side, no first, second, third, or fourth cousins. I’m a loner.

      1
      2 years ago Log in to Reply
    24. ConnieT1D62

      My father and his youngest sister were both diagnosed with LADA in their late 30’s, however back then in the mid to late 1960s it was called adult insulin deficient diabetes.
      A first cousin on my maternal side was diagnosed with T1 in her late 20s … she inherited it through her father’s lineage. There was never a diabetes diagnosis of either kind in my mom and her 6 siblings.

      2 years ago Log in to Reply
    25. Sherrie Johnson

      No one

      2 years ago Log in to Reply
    26. Wanacure

      My elder paternal cousin. My 3 years younger brother was diagnosed T1D 3 years after I was at same age: 15. My younger paternal cousin was recently told by a “mean doctor” she had the “eyes of a diabetic.” Her reaction? Changed doctors. Has to take daily Rx for chronic migraines. My mother blamed my father’s side for diabetes. Much later genealogical research seemed to point to her side as well. Many people on this site have reported being misdiagnosed. A hundred years ago, 200 years ago how many diabetics were misdiagnosed? How many deaths were attributed to strokes and heart attacks while the diabetes was overlooked?

      2 years ago Log in to Reply
    27. Mig Vascos

      My oldest sister and I only. No other relative before or after.
      Diabetes 2 has to do with life style and it has nothing to do with the immune system.
      My sister and I were diagnosed first as diabetes 2 because it all started in our 20’s during our pregnancies. We were later diagnosed as having diabetes 1. We were probably LADA but nothing was know about this at the time and the only treatment was insulin.

      1
      2 years ago Log in to Reply
    28. Jneticdiabetic

      I was diagnosed at age 18y. My mom was diagnosed in her mid-50s, 12 years after me.

      2 years ago Log in to Reply
    29. Jian

      my 2nd daughter developed T1D at age 13, my 1st daughter at age 49, 3 brothers with T1D, 1 with T2D
      1 cousin, and 1 niece. all with T1D. no parents with T1d

      2 years ago Log in to Reply
    30. Anthony Harder

      Paternal grandfather + maternal grandmother.

      2 years ago Log in to Reply

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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