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    • 1 hour, 20 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 33 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 17 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 40 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 37 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 2 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 3 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 12 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

    Home > LC Polls > With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?
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    How often do you change what you eat based on your blood glucose levels?

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    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Lawrence S.

      I can’t think of a time when I have not eaten on schedule. Meal times may vary by and hour or two every once in a while, but I have not noticed variations in my blood glucose levels.

      3 years ago Log in to Reply
    2. Robin Melen

      Meals are generally at the same time each day, but when my levels drop, I know it’s time to eat!

      3 years ago Log in to Reply
    3. Jane Cerullo

      When I eat dictates the insulin I need not the other way around. I have never scheduled meals for certain times

      3 years ago Log in to Reply
    4. Katrina Mundinger

      I’m a musician and music teacher. My schedule does not stay the same every day. That said, on my two longer teaching days (until 7:30 or 8 in the evening), when I don’t have time for a meal break, I have been having more lows.

      3 years ago Log in to Reply
    5. eherban1

      I’ll preface this with I am a T1D and have been for 42 years. About a decade ago, I began showing signs of insulin resistance and gained about 100lbs. Last year, I started on insulin sensitizers and have lost abt 58. I find that on Victoza, I don’t feel the need to eat- sometimes for days (I do eat for nutrition) BUT THE POINT- both while on the pump, and when I switched to Tresiba, I can fast for 24 hours or more and my BG will not vary more than 20 mg/dL the whole time. Applying this to when I do eat, so long as I bolus correctly, the timing of my meals has no effect on my control.

      1
      3 years ago Log in to Reply
    6. Mick Martin

      Only very occasionally.

      I’ve setup my pump to deliver 8 or 9 different basal rates within any 24 hour period and it does a good job of keeping my blood glucose level ‘on an even keel’ whether I eat or not. This, however, doesn’t work so well for me during warmer Summer months as the heat potentiates the effects of insulin action and I sometimes lose consciousness if I don’t repeatedly check my blood glucose levels. (The main ‘problem’ here is that I also have a sleep disorder, called narcolepsy, where the sufferer falls asleep ‘at the drop of a hat’ so I don’t hear my pump alarming to inform me when my blood glucose level is falling.)

      1
      3 years ago Log in to Reply
    7. Ms Cris

      Yes, especially when I eat a later-than-normal dinner, or when I eat a later lunch with normal dinnertime.

      3 years ago Log in to Reply
    8. cynthia jaworski

      Generally, timing is something I can work around without travel. The glaring exception is when I travel to a time zone 5 hours different. The first few days I find consistent and dramatic lows right after breakfast when I visit England. My body seems to be running its own independent rhythm.

      3 years ago Log in to Reply
    9. Ahh Life

      My first reaction to “with . . . management tools” is to proffer the question, “Is T1D manageable?”

      And before the overabundance of CDE’s, MD’s, scientists, medical professionals, and the think-they-are medical professionals come crashing down with savage denials; I would gently suggest that man, machines, and algorithms all age and deteriorate. Even education materials age and deteriorate.

      I eat what I want, when I want, and in the quantity, texture, and temperature that I want. The 75-year old digestive nerve, however is not the same as the 65-year old digestive nerve, nor the 55-year old digestive nerve, nor the 45-year old digestive nerve. Therefore, I keep plugging along with the best scientific guesswork available.

      5
      3 years ago Log in to Reply
      1. Carol Meares

        Ha! Spot on

        1
        3 years ago Log in to Reply
    10. Jneticdiabetic

      I answered “other”. I have never eaten on a certain schedule everyday. Especially now with work and parenting, my meals are whenever I can squeeze them in. Haven’t tested it specifically but I assume like all variables this makes my BG harder to predict and manage.

      1
      3 years ago Log in to Reply
    11. Lauren Carey

      I’ve never really eaten on a schedule as I eat when I am hungry. I will sometimes notice an impact and I also know when these changes typically happen and can be prepared.

      3 years ago Log in to Reply
    12. Janice Bohn

      The beauty of the pump is no longer eating on a schedule. I can even fast without difficulty.

      4
      3 years ago Log in to Reply
    13. kflying1@yahoo.com

      What schedule? This disease has it’s own schedule, and after 15 years I can’t figure it out, The endo practice at OHSU is no help – they still refuse to accept the reality that protein affects BG.

      4
      3 years ago Log in to Reply
    14. Ernie Richmann

      One thing I have learned is that there are multiple variables that effect blood glucose levels. Sometimes I just can’t determine the reason for a high or low reading.

      9
      3 years ago Log in to Reply
    15. Joan McGinnis

      ON a pump and don’t eat on a schedule ever since. all good

      2
      3 years ago Log in to Reply
    16. Jillmarie61

      My glucose levels are pretty much perfect on the days I don’t eat for any reason, as they should be, because I’m just receiving basal insulin on those days. Those days usually for reasons like a colonoscopy or pre/post surgery.

      1
      3 years ago Log in to Reply
    17. Patricia Maddix

      I use a tandem pump with control IQ and find that I can pretty much eat meals at any time except close to bedtime and even skip meals without any negative affect on blood sugars. I was also able to do this to a bit of a lesser degree with my old Medtronic pump which had no automated delivery system. Alterations in sleep schedule however make a huge difference in my blood sugars.

      3 years ago Log in to Reply
    18. Carol Meares

      I never eat on a certain schedule. I always bolus for food when I will be eating hopefully prior about 20 minutes. Prebolusing is my most difficult task but I try.

      3 years ago Log in to Reply
    19. KarenM6

      I had to say “yes, always” because I haven’t “fixed” my basal rates yet… both of my 4s (4pm and 4am) run low. So, if I don’t eat dinner or pay attention to 4pm, then I will go low. Also, if I don’t have my blood sugars at a certain level when I go to bed, I will get those lovely alarms in the middle of the night.
      I thought I had my 4am fixed earlier this year, but for whatever reason, it’s back to going low. *sigh (Possibly _what_ I’m eating at dinner is the culprit, now.)

      3 years ago Log in to Reply
    20. Patricia Dalrymple

      I said sometimes. Mostly I notice if I eat breakfast later than normal. During the week I eat at 6am. On Saturdays, sometimes I have to work and I do it early, and by the time I check prior to bolus, I’m high. Reading others, not eating doesn’t seem to affect them. If I eat lightly the night before, then I will definitely go low on basal alone. I notice when I fast for blood work, I will usually go low unless I turn my pump off, and then when I don’t eat breakfast, I will be high by the time my blood work is done. So now I bolus slightly before I go. I guess because I’m LADA , I still produce some insulin? And I don’t use CGM.

      3 years ago Log in to Reply
    21. AnitaS

      My activity is so different every day that I many times need to tweak my insulin by giving a correction bolus or by eating something small to raise the blood sugar. CGMs are very helpful to help keep sugars from going too low or high throughout the day.

      1
      3 years ago Log in to Reply
    22. Wanacure

      I can’t afford a pump, so I try to keep the same meal times, same bedtimes, to eliminate at least some variables. The CGM is very helpful. If the CGM says I’m trending high, and if it’s at least 2 hours (preferably 4 hours) after my last lispro (Humalog) bolus, then I inject at least 0.5 units lispro via syringe. Stress definitely raises my blood glucose levels, but how to quantity stress? I try to minimize stress by journaling, exercise, meditation, yoga, avoiding “shoulda, woulda, coulda” self-talk, finding something for which to be grateful every day, and permitting my self to just goof off or to procrastinate. Delaying a meal results in a low bg. After eating a delayed meal my bg will go high. Skipping meals is a no-no for me.

      3 years ago Log in to Reply
    23. Keira Thurheimer

      If I dont eat breakfast and bolus within 40 minutes of getting up in the morning, my blood glucose level starts to climb and will continue until a correction bolus is needed.

      3 years ago Log in to Reply
    24. ellencherry

      I said sometimes. Dinner is the big one for me. I don’t have to eat at a specific time, but if it’s going to be 8:00 I’ll have to have a snack of a few carbs (a handful of nuts, a small cookie) to stay above 70 until dinner.

      3 years ago Log in to Reply

    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day? Cancel reply

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