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    • 12 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 12 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 12 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 12 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 12 hours, 48 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 14 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 14 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 14 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 44 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 20 hours, 46 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 28 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 21 hours, 32 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 21 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 56 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 21 hours, 57 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 21 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 22 hours, 1 minute ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 2 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 5 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 5 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 22 hours, 18 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 31 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 47 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Home > LC Polls > Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.
    Previous

    At what age were you diagnosed with T1D?

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    If you drink caffeinated beverages, do you bolus for the caffeine itself (in addition to any carbohydrates in the beverage, such as sugar, milk, etc.)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Jeff Balbirnie

      No such thing as non-diabetes health; it (D) is always the sole filter through which ALL our health care needs evolves.

      8
      2 years ago Log in to Reply
    2. Steve Rumble

      I dealt with a “Travel Nurse” to identify and receive the vaccinations I needed for foreign travel, to areas of Southeast Asia.

      Looking at the comments I realized I should have included an Ophthalmologist, because while he monitors my diabetes related eye issues, he also treats my glaucoma and cataract conditions.

      2 years ago Log in to Reply
    3. ConnieT1D62

      I see a chiropractor on an ongoing basis as needed and have done so off and on since 1979 for overall wellness and spinal adjustments. However, all of my health care needs center around living well with T1D because it is never not part of the equation.

      2
      2 years ago Log in to Reply
    4. Lawrence S.

      I see my Ophthalmologist annually for a diabetes check up on my eyes. I had cataract surgery on one eye 2 months ago. I also saw an optometrist within the past year for my eyeglasses. I had my annual check up with my Primary Care Physician. I went to appropriate specialists as directed by my PCP. I got my vaccinations at local pharmacies (because it is less expensive than getting them at my doctor’s office).
      I’m sure I’m forgetting something … but.

      2 years ago Log in to Reply
    5. GLORIA MILLER

      CVS and Walgreens for vaccinations

      1
      2 years ago Log in to Reply
    6. Tina Roberts

      Hand specialist for arthritis and dupryrens contracture and weight wellness doctor.

      2 years ago Log in to Reply
    7. KCR

      Physical therapist.

      1
      2 years ago Log in to Reply
    8. Patricia Kilwein

      Besides primary doctor, optometrist and dentist, I see a respiratory specialist for asthma. Plus a sleep specialist. Seems like seeing doctors has become my social life and the machines are my new hobbies! 🤣

      2
      2 years ago Log in to Reply
      1. Patricia Kilwein

        Meant ophthalmologist! Anyway!

        2 years ago Log in to Reply
    9. Clearblueskynm

      Radiologist for mammogram and ultrasound

      2 years ago Log in to Reply
    10. Bruce Schnitzler

      Oncologist, dentist

      2 years ago Log in to Reply
    11. Richard Wiener

      Physical therapist, podiatrist, neurologist

      2 years ago Log in to Reply
    12. Joan Benedetto

      Pediatrician, and an Orthopedist for a patella tendon issue.

      2 years ago Log in to Reply
    13. Marty

      In addition to my endo and primary care doctor, I’ve seen an orthopedic surgeon, pain specialists, radiologists, anesthesiologist, hematologist, hospital and rehab nurses and aids (bless them), sports medicine doctor, pharmacist for vaccinations, physical therapists, and audiologist. It’s been a rough year but things are looking up.

      2 years ago Log in to Reply
    14. Sarah Austin

      Orthopedic as I fell down the stairs and broke some bones in my foot, nothing to do with diabetes

      2 years ago Log in to Reply
    15. Ahh Life

      Aging is a bigger filter. I don’t wish to submarine anybody’s chances, but . . . the average American can expect to celebrate only a single birthday in good health after the traditional retirement age of 65.

      As we age, merely to have added new years to life is misguided. Our objective must also be to add new life to those years. 🤸‍♂️🙂

      7
      2 years ago Log in to Reply
    16. Lynn Smith

      I just saw my allergy doctor last week for my annual visit. I also receive monthly injections at the office. I also have seen my orthopedic surgeon in the last 12 months and a physical therapist. I am right at a year now since my total knee replacement.

      2 years ago Log in to Reply
    17. KIMBERELY SMITH

      Nurse practices and Neurologist

      2 years ago Log in to Reply
    18. Angela Naccari

      I have also seen an orthopedic doc.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      NP for annual primary care exam, audiologist, dentist, ophthamologist

      2 years ago Log in to Reply
    20. lis be

      Are any doctor visits not related to type 1 diabetes? At least every doctor I see says “because you are type 1 diabetic…”

      4
      2 years ago Log in to Reply
      1. Andrea Hultman

        A lot of mine lately are because I’m on the spectrum of a connective tissue disorder, which runs with autoimmune diseases in families.

        You are right, though: diabetes can make it hard for specialists to suss out when something else is going on and not just the diabetes.

        2 years ago Log in to Reply
    21. Pauline M Reynolds

      Also physiatrist (spinal condition), nurse (vaccines).

      2 years ago Log in to Reply
    22. Eva

      I get a yearly eye exam.
      I get a yearly exam by my OB-GYN.
      If I get injured exercising/playing tennis or if I have an infection (yeast or bacteria), I’ll see my GP.
      If I need exams about my body’s levels of vitamin, minerals and electrolytes, diet and inflammation, I go see my functional MD.

      2 years ago Log in to Reply
    23. Carol Meares

      Dermatologist

      2 years ago Log in to Reply
    24. Jillkdubois

      1st Mammogram screening, clear!

      2
      2 years ago Log in to Reply
    25. Kathleen Juzenas

      Besides those marked, physical therapist and CVS for vaccinations. I’ve seen multiple specialists: oncologist/hematologist, cardiologist, dermatologist, rheumatologist, orthopedic surgeon, dentist, audiologist.

      2 years ago Log in to Reply
    26. Molly Jones

      I have this fatal condition called Life. There are so many providers today which help with many medical concerns that were not understood a century ago. Happiness is my main goal with all the added conditions I have. I am thankful to get closer to it with age.

      2 years ago Log in to Reply
    27. Kristine Warmecke

      I see PT pretty regularly for gait issues & pain in my mastectomy area.

      2 years ago Log in to Reply
    28. jenn velez

      Orthopedist

      2 years ago Log in to Reply
    29. Bea Anderson

      Vitriol Retinal specialist, orthopedic surgeon, Ears, Nose and throat, Urgent Care, Vein clinic after ER trip due to vein leak at ankle!

      2 years ago Log in to Reply
    30. StPetie

      Dermatologist.

      2 years ago Log in to Reply
    31. Anita Stokar

      I see a neuro-oncologist for a separate disease (although I do not have cancer), dermatologist. and a dentist.

      2 years ago Log in to Reply
    32. Jen Farley

      Urgent care, had Covid for a 3rd time. Rheumatologist and my mental team (psychiatrist and therapist) but my insurance has decided not to pay them…..WHY? Ugh

      2 years ago Log in to Reply
    33. PamK

      I have also seen my dentist, gastroenterologist, allergy doctor, and a cardiologist for something not diabetes related.

      2 years ago Log in to Reply
    34. Andrea Hultman

      Geneticist, orthopedic surgeon, neurosurgeon’s PA, physical therapist

      Because I’m on the spectrum of EDS. Wheeeee!!!

      2 years ago Log in to Reply

    Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply. Cancel reply

    You must be logged in to post a comment.




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