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    • 9 hours, 28 minutes ago
      magoo likes your comment at
      How often do you experience low glucose during exercise?
      I am 86 and rarely exercise. I notice, though, that since not exercising regularly, my BGs are very sensitive to almost everything. Showering produces a low unless I plan it during a high or eat something beforehand. Dressing and doing laundry are also times where I have to be careful.
    • 14 hours, 23 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      I am 86 and rarely exercise. I notice, though, that since not exercising regularly, my BGs are very sensitive to almost everything. Showering produces a low unless I plan it during a high or eat something beforehand. Dressing and doing laundry are also times where I have to be careful.
    • 14 hours, 24 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      It is very exercise dependent for me. I usually turn my basal off and carb up before doing any aggressive exercise. Sometimes I will bike with a group for up to 5 hours with no basal or IOB. I use Humalog in my pump and can be unhooked for up to 6 hours without any hyperglycaemia, I’ve been type 1 for about 50 years….fast acting insulin hangs around for a long time in body!
    • 14 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      I check sugar before exercise and eat a snack depending on the #
    • 14 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      I check my CGM readings before I go to the gym to exercise or go for a walk. I usually take 2 glucose tablets before I start if I'm trending g down.
    • 14 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      My main exercise is walking and pre CGM i would use a peariodic finger prick to check my BG and occaisionally would delay to long between tests. CGM eliminates that issue so now I am aware of decreasing BG values in time to stop exercising or to eat something to boost BG levels.
    • 14 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How often do you experience low glucose during exercise?
      Probably need to plan better: eat a few more carbs beforehand or go a temp basil. But since it isn’t anything 2 glucose tablets can’t solve, I usually just adjust accordingly. Luckily, I don’t exercise to lose weight so eating extra isn’t a problem.
    • 18 hours, 25 minutes ago
      Derek West likes your comment at
      How often do you experience low glucose during exercise?
      I check sugar before exercise and eat a snack depending on the #
    • 18 hours, 26 minutes ago
      Derek West likes your comment at
      How often do you experience low glucose during exercise?
      My main exercise is walking and pre CGM i would use a peariodic finger prick to check my BG and occaisionally would delay to long between tests. CGM eliminates that issue so now I am aware of decreasing BG values in time to stop exercising or to eat something to boost BG levels.
    • 18 hours, 55 minutes ago
      atr likes your comment at
      How often do you experience low glucose during exercise?
      My main exercise is walking and pre CGM i would use a peariodic finger prick to check my BG and occaisionally would delay to long between tests. CGM eliminates that issue so now I am aware of decreasing BG values in time to stop exercising or to eat something to boost BG levels.
    • 2 days, 5 hours ago
      AmyM likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I am unclear. Maybe you can explain what I am missing. The clinical studies I have done do not involve sharing data with social media. They are medical and are HIPAA protected.
    • 2 days, 17 hours ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 2 days, 18 hours ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 2 days, 19 hours ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 2 days, 19 hours ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 2 days, 19 hours ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 2 days, 19 hours ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 3 days, 13 hours ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 3 days, 18 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 4 days, 19 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 5 days, 6 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
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    At what age were you diagnosed with T1D?

    Home > LC Polls > At what age were you diagnosed with T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023?

    Next

    Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Jane Cerullo

      Misdiagnosed as DM2 for a few years. New Endo was amazed that I didn’t know I was LADA T1D

      2
      3 years ago Log in to Reply
    2. KIMBERELY SMITH

      AT AGE OF 58

      2
      3 years ago Log in to Reply
      1. Kris Sykes-David

        I was 55, almost ten years ago. 😔

        1
        3 years ago Log in to Reply
    3. Yaffa Steubinger

      Diagnosed at 66 making T1 my fourth autoimmune disease. Ah, the ‘gift’ that keeps on giving.

      4
      3 years ago Log in to Reply
    4. Don P

      the label T1 has many sub categories of which require different control methods. ie .. as a JD I’m completely different than a LADA

      2
      3 years ago Log in to Reply
      1. Mark Schweim

        T1 is T1… JD means Juvenile Diabetes, which is what T1 USED TO be called. I was diagnosed at 24 years young, and at that time, the Hospital put on my diagnosis that I had “T1D, formerly called JD (Juvenile Diabetes)” and they said in 1991 that what was formerly called JD had been RENAMED as T1D due to their finding that an increasing number of people were being diagnosed with JD even at ages older than 40 years old, which made it totally meaningless and senseless to call it “Juvenile Diabetes” when most frequently diagnosed in people no longer young enough to consider as being juvenile.

        4
        3 years ago Log in to Reply
    5. Bob Durstenfeld

      My Dad, myself, two brothers, my eldest son, and his eldest daughter were all dx’ed with T1D before age 2.

      1
      3 years ago Log in to Reply
      1. Eva

        Ever tested for MODY?

        3 years ago Log in to Reply
    6. Sue Martin

      I was diagnosed at 18.

      1
      3 years ago Log in to Reply
    7. pru barry

      I was diagnosed at 14, 69 years ago. It has been an interesting adventure, with nothing more than Graves disease cropping up in the meantime to remind me that my system has its quirks. I knew long ago that respecting the do’s and don’t’s of diabetes was essential (Thank you, Dr. Joslin, Sr.)
      Just want everyone to be reminded that it’s not the end of the world. I’ve been lucky, and have tried to be diligent while trying really hard to live life to the fullest. I’m still wishing we had a medical system that didn’t place such a heavy insistence on supporting the drug barons. I know it’s complicated, but even I feel sure that we might have had a cure by now were it not for so much greed. There it is, in my most genteel terms :^}.

      5
      3 years ago Log in to Reply
    8. Joan Benedetto

      My son, age 11.5, was diagnosed at 18 mos of age.

      1
      3 years ago Log in to Reply
    9. Nevin Bowman

      Age 4, 46 years ago.

      2
      3 years ago Log in to Reply
    10. Donna Condi

      At 42 I was misdiagnosed with T2 and was finally told that I had always been a T1 two years later.

      3 years ago Log in to Reply
      1. Steven Gill

        I lived 3 1/2 years as a TYPE2, had to fire the endocrinologist to fix it.

        3 years ago Log in to Reply
    11. lis be

      I still think T1D should have a different name.

      2
      3 years ago Log in to Reply
      1. ConnieT1D62

        How about
        Insulin Deficient Diabetes (IDD) for T1D
        and Insulin Resistant Diabetes (IRD) for T2D

        2
        3 years ago Log in to Reply
    12. Kristine Warmecke

      I was 11 years old, my brother was 7 months old and his oldest daughter was 1 years old.

      3 years ago Log in to Reply
    13. ConnieT1D62

      Age 8 in 1962.

      3 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I was 23 years of age, just out of the US Navy and that was 55 years ago!

      3 years ago Log in to Reply
    15. KarenM6

      Age 5

      3 years ago Log in to Reply
    16. Jen Farley

      I have had T1D for 41 years. Dang, was just called a senior citizen and given a senior discount at a store. I should be glad right. Not feeling it!

      3 years ago Log in to Reply
      1. Jen Farley

        I was 13. Worst year ever!

        3 years ago Log in to Reply
    17. PamK

      Age 2 1/2

      3 years ago Log in to Reply

    At what age were you diagnosed with T1D? Cancel reply

    You must be logged in to post a comment.




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