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    • 8 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 51 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 14 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 12 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 35 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 37 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 38 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 38 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 47 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 39 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 40 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.

    Home > LC Polls > When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
    Previous

    If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.

    Next

    If you use an insulin pump, do you currently have unexpired backup long-acting insulin at home?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Chris Albright

      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.

      2
      3 years ago Log in to Reply
    2. Carrolyn Barloco

      I get a notice of high glucose levels that occurred several hours ago!! WHY?

      7
      3 years ago Log in to Reply
    3. Mary Dexter

      Extreme cramping pain in legs and hips.

      3 years ago Log in to Reply
      1. Wanacure

        Mary, when I first started jogging, I had terrible leg cramps. Then I learned two simple stretches before and after aerobic exercise. Stretch the calf muscle of each leg for 10-12 seconds. Then stretch the thigh muscle of each leg for 10-12 seconds. Do these stretches twice. Also make sure you’re getting adequate potassium. Bananas are a good source of potassium. Hope this helps.😎

        1
        3 years ago Log in to Reply
    4. Janice Bohn

      My number 1 sleep interrupter is the OmniPod chance pod alert. The alert happens a couple of hours before pod shuts down. Since I change it around 5:25am before work – every 3 days I am awoken around 3am.

      3 years ago Log in to Reply
      1. Bill Kast

        I wear omnipod and this function is adjustable on my control for the Pod. I can select times of an hour, two hours etc and the one I use is No Alert. I use Dash. I do not use the Omnipod controller. I am on Loop. It is a do-it-yourself closed loop and it works great for me.

        3 years ago Log in to Reply
    5. Kelly Fleming

      Compression low (false low due to pressure on the CGM site) from DexCom! Ugh!

      1
      3 years ago Log in to Reply
    6. Lawrence S.

      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you’re listening, please remove this function from your pumps.

      3
      3 years ago Log in to Reply
    7. Patricia Kilwein

      My pump, “I need to BG! I need to BG!” Such a cry baby it is!

      1
      3 years ago Log in to Reply
    8. Jeremy Hanson

      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?

      5
      3 years ago Log in to Reply
      1. cynthia jaworski

        yes.

        3 years ago Log in to Reply
      2. Wanacure

        And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.

        1
        3 years ago Log in to Reply
    9. T1diabetic

      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.

      3
      3 years ago Log in to Reply
    10. Judy Sabol

      I use MDI’s and have been fairly successful managing my BS. Most often low alerts happen the night after I have changed my D6 sensor…

      3 years ago Log in to Reply
    11. Mark Schweim

      I can’t honestly remember a time when my sleep was disrupted because of T1D!!! Other illnesses disrupt my sleep more often than T1D does!!!

      3 years ago Log in to Reply
    12. Mick Martin

      I didn’t select any of the above as my sleep is disturbed by a combination of many of those listed.

      3 years ago Log in to Reply
    13. Maureen Helinski

      It is usually not a real low, but a compression low because I am sleeping on sensor.

      3 years ago Log in to Reply
      1. Lawrence S.

        For a long time, I did not understand what people were talking about when they said “compression low’s”. However, I put my current sensor in a slightly different location, and I’ve been getting lots of compression lows from sleeping on my sensor. Now, I understand.

        3 years ago Log in to Reply
    14. Lori COLLINS

      While middle-of-the-nght alerts are frustrating and irritating, I’m no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!

      1
      3 years ago Log in to Reply
    15. Pauline M Reynolds

      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!

      5
      3 years ago Log in to Reply
      1. TEH

        Yeah. Totally agree! This is totally unnecessary and extremely annoying.

        4
        3 years ago Log in to Reply
    16. Jane Cerullo

      Depend on Dexcom except when it’s a compression low. Haven’t found the right site on arm with the G7. I keep trying. Have thin arms. And sleep on side. Any suggestions? Didn’t have this problem with G6. Abdomen out. Too much scar tissue.

      1
      3 years ago Log in to Reply
    17. Steven Gill

      My range/alarms are set 70-130, on injections and unable to make small basal adjustments I get an alarm if high or low. Generally the way the dose is I generally get 5-6 hours sleep than an alarm: if I dose for overnight levels than they rise in the day. But I’ve lived on 4-5 hours sleep since a child, no big deal.

      3 years ago Log in to Reply
    18. Robert Wilson

      Why isn’t going to the bathroom not on this list?

      5
      3 years ago Log in to Reply
      1. sweetcharlie

        yes me also..

        3 years ago Log in to Reply
    19. Wanacure

      When I first started Dexcom 6 a year or so ago, I was frequently annoyed with false low alarms disrupting sleep. Thru comments on this site, I learned about compression lows. I learned not to place the CGM too far to the left or to the right of my navel. Each new sensor gets moved just an inch or so. Problem solved.

      2
      3 years ago Log in to Reply
    20. Sherrie Johnson

      Pump reminds me no insulin has been delivered in 12 hours. Then I have to restart the insulin kind of a pain at 4 AM.

      3 years ago Log in to Reply
    21. mbulzomi@optonline.net

      After wearing a Pump for over 40 years, everything except High and Low warnings are the only conditions I can’t control.

      3 years ago Log in to Reply
    22. Randy Molen

      The most common alert / warning for me using the medtronic 770g is the need to calibrate the sensor.

      3 years ago Log in to Reply
    23. T1D4LongTime

      I only marked alarms for lows. I set a sleep alarm schedule to silence the 180-250 alerts, so seldom do those wake me up. Seems to be some evenings at midnight, my BG plummets so I have to get up to treat a low. I think it’s because the stress during the day is gone once I get in bed. Stress is my true enemy, not T1D!

      3 years ago Log in to Reply

    When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you. Cancel reply

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