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    • 1 hour, 15 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 1 hour, 15 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 hour, 16 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 2 hours, 30 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 6 hours, 3 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 6 hours, 4 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 28 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 9 hours, 28 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 9 hours, 29 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 9 hours, 29 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 9 hours, 30 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 9 hours, 54 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 54 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 10 hours, 43 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 13 hours, 39 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 13 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 13 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 50 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 52 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 53 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 9 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 9 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 11 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 11 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?

    Home > LC Polls > When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    41 Comments

    1. Becky Hertz

      It’s the preservative. My son even knows what it smells like – surprised me one day when he asked if I spilled my insulin.

      2 years ago Log in to Reply
      1. William Bennett

        It’s very handy for checking whether you’ve got a leak from a bent cannula or bad insertion at your infusion site!

        3
        2 years ago Log in to Reply
    2. Phyllis Biederman

      I barely notice the smell, though it has a distinctive. Metallic scent. My husband can’t stand the smell (so I make sure i don’t change my infusion sets near him. And I’ve had patients who can taste the insulin when they inject!

      2 years ago Log in to Reply
      1. LuckyPineapple

        Oh god. Taste it?! That sounds awful.
        My husband and I always joke that we’ll have to cut off our hand if we get insulin on it because the smell won’t wash off easily!

        2 years ago Log in to Reply
    3. Ahh Life

      No in 73 years of taking insulin.

      Aging brings olfactory degradation, visual degradation, audio degradation, and haptic degradation.

      But the really good news is I can still relish the umami, habaneros, red peppers, and horseradish flavors intensely with intensity. 🙂🙃🙂

      3
      2 years ago Log in to Reply
    4. LuckyPineapple

      Insulin smells like bandaids!!

      3
      2 years ago Log in to Reply
    5. Kristen Clifford

      Yes, and it stinks!

      2 years ago Log in to Reply
    6. Richard Vaughn

      I do not notice the odor of my insulin, but I have used insulin for 78 years. Maybe that is the reason I do not detect an odor.

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        Hey Richard. Fancy meeting you here :-).

        2 years ago Log in to Reply
    7. William Bennett

      Of course. Smells like bandaids, always has (I was dx’d in 1983). I’m told it’s the preservative. Guess they use the same chemical.

      2 years ago Log in to Reply
    8. Greg Felton

      I don’t think it is strong or aromatic so I barely notice it, but it does smell like Band Aids if I really try to take a whiff.

      2 years ago Log in to Reply
    9. Katherine Kettig

      I can smell it when I prime my pen before an injection. Bandaids was a good description of the smell to me!

      2 years ago Log in to Reply
    10. Ernie Richmann

      Are they running out of meaningful questions. Is there a hidden purpose to this question?

      2
      2 years ago Log in to Reply
    11. Patricia Kilwein

      I smell like it as well.

      2 years ago Log in to Reply
    12. Joan Benedetto

      Yes. It’s a strong bandaid smell!

      1
      2 years ago Log in to Reply
    13. JanP

      Yes and I hate it. I associate it with being diabetic and it just makes me hate it more. I do agree that the smell helps to alert me to a leak.

      2 years ago Log in to Reply
    14. Lawrence S.

      Yes. Insulin smells like a dentist office, or a doctor’s office, or a hospital. Something like that. I don’t mind the smell at all. It is the smell of life!

      3
      2 years ago Log in to Reply
    15. Jane Cerullo

      Really dislike the smell of insulin.

      2 years ago Log in to Reply
      1. George Lovelace

        Really? To me it’s like “Apocalypse Now”; “I Love The Smell Of Insulin in the Morning, It Smells Like Victory!!”

        7
        2 years ago Log in to Reply
    16. dholl62@gmail.com

      Not all the time do I get a smell when drawing up insulin . More time I get the smell when I replace my insulin pump sensor

      2 years ago Log in to Reply
    17. Sherolyn Newell

      I have never noticed a smell, but, of course, next time I will try to smell it.

      2 years ago Log in to Reply
    18. Tom Caesar

      The smell of life? Unfortunately my sense of smell left me about 10-15 years ago, wonder if a byproduct of my diabetes?

      2 years ago Log in to Reply
    19. Lyn McQuaid

      One of my cats *loves* the smell of insulin and likes to be around when I change my pump infusion set. I have to stop him from trying to lick it – yuck!

      3
      2 years ago Log in to Reply
      1. lis be

        I didn’t realize the smell was phenols until I read through this, then I googled “cats and phenol” and it says the smell is pretty bad for cats. I had no idea 🙁

        2 years ago Log in to Reply
    20. Gary Rind

      I notice the smell when the pen has gotten too warm and that is just the worst!

      2 years ago Log in to Reply
    21. Yaffa Steubinger

      I smell it when I shoot my 2 units in the air to be sure no air bubbles in the pen. My daughter walked by one time after I did that and asked, ‘What smells like bandaids?’ I thought that a good description of the smell – ha!

      2
      2 years ago Log in to Reply
      1. Tim Moeslein

        It does indeed smell like Bandaids. I ad a friend recently tell me it reminded him of the plastic they mold Barbie out of.

        2 years ago Log in to Reply
    22. TomH

      My understanding the smell comes from phenol which is used as preservative and sterility agent.

      2 years ago Log in to Reply
    23. Thomas Cline

      I understand that it is phenol, and I’ve always wondered why, if it is sufficiently concentrated for me to smell it AND for it to potentially kill bacteria, that it doesn’t sting more to inject. To me it smells like crayons — a good smell.

      2 years ago Log in to Reply
    24. Anneyun

      I never really paid any attention to the smell but once when my grown kids were home visiting and I was filling my pump, one of my daughters said “oh I like that smell. The smell reminds me of you mom, and so it is a comforting smell”, and my other daughters agreed.

      4
      2 years ago Log in to Reply
    25. Janis Senungetuk

      No, not anymore. After 68+ years of taking various kinds of insulin, the alcohol swab and insulin smell are so much a part of my daily life I’m no longer aware of it.

      2 years ago Log in to Reply
    26. Tim Moeslein

      Smells like life 🙂

      5
      2 years ago Log in to Reply
    27. mojoseje

      Of course. lol
      My cat loves how insulin smells.

      2 years ago Log in to Reply
    28. Amanda Barras

      Of course! Everyone in my house knows what insulin smells like. Sometimes if they smell it they ask me if I have a leaking site. One time they were right! Good catch!

      2
      2 years ago Log in to Reply
    29. Sandy Norman

      Funny all the different reactions to the smell. Like Anneyun’s comment my daughter also loves the smell as it reminds her of me and she also smells it on other diabetics in public.

      2
      2 years ago Log in to Reply
    30. Jeff Balbirnie

      An interesting question! Sometimes, yes… but not constantly enough that I can easily define it. Sometimes immediately after injection of the huma-log, I also get/got a brief flavor in my mouth, very rarely now, but initially, originally more so.

      2 years ago Log in to Reply
    31. Daniel Bestvater

      Yes I notice the smell, even after 45+ years of using insulin. In university I did some medical research where phenolic preservatives were used. My insulin smells much like the lab did.

      2 years ago Log in to Reply
    32. T1D4LongTime

      I marked “Unsure” because I do not smell the insulin unless I spill some out when filling the insulin cartridge or when preparing a manual injection. Insulin has a DISTINCT odor when exposed to air.

      2 years ago Log in to Reply
    33. ConnieT1D62

      Yes .. to me it just smells like insulin … it is what it is probably because I am so used to it.

      2 years ago Log in to Reply
    34. Velika Peterson

      Yes, I like the smell of insulin.

      2 years ago Log in to Reply
    35. PamK

      My husband hates the smell!

      2 years ago Log in to Reply

    When you take an insulin injection or fill your insulin pump with insulin, do you notice a certain smell associated with your insulin? Cancel reply

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