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    • 7 hours, 7 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 9 hours, 5 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 13 hours, 40 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 13 hours, 40 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 15 hours, 29 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 15 hours, 35 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 16 hours, 11 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 10 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 12 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 14 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 15 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 6 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 1 hour ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 14 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 15 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 15 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 15 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 16 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 3 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 12 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
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      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
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    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?

    Home > LC Polls > When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?
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    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. 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    27 Comments

    1. Samantha Robinson

      They typically ask me to go in a few days before my virtual visit to do lab work and download my device data – then we can talk about it at my virtual visit!

      1
      5 years ago Log in to Reply
    2. James Goldman

      I am not involved with any telehealth meetings as I visit with my endocrinologist quarterly.

      2
      5 years ago Log in to Reply
    3. Sue Martin

      Besides having them be connected to Clarity, I download my InPen data and email it to them beforehand so we can review that together. They seemed to find that data more helpful in determining that my insulin ratio may be off.

      5 years ago Log in to Reply
    4. Gerald Oefelein

      N/A. I’ve always met in-person with my endocrinologist.

      1
      5 years ago Log in to Reply
    5. Steve Rumble

      My visits, telehealth or in person, are preceded by lab tests and that is the data we discuss.

      5 years ago Log in to Reply
    6. Richard Vaughn

      I had a virtual visit with my endo only two times, many months ago. I am back to seeing her in her office, and my pump and CGM are downloaded there.

      1
      5 years ago Log in to Reply
    7. Natalie Daley

      We’ve always met in person.

      1
      5 years ago Log in to Reply
    8. Jodi Greenfield

      I upload data to my computer, print out reports and send them through the mail. This is the easiest way because of technical incompatibility with their computer system. I can also read the up-to-the-minute data off my sensor & pump over the phone.

      5 years ago Log in to Reply
    9. Bob Durstenfeld

      My doctor uses an app called Glooko, it tracks my pump, CGM, diet, exercise and comment, all in one place.

      5 years ago Log in to Reply
    10. Janis Senungetuk

      The clinic has access to my pump/CGM data thru t:connect. If any labs are needed I get them done at a clinic several day before my appointment.

      1
      5 years ago Log in to Reply
    11. Pauline M Reynolds

      My computer tells me I can’t download the data, so I visit the Dr.’s office, give them my pump in the waiting room, and they read it for the next day’s phone visit. Cumbersome, I know.

      5 years ago Log in to Reply
      1. AnitaS

        I hope for your sake that your doctor’s office isn’t too far away. Do you have a person who can come look at your computer and determine what is going on?

        5 years ago Log in to Reply
      2. ConnieT1D62

        Why are you driving to the provider office to download your data and then have a telehealth visit? Seems like a waste of time.

        5 years ago Log in to Reply
    12. Sharon Lillibridge

      i haver sn a!C drawn ev ery 3 months

      5 years ago Log in to Reply
    13. Becky Hertz

      Other – I download my data to Tidepool and shared with my endo, for my one telehealth visit. But my previous clinic liked you to download your data before your on person visit as well.
      My new clinic does it the “old fashioned” way, they download my pump and pull up my Clarity info.

      5 years ago Log in to Reply
    14. kristina blake

      I upload via T-Connect every month (for my use) and it is automatically forward to the Endo practice. I truly appreciate doing it this way. In the past (with a fortunately former endo) they took my pump, did their thing getting the data at the office. But…this one endo would change all my settings, and not tell me. I am aggressive in my T1D mgt, and when I couldn’t get under 150 bg (I don’t allow myself to go above 140) it occurred to me to check the settings. They were changed! So using T-Connect avoids that scenario. I was livid.

      2
      5 years ago Log in to Reply
      1. AnitaS

        That is terrible. Your doctor should have just suggested a change which you could have discussed with him/her.

        5 years ago Log in to Reply
    15. Kevin McCue

      I do not do Telegraph nor am I interested in it currently, maybe someday.

      5 years ago Log in to Reply
    16. Janelle Schmitz

      I have it set up that my son’s data is uploaded to Clarity and Glooko automatically. I don’t have to do anything extra before our appointments. The doctors/nurses have all the information available to them and have the screens available to pull up and discuss during our visit whether it is in-person or virtual.

      5 years ago Log in to Reply
    17. Rose Lentzke

      I go to the endocrinologist’s office and have them download the data before my appointment. I have a problem when I do it my self.

      5 years ago Log in to Reply
    18. Kristine Warmecke

      Until this past Monday, I downloaded from tSlim and we go over them together. Monday and everyday since then, on mine and a brother’s computer, it will not download. According to Tandem, it’s my pump, so a replacement is arriving tomorrow.

      5 years ago Log in to Reply
    19. AnitaS

      I answered that I download my data to my devices application (T-connect) and then my endo can look over the data through her computer. However that is what I would do if my appt. was virtual but I don’t believe I have ever had a virtual appt. with her.

      5 years ago Log in to Reply
    20. PamK

      I have never met with my provider online via a telehealth visit. I don’t believe his office offers these, though I wish they would.

      5 years ago Log in to Reply
    21. Molly Jones

      This doesn’t apply to me as we meet in person.
      For our in person appts I download T:connect two days before my appointments and they have access to my Dexcom.

      1
      5 years ago Log in to Reply
    22. ConnieT1D62

      NA. I have never met with my endocrine provider via telehealth. I see her in person every three months. If I need to contact her in between, we use email or text.

      5 years ago Log in to Reply
    23. Nicholas Argento

      As someone who has a very high percentage of people on devices, I can tell everyone that whether you are seen in office or remotely, it is invaluable to download before a visit, or have a service that does so automatically when working, like Dexcom Clarity, T:connect, Medtronic Carelink, or LibreView. This saves valuable time during any type of visit, and eliminates the need for someone else to handle your device. We do whatever works- some people (or their families) who don’t have remote capability or don’t like it sometimes bring the device in ahead of time if they are local, regardless of whether it is tele-med or in person. But most we set up a service- Glooko, Tidepool are also ones that work for multiple devices.

      5 years ago Log in to Reply
    24. Stang777

      Even in person the doc has never gone over my data and I see no reason the doc should. I do not use a pump or CGM, so it would be going through my meter or my logs and that is not what my appointments are for. All they have to do is ask me how my levels have been and have I been having any problems, and that is what they do. If I didn’t already have a bunch of reasons for not having a pump and CGM, having to had over that data to anyone, including a doc, would be the reason I would not get those devices. If they can’t just take the info from me, and have to have the “proof” from my device, then I want nothing to do with them. If they can’t trust me, and what I tell them, it would only be because they are not trustworthy as I have done nothing to earn their distrust. They don’t need to see my data unless I am having problems I can’t figure out and are asking them to look at my data to help me figure it out.

      5 years ago Log in to Reply

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