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  • Activity
    • 13 hours, 10 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 13 hours, 11 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 13 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 14 hours, 26 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 14 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 14 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 14 hours, 32 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 14 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 14 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 14 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 14 hours, 37 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 14 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 14 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 14 hours, 38 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 14 hours, 58 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 14 hours, 59 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 19 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 15 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 15 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 15 hours, 28 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 15 hours, 29 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 29 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?

    Home > LC Polls > When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    27 Comments

    1. Samantha Robinson

      They typically ask me to go in a few days before my virtual visit to do lab work and download my device data – then we can talk about it at my virtual visit!

      1
      2 years ago Log in to Reply
    2. James Goldman

      I am not involved with any telehealth meetings as I visit with my endocrinologist quarterly.

      2
      2 years ago Log in to Reply
    3. Sue Martin

      Besides having them be connected to Clarity, I download my InPen data and email it to them beforehand so we can review that together. They seemed to find that data more helpful in determining that my insulin ratio may be off.

      2 years ago Log in to Reply
    4. Gerald Oefelein

      N/A. I’ve always met in-person with my endocrinologist.

      1
      2 years ago Log in to Reply
    5. Steve Rumble

      My visits, telehealth or in person, are preceded by lab tests and that is the data we discuss.

      2 years ago Log in to Reply
    6. Richard Vaughn

      I had a virtual visit with my endo only two times, many months ago. I am back to seeing her in her office, and my pump and CGM are downloaded there.

      1
      2 years ago Log in to Reply
    7. Natalie Daley

      We’ve always met in person.

      1
      2 years ago Log in to Reply
    8. Jodi Greenfield

      I upload data to my computer, print out reports and send them through the mail. This is the easiest way because of technical incompatibility with their computer system. I can also read the up-to-the-minute data off my sensor & pump over the phone.

      2 years ago Log in to Reply
    9. Bob Durstenfeld

      My doctor uses an app called Glooko, it tracks my pump, CGM, diet, exercise and comment, all in one place.

      2 years ago Log in to Reply
    10. Janis Senungetuk

      The clinic has access to my pump/CGM data thru t:connect. If any labs are needed I get them done at a clinic several day before my appointment.

      1
      2 years ago Log in to Reply
    11. Pauline M Reynolds

      My computer tells me I can’t download the data, so I visit the Dr.’s office, give them my pump in the waiting room, and they read it for the next day’s phone visit. Cumbersome, I know.

      2 years ago Log in to Reply
      1. AnitaS

        I hope for your sake that your doctor’s office isn’t too far away. Do you have a person who can come look at your computer and determine what is going on?

        2 years ago Log in to Reply
      2. ConnieT1D62

        Why are you driving to the provider office to download your data and then have a telehealth visit? Seems like a waste of time.

        2 years ago Log in to Reply
    12. Sharon Lillibridge

      i haver sn a!C drawn ev ery 3 months

      2 years ago Log in to Reply
    13. Becky Hertz

      Other – I download my data to Tidepool and shared with my endo, for my one telehealth visit. But my previous clinic liked you to download your data before your on person visit as well.
      My new clinic does it the “old fashioned” way, they download my pump and pull up my Clarity info.

      2 years ago Log in to Reply
    14. kristina blake

      I upload via T-Connect every month (for my use) and it is automatically forward to the Endo practice. I truly appreciate doing it this way. In the past (with a fortunately former endo) they took my pump, did their thing getting the data at the office. But…this one endo would change all my settings, and not tell me. I am aggressive in my T1D mgt, and when I couldn’t get under 150 bg (I don’t allow myself to go above 140) it occurred to me to check the settings. They were changed! So using T-Connect avoids that scenario. I was livid.

      2
      2 years ago Log in to Reply
      1. AnitaS

        That is terrible. Your doctor should have just suggested a change which you could have discussed with him/her.

        2 years ago Log in to Reply
    15. Kevin McCue

      I do not do Telegraph nor am I interested in it currently, maybe someday.

      2 years ago Log in to Reply
    16. Janelle Schmitz

      I have it set up that my son’s data is uploaded to Clarity and Glooko automatically. I don’t have to do anything extra before our appointments. The doctors/nurses have all the information available to them and have the screens available to pull up and discuss during our visit whether it is in-person or virtual.

      2 years ago Log in to Reply
    17. Rose Lentzke

      I go to the endocrinologist’s office and have them download the data before my appointment. I have a problem when I do it my self.

      2 years ago Log in to Reply
    18. Kristine Warmecke

      Until this past Monday, I downloaded from tSlim and we go over them together. Monday and everyday since then, on mine and a brother’s computer, it will not download. According to Tandem, it’s my pump, so a replacement is arriving tomorrow.

      2 years ago Log in to Reply
    19. AnitaS

      I answered that I download my data to my devices application (T-connect) and then my endo can look over the data through her computer. However that is what I would do if my appt. was virtual but I don’t believe I have ever had a virtual appt. with her.

      2 years ago Log in to Reply
    20. PamK

      I have never met with my provider online via a telehealth visit. I don’t believe his office offers these, though I wish they would.

      2 years ago Log in to Reply
    21. Molly Jones

      This doesn’t apply to me as we meet in person.
      For our in person appts I download T:connect two days before my appointments and they have access to my Dexcom.

      1
      2 years ago Log in to Reply
    22. ConnieT1D62

      NA. I have never met with my endocrine provider via telehealth. I see her in person every three months. If I need to contact her in between, we use email or text.

      2 years ago Log in to Reply
    23. Nicholas Argento

      As someone who has a very high percentage of people on devices, I can tell everyone that whether you are seen in office or remotely, it is invaluable to download before a visit, or have a service that does so automatically when working, like Dexcom Clarity, T:connect, Medtronic Carelink, or LibreView. This saves valuable time during any type of visit, and eliminates the need for someone else to handle your device. We do whatever works- some people (or their families) who don’t have remote capability or don’t like it sometimes bring the device in ahead of time if they are local, regardless of whether it is tele-med or in person. But most we set up a service- Glooko, Tidepool are also ones that work for multiple devices.

      2 years ago Log in to Reply
    24. Stang777

      Even in person the doc has never gone over my data and I see no reason the doc should. I do not use a pump or CGM, so it would be going through my meter or my logs and that is not what my appointments are for. All they have to do is ask me how my levels have been and have I been having any problems, and that is what they do. If I didn’t already have a bunch of reasons for not having a pump and CGM, having to had over that data to anyone, including a doc, would be the reason I would not get those devices. If they can’t just take the info from me, and have to have the “proof” from my device, then I want nothing to do with them. If they can’t trust me, and what I tell them, it would only be because they are not trustworthy as I have done nothing to earn their distrust. They don’t need to see my data unless I am having problems I can’t figure out and are asking them to look at my data to help me figure it out.

      2 years ago Log in to Reply

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