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    • 1 hour, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 8 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 24 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 25 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 45 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 54 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 54 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 51 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 7 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Home > LC Polls > If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?
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    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?

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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Sarah Howard

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    28 Comments

    1. Patricia Dalrymple

      I said remission but what is doesn’t say is anything about hyperglycemia. I assume insulin independence means that. Obviously 5 years is not a cure unless you are dying within that period. But I would want to know: what happens after 5 years? Does it return with a vengeance?

      7
      1 year ago Log in to Reply
    2. TomH

      The description can be interpreted as eliminating/greatly reducing hyperglycemia events, but doesn’t state so specifically. If this is a correct interpretation, then it could be labeled ā€œfunctional cureā€; if incorrect, then it is ā€œtransformativeā€ only as hyper events have very negative impacts.

      2
      1 year ago Log in to Reply
    3. lis be

      Fun to daydream about. I said functional cure, but only if the treatment could be re-upped every 5 years.. and don’t cause other dramatic side affects or require other strong medicines or surgeries.

      2
      1 year ago Log in to Reply
    4. Julie Akawie

      I agree with others – the question ignores hyperglycemic events. Perhaps that is what is. meant by “insulin independence”–?

      I would call it both “remission from diabetes” AND “transformative.” Not sure why they had to be mutually exclusive.

      1
      1 year ago Log in to Reply
    5. AimmcG

      I would call it a bandaid it’s a temporary fix.

      2
      1 year ago Log in to Reply
    6. Jennifer Wilson

      I’m not sure if “therapy” is the best term and could cause confusion. It’s not complete elimination, it appears that it will be a reduction AND it is temporary. I think we need more information on what this “theray” involves before we can name it appropriately. What ever the decision is, it should be clearly stated that it is short-term or temporary.
      Thank you

      1
      1 year ago Log in to Reply
    7. Nevin Bowman

      More info would be needed to answer definitively; would it also require immune-suppressive drugs?

      1
      1 year ago Log in to Reply
    8. Kevin McCue

      Depends on the costs. If I have to take additional medicines or worry about side effects apart from T1d then the cost would out weigh the benefits. Even though I have T1d I am able to minimize the effects on overall health.

      1
      1 year ago Log in to Reply
    9. Sherolyn Newell

      I think a better question than “what would you call it” is “would you do it”.

      2
      1 year ago Log in to Reply
      1. rick phillips

        I would do it and I called it transformative.

        1
        1 year ago Log in to Reply
    10. Megan W

      I’d call it “Alternative Treatment” or “Alternative Therapy”. If it’s truly only “up to 5 years” it is not a cure and I wouldn’t call it remission because you KNOW it will come back. I guess the question would be if it could be done repeatedly, then it may be a functional cure or remission.

      1 year ago Log in to Reply
    11. Lynn Smith

      I chose Other. There is not enough information for me to label it any of the other choices. I’m not sure what insulin independence means and it’s also only temporary. Although a break from diabetes for 5 years sounds great, what side effects of the therapy would I be enduring for those 5 years.

      2
      1 year ago Log in to Reply
    12. dave hedeen

      Insulin supply lasting many months doesn’t provide a medical benefit if not administered to keep TIR

      1 year ago Log in to Reply
    13. Clare Fishman

      I called it disease modifying. It is temporary and up to 5 years (not necessarily 5 years, it could be a few months). There really isn’t enough information to determine if it might be transformative because you have no idea if other “therapies” would be required. I would not call it a cure of any kind though.

      1
      1 year ago Log in to Reply
    14. Carol Meares

      Other…not enough info. Side effects? Other drugs necessary? Their side effects? Time spent at the doctor? Risks overall?

      1
      1 year ago Log in to Reply
    15. Velika Peterson

      Temporary functional cure

      1 year ago Log in to Reply
    16. connie ker

      I have no idea what I am voting on and what it would entail to have 5 years of freedom from this disease. A long vacation would be nice but not if it included surgery or anti-rejection drugs. That’s why I voted potential which means partially looking forward with great potential and great HOPE.

      1
      1 year ago Log in to Reply
    17. Ernie Richmann

      Is this the smart insulin therapy? I would call it an advancement. I think about individuals who would not be able to operate a pump, change infusion sets and cgm sensors/ transmitters or rely on others for help. And if a person is also suffering from dementia or confined to a facility then smart insulin is a smart idea.

      1 year ago Log in to Reply
    18. kristina blake

      I’d call it treatment modifying. You’d still need to monitor, I would presume toward the last two years to be sure it is working. I think it would depend on what a persons daily total doses are to determine how long the treatment would last. Nothing is mentioned about hypers. So I would call it treatment modification.

      1
      1 year ago Log in to Reply
    19. ConnieT1D62

      Insulin independence? No such thing – everyone is insulin dependent whether they have diabetes or not. Every human being, and mammal species, cannot live without the hormone insulin functioning in their bodies in some form or another. It is an essential hormone for the life process. We all know that Insulin resistance is very different from insulin deficiency, or total lack of insulin. So insulin independence??? I don’t think so. Find another name for it – like restoration of insulin function.

      1
      1 year ago Log in to Reply
    20. Sasha Wooldridge

      I agree with others that the word “temporary” should be included in any description. Also, I think it still counts as a “treatment” not a “cure.” Too many options have the word cure in them.

      I selected Remission from Diabetes since that was closest in meaning.

      1
      1 year ago Log in to Reply
    21. betsy valian

      need more info, there is allot more to t1D…

      1 year ago Log in to Reply
    22. George Lovelace

      I call mine a Dexcom G6 integrated with my Tandem X2 running CIQ. I have Eliminated All Lows, have a TIR running up to 94% and SD down to 24. Being a T1 for 57 years I never thought I’d have this!

      1
      1 year ago Log in to Reply
    23. ermcmullin

      I’d like to hear more realistic scenarios that actually might be available, rather than another “a cure is coming” promise that never, ever materializes. I’ve had T1D for so long, the records of my diagnosis date can’t even be found.

      1
      1 year ago Log in to Reply
    24. Molly Jones

      If I could take this therapy every five years, functional cure, almost as good as a cure, bur not, as it would be necessary to have access to.
      If it could only be taken once, then remission.
      I would appreciate being a healthy person who possibly had hypoglycemic events from too much exercise without eating appropriately and not dependent on insulin outside of my own body’s production.

      1
      1 year ago Log in to Reply
    25. Cheryl Seibert

      If the therapy does not cause the pancreas to produce it’s own insulin, then it is not remission nor a cure. Transformative is ok, but disease-modifying is more accurate.

      1 year ago Log in to Reply
    26. Beth Franz

      Disease-modifying at best. And how many other unaffordable pills and pharmaceutical interventions would be required to get “up to” 5 years?

      1 year ago Log in to Reply
    27. Amy Wolk

      That would be a nice break from diabetes but I wouldn’t consider it a cure because it is not forever. And if I knew the treatment was good for 5 years I would still be watching and waiting for the day when it wasn’t working.

      1 year ago Log in to Reply

    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this? Cancel reply

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