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    • 7 hours, 54 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 9 hours, 52 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 14 hours, 27 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 14 hours, 27 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 16 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 16 hours, 22 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 16 hours, 58 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 10 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 13 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 15 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 16 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 7 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 2 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 14 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 15 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 16 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 16 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 17 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 4 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 13 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 13 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days, 13 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
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    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Home > LC Polls > If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?
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    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?

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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. 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    28 Comments

    1. Patricia Dalrymple

      I said remission but what is doesn’t say is anything about hyperglycemia. I assume insulin independence means that. Obviously 5 years is not a cure unless you are dying within that period. But I would want to know: what happens after 5 years? Does it return with a vengeance?

      7
      5 years ago Log in to Reply
    2. TomH

      The description can be interpreted as eliminating/greatly reducing hyperglycemia events, but doesn’t state so specifically. If this is a correct interpretation, then it could be labeled “functional cure”; if incorrect, then it is “transformative” only as hyper events have very negative impacts.

      2
      5 years ago Log in to Reply
    3. lis be

      Fun to daydream about. I said functional cure, but only if the treatment could be re-upped every 5 years.. and don’t cause other dramatic side affects or require other strong medicines or surgeries.

      2
      5 years ago Log in to Reply
    4. Julie Akawie

      I agree with others – the question ignores hyperglycemic events. Perhaps that is what is. meant by “insulin independence”–?

      I would call it both “remission from diabetes” AND “transformative.” Not sure why they had to be mutually exclusive.

      1
      5 years ago Log in to Reply
    5. AimmcG

      I would call it a bandaid it’s a temporary fix.

      2
      5 years ago Log in to Reply
    6. Jennifer Wilson

      I’m not sure if “therapy” is the best term and could cause confusion. It’s not complete elimination, it appears that it will be a reduction AND it is temporary. I think we need more information on what this “theray” involves before we can name it appropriately. What ever the decision is, it should be clearly stated that it is short-term or temporary.
      Thank you

      1
      5 years ago Log in to Reply
    7. Nevin Bowman

      More info would be needed to answer definitively; would it also require immune-suppressive drugs?

      1
      5 years ago Log in to Reply
    8. Kevin McCue

      Depends on the costs. If I have to take additional medicines or worry about side effects apart from T1d then the cost would out weigh the benefits. Even though I have T1d I am able to minimize the effects on overall health.

      1
      5 years ago Log in to Reply
    9. Sherolyn Newell

      I think a better question than “what would you call it” is “would you do it”.

      2
      5 years ago Log in to Reply
      1. rick phillips

        I would do it and I called it transformative.

        1
        5 years ago Log in to Reply
    10. Megan W

      I’d call it “Alternative Treatment” or “Alternative Therapy”. If it’s truly only “up to 5 years” it is not a cure and I wouldn’t call it remission because you KNOW it will come back. I guess the question would be if it could be done repeatedly, then it may be a functional cure or remission.

      5 years ago Log in to Reply
    11. Lynn Smith

      I chose Other. There is not enough information for me to label it any of the other choices. I’m not sure what insulin independence means and it’s also only temporary. Although a break from diabetes for 5 years sounds great, what side effects of the therapy would I be enduring for those 5 years.

      2
      5 years ago Log in to Reply
    12. dave hedeen

      Insulin supply lasting many months doesn’t provide a medical benefit if not administered to keep TIR

      5 years ago Log in to Reply
    13. Clare Fishman

      I called it disease modifying. It is temporary and up to 5 years (not necessarily 5 years, it could be a few months). There really isn’t enough information to determine if it might be transformative because you have no idea if other “therapies” would be required. I would not call it a cure of any kind though.

      1
      5 years ago Log in to Reply
    14. Carol Meares

      Other…not enough info. Side effects? Other drugs necessary? Their side effects? Time spent at the doctor? Risks overall?

      1
      5 years ago Log in to Reply
    15. Velika Peterson

      Temporary functional cure

      5 years ago Log in to Reply
    16. connie ker

      I have no idea what I am voting on and what it would entail to have 5 years of freedom from this disease. A long vacation would be nice but not if it included surgery or anti-rejection drugs. That’s why I voted potential which means partially looking forward with great potential and great HOPE.

      1
      5 years ago Log in to Reply
    17. Ernie Richmann

      Is this the smart insulin therapy? I would call it an advancement. I think about individuals who would not be able to operate a pump, change infusion sets and cgm sensors/ transmitters or rely on others for help. And if a person is also suffering from dementia or confined to a facility then smart insulin is a smart idea.

      5 years ago Log in to Reply
    18. kristina blake

      I’d call it treatment modifying. You’d still need to monitor, I would presume toward the last two years to be sure it is working. I think it would depend on what a persons daily total doses are to determine how long the treatment would last. Nothing is mentioned about hypers. So I would call it treatment modification.

      1
      5 years ago Log in to Reply
    19. ConnieT1D62

      Insulin independence? No such thing – everyone is insulin dependent whether they have diabetes or not. Every human being, and mammal species, cannot live without the hormone insulin functioning in their bodies in some form or another. It is an essential hormone for the life process. We all know that Insulin resistance is very different from insulin deficiency, or total lack of insulin. So insulin independence??? I don’t think so. Find another name for it – like restoration of insulin function.

      1
      5 years ago Log in to Reply
    20. Sasha Wooldridge

      I agree with others that the word “temporary” should be included in any description. Also, I think it still counts as a “treatment” not a “cure.” Too many options have the word cure in them.

      I selected Remission from Diabetes since that was closest in meaning.

      1
      5 years ago Log in to Reply
    21. betsy valian

      need more info, there is allot more to t1D…

      5 years ago Log in to Reply
    22. George Lovelace

      I call mine a Dexcom G6 integrated with my Tandem X2 running CIQ. I have Eliminated All Lows, have a TIR running up to 94% and SD down to 24. Being a T1 for 57 years I never thought I’d have this!

      1
      5 years ago Log in to Reply
    23. ermcmullin

      I’d like to hear more realistic scenarios that actually might be available, rather than another “a cure is coming” promise that never, ever materializes. I’ve had T1D for so long, the records of my diagnosis date can’t even be found.

      1
      5 years ago Log in to Reply
    24. Molly Jones

      If I could take this therapy every five years, functional cure, almost as good as a cure, bur not, as it would be necessary to have access to.
      If it could only be taken once, then remission.
      I would appreciate being a healthy person who possibly had hypoglycemic events from too much exercise without eating appropriately and not dependent on insulin outside of my own body’s production.

      1
      5 years ago Log in to Reply
    25. Cheryl Seibert

      If the therapy does not cause the pancreas to produce it’s own insulin, then it is not remission nor a cure. Transformative is ok, but disease-modifying is more accurate.

      5 years ago Log in to Reply
    26. Beth Franz

      Disease-modifying at best. And how many other unaffordable pills and pharmaceutical interventions would be required to get “up to” 5 years?

      5 years ago Log in to Reply
    27. Amy Wolk

      That would be a nice break from diabetes but I wouldn’t consider it a cure because it is not forever. And if I knew the treatment was good for 5 years I would still be watching and waiting for the day when it wasn’t working.

      5 years ago Log in to Reply

    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this? Cancel reply

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