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    • 1 hour, 20 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 1 hour, 26 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 1 hour, 33 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 20 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 22 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 2 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 3 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 4 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 4 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 5 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 22 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 23 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 2 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?

    Home > LC Polls > When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data?
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    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Samantha Robinson

      They typically ask me to go in a few days before my virtual visit to do lab work and download my device data – then we can talk about it at my virtual visit!

      1
      4 years ago Log in to Reply
    2. James Goldman

      I am not involved with any telehealth meetings as I visit with my endocrinologist quarterly.

      2
      4 years ago Log in to Reply
    3. Sue Martin

      Besides having them be connected to Clarity, I download my InPen data and email it to them beforehand so we can review that together. They seemed to find that data more helpful in determining that my insulin ratio may be off.

      4 years ago Log in to Reply
    4. Gerald Oefelein

      N/A. I’ve always met in-person with my endocrinologist.

      1
      4 years ago Log in to Reply
    5. Steve Rumble

      My visits, telehealth or in person, are preceded by lab tests and that is the data we discuss.

      4 years ago Log in to Reply
    6. Richard Vaughn

      I had a virtual visit with my endo only two times, many months ago. I am back to seeing her in her office, and my pump and CGM are downloaded there.

      1
      4 years ago Log in to Reply
    7. Natalie Daley

      We’ve always met in person.

      1
      4 years ago Log in to Reply
    8. Jodi Greenfield

      I upload data to my computer, print out reports and send them through the mail. This is the easiest way because of technical incompatibility with their computer system. I can also read the up-to-the-minute data off my sensor & pump over the phone.

      4 years ago Log in to Reply
    9. Bob Durstenfeld

      My doctor uses an app called Glooko, it tracks my pump, CGM, diet, exercise and comment, all in one place.

      4 years ago Log in to Reply
    10. Janis Senungetuk

      The clinic has access to my pump/CGM data thru t:connect. If any labs are needed I get them done at a clinic several day before my appointment.

      1
      4 years ago Log in to Reply
    11. Pauline M Reynolds

      My computer tells me I can’t download the data, so I visit the Dr.’s office, give them my pump in the waiting room, and they read it for the next day’s phone visit. Cumbersome, I know.

      4 years ago Log in to Reply
      1. AnitaS

        I hope for your sake that your doctor’s office isn’t too far away. Do you have a person who can come look at your computer and determine what is going on?

        4 years ago Log in to Reply
      2. ConnieT1D62

        Why are you driving to the provider office to download your data and then have a telehealth visit? Seems like a waste of time.

        4 years ago Log in to Reply
    12. Sharon Lillibridge

      i haver sn a!C drawn ev ery 3 months

      4 years ago Log in to Reply
    13. Becky Hertz

      Other – I download my data to Tidepool and shared with my endo, for my one telehealth visit. But my previous clinic liked you to download your data before your on person visit as well.
      My new clinic does it the “old fashioned” way, they download my pump and pull up my Clarity info.

      4 years ago Log in to Reply
    14. kristina blake

      I upload via T-Connect every month (for my use) and it is automatically forward to the Endo practice. I truly appreciate doing it this way. In the past (with a fortunately former endo) they took my pump, did their thing getting the data at the office. But…this one endo would change all my settings, and not tell me. I am aggressive in my T1D mgt, and when I couldn’t get under 150 bg (I don’t allow myself to go above 140) it occurred to me to check the settings. They were changed! So using T-Connect avoids that scenario. I was livid.

      2
      4 years ago Log in to Reply
      1. AnitaS

        That is terrible. Your doctor should have just suggested a change which you could have discussed with him/her.

        4 years ago Log in to Reply
    15. Kevin McCue

      I do not do Telegraph nor am I interested in it currently, maybe someday.

      4 years ago Log in to Reply
    16. Janelle Schmitz

      I have it set up that my son’s data is uploaded to Clarity and Glooko automatically. I don’t have to do anything extra before our appointments. The doctors/nurses have all the information available to them and have the screens available to pull up and discuss during our visit whether it is in-person or virtual.

      4 years ago Log in to Reply
    17. Rose Lentzke

      I go to the endocrinologist’s office and have them download the data before my appointment. I have a problem when I do it my self.

      4 years ago Log in to Reply
    18. Kristine Warmecke

      Until this past Monday, I downloaded from tSlim and we go over them together. Monday and everyday since then, on mine and a brother’s computer, it will not download. According to Tandem, it’s my pump, so a replacement is arriving tomorrow.

      4 years ago Log in to Reply
    19. AnitaS

      I answered that I download my data to my devices application (T-connect) and then my endo can look over the data through her computer. However that is what I would do if my appt. was virtual but I don’t believe I have ever had a virtual appt. with her.

      4 years ago Log in to Reply
    20. PamK

      I have never met with my provider online via a telehealth visit. I don’t believe his office offers these, though I wish they would.

      4 years ago Log in to Reply
    21. Molly Jones

      This doesn’t apply to me as we meet in person.
      For our in person appts I download T:connect two days before my appointments and they have access to my Dexcom.

      1
      4 years ago Log in to Reply
    22. ConnieT1D62

      NA. I have never met with my endocrine provider via telehealth. I see her in person every three months. If I need to contact her in between, we use email or text.

      4 years ago Log in to Reply
    23. Nicholas Argento

      As someone who has a very high percentage of people on devices, I can tell everyone that whether you are seen in office or remotely, it is invaluable to download before a visit, or have a service that does so automatically when working, like Dexcom Clarity, T:connect, Medtronic Carelink, or LibreView. This saves valuable time during any type of visit, and eliminates the need for someone else to handle your device. We do whatever works- some people (or their families) who don’t have remote capability or don’t like it sometimes bring the device in ahead of time if they are local, regardless of whether it is tele-med or in person. But most we set up a service- Glooko, Tidepool are also ones that work for multiple devices.

      4 years ago Log in to Reply
    24. Stang777

      Even in person the doc has never gone over my data and I see no reason the doc should. I do not use a pump or CGM, so it would be going through my meter or my logs and that is not what my appointments are for. All they have to do is ask me how my levels have been and have I been having any problems, and that is what they do. If I didn’t already have a bunch of reasons for not having a pump and CGM, having to had over that data to anyone, including a doc, would be the reason I would not get those devices. If they can’t just take the info from me, and have to have the “proof” from my device, then I want nothing to do with them. If they can’t trust me, and what I tell them, it would only be because they are not trustworthy as I have done nothing to earn their distrust. They don’t need to see my data unless I am having problems I can’t figure out and are asking them to look at my data to help me figure it out.

      4 years ago Log in to Reply

    When you meet with your provider online via a telehealth visit, how do they review your insulin and blood glucose data? Cancel reply

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