Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
They typically ask me to go in a few days before my virtual visit to do lab work and download my device data – then we can talk about it at my virtual visit!
Besides having them be connected to Clarity, I download my InPen data and email it to them beforehand so we can review that together. They seemed to find that data more helpful in determining that my insulin ratio may be off.
I upload data to my computer, print out reports and send them through the mail. This is the easiest way because of technical incompatibility with their computer system. I can also read the up-to-the-minute data off my sensor & pump over the phone.
My computer tells me I can’t download the data, so I visit the Dr.’s office, give them my pump in the waiting room, and they read it for the next day’s phone visit. Cumbersome, I know.
I hope for your sake that your doctor’s office isn’t too far away. Do you have a person who can come look at your computer and determine what is going on?
Other – I download my data to Tidepool and shared with my endo, for my one telehealth visit. But my previous clinic liked you to download your data before your on person visit as well.
My new clinic does it the “old fashioned” way, they download my pump and pull up my Clarity info.
I upload via T-Connect every month (for my use) and it is automatically forward to the Endo practice. I truly appreciate doing it this way. In the past (with a fortunately former endo) they took my pump, did their thing getting the data at the office. But…this one endo would change all my settings, and not tell me. I am aggressive in my T1D mgt, and when I couldn’t get under 150 bg (I don’t allow myself to go above 140) it occurred to me to check the settings. They were changed! So using T-Connect avoids that scenario. I was livid.
I have it set up that my son’s data is uploaded to Clarity and Glooko automatically. I don’t have to do anything extra before our appointments. The doctors/nurses have all the information available to them and have the screens available to pull up and discuss during our visit whether it is in-person or virtual.
Until this past Monday, I downloaded from tSlim and we go over them together. Monday and everyday since then, on mine and a brother’s computer, it will not download. According to Tandem, it’s my pump, so a replacement is arriving tomorrow.
I answered that I download my data to my devices application (T-connect) and then my endo can look over the data through her computer. However that is what I would do if my appt. was virtual but I don’t believe I have ever had a virtual appt. with her.
This doesn’t apply to me as we meet in person.
For our in person appts I download T:connect two days before my appointments and they have access to my Dexcom.
NA. I have never met with my endocrine provider via telehealth. I see her in person every three months. If I need to contact her in between, we use email or text.
As someone who has a very high percentage of people on devices, I can tell everyone that whether you are seen in office or remotely, it is invaluable to download before a visit, or have a service that does so automatically when working, like Dexcom Clarity, T:connect, Medtronic Carelink, or LibreView. This saves valuable time during any type of visit, and eliminates the need for someone else to handle your device. We do whatever works- some people (or their families) who don’t have remote capability or don’t like it sometimes bring the device in ahead of time if they are local, regardless of whether it is tele-med or in person. But most we set up a service- Glooko, Tidepool are also ones that work for multiple devices.
Even in person the doc has never gone over my data and I see no reason the doc should. I do not use a pump or CGM, so it would be going through my meter or my logs and that is not what my appointments are for. All they have to do is ask me how my levels have been and have I been having any problems, and that is what they do. If I didn’t already have a bunch of reasons for not having a pump and CGM, having to had over that data to anyone, including a doc, would be the reason I would not get those devices. If they can’t just take the info from me, and have to have the “proof” from my device, then I want nothing to do with them. If they can’t trust me, and what I tell them, it would only be because they are not trustworthy as I have done nothing to earn their distrust. They don’t need to see my data unless I am having problems I can’t figure out and are asking them to look at my data to help me figure it out.
They typically ask me to go in a few days before my virtual visit to do lab work and download my device data – then we can talk about it at my virtual visit!
I am not involved with any telehealth meetings as I visit with my endocrinologist quarterly.
Besides having them be connected to Clarity, I download my InPen data and email it to them beforehand so we can review that together. They seemed to find that data more helpful in determining that my insulin ratio may be off.
N/A. I’ve always met in-person with my endocrinologist.
My visits, telehealth or in person, are preceded by lab tests and that is the data we discuss.
I had a virtual visit with my endo only two times, many months ago. I am back to seeing her in her office, and my pump and CGM are downloaded there.
We’ve always met in person.
I upload data to my computer, print out reports and send them through the mail. This is the easiest way because of technical incompatibility with their computer system. I can also read the up-to-the-minute data off my sensor & pump over the phone.
My doctor uses an app called Glooko, it tracks my pump, CGM, diet, exercise and comment, all in one place.
The clinic has access to my pump/CGM data thru t:connect. If any labs are needed I get them done at a clinic several day before my appointment.
My computer tells me I can’t download the data, so I visit the Dr.’s office, give them my pump in the waiting room, and they read it for the next day’s phone visit. Cumbersome, I know.
I hope for your sake that your doctor’s office isn’t too far away. Do you have a person who can come look at your computer and determine what is going on?
Why are you driving to the provider office to download your data and then have a telehealth visit? Seems like a waste of time.
i haver sn a!C drawn ev ery 3 months
Other – I download my data to Tidepool and shared with my endo, for my one telehealth visit. But my previous clinic liked you to download your data before your on person visit as well.
My new clinic does it the “old fashioned” way, they download my pump and pull up my Clarity info.
I upload via T-Connect every month (for my use) and it is automatically forward to the Endo practice. I truly appreciate doing it this way. In the past (with a fortunately former endo) they took my pump, did their thing getting the data at the office. But…this one endo would change all my settings, and not tell me. I am aggressive in my T1D mgt, and when I couldn’t get under 150 bg (I don’t allow myself to go above 140) it occurred to me to check the settings. They were changed! So using T-Connect avoids that scenario. I was livid.
That is terrible. Your doctor should have just suggested a change which you could have discussed with him/her.
I do not do Telegraph nor am I interested in it currently, maybe someday.
I have it set up that my son’s data is uploaded to Clarity and Glooko automatically. I don’t have to do anything extra before our appointments. The doctors/nurses have all the information available to them and have the screens available to pull up and discuss during our visit whether it is in-person or virtual.
I go to the endocrinologist’s office and have them download the data before my appointment. I have a problem when I do it my self.
Until this past Monday, I downloaded from tSlim and we go over them together. Monday and everyday since then, on mine and a brother’s computer, it will not download. According to Tandem, it’s my pump, so a replacement is arriving tomorrow.
I answered that I download my data to my devices application (T-connect) and then my endo can look over the data through her computer. However that is what I would do if my appt. was virtual but I don’t believe I have ever had a virtual appt. with her.
I have never met with my provider online via a telehealth visit. I don’t believe his office offers these, though I wish they would.
This doesn’t apply to me as we meet in person.
For our in person appts I download T:connect two days before my appointments and they have access to my Dexcom.
NA. I have never met with my endocrine provider via telehealth. I see her in person every three months. If I need to contact her in between, we use email or text.
As someone who has a very high percentage of people on devices, I can tell everyone that whether you are seen in office or remotely, it is invaluable to download before a visit, or have a service that does so automatically when working, like Dexcom Clarity, T:connect, Medtronic Carelink, or LibreView. This saves valuable time during any type of visit, and eliminates the need for someone else to handle your device. We do whatever works- some people (or their families) who don’t have remote capability or don’t like it sometimes bring the device in ahead of time if they are local, regardless of whether it is tele-med or in person. But most we set up a service- Glooko, Tidepool are also ones that work for multiple devices.
Even in person the doc has never gone over my data and I see no reason the doc should. I do not use a pump or CGM, so it would be going through my meter or my logs and that is not what my appointments are for. All they have to do is ask me how my levels have been and have I been having any problems, and that is what they do. If I didn’t already have a bunch of reasons for not having a pump and CGM, having to had over that data to anyone, including a doc, would be the reason I would not get those devices. If they can’t just take the info from me, and have to have the “proof” from my device, then I want nothing to do with them. If they can’t trust me, and what I tell them, it would only be because they are not trustworthy as I have done nothing to earn their distrust. They don’t need to see my data unless I am having problems I can’t figure out and are asking them to look at my data to help me figure it out.