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    • 53 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 53 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 9 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 10 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 30 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 39 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 39 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 36 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 52 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    When you are traveling long distance (4+ straight hours with little movement), do you make any changes to your typical insulin dosage? Select all that apply to you.

    Home > LC Polls > When you are traveling long distance (4+ straight hours with little movement), do you make any changes to your typical insulin dosage? Select all that apply to you.
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    37 Comments

    1. RegMunro

      I watch bg more carefully and adjust insulin as needed

      4
      8 months ago Log in to Reply
    2. Molly Jones

      I am a lethargic person. I only need to make changes to my insulin with activity.

      1
      8 months ago Log in to Reply
    3. Louise Robinson

      I use a Tandem t:slim X2 with Control IQ. I trust it to make any adjustments I might need and, if I notice I am trending too high, I also initiate any extra corrective boluses I feel I need.

      2
      8 months ago Log in to Reply
    4. Lawrence S.

      I chose “other”, because I haven’t taken a long trip since 2019. I remember that I used to make adjustments for long trips. I believe that I took extra bolus, and watched my pump almost continuously during the trip, making adjustments in eating food or taking more insulin as I went. (was that a run on sentence?:-) For me long, sedentary trips require more insulin. But, the very last thing I want while I’m driving is low blood sugar. So, I go out of my way to keep checking my pump.

      8 months ago Log in to Reply
      1. mbulzomi@optonline.net

        I always have my Start Phone on, selected to Tandem or Dex Icon. I put the phone into my Weather Tech coffee cup holder. All you (Or your partner) have to do is just look down (The Diabetes information (And Alerts) are always being displayed and the phone is charging). Never put the phone in your line of sight, you could be stopped.

        1
        8 months ago Log in to Reply
    5. Mary Dexter

      I correct any highs

      8 months ago Log in to Reply
    6. Carol Meares

      I watch my Dexcom and make appropriate corrections.

      4
      8 months ago Log in to Reply
    7. Cyndi Evans

      My answer was other since I keep an eye on my cgm and make insulin decisions from that. I’ve learned no two travel days does my blood sugar act the same so staying flexible and aware works best for me.

      9
      8 months ago Log in to Reply
    8. Dennis Dacey

      I adjust as needed to maintain a level body glucose level [BGL] in a range where I’m comfortable. I do what I do every day of the year; reduce insulin flow when trending low and increase when trending above my desired level.

      8 months ago Log in to Reply
    9. GLORIA MILLER

      I use an Omnipod and take little insulin (from 6 to 12 units per 24 hours). I have to remove the pod as the plane departs due to the change in air pressure causing a little insulin to be pushed out even when turned off. Once I reach 35,000 feet I put another pod on continue as normal. Prior to starting this routine I would be in the lower 30s for the entire flight no matter how much glucose I took. (65 years T1)

      2
      8 months ago Log in to Reply
      1. Sherrie Johnson

        Good to know. Thanks

        8 months ago Log in to Reply
    10. mbulzomi@optonline.net

      Of course, my Insulin will change when I cross time zones. My Tandem X2 Pump with Control IQ changes it for me. However, I’m always the Boss.

      1
      8 months ago Log in to Reply
    11. M C

      In recent years, if I am traveling for more than 4 hours – it is generally on a flight…. and I have found that I get more insulin than I should, causing severe lows, if I don’t lower my bolus amounts. I believe it is the pressure within the plane causing more insulin to be released than expected. With this reduction in bolus amounts I seem not to have as many issues.
      (If I was driving – I would keep everything the same.)

      1
      8 months ago Log in to Reply
    12. Tod Herman

      I selected ‘other’ because if I am driving anywhere for a long period of time the most important thing I do is keep an eye on my CGM. If necessary, I will then make adjustments (if necessary) according to the planned meals or driving schedule. This is especially true if I am on a long motorcycle trip (which then requires more physical participation than does driving a car/truck).

      1
      8 months ago Log in to Reply
    13. Thomas Brady

      I change the time on my pump to that of my destination and then do boluses with meals normally as I eat.

      2
      8 months ago Log in to Reply
    14. Sherrie Johnson

      I make adjustments if necessary in most cases not.

      8 months ago Log in to Reply
    15. sdimond

      When I make the 7 hour drive from Austin to Tulsa I eat a large very low carb meal and dose with R insulin to cover the protein.

      8 months ago Log in to Reply
    16. Anneyun

      I really like that with the Dexcom CGM, while driving I can ask Siri what my blood sugar is, or can use the CarPlay feature in my car to do the same, all hands free.

      2
      8 months ago Log in to Reply
      1. Lawrence S.

        The wonders of being IT savvy!

        8 months ago Log in to Reply
    17. Natalie Daley

      If I’m sitting an unusual length of time for travel, I’m either flying, which was a lot of work with iffy food, or I’m driving, which means cleaning and packing, plus a lot of work, so I monitor more frequently when those circumstances apply and adjust accordingly.

      8 months ago Log in to Reply
    18. PamK

      I do adjust the time on my pump, but I don’t make any other changes.

      8 months ago Log in to Reply
    19. Daniel Bestvater

      If I’m on a long driving trip or airplane flight I increase my basal by 25-50% about one hour before departure. I also increase my carb bolus by 25-50% depending on how much I am able to move around. It seems if I don’t move my insulin doesn’t get absorbed properly!! (T1D 45yrs)

      2
      8 months ago Log in to Reply
    20. kristina blake

      Like many, I keep an eye on my CGM, and make adjustments as needed to basal rates as well as make corrections. I am not much of an eater (I wish there was a pill I could take to get my nutritional needs met – I’d skip food altogether!)., so while traveling I don’t eat. I do disconnect my pump (at the site) during takeoff and landing. I have had a surprise bolus – perhaps due to change in cabin pressure – and don’t want to go through that again (especially in an airport that is new to me).

      8 months ago Log in to Reply
    21. Steven Gill

      Me “day setting” he set for a more active day, when riding more than an hour away I have to do mini bonuses on my pump (according to the CGM). And likewise if the scheduled job is more physically demanding about 20 minutes before arriving I cut back the back at least 50% (at the job I’ve frequently completely suspended it to prevent hypo~ reactions).

      Since more closely monitoring I’ve not traveled more than an hour or 90 minutes. I’m more consistently under “120” this way.

      8 months ago Log in to Reply
    22. Patricia Maddix

      Different kinds of travel seem to affect me differently. A car trip on roads that curve a lot cause a passenger to move about quite a bit and tend to cause my blood sugars to go lower. A car trip on a straight freeway does not have this effect. With my old Medtronic pump when I would fly I would usually increase my basal rate by 20 to 25% but sometimes this was not needed if a lot of walking was done in the airport prior to boarding. Now that I have control IQ it seems to do a pretty good job of adjusting up or down so just keep my eye on things and make corrections as needed.

      1
      8 months ago Log in to Reply
    23. Ernie Richmann

      I almost always consume less carbs when traveling for more than a few hours.

      8 months ago Log in to Reply
    24. Amanda Barras

      I don’t make changes except for check for the need for correction boluses more frequently.

      1
      8 months ago Log in to Reply
    25. Joan Fray

      Really depends on mode of travel, amount of food consumed, stress level, time od day or night. Too many variables to generalize.

      1
      8 months ago Log in to Reply
    26. Mick Martin

      Not Applicable as I don’t ever travel for more than 4+ hours with little movement.

      8 months ago Log in to Reply
    27. Donald Cragun

      I watch my CGM and adjust as needed.

      8 months ago Log in to Reply
    28. TEH

      No I don’t. I let closed loop control handle it.

      1
      8 months ago Log in to Reply
    29. AnitaS

      I increase my basal some and increase my boluses. Since I wear a cgm, I also keep track of my sugar level and make adjustments as necessary.

      8 months ago Log in to Reply
    30. John McHenery

      I check and do correction boluses as required.

      8 months ago Log in to Reply
    31. Jneticdiabetic

      I do not travel long distance frequently enough to pick up on any reliable trends, so I watch my CGM and correct rather than predict.

      1
      8 months ago Log in to Reply
    32. Amy Jo

      I said that I don’t make any changes, but if I didn’t have control IQ I probably would increase my basal.

      1
      8 months ago Log in to Reply
    33. Wanacure

      I don’t think I’ve ever flown more than 4 hours. I like trains because I can get up, move around. Sitting more than a couple hours is hazardous! No matter how I travel, I always carry food with me. Flights can be delayed, airports snowed in, etc. Airport vending machines and restaurants can run out of food due to landslides, floods, earthquakes…and now add ā€œsupply chain issuesā€ thanks to globalized ā€œfreeā€ trade. Proud to have participated in Seattle anti WTO demonstrations advocating for ā€œfair tradeā€ w/ labor unions, religious communities, & environmental groups like GreenPeace.

      8 months ago Log in to Reply
    34. Moe Giguere

      Take my normal lantus dose am & pm and simply monitor my Dexcom readings after supplementing with Humalog depending on what I’m. eating.

      7 months ago Log in to Reply

    When you are traveling long distance (4+ straight hours with little movement), do you make any changes to your typical insulin dosage? Select all that apply to you. Cancel reply

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