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    • 1 hour, 32 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 2 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 2 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 2 hours, 59 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 5 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 5 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 5 hours, 13 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 5 hours, 55 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 18 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 9 hours, 16 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 8 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
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    Do you find that staying on top of your T1D routine becomes more difficult when there are fewer hours of daylight? Select all of the statements that apply to you.

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Russell Buckbee

      I can’t know because the glycoslated hemoglobin A1c was not developed yet. N=My BS was high and I had other symptoms, so they put me on insulin.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      When you are diagnosed at the time of the Roman legions, the Visigoths, and the Huns, it’s a bit dicey not having A1c’s invented yet, much less carb to insulin correlations.

      The world has spun a few times and progressed a tad since then.

      8
      2 years ago Log in to Reply
      1. Donna Williams

        Thank you for making me laugh with your comments!!

        2 years ago Log in to Reply
      2. ConnieT1D62

        It’s amazing that some of us T1D dinosaurs have survived for so many years since the ancient days before A1Cs, BG meters, insulin pumps, CGMs, or even disposable injection devices were even thought of. Congratulations to us all for beating the odds! The best is yet to come!!!

        1
        2 years ago Log in to Reply
    3. Lozzy E

      Misdiagnosed as type 2 for 2 years, so by the time they realised I was type 1 my a1c was well under control. Was between 7 and 8 when misdiagnosed though

      1
      2 years ago Log in to Reply
    4. Katherine Kiger

      They didn’t do an A1C, just a simple glucose test (which had to be done in a lab, because this was 1980). The result was over 650. (The nurse dropped the clipboard when they handed her the result.)

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      LADA diagnosed early as type 2. Took two years for correct diagnosis. A1c never above 7. When properly diagnosed A1c always below 6

      2 years ago Log in to Reply
    6. Conniekaycox

      I was in the icu with dka for 4 days. When released from hospital with pump blood sugar still at 500.

      2 years ago Log in to Reply
    7. Richard Vaughn

      I was diagnosed in 1945. My first A1C was 11 in 1980.

      2 years ago Log in to Reply
    8. Patrick Burner

      Forty years ago today I was diagnosed at UVa with a blood sugar of 1173.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Happy Diaversary to you, Patrick!

        2 years ago Log in to Reply
    9. Jennifer Bounds

      My bg was 383 at the clinic before going to the hospital. My first A1c after being diagnosed was 7.3% and I remember my doctor telling me I was doing well.

      2 years ago Log in to Reply
    10. Marthaeg

      16.1 A1C with bg over 500 Oct. ‘20
      Dr asked me how I was feeling. I said ok. Never had the excessive thirst or urination symptoms. She said she would have sent me to the hospital if I had answered anything else. Got sent home with insulin. 😊 Amazing stuff!

      1
      2 years ago Log in to Reply
    11. fletchina

      A1C was not used when I was diagnosed in 1976

      1
      2 years ago Log in to Reply
    12. Amanda Barras

      I was barely 4, I don’t know.

      2 years ago Log in to Reply
    13. Dennis Dacey

      In 1974, almost two decades after my diagnosis, I participated in the study of glycosylated hemoglobin which has become known as HgA1c and currently HbA1c.
      So, at my diagnosis A1c reading was not available.

      2 years ago Log in to Reply
    14. Brenda Lipscomb

      Jan ’68 A1c was not known about. But I do know that my bg was 1040. I was 11 months old.
      I was 16 when I got my first A1c and it was in the “6” range. My Endo said that was excellent, considering it was my first.

      1
      2 years ago Log in to Reply
    15. Kate Kuhn

      A1c was not invented available in 1964, but I was in full fledged acidosis, near coma.

      1
      2 years ago Log in to Reply
    16. Joan Johnson

      It was 1972, and I was not given that information. I wish now that I had it.

      2 years ago Log in to Reply
    17. Pauline M Reynolds

      I don’t remember, but my glucose was 229.

      2 years ago Log in to Reply
    18. Mark Schweim

      They never checked my A1c until a month or two after my T1D diagnosis, but the first time my A1c was tested, it was 3.1, which the doctor said was almost too low even for a non-diabetic.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      In 1955, when I was dx. the A1c lab was still a dream. I didn’t receive an A1c result until the early 1980’s.

      2 years ago Log in to Reply
    20. Bob Durstenfeld

      I was diagnosed in 1956.
      Management of T1D was crude at best. Pork insulin with 20 guage needle
      S, glass syringes and boiling Benedictine solution to check urine for sugar.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I remember my mom having to boil the needle tip and syringe every morning and before each use to sterilize it. Then I got a plastic travel kit that had stainless steel tubes that kept the various parts sterile in isopropyl alcohol.

        1
        2 years ago Log in to Reply
    21. ConnieT1D62

      On December 26 1962 is the day I was officially diagnosed with “Juvenile Diabetes” when i was 8 years old. The A1C measurement wasn’t available but it was probably off the charts. Happy Diavesary to me!

      1
      2 years ago Log in to Reply
    22. Steven Gill

      I’m guessing…my single test I know was a week previous at 399. Started on shots because of ketones, otherwise was naive

      2 years ago Log in to Reply
    23. Joan Benedetto

      My son’s was 10.4. He was diagnosed at 18 months

      2 years ago Log in to Reply
    24. Jennifer Farley

      It was 42 years ago. I have no memory of anything except the instructions given by my family doctor- go home, pack a bag, you will be in the hospital for sometime, WHATEVER YOU DO, EAT NOTHING, that is most important.- I was so confused. I was 13 and weighed about 70 pounds. Skin and bone. So if an A1C was done no one told me.

      2 years ago Log in to Reply
    25. Misi Ballard

      I don’t know my A1c at time of diagnosis (5/04/2014), but my Bg at the time was 585.

      2 years ago Log in to Reply
    26. Jeff Balbirnie

      To my knowledge the test had not been invented/in common usage, quite yet. Soon after, but not then

      2 years ago Log in to Reply
    27. Anita Stokar

      Oops, I put I don’t know, but I believe the test wasn’t available when I was diagnosed.

      2 years ago Log in to Reply

    What was your A1c at the time of your T1D diagnosis? Cancel reply

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