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    • 2 hours, 55 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 2 hours, 56 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 4 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 12 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 14 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 15 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 4 hours, 15 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 17 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 54 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 55 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 7 hours, 38 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 23 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 24 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 24 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 39 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 9 hours, 40 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 9 hours, 41 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
    Previous

    Do you find that staying on top of your T1D routine becomes more difficult when there are fewer hours of daylight? Select all of the statements that apply to you.

    Next

    Have you participated in a diabetes-related clinical trial this year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Russell Buckbee

      I can’t know because the glycoslated hemoglobin A1c was not developed yet. N=My BS was high and I had other symptoms, so they put me on insulin.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      When you are diagnosed at the time of the Roman legions, the Visigoths, and the Huns, it’s a bit dicey not having A1c’s invented yet, much less carb to insulin correlations.

      The world has spun a few times and progressed a tad since then.

      8
      2 years ago Log in to Reply
      1. Donna Williams

        Thank you for making me laugh with your comments!!

        2 years ago Log in to Reply
      2. ConnieT1D62

        It’s amazing that some of us T1D dinosaurs have survived for so many years since the ancient days before A1Cs, BG meters, insulin pumps, CGMs, or even disposable injection devices were even thought of. Congratulations to us all for beating the odds! The best is yet to come!!!

        1
        2 years ago Log in to Reply
    3. Lozzy E

      Misdiagnosed as type 2 for 2 years, so by the time they realised I was type 1 my a1c was well under control. Was between 7 and 8 when misdiagnosed though

      1
      2 years ago Log in to Reply
    4. Katherine Kiger

      They didn’t do an A1C, just a simple glucose test (which had to be done in a lab, because this was 1980). The result was over 650. (The nurse dropped the clipboard when they handed her the result.)

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      LADA diagnosed early as type 2. Took two years for correct diagnosis. A1c never above 7. When properly diagnosed A1c always below 6

      2 years ago Log in to Reply
    6. Conniekaycox

      I was in the icu with dka for 4 days. When released from hospital with pump blood sugar still at 500.

      2 years ago Log in to Reply
    7. Richard Vaughn

      I was diagnosed in 1945. My first A1C was 11 in 1980.

      2 years ago Log in to Reply
    8. Patrick Burner

      Forty years ago today I was diagnosed at UVa with a blood sugar of 1173.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Happy Diaversary to you, Patrick!

        2 years ago Log in to Reply
    9. Jennifer Bounds

      My bg was 383 at the clinic before going to the hospital. My first A1c after being diagnosed was 7.3% and I remember my doctor telling me I was doing well.

      2 years ago Log in to Reply
    10. Marthaeg

      16.1 A1C with bg over 500 Oct. ‘20
      Dr asked me how I was feeling. I said ok. Never had the excessive thirst or urination symptoms. She said she would have sent me to the hospital if I had answered anything else. Got sent home with insulin. 😊 Amazing stuff!

      1
      2 years ago Log in to Reply
    11. fletchina

      A1C was not used when I was diagnosed in 1976

      1
      2 years ago Log in to Reply
    12. Amanda Barras

      I was barely 4, I don’t know.

      2 years ago Log in to Reply
    13. Dennis Dacey

      In 1974, almost two decades after my diagnosis, I participated in the study of glycosylated hemoglobin which has become known as HgA1c and currently HbA1c.
      So, at my diagnosis A1c reading was not available.

      2 years ago Log in to Reply
    14. Brenda Lipscomb

      Jan ’68 A1c was not known about. But I do know that my bg was 1040. I was 11 months old.
      I was 16 when I got my first A1c and it was in the “6” range. My Endo said that was excellent, considering it was my first.

      1
      2 years ago Log in to Reply
    15. Kate Kuhn

      A1c was not invented available in 1964, but I was in full fledged acidosis, near coma.

      1
      2 years ago Log in to Reply
    16. Joan Johnson

      It was 1972, and I was not given that information. I wish now that I had it.

      2 years ago Log in to Reply
    17. Pauline M Reynolds

      I don’t remember, but my glucose was 229.

      2 years ago Log in to Reply
    18. Mark Schweim

      They never checked my A1c until a month or two after my T1D diagnosis, but the first time my A1c was tested, it was 3.1, which the doctor said was almost too low even for a non-diabetic.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      In 1955, when I was dx. the A1c lab was still a dream. I didn’t receive an A1c result until the early 1980’s.

      2 years ago Log in to Reply
    20. Bob Durstenfeld

      I was diagnosed in 1956.
      Management of T1D was crude at best. Pork insulin with 20 guage needle
      S, glass syringes and boiling Benedictine solution to check urine for sugar.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I remember my mom having to boil the needle tip and syringe every morning and before each use to sterilize it. Then I got a plastic travel kit that had stainless steel tubes that kept the various parts sterile in isopropyl alcohol.

        1
        2 years ago Log in to Reply
    21. ConnieT1D62

      On December 26 1962 is the day I was officially diagnosed with “Juvenile Diabetes” when i was 8 years old. The A1C measurement wasn’t available but it was probably off the charts. Happy Diavesary to me!

      1
      2 years ago Log in to Reply
    22. Steven Gill

      I’m guessing…my single test I know was a week previous at 399. Started on shots because of ketones, otherwise was naive

      2 years ago Log in to Reply
    23. Joan Benedetto

      My son’s was 10.4. He was diagnosed at 18 months

      2 years ago Log in to Reply
    24. Jennifer Farley

      It was 42 years ago. I have no memory of anything except the instructions given by my family doctor- go home, pack a bag, you will be in the hospital for sometime, WHATEVER YOU DO, EAT NOTHING, that is most important.- I was so confused. I was 13 and weighed about 70 pounds. Skin and bone. So if an A1C was done no one told me.

      2 years ago Log in to Reply
    25. Misi Ballard

      I don’t know my A1c at time of diagnosis (5/04/2014), but my Bg at the time was 585.

      2 years ago Log in to Reply
    26. Jeff Balbirnie

      To my knowledge the test had not been invented/in common usage, quite yet. Soon after, but not then

      2 years ago Log in to Reply
    27. Anita Stokar

      Oops, I put I don’t know, but I believe the test wasn’t available when I was diagnosed.

      2 years ago Log in to Reply

    What was your A1c at the time of your T1D diagnosis? Cancel reply

    You must be logged in to post a comment.




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