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    • 3 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 3 hours, 20 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 4 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 4 hours, 36 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 4 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 4 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 4 hours, 39 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 4 hours, 40 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 41 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 19 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 7 hours, 20 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 2 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 25 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 8 hours, 48 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 8 hours, 49 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 8 hours, 49 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 9 hours, 4 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 10 hours, 5 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Have you participated in a diabetes-related clinical trial this year?

    Home > LC Polls > Have you participated in a diabetes-related clinical trial this year?
    Previous

    What was your A1c at the time of your T1D diagnosis?

    Next

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    37 Comments

    1. Melinda Lipe

      I tried, but did not qualify for one.

      2 years ago Log in to Reply
    2. Brian Vodehnal

      Remotely thru the University of Michigan. Hypoglycemia and tips to help prevent them. Sharing CGM results thru clarity.

      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      This year

      2 years ago Log in to Reply
    4. Eve Rabbiner

      Age 77. Considered too old for all the trials I’ve seen.

      2 years ago Log in to Reply
    5. Gary Rind

      tried to qualify for the Vertex trial that didn’t require immunosuppressant drugs but my A1C was too low

      2 years ago Log in to Reply
      1. Clare Fishman

        Mine was too low as well. And they wanted lots of hypos which required medical intervention. I haven’t had that happen in 7 years.

        2 years ago Log in to Reply
      2. Gary Rind

        knock wood, never have had a hypo that required medical intervention.

        other trials for Vertex required having hypos that needed outside intervention but this one didn’t.

        2 years ago Log in to Reply
      3. Nevin Bowman

        Same here. They only want to help those unwilling to help themselves 😳

        2 years ago Log in to Reply
      4. Anne Blayney

        Same here! But I had a lovely chat with one of the nurses who does the screening. Even that was an interesting process. (Here in Canada, there are fewer trials available so this was my first opportunity.)

        2 years ago Log in to Reply
      5. lis be

        same here. I didn’t qualify because my A1c was reasonable.

        2 years ago Log in to Reply
    6. Patrick Burner

      University of Michigan and Boston Hospital. Shared CGM values, took lengthy surveys, gave permission for A1c tests, etc

      2 years ago Log in to Reply
    7. JOAN ULMER

      How do you participate in diabetes related clinical trails?

      2 years ago Log in to Reply
      1. Gary Rind

        try the all of us research program

        2 years ago Log in to Reply
    8. rick phillips

      I want too.

      2 years ago Log in to Reply
    9. Ahh Life

      Michigan studies. And Eli Lily dementia study. However, in the Lily study you had to remember at least 2 of the 10 things they mentioned at the start of a conversation. I could only remember 1.

      Now, what was I talking about? 😴🤔

      3
      2 years ago Log in to Reply
    10. Clare Fishman

      I participated in 2 clinical trials this year. One was at Mass General called T1D Beacon was a study of bone health in people with T1D over age 50. It involves 2 visits over 2 years with blood draw, ct scan, and surveys. The aim is to develop preventive measures and treatment to improve bone health in people with T1D who have a 2 to 7 fold increased risk for broken bones. The second study was the Joslin Heart & Kidney study to further understand connections between changes in cardiovascular system and early kidney disease in people with T1D. This one involved ct scan and mri of heart and kidney, blood tests, urine tests and ekg.

      1
      2 years ago Log in to Reply
    11. cynthia jaworski

      Too old for most, but I did share cgm results with U of Michigan.

      1
      2 years ago Log in to Reply
      1. Gary Rind

        did Michigan as well

        2 years ago Log in to Reply
    12. Janis Senungetuk

      I’ve applied to several but wasn’t selected. Guess at 77, I’m now too old.

      2
      2 years ago Log in to Reply
      1. George Lovelace

        I know and I’m only 3 years short of you {never mind my height 🙂 } 60 yrs T1, I’m a Survivor

        2 years ago Log in to Reply
    13. Paul McGuigan

      39 years in DCCT/EDIC

      2 years ago Log in to Reply
    14. Lindsey Whitnell

      We just did TrialNet for our youngest. Waiting for results!

      2 years ago Log in to Reply
    15. James Cheairs

      I have not this year but have participated in several over the years. Unfortunately, there are few trials for seniors with T1D. Most have an age cut off of 65. Otherwise, I would participate in more.

      2
      2 years ago Log in to Reply
    16. Janice B

      Not a clinical trial as such, but have participated in numerous surveys and questionnaires from multiple university studies

      1
      2 years ago Log in to Reply
    17. Edward Geary

      PERL fenofibrate study conducted by Joslin Diabetes Center and others. Study hopes to determine if fenofibrates slow progression of kidney disease in Type 1 diabetics.

      2 years ago Log in to Reply
    18. Nevin Bowman

      No because my A1c was too low 😡

      1
      2 years ago Log in to Reply
    19. PamK

      Other – I tried, but did not get through the qualification round for any of them (3 total tries).

      2 years ago Log in to Reply
    20. Dave Akers

      Would love to participate but I don’t usually qualify for 1 of 2 reasons.
      1) I’m on AFREZZA.
      2) my A1c is too good.

      2 years ago Log in to Reply
    21. Russell Buckbee

      I am in EDICT the longterm epidimological follow up to DCCT.

      2 years ago Log in to Reply
    22. Karen Newe

      CGM with 15 day life.

      2 years ago Log in to Reply
    23. Janelle Stallkamp

      EDIC study for years, which studies how the large organs are affected by diabetes.

      2 years ago Log in to Reply
    24. Molly Jones

      I have only participated in the multiple surveys for diabetes this year but keep me eye on clinicaltirals.gov and my doctors are aware of my desire for this body to be useful for science and inform me when they know of a good trial.

      1
      2 years ago Log in to Reply
    25. qachemist

      I’ve applied but I’m always too old (68) and I was diagnosed with LADA so no one wants to deal with that quirk. I would think that diagnosis of LADA at age 65 (with normal BG up to that time) would interest someone.

      2 years ago Log in to Reply
    26. Jennifer Farley

      I have filled out many questionnaires but not sure I am meeting requirements. Would like to contribute anyway I can.

      2 years ago Log in to Reply
    27. Thomas Emge

      It was for a Dexcom sensor and a meter trial.

      2 years ago Log in to Reply
    28. Jeff Balbirnie

      Nope, but keep looking forward to qualifying

      2 years ago Log in to Reply
    29. Anita Stokar

      I haven’t, but my doctor said she would let me know when a glucagon pump clinical trial is started in my area.

      2 years ago Log in to Reply

    Have you participated in a diabetes-related clinical trial this year? Cancel reply

    You must be logged in to post a comment.




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