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    • 3 hours, 57 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 32 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 5 hours, 33 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 5 hours, 34 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 5 hours, 34 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 8 hours, 17 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 8 hours, 18 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 7 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 11 hours, 56 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 3 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 3 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 23 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 23 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 36 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 12 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 12 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    Have you participated in a diabetes-related clinical trial this year?

    Home > LC Polls > Have you participated in a diabetes-related clinical trial this year?
    Previous

    What was your A1c at the time of your T1D diagnosis?

    Next

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    37 Comments

    1. Melinda Lipe

      I tried, but did not qualify for one.

      1 year ago Log in to Reply
    2. Brian Vodehnal

      Remotely thru the University of Michigan. Hypoglycemia and tips to help prevent them. Sharing CGM results thru clarity.

      1 year ago Log in to Reply
    3. KIMBERELY SMITH

      This year

      1 year ago Log in to Reply
    4. Eve Rabbiner

      Age 77. Considered too old for all the trials I’ve seen.

      1 year ago Log in to Reply
    5. Gary Rind

      tried to qualify for the Vertex trial that didn’t require immunosuppressant drugs but my A1C was too low

      1 year ago Log in to Reply
      1. Clare Fishman

        Mine was too low as well. And they wanted lots of hypos which required medical intervention. I haven’t had that happen in 7 years.

        1 year ago Log in to Reply
      2. Gary Rind

        knock wood, never have had a hypo that required medical intervention.

        other trials for Vertex required having hypos that needed outside intervention but this one didn’t.

        1 year ago Log in to Reply
      3. Nevin Bowman

        Same here. They only want to help those unwilling to help themselves 😳

        1 year ago Log in to Reply
      4. Anne Blayney

        Same here! But I had a lovely chat with one of the nurses who does the screening. Even that was an interesting process. (Here in Canada, there are fewer trials available so this was my first opportunity.)

        1 year ago Log in to Reply
      5. lis be

        same here. I didn’t qualify because my A1c was reasonable.

        1 year ago Log in to Reply
    6. Patrick Burner

      University of Michigan and Boston Hospital. Shared CGM values, took lengthy surveys, gave permission for A1c tests, etc

      1 year ago Log in to Reply
    7. JOAN ULMER

      How do you participate in diabetes related clinical trails?

      1 year ago Log in to Reply
      1. Gary Rind

        try the all of us research program

        1 year ago Log in to Reply
    8. rick phillips

      I want too.

      1 year ago Log in to Reply
    9. Ahh Life

      Michigan studies. And Eli Lily dementia study. However, in the Lily study you had to remember at least 2 of the 10 things they mentioned at the start of a conversation. I could only remember 1.

      Now, what was I talking about? 😴🤔

      3
      1 year ago Log in to Reply
    10. Clare Fishman

      I participated in 2 clinical trials this year. One was at Mass General called T1D Beacon was a study of bone health in people with T1D over age 50. It involves 2 visits over 2 years with blood draw, ct scan, and surveys. The aim is to develop preventive measures and treatment to improve bone health in people with T1D who have a 2 to 7 fold increased risk for broken bones. The second study was the Joslin Heart & Kidney study to further understand connections between changes in cardiovascular system and early kidney disease in people with T1D. This one involved ct scan and mri of heart and kidney, blood tests, urine tests and ekg.

      1
      1 year ago Log in to Reply
    11. cynthia jaworski

      Too old for most, but I did share cgm results with U of Michigan.

      1
      1 year ago Log in to Reply
      1. Gary Rind

        did Michigan as well

        1 year ago Log in to Reply
    12. Janis Senungetuk

      I’ve applied to several but wasn’t selected. Guess at 77, I’m now too old.

      2
      1 year ago Log in to Reply
      1. George Lovelace

        I know and I’m only 3 years short of you {never mind my height 🙂 } 60 yrs T1, I’m a Survivor

        1 year ago Log in to Reply
    13. Paul McGuigan

      39 years in DCCT/EDIC

      1 year ago Log in to Reply
    14. Lindsey Whitnell

      We just did TrialNet for our youngest. Waiting for results!

      1 year ago Log in to Reply
    15. James Cheairs

      I have not this year but have participated in several over the years. Unfortunately, there are few trials for seniors with T1D. Most have an age cut off of 65. Otherwise, I would participate in more.

      2
      1 year ago Log in to Reply
    16. Janice B

      Not a clinical trial as such, but have participated in numerous surveys and questionnaires from multiple university studies

      1
      1 year ago Log in to Reply
    17. Edward Geary

      PERL fenofibrate study conducted by Joslin Diabetes Center and others. Study hopes to determine if fenofibrates slow progression of kidney disease in Type 1 diabetics.

      1 year ago Log in to Reply
    18. Nevin Bowman

      No because my A1c was too low 😡

      1
      1 year ago Log in to Reply
    19. PamK

      Other – I tried, but did not get through the qualification round for any of them (3 total tries).

      1 year ago Log in to Reply
    20. Dave Akers

      Would love to participate but I don’t usually qualify for 1 of 2 reasons.
      1) I’m on AFREZZA.
      2) my A1c is too good.

      1 year ago Log in to Reply
    21. Russell Buckbee

      I am in EDICT the longterm epidimological follow up to DCCT.

      1 year ago Log in to Reply
    22. Karen Newe

      CGM with 15 day life.

      1 year ago Log in to Reply
    23. Janelle Stallkamp

      EDIC study for years, which studies how the large organs are affected by diabetes.

      1 year ago Log in to Reply
    24. Molly Jones

      I have only participated in the multiple surveys for diabetes this year but keep me eye on clinicaltirals.gov and my doctors are aware of my desire for this body to be useful for science and inform me when they know of a good trial.

      1
      1 year ago Log in to Reply
    25. qachemist

      I’ve applied but I’m always too old (68) and I was diagnosed with LADA so no one wants to deal with that quirk. I would think that diagnosis of LADA at age 65 (with normal BG up to that time) would interest someone.

      1 year ago Log in to Reply
    26. Jennifer Farley

      I have filled out many questionnaires but not sure I am meeting requirements. Would like to contribute anyway I can.

      1 year ago Log in to Reply
    27. Thomas Emge

      It was for a Dexcom sensor and a meter trial.

      1 year ago Log in to Reply
    28. Jeff Balbirnie

      Nope, but keep looking forward to qualifying

      1 year ago Log in to Reply
    29. Anita Stokar

      I haven’t, but my doctor said she would let me know when a glucagon pump clinical trial is started in my area.

      1 year ago Log in to Reply

    Have you participated in a diabetes-related clinical trial this year? Cancel reply

    You must be logged in to post a comment.




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