Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 19 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 3 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 26 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 23 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 46 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 48 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 49 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 49 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 58 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 50 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 51 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 53 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    What is the symptom you most often notice first when you’re starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Home > LC Polls > What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)
    Previous

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Next

    When you are beginning to experience hypoglycemia, do you consistently have a particular symptom or set of symptoms that signal the start of a low to you? (This is part 1 of a 3-day understanding hypoglycemia series – check back tomorrow and Monday for days 2 and 3!)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 3 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 5 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    33 Comments

    1. Becky Hertz

      I have some hypoglycemic unawareness so don’t always have any symptoms and if I do it’s more of a “hmmm…I feel weird” but nothing specific

      2
      4 years ago Log in to Reply
    2. Janice B

      I experience more than one symptom at a time.

      4 years ago Log in to Reply
    3. Leon Ullrich

      I have had “diabetes unawareness” for many years in my 75 years with Type One.

      2
      4 years ago Log in to Reply
      1. Joan Fray

        Amazing! 75 years! Do you know anyone who’s had it longer than you? My puny 60 years is nothing in comparison! congratulations and stay well .

        1
        4 years ago Log in to Reply
    4. Leon Ullrich

      My wife is the best monitor that I have.

      1
      4 years ago Log in to Reply
    5. Mick Martin

      Further to the response I offered yesterday, the first symptom that I USUALLY experience is when I’m ‘coming round’ after being given a Glucagen injection. I can usually feel where I’ve been injected.

      4 years ago Log in to Reply
    6. james zellerhoff

      Feeling the “low”
      Hard to explain

      4
      4 years ago Log in to Reply
    7. Chrisanda

      By the time I feel the clamminess, I’m pretty low-low 50s. Until then I don’t have any symptoms. I had good symptoms (shakiness, irritability) for the first 15 years, now, Nada. My pump /CGM alarm is my first alert.

      4 years ago Log in to Reply
    8. RegMunro

      I’m very slow to notice hypos and before CGM would quite often almost pass out, eg watching TV. My wife would get me going. I’ve been T1D since 1965 so am insensitive to symptoms

      4 years ago Log in to Reply
    9. Kevin McCue

      I put confusion but it’s more of an uneasiness like somethings wrong but I’m not able to put my finger on it. Usually it happens 10 minutes before my Dexcom reflects it. Finger stick is usually close to CGM so it doesn’t show there either. If I don’t pay attention to the uneasy then it transitions into inability to maintain focus.

      4
      4 years ago Log in to Reply
    10. Lawrence S.

      Sometimes it’s fatigue and weakness, Sometimes lightheadedness. Occasionally, when it’s a fast drop in BG, I get no warning. But, most of the time, I catch it by recognizing the symptoms. On a similar note, I went for a very long period, maybe 20-30 years without early symptoms. Then for no apparent reason, several years ago, I started getting warning as noted above. I think that for many years I was so busy at work and home, that I did not focus on my warning signs. Now that I am retired, I seem to pick up the warning signs, most of the time.

      4 years ago Log in to Reply
    11. ConnieT1D62

      Other symptom not listed above. As I noted in yesterday’s QoD answer I get a “sinking feeling” that is hard to precisely describe. I supposed it can include bits & pieces of many of the signs and symptoms listed above. However, the first symptom I tend to notice is a sinking sensation – as if my inner awareness is descending down an elevator shaft. I have hypoglycemia unawareness so the BG may be at 72 or 64 or 50 before I actually manifest any of the more overt physical symptoms.

      I am forever grateful and thank goodness for Dexcom!!! It has been a saving grace for several years!

      8
      4 years ago Log in to Reply
      1. Ahh Life

        I hate to over-exaggerate what you so carefully say, but I too experience the walls caving in. Sort of like that old Edgar Alan Poe movie where the walls move in. Only, as the walls get closer, they’re more like the marshmallow man softly enveloping me as I sink in. ( ͡> ⍨ ͡<)

        4 years ago Log in to Reply
      2. Tracy Jean

        I get this feeling too. Thanks for explaining it.

        4 years ago Log in to Reply
      3. Jneticdiabetic

        Yes, me too. This description stood out to me yesterday too. Good description of an imprecise symptom that it seems a number of us can relate to. Thanks for articulating it! 👍

        4 years ago Log in to Reply
      4. n6jax@scinternet.net

        Sweet Charlie says Me also…

        4 years ago Log in to Reply
    12. Tod Herman

      Almost all of those symptoms on the list I have experienced. But, like many others, after having T1D for over 40 years the lows have become less noticable. But after I recover, I usually just need a nap.

      3
      4 years ago Log in to Reply
    13. Amanda Barras

      Hunger and/or sleepiness. Those are my top 2.

      4 years ago Log in to Reply
    14. Mark Schweim

      Most common first symptom I used to notice was numbness and tingling around and in my mouth, but for the past decade, I only very rarely notice any symptoms and feel nearly identical whether my BG is in the 40s, 140s, or 300s.

      1
      4 years ago Log in to Reply
    15. Sue Martin

      I stopped having consistent symptoms years ago and was very glad to get a DGM. It has saved me many times when I can’t feel what is going on with my blood sugar levels. I love my DexCom.

      4 years ago Log in to Reply
    16. Patricia Dalrymple

      I just feel “off”, not how I usually feel. None of those symptoms. Just not right.

      1
      4 years ago Log in to Reply
      1. AnitaS

        That is probably how I feel, which I described as “uncomfortable”.

        4 years ago Log in to Reply
    17. Pauline M Reynolds

      Sometimes I feel a “sensation” come over my body; sometimes I suddenly feel “nervous”. Sometimes I start to feel sweaty, which means it went too far at that point and will be under 60.

      4 years ago Log in to Reply
    18. Marie Cardinell-Daldry

      I SAID COORDINATION OR CLUMSINESS BUT THIS CAN CHANGE EACH TIME. SOME TIMES I WON’T HAVE SYMPTOMS BUT MY DEXCOM WILL START BEEPING UNCONTROLLABLY AND I FIND THAT I’M DOWN TO 50 OR LOWER OR MY HUSBAND WILL BE MORE AWARE I NEED HELP

      4 years ago Log in to Reply
    19. Stephen Woodward

      Not sure why there not listed, but before any of these listed symptoms appear there are a few warning sings I mwartch out for. #1 is dexterity, I.e., fumble fingers, #2 I memory recall becomes obstructed. Both of these symptoms are talked o out when talking to others and subside quite rapidly as bg rises. These symptoms start before any of the hypo symptom listed as choices.

      4 years ago Log in to Reply
    20. Mig Vascos

      Light flashes but this is only if my sugar is dropping fast and below 45.

      4 years ago Log in to Reply
    21. Mary Ann Sayers

      I usually don’t have symptoms, but I’ve noticed a feeling of “ease” or lessening of bg if that makes sense to anyone? when having a reaction. Only a T1D can possibly understand what I’m saying!

      1
      4 years ago Log in to Reply
    22. Karen Maffucci

      My symptoms change quite frequently. It’s not a consistent one symptom or another.

      4 years ago Log in to Reply
    23. Jneticdiabetic

      It varies on the nature of low & rate of drop. I put fatigue/weakness because I think this (or a “sinking feeling” as someone aptly described it yesterday), is the symptom I most commonly detect. Often don’t notice until this point. However, sometimes it’s rapid heart rate. Sometimes hunger and irritability. Sometimes all of the above, others none at all.

      4 years ago Log in to Reply
    24. n6jax@scinternet.net

      confusion

      4 years ago Log in to Reply
    25. AnitaS

      I feel uncomfortable. Not shaky, but uncomfortable. I want to get rid of the feeling a.s.a.p.

      4 years ago Log in to Reply
    26. Cheryl Seibert

      First, I get that strange numb/tingling/slight pressure feeling below my eyes.

      4 years ago Log in to Reply
    27. Jen Smith

      I checked numerous symptoms but they aren’t all present every time. I don’t know what causes them to be different although some are obviously (to me) a result of more severe lows. The very subtle symptoms I get early on in the drop in BG is a major blessing to still have after almost 50 years of T1D and it’s very difficult to describe. But if I have to categorize it, it’s a mix of very subtle shakiness deep in my upper body.

      4 years ago Log in to Reply

    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!) Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]