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    • 33 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 2 hours, 30 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 2 hours, 30 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 32 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 2 hours, 33 minutes ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
    • 2 hours, 42 minutes ago
      Samantha Robinson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 2 hours, 47 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Normally, no time spent but I changed insulins so I wanted to verify everything with my insurance company before asking my endocrinologist to write a new script.
    • 2 hours, 49 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 2 hours, 50 minutes ago
      beth nelson likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 7 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I expect that we’ve all had that feeling about how stupid payers can be when it comes to T1D.
    • 3 hours, 7 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Seriously depends on when you ask. The past 3 months have only been an hour or two, but if you'd asked this same question last September it would've been over 8 as I dealt with the annual "Yes I need a Dexcom and Omnipod again" red tape with my insurance/providers/doctor's office. I am counting the time on hold as well, but still - pretty ridiculous that insurance thinks Type 1 is going to magically go away just because it's been a year. I wish!
    • 3 hours, 7 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 3 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 3 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 3 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 3 hours, 8 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Just spent an hour and a half on the phone with insurance the other day trying to switch to Dash pods and nothing was accomplished....
    • 3 hours, 27 minutes ago
      William Bennett likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 3 hours, 27 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Eight times a year I have to spend more than eight hours to fix errors on the part of my mail order pharmacy and DME supplier. My endo doesn't keep track of when prescriptions expire or need refills so add another couple hours a year building a to-do list for the doc. I'm ready to start billing for my time.
    • 3 hours, 29 minutes ago
      pru barry likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours ago
      Bill Williams likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Significantly less time since I switched from Byram to ADS. It has made a world of difference and saved so many headaches!!
    • 4 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
    • 4 hours, 22 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 5 to 6 hours, with maybe 20min. of that time ordering G6 sensors and tSlim supplies. The remaining time was finding Novolog I could afford.
    • 4 hours, 24 minutes ago
      Richard Wiener likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 4 hours, 47 minutes ago
      Katrina Mundinger likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      One of the most unnecessary and frustrating parts of being a type 1 diabetic is all the stress and time involved with insurance companies, pharmacies, durable medical equipment distributers and their need to always contact physicians.
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    On a scale of 1-5, how much does experiencing a low BG below 55 disrupt your day? (1 = the least disruptive, 5 = the most disruptive)

    Home > LC Polls > On a scale of 1-5, how much does experiencing a low BG below 55 disrupt your day? (1 = the least disruptive, 5 = the most disruptive)
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    37 Comments

    1. KCR

      I think it depends on other factors such as whether blood glucose is dropping fast or holding at a steady low, how low it drops, and how long the low persists. I recently had an unexpected rapid drop during CGM warm-up and was shaking and sweating by the time I treated. That left me feeling washed out for several hours. šŸ™

      13
      1 year ago Log in to Reply
    2. Lenora Ventura

      It’s not a hard #. Sometimes I can have a harder recovery when I’m 70 than when I’m 40 or above. The older I’ve gotten and the more longevity with T1D, the bounce back takes longer. One thing is for sure, never the same thing twice

      11
      1 year ago Log in to Reply
    3. ConnieT1D62

      I answered 4, but is can be 5 depending on life in the moment circumstances and environment where & when it happens. A BG less than 55 is inconvenient and a PITA but I do recover.

      5
      1 year ago Log in to Reply
    4. Tim Moeslein

      In general a low doesn’t disrupt my day off unless it occurs overnight between 3-5 AM. Then it wreaks havoc on my day because I have to start my day exhausted from treating the hypo.

      3
      1 year ago Log in to Reply
    5. brettsmith115

      As many of the comments mention, the older I get, the harder it is to rebound from a rapid/significant low. “Washed Out” is a great way to describe how I feel for a few hours following a low like this.

      6
      1 year ago Log in to Reply
    6. Lawrence Stearns

      I answered a very uncertain #3. There are times when I’m on 70, and I am dizzy, sweaty and weak. Over the years, I’ve hit as low as the teens, 30’s 40’s and 50’s and never felt a thing. I can’t go by a number to determine how I will feel. But when I do feel the lows, it often takes 1/2 the day for me to feel like I’m back to myself. Many years ago, before blood test and CGM’s, I went to several days at a time in a fog from back to back lows.

      2
      1 year ago Log in to Reply
    7. Greg Felton

      I answered 3, since it really depends on the time of day and what I am doing. And no two lows are the same; sometimes I can function great at 50 but feel devastated at 80.

      3
      1 year ago Log in to Reply
    8. connie ker

      If I am home, I am close to everything I need to treat a low number. If I am out and about, I carry candy and sugary treats in a ziplock inside my purse. I keep close watch now that I wear the Abbott
      Freestyle Libre and pay attention to the arrows.

      1 year ago Log in to Reply
    9. Karen Brady

      It disrupts my work day A LOT. I’m on my feet for most of the day and also lifting patients, which I can’t do if I’m too low. I usually work as part of a team and it bothers me to tell coworkers “I can’t help you at the moment due to a low blood sugar.” For me, lows are really inconvenient.
      As KCR said, it depends on as whether blood glucose is dropping fast, how low it drops, and how long I’m low. If I’m below 50 I’ll feel tired and have a headache for hours after the low.
      If it’s not evident, I HATE lows!

      4
      1 year ago Log in to Reply
    10. Jneticdiabetic

      I put 3 as an average. As others have said experience varies on circumstances of each low. A low that creeps up slowly during the day and resolves cooperatively with a snack is minimally disruptive. More disruptive are the fast crashing &: overnight lows. These often come with a hypo headache that can last for several hrs. Plus there’s the disruption of the BG rollercoaster that follows overcorrecting with carbs.

      7
      1 year ago Log in to Reply
    11. Judy Hampton

      Sometimes I wonder how we old timers survived in the 60’s and early 70’s never knowing we were low or high. I don’t remember having an episode of any kind during that time period. I was very involved with sports and always active. Must have been Devine intervention. Now, many years later, I feel uncomfortable without my CGM. LOL

      7
      1 year ago Log in to Reply
      1. Jan Masty

        I totally agree!! The old days were much simpler but am lucky to have survived that!

        1 year ago Log in to Reply
    12. Gerald Oefelein

      It depends on the circumstances: time of day, severity of the low, what I’m doing at the time and what I expect to be doing, etc.

      2
      1 year ago Log in to Reply
    13. Mary Dexter

      I spend a lot of time sitting in parking lots waiting for my blood sugar to rise high enough for me to drive home.

      7
      1 year ago Log in to Reply
    14. Andrew Stewart

      The level of disruption depends on whether I have something to treat the low. We all plan for these occasions but life does get in the way sometimes and your low comes when you don’t have your usual goto glucose bump.

      2
      1 year ago Log in to Reply
    15. cynthia jaworski

      It depends on how long it takes me to “get back.”If it takes a long to get back from 68, that is very disruptive, too.

      2
      1 year ago Log in to Reply
    16. Twinniepoo74

      For me if I fall below 65 I have seizures so I am pretty much stuck in bed with headaches and muscle pain.

      1
      1 year ago Log in to Reply
    17. George Lovelace

      Since going on Control IQ the answer is 0 (zero) as my Time under 70 is at 0.1% and under 55 is 0.0%

      1 year ago Log in to Reply
    18. rick phillips

      It depends on the rate of drop. A fast rate of drop is a killer.

      3
      1 year ago Log in to Reply
      1. Vickie Baumgartner

        Yes it is, takes a long while to respond at all.

        1 year ago Log in to Reply
    19. TEH

      I checked other. I have different reactions to Low BG. Also as other have pointed out, it depends on how quick and what I take to bet back up to 70+.

      1
      1 year ago Log in to Reply
    20. Janis Senungetuk

      I chose “Other” because there are too many variables to assign a specific number. I no longer experience symptoms of either highs or lows, so am dependent upon my CGM to alert me before I’m unable to function from a low.

      1
      1 year ago Log in to Reply
    21. Mig Vascos

      It just disrupt the 15 minutes or whatever time takes to get it back to normal and it’s more the annoyance. I don’t physically feel sick in any way just frustrated.

      1
      1 year ago Log in to Reply
    22. Kim Murphy

      It depends on how much below 55 it is. If I am below 45 it disrupts my day a 5. If it is 46-54 it doesn’t disrupt my day it is a 1.

      1 year ago Log in to Reply
    23. Don (Lucky) Copps

      I had a Duzer last night. dropped into the low 50s and could not pull myself out of it. I ate and ate and ate. Maple syrup, cashews, PB&J sandwich. After an hour it slowly began to come back. Went to bed and woke up in the middle of the night @190. i’ve only had this happen twice before in my life. It is scary as hell. Took too much insulin for my meal and paid the price dearly. thank God my wife was there.

      3
      1 year ago Log in to Reply
      1. Vickie Baumgartner

        This happens to me too much, not responding to any type carb is very scary.

        2
        1 year ago Log in to Reply
    24. Bea Anderson

      55 is a tipping point. If at home all day, I simply adjust my basal rate for 30 minutes or glucose type treat and move on. I would delay driving anywhere. If exercising, I’d have to stop and treat. My sensor alarms me to evaluate. I check my BG to verify what my sensor is saying. Arriving at 40 always disrupts in feeling woozy or slow of mind. Lower and I might stare at my pump, my sensor, and not know how to do corrective math or even which buttons to push! Then over correct with carbs. I should have chosen a higher number in hindsight!

      1
      1 year ago Log in to Reply
    25. Molly Jones

      I chose a two. My BG often drops, but it differs incredibly on the quickness of rising or if it continues to fall. Either way, I live with just my husband and it does not usually interfere with anything that cannot be put on hold.

      1
      1 year ago Log in to Reply
    26. Jillmarie61

      Being that low I tend to not be functioning that well, although I have been a lot lower and did okay sometimes. It also usually sends me into a panic mode and I have to be careful of how many carbs i consumed and how to correct for that issue. It tends to really throw me off mentally all day.

      1
      1 year ago Log in to Reply
    27. Mick Martin

      Not at all.

      I’ve been having blood glucose levels lower than 3.1 mmol/l [55 mg/dL] for many years now. I have hypoglycaemia [hypoglycemia] unawareness and lower blood glucose levels rarely give me any physical indication that my blood glucose level is falling. This was one of the reasons that my diabetes support team ‘put my name forward’ to receive pump technology.

      Even though I have my pump set to alarm when my blood glucose level is 5.5 mmol/l [99 mg/dL], because the readings are taken from interstitial fluid, hence giving a delayed time of alarm, I’ve lost consciousness on many many occasions over the years, and have needed to be admitted to hospital for emergency medical attention.

      Even after receiving a glucagon injection … and sometimes two glucagon injections … my ability to fully recover is somewhat diminished. Sometimes, if I’m in a hospital setting, intravenous glucose is also used.

      1 year ago Log in to Reply
      1. Wanacure

        Mick, REDUCE YOUR INSULIN. CONSULT WITH YOUR ENDOCRINOLOGIST. I used to have severe hypoglycemic events every month. Hypoglycemia, like hyperglycemia will fu*k up your brain, man. Have you been tested for seizure disorder (formerly called ā€œepilepsyā€)? If so, you could try Dilantin (processed by your liver) or even better levetricetam (no stress on your liver). Take a Luna bar before you put 40’ on the elliptical, rowing machine, or stationary bike. Or before you lift weights. Even a regular yoga class or
        Pilates requires lower insulin and/or extra carbs, fats, and/or extra protein. You can reach me thru this website. TAKE ACTION NOW.

        1 year ago Log in to Reply
    28. Becky Hertz

      Like with all things Diabetes, it depends.

      2
      1 year ago Log in to Reply
    29. Rafaela

      I don’t experience real symptoms of a low until I reach 40-45, and am not adversely affected until it’s much lower. At that point I’d say it disrupts my day at a 5 until it begins to climb and I’m able to take a shower. Once those are done, my day returns to normal.

      1 year ago Log in to Reply
    30. PamK

      I chose “2” because a BG of 50 doesn’t really disrupt my day, but a BG of 30 does. Below 55 just doesn’t “fit” everyone, in my opinion. We all have different thresholds. I wish the medical community would stop trying to put us all into the same mold!

      1
      1 year ago Log in to Reply
    31. Chris Albright

      For the most part, I do not worry about a BG of 55 is going to turn into a hypoglycemic event, it is still disruptive to the flow of my day and the constant reminder that T1 impacts (does not control) my daily life……

      1 year ago Log in to Reply
    32. Cheryl Seibert

      Lows are easy and not very disruptive. Pump alarms, I eat, record the carbs taken and bolus as necessary. The persistent highs are the disruption….. arghhh.

      1 year ago Log in to Reply
    33. Leona Hanson

      I don’t feel my lows or highs anymore even with the cgm nothing

      1 year ago Log in to Reply

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