Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 15 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 hour, 21 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 1 hour, 57 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 19 hours, 51 minutes ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 1 day, 22 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 1 hour ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 2 days, 16 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 3 days, 11 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 3 days, 23 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 1 hour ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 2 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 13 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 4 days, 22 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 4 days, 22 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days ago
      Marty likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      Take Control of Your Diabetes
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      And TCOYD
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      Diabetes Strong
    • 5 days, 17 hours ago
      Kathy Hanavan likes your comment at
      Which T1D influencers do you enjoy following?
      TCOYD AND DiaTribe are thoughtful information providers.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How many people in your social circle have made an effort to understand your experiences with T1D?

    Home > LC Polls > How many people in your social circle have made an effort to understand your experiences with T1D?
    Previous

    How often do you check for ketones when your blood glucose levels are above 250 mg/dL?

    Next

    On a scale of 1-5, how much does experiencing a low BG below 55 disrupt your day? (1 = the least disruptive, 5 = the most disruptive)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

    2 hours ago  
    Meet the Expert

    Meet the Expert: Improving Diabetes Care Through Precision Medicine 

    Jewels Doskicz, 6 days ago 8 min read  
    Meet the Expert

    Meet the Expert: Bridging Research, Technology, and Real-World Care 

    Jewels Doskicz, 1 week ago 9 min read  
    Insulin & Meds

    Ask the Expert: Diana Isaacs on Benefits, Risks, and Real-World Use of GLP-1s in T1D 

    Jewels Doskicz, 2 weeks ago 6 min read  
    Meet the Expert

    Meet the Expert: Advancing Equity, Improving Outcomes, and Reducing the Burden of T1D 

    Jewels Doskicz, 4 weeks ago 8 min read  
    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 1 month ago 6 min read  

    20 Comments

    1. Ahh Life

      Most people. This probably implies one of two things.

      One, my dunbar number is exceedingly low, or

      Two, I must have luckily a very well informed group of friends, colleagues. and acquaintances. ¯\_( ͡❛ ͜ʖ ͡❛)_/¯

      3
      5 years ago Log in to Reply
    2. GLORIA MILLER

      I don’t really understand the question. My health is not something I discuss with people I socialize with. Some don’t even know I have diabetes. The husband of one couple we socialize with is also Type 1 but not as many years as myself so we discuss the problems and offer suggestions to each other if there is a problem.

      3
      5 years ago Log in to Reply
    3. Annie Wall

      When I was diagnosed in 1980, I learned right away that I should tell my friends, family, and co-workers that I have diabetes because I often need their help when my blood glucose bottoms out. Sometimes it had been hard for the employees I supervised to tell their boss, she needs to have some orange juice, but they always figured out they could go to one of the other supervisors I worked closely with to figure out how to get me the help I need. Since I mostly worked in health care facilities, they quickly learned that if they got a nurse to come to my office, I “obeyed” the nurse immediately!! Even now that I have CGM and Tandem Control IQ, I still can have episodes where I get foggy and my friends know exactly what’s wrong and I’m pretty obedient!

      2
      5 years ago Log in to Reply
    4. Dave Barden

      I’m not shy about telling people I have it. And I’m never was shy about taking my shot or doing finger sticks in public. “Everyone” knows I’m diabetic. But nobody asks about it.

      5
      5 years ago Log in to Reply
    5. Jim Andrews

      I don’t advertise it frequently, but when I do, must people have no interest in knowing anything about T1D. I sometimes get asked stupid questions like ‘Is that the bad kind?’

      3
      5 years ago Log in to Reply
      1. Sherolyn Newell

        People ask me that too. I usually explain the difference.

        2
        5 years ago Log in to Reply
    6. Janis Senungetuk

      Very few. I’m only asked if food is involved in a social gathering and then it’s a “diabetes police” question.

      2
      5 years ago Log in to Reply
    7. Mary Dexter

      I call it the Gilgamesh syndrome. “This could happen to me. ” A thought too terrifying to allow to flit across one’s mind. Avoidance, anger ensue.
      Social circle? I know I am alone.

      2
      5 years ago Log in to Reply
    8. betsy valian

      Many people throw ‘diabetes’ all together in one catagory; and do not care to know the dif between 1 & 2. when I define it, they don’t seem to care.

      1
      5 years ago Log in to Reply
    9. Henry Renn

      I don’t talk about unless someone asks. It’s awkward to talk/ask about any disease. Taking a trip together would be another matter.

      1
      5 years ago Log in to Reply
    10. Lucia Maya

      I can’t think of a single close friend, or even family member, who tries to understand how my life is affected by diabetes. I think it’s partly because I make it look like it’s easy, (though i can complain too!) but it makes me sad that they don’t take any interest in such a major part of my life.

      5
      5 years ago Log in to Reply
    11. ConnieT1D62

      My answer is “Other” because very few people, if any at all, in my social or even family circle who do not have diabetes have any real interest or understanding about what life with diabetes is about – let alone make any effort to understand. I usually get unsolicited and well-meaning, but poorly informed judgmental advice.

      I am fortunate to have a network of several friends and colleagues of all ages, genders, and socio-economic status who live with T1, LADA, T2, and/or pre-diabetes. We “get” each other and honor the myriad experiences & challenges of things life throws at you living with diabetes.

      2
      5 years ago Log in to Reply
    12. Don (Lucky) Copps

      I usually get the blank stare, let’s move on to something else kind of look. My wife attempts to understand, counts carbs, most of the time gives me a timeline for meals. she’s really good, but it took a long long time for her to understand the total frustration this disease can be. There are times I crawl into a corner and cry. But you better not let it last long as the TikTok of T1D will rear it’s head on you in short order. Just had my Endo visit and he commented that my A-1 C was going up. I just told him I’m tired and really want a break. it was enough to get me back on the bandwagon.

      1
      5 years ago Log in to Reply
    13. KarenM6

      I’d have to say no one “tried”, but 2 or 3 people (Mom, husband, friend) have found things out because of being around me.
      Like others, I also get the “blank stares” if I try to explain things… and the “diabetes police” are always willing to share unsolicited and unneeded advice!

      1
      5 years ago Log in to Reply
    14. Becky Hertz

      S as someone has written before, unless you get it, you don’t get it.

      2
      5 years ago Log in to Reply
    15. Molly Jones

      I chose most people, but I do not talk about my medical concerns a lot from my point of view. I have too many medical concerns and diabetes is one of the easiest to live with or talk about.
      Diabetes was easy to explain to my friends but many family members didn’t seem educated as well.

      5 years ago Log in to Reply
    16. LizB

      Some family, friends and co-workers have all made an effort. It is very much appreciated but I don’t expect anyone to have to learn about it. Early on one of my sisters was great. She could tell when I was getting low and would hand me a soda or go to the drive through if we were out. Years later she herself was diagnosed with Type 1. 🙁

      5 years ago Log in to Reply
    17. Wanacure

      I’m old & sort of isolated…COVID increased my isolation. Haven’t been participating in any BLM, peace demonstrations, etc. But I check my bgs and take shots in public. My family of origin was very supportive. My immigrant (& non immigrant) neighbors keep on eye on me; I know I can call on them for help. When I go to demonstrations, I remind at least one friend to put sugar cubes in my mouth if my face turns white or I act erratically. And NOT to call an ambulance; that’s $500 down the toilet. In past I let intimate partners know (if the intimacy was sustained). In the 1950’s and 1960’s I was cautioned not to let prospective employers know I was T1D. After you land a job, tell at least one trusted co-worker. I never step outside my house w/o at least one blood glucose monitor and at least three sugar cubes (four grams sugar each) in my pocket. Also carry sugar cubes in my jacket and backpack. If running errands, I also carry two syringes of glargine and two of lispro…if the big earthquake hits, I’ll last at least a couple of days under good control.

      5 years ago Log in to Reply
    18. AnitaS

      I put some as most of my friends or family know I am diabetic and they know I could have low blood sugars so they know enough to give me sugar if my blood sugar goes too low, but I am sure most don’t know how complicated the disease is to keep under control and I don’t expect them to know everything a diabetic would know.

      5 years ago Log in to Reply
    19. Cheryl Seibert

      I answered few as my social circle is my elderly aunt I am currently caregiving and my husband. Caregiving and my husband’s chronic medical issues have eliminated any social circle. Two people doesn’t even make a circle 🙁 My aunt has been curious about the pump and what it takes to manage T1D and asks a lot of questions.

      5 years ago Log in to Reply

    How many people in your social circle have made an effort to understand your experiences with T1D? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]