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  • Activity
    • 1 hour, 1 minute ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 1 minute ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 1 hour, 17 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 1 hour, 18 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 3 hours, 38 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 10 hours, 47 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours, 47 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 12 hours, 44 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How many people in your social circle have made an effort to understand your experiences with T1D?

    Home > LC Polls > How many people in your social circle have made an effort to understand your experiences with T1D?
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    20 Comments

    1. Ahh Life

      Most people. This probably implies one of two things.

      One, my dunbar number is exceedingly low, or

      Two, I must have luckily a very well informed group of friends, colleagues. and acquaintances. ĀÆ\_( Ķ”ā›ā€ÆĶœŹ– Ķ”ā›)_/ĀÆ

      3
      1 year ago Log in to Reply
    2. GLORIA MILLER

      I don’t really understand the question. My health is not something I discuss with people I socialize with. Some don’t even know I have diabetes. The husband of one couple we socialize with is also Type 1 but not as many years as myself so we discuss the problems and offer suggestions to each other if there is a problem.

      3
      1 year ago Log in to Reply
    3. Annie Wall

      When I was diagnosed in 1980, I learned right away that I should tell my friends, family, and co-workers that I have diabetes because I often need their help when my blood glucose bottoms out. Sometimes it had been hard for the employees I supervised to tell their boss, she needs to have some orange juice, but they always figured out they could go to one of the other supervisors I worked closely with to figure out how to get me the help I need. Since I mostly worked in health care facilities, they quickly learned that if they got a nurse to come to my office, I “obeyed” the nurse immediately!! Even now that I have CGM and Tandem Control IQ, I still can have episodes where I get foggy and my friends know exactly what’s wrong and I’m pretty obedient!

      2
      1 year ago Log in to Reply
    4. Dave Barden

      I’m not shy about telling people I have it. And I’m never was shy about taking my shot or doing finger sticks in public. ā€œEveryoneā€ knows I’m diabetic. But nobody asks about it.

      5
      1 year ago Log in to Reply
    5. Jim Andrews

      I don’t advertise it frequently, but when I do, must people have no interest in knowing anything about T1D. I sometimes get asked stupid questions like ‘Is that the bad kind?’

      3
      1 year ago Log in to Reply
      1. Sherolyn Newell

        People ask me that too. I usually explain the difference.

        2
        1 year ago Log in to Reply
    6. Janis Senungetuk

      Very few. I’m only asked if food is involved in a social gathering and then it’s a “diabetes police” question.

      2
      1 year ago Log in to Reply
    7. Mary Dexter

      I call it the Gilgamesh syndrome. “This could happen to me. ” A thought too terrifying to allow to flit across one’s mind. Avoidance, anger ensue.
      Social circle? I know I am alone.

      2
      1 year ago Log in to Reply
    8. betsy valian

      Many people throw ‘diabetes’ all together in one catagory; and do not care to know the dif between 1 & 2. when I define it, they don’t seem to care.

      1
      1 year ago Log in to Reply
    9. Henry Renn

      I don’t talk about unless someone asks. It’s awkward to talk/ask about any disease. Taking a trip together would be another matter.

      1
      1 year ago Log in to Reply
    10. Lucia Maya

      I can’t think of a single close friend, or even family member, who tries to understand how my life is affected by diabetes. I think it’s partly because I make it look like it’s easy, (though i can complain too!) but it makes me sad that they don’t take any interest in such a major part of my life.

      5
      1 year ago Log in to Reply
    11. ConnieT1D62

      My answer is “Other” because very few people, if any at all, in my social or even family circle who do not have diabetes have any real interest or understanding about what life with diabetes is about – let alone make any effort to understand. I usually get unsolicited and well-meaning, but poorly informed judgmental advice.

      I am fortunate to have a network of several friends and colleagues of all ages, genders, and socio-economic status who live with T1, LADA, T2, and/or pre-diabetes. We “get” each other and honor the myriad experiences & challenges of things life throws at you living with diabetes.

      2
      1 year ago Log in to Reply
    12. Don (Lucky) Copps

      I usually get the blank stare, let’s move on to something else kind of look. My wife attempts to understand, counts carbs, most of the time gives me a timeline for meals. she’s really good, but it took a long long time for her to understand the total frustration this disease can be. There are times I crawl into a corner and cry. But you better not let it last long as the TikTok of T1D will rear it’s head on you in short order. Just had my Endo visit and he commented that my A-1 C was going up. I just told him I’m tired and really want a break. it was enough to get me back on the bandwagon.

      1
      1 year ago Log in to Reply
    13. KarenM6

      I’d have to say no one “tried”, but 2 or 3 people (Mom, husband, friend) have found things out because of being around me.
      Like others, I also get the “blank stares” if I try to explain things… and the “diabetes police” are always willing to share unsolicited and unneeded advice!

      1
      1 year ago Log in to Reply
    14. Becky Hertz

      S as someone has written before, unless you get it, you don’t get it.

      2
      1 year ago Log in to Reply
    15. Molly Jones

      I chose most people, but I do not talk about my medical concerns a lot from my point of view. I have too many medical concerns and diabetes is one of the easiest to live with or talk about.
      Diabetes was easy to explain to my friends but many family members didn’t seem educated as well.

      1 year ago Log in to Reply
    16. LizB

      Some family, friends and co-workers have all made an effort. It is very much appreciated but I don’t expect anyone to have to learn about it. Early on one of my sisters was great. She could tell when I was getting low and would hand me a soda or go to the drive through if we were out. Years later she herself was diagnosed with Type 1. šŸ™

      1 year ago Log in to Reply
    17. Wanacure

      I’m old & sort of isolated…COVID increased my isolation. Haven’t been participating in any BLM, peace demonstrations, etc. But I check my bgs and take shots in public. My family of origin was very supportive. My immigrant (& non immigrant) neighbors keep on eye on me; I know I can call on them for help. When I go to demonstrations, I remind at least one friend to put sugar cubes in my mouth if my face turns white or I act erratically. And NOT to call an ambulance; that’s $500 down the toilet. In past I let intimate partners know (if the intimacy was sustained). In the 1950’s and 1960’s I was cautioned not to let prospective employers know I was T1D. After you land a job, tell at least one trusted co-worker. I never step outside my house w/o at least one blood glucose monitor and at least three sugar cubes (four grams sugar each) in my pocket. Also carry sugar cubes in my jacket and backpack. If running errands, I also carry two syringes of glargine and two of lispro…if the big earthquake hits, I’ll last at least a couple of days under good control.

      1 year ago Log in to Reply
    18. AnitaS

      I put some as most of my friends or family know I am diabetic and they know I could have low blood sugars so they know enough to give me sugar if my blood sugar goes too low, but I am sure most don’t know how complicated the disease is to keep under control and I don’t expect them to know everything a diabetic would know.

      1 year ago Log in to Reply
    19. Cheryl Seibert

      I answered few as my social circle is my elderly aunt I am currently caregiving and my husband. Caregiving and my husband’s chronic medical issues have eliminated any social circle. Two people doesn’t even make a circle šŸ™ My aunt has been curious about the pump and what it takes to manage T1D and asks a lot of questions.

      1 year ago Log in to Reply

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