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    • 8 hours, 15 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 13 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 13 hours, 17 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 13 hours, 18 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 11 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 12 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    Many people with T1D talk about having a “stubborn high” when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you.

    Home > LC Polls > Many people with T1D talk about having a "stubborn high" when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you.
    Previous

    Do you feel that T1D limits your travel? Select all statements that are true for you.

    Next

    What steps would you take if you had a glucose reading of 80 mg/dL (4.4 mmol/L) before you planned on going to bed, with no bolus insulin on board?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    20 Comments

    1. Ahh Life

      Most things in life are ephemeral, transient, evanescent, and fugacious.

      But [expletive deleted} stubborn highs may be due to
      a) pump problems
      b) insulin problems
      c) biological kinetics problems or
      d) lack of direct injection problems

      Whatever it is, it is another of life’s subtle thriller conundrums. 🤣

      7
      2 months ago Log in to Reply
      1. ConnieT1D62

        Mine are usually because I am distracted by everyday life circumstances and forgot to bolus before eating.

        2 months ago Log in to Reply
    2. Chris Albright

      For me a stubborn high is not based around only time but how much insulin is required to lower. Needless to say it takes much more insulin to bring down a high bg than it does to prevent it. Pre-bolusing helps me time the reaction of active insulin with the rise of post meal bg’s. Greatly reduces those post meal spike (for me).

      8
      2 months ago Log in to Reply
      1. Jneticdiabetic

        So true! A forgotten or delayed meal dose is the most common culprit for my stubborn highs!
        A darn cheeseburger (on a bun) and onion rings got me the other day. I did dose premeal, but should have used extended bolus.

        2 months ago Log in to Reply
    3. Jane Cerullo

      Have never been over 300. And rarely 200. Once in awhile have dawn phenomenon but usually my own dietary fault. Sometimes talked time to go down to normal

      2
      2 months ago Log in to Reply
    4. Jian

      for e a stubborn high is when blood sugar is over 200 and with auto correct and/or correction by me, blood sugar does not come down for hours to where I want it too be. usually I think when I am not active enough. I wish it could be faster when this happens but if I am sitting for a couple hours it is hard to do.

      2 months ago Log in to Reply
    5. Joan Benedetto

      My son , age eleven, has never “liked” bring over 200 for very long. If after two hours, correction vis pump is not effective, he will ask us to do a correction via syringe.

      1
      2 months ago Log in to Reply
    6. Jeanne McMillan-Olson

      It doesn’t matter what the blood sugar is if you want it to come down lower and it won’t. Could be the food I ate such as fats or the site is bad. Just frustrating.

      2
      2 months ago Log in to Reply
    7. Jneticdiabetic

      Treating highs with subcutaneous insulin typically takes at least 2-3 hrs. So, I would define a “stubborn high” as a sustained BG over 200 mg/dl for over 6 hrs that does not come down after 2 or more correction attempts.

      3
      2 months ago Log in to Reply
    8. Janis Senungetuk

      If it takes longer than 3 hours via pump correction, it’s a stubborn high.If I think the problem is caused by not receiving the full amount of correction I may change my infusion set to another location, and take an injection. Novolog does not bring down highs quickly but I’m allergic to other insulin types/brands.

      1
      2 months ago Log in to Reply
    9. Lawrence S.

      Interesting question. I felt like I was taking an old high school quiz.
      Anyway, I said above 200 for 2 hours. I read the previous responses. Many are technically based upon the amount of time it takes for insulin to take effect. My response is based upon personal feeling that I want my blood glucose to go down to normal range as quickly as possible. If I’m over 200 for more than an hour, I’m working hard to get it down. I most likely will take more insulin … and wait … , or I may go for a run.

      2 months ago Log in to Reply
    10. sdimond

      I find those numbers and durations unimaginable. I almost never get above 125 and then only for minutes at most.

      2 months ago Log in to Reply
    11. Lee Johnson

      What are you doing with all of this t1d info that you receive each day from your participating subjects???

      2 months ago Log in to Reply
    12. KIMBERELY SMITH

      It runs high from sweating

      2 months ago Log in to Reply
    13. Wanacure

      I wait at least 2 hrs after injecting a supplemental 1 or 2 units of Humalog (lispro) for bg to normalize. If close to usual pre-meal bolus injection time I add the 1 or 2 units to usual bolus. Up to 149 bg I add one unit. Between 149-200 I add 2 units. 200 to 250 I add 3 units. Never exceed 4 units extra in 4 hours. Just wait; it will come down…unless flu or extreme stress.

      2 months ago Log in to Reply
    14. Jeff Balbirnie

      Any number which does not respond to using short acting insulin. A “stubborn” high could be HIGH or 300, the specific number is irrelevant. When you use any (sic. of the newer) short acting insulins and achieve zero result from that insulin dosage, THAT is a @*(#&@* stubborn high! Readings below 300 while Diabetes text-book “high” are not typically considered anything very serious/meaningful. In a perfect of ideal D universe maybe, but in the real world… 300 is a basic threshold for a typical “high” with ~attitude~ (i.e. stubborn). Rarely happens, but when/if a stubborn reading happens and gives the finger to our best efforts, you CAREFULLY try again, until you find a viable solution.

      2 months ago Log in to Reply
    15. Molly Jones

      The numbers do not make that much of a difference to differentiate “stubborn highs”. Simply the length they last and how they react to variables that should bring them down, although I definitely do not desire the higher numbers.

      2 months ago Log in to Reply
    16. StPetie

      I selected “none of these,” because I have never heard the term ‘stubborn high before.

      2 months ago Log in to Reply
    17. T1D4LongTime

      I define a stubborn high as anything over 200 for any length of time. Once I’ve risen to 200, all my BGs seem to be ‘stubborn’. Yes, I admit I micro-manage, must to my endo’s dismay.

      2 months ago Log in to Reply
    18. Lisa McBride

      I don’t experience “stubborn highs” very often, thankfully. An unexplained high for an extended period of time (more than 2 hours) has always been due to inadequate insulin plus my dawn phenomena effects, or due to a pump insertion problem (catheter bent) or an underlying infection like the beginning of a urinary tract infection or a low grade virus. If I spike a fever, my glucose will also become more difficult. I also change my pump every third day when alerted by my Omnipod pump but sometimes will find that I have a lot of lack of normal effect by insulin (and therefore correct more) in the last 12 hours before changing the pump. I suspect that my insulin then is not absorbing as well at the site due to the fact that my body has mounted an attack by macrophages and other cells around the catheter insertion site. Once I change the site, all clears up. Pumps have helped T1Ds tremendously but the perfect pump or perfect system would be internal and well protected from the onslaught of our immune systems. But, that has remained a huge challenge for medical researchers to solve. One could move from having to inject insulin only to have to start taking antijection drugs or vaccines. So, is our cause really advanced?

      1 month ago Log in to Reply

    Many people with T1D talk about having a "stubborn high" when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you. Cancel reply

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