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    • 12 hours, 46 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 12 hours, 51 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 12 hours, 58 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Many people with T1D talk about having a “stubborn high” when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you.

    Home > LC Polls > Many people with T1D talk about having a "stubborn high" when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you.
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    Do you feel that T1D limits your travel? Select all statements that are true for you.

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    What steps would you take if you had a glucose reading of 80 mg/dL (4.4 mmol/L) before you planned on going to bed, with no bolus insulin on board?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Ahh Life

      Most things in life are ephemeral, transient, evanescent, and fugacious.

      But [expletive deleted} stubborn highs may be due to
      a) pump problems
      b) insulin problems
      c) biological kinetics problems or
      d) lack of direct injection problems

      Whatever it is, it is another of life’s subtle thriller conundrums. 🤣

      7
      3 years ago Log in to Reply
      1. ConnieT1D62

        Mine are usually because I am distracted by everyday life circumstances and forgot to bolus before eating.

        3 years ago Log in to Reply
    2. Chris Albright

      For me a stubborn high is not based around only time but how much insulin is required to lower. Needless to say it takes much more insulin to bring down a high bg than it does to prevent it. Pre-bolusing helps me time the reaction of active insulin with the rise of post meal bg’s. Greatly reduces those post meal spike (for me).

      8
      3 years ago Log in to Reply
      1. Jneticdiabetic

        So true! A forgotten or delayed meal dose is the most common culprit for my stubborn highs!
        A darn cheeseburger (on a bun) and onion rings got me the other day. I did dose premeal, but should have used extended bolus.

        3 years ago Log in to Reply
    3. Jane Cerullo

      Have never been over 300. And rarely 200. Once in awhile have dawn phenomenon but usually my own dietary fault. Sometimes talked time to go down to normal

      2
      3 years ago Log in to Reply
    4. Jian

      for e a stubborn high is when blood sugar is over 200 and with auto correct and/or correction by me, blood sugar does not come down for hours to where I want it too be. usually I think when I am not active enough. I wish it could be faster when this happens but if I am sitting for a couple hours it is hard to do.

      3 years ago Log in to Reply
    5. Joan Benedetto

      My son , age eleven, has never “liked” bring over 200 for very long. If after two hours, correction vis pump is not effective, he will ask us to do a correction via syringe.

      1
      3 years ago Log in to Reply
    6. Jeanne McMillan-Olson

      It doesn’t matter what the blood sugar is if you want it to come down lower and it won’t. Could be the food I ate such as fats or the site is bad. Just frustrating.

      2
      3 years ago Log in to Reply
    7. Jneticdiabetic

      Treating highs with subcutaneous insulin typically takes at least 2-3 hrs. So, I would define a “stubborn high” as a sustained BG over 200 mg/dl for over 6 hrs that does not come down after 2 or more correction attempts.

      3
      3 years ago Log in to Reply
    8. Janis Senungetuk

      If it takes longer than 3 hours via pump correction, it’s a stubborn high.If I think the problem is caused by not receiving the full amount of correction I may change my infusion set to another location, and take an injection. Novolog does not bring down highs quickly but I’m allergic to other insulin types/brands.

      1
      3 years ago Log in to Reply
    9. Lawrence S.

      Interesting question. I felt like I was taking an old high school quiz.
      Anyway, I said above 200 for 2 hours. I read the previous responses. Many are technically based upon the amount of time it takes for insulin to take effect. My response is based upon personal feeling that I want my blood glucose to go down to normal range as quickly as possible. If I’m over 200 for more than an hour, I’m working hard to get it down. I most likely will take more insulin … and wait … , or I may go for a run.

      3 years ago Log in to Reply
    10. sdimond

      I find those numbers and durations unimaginable. I almost never get above 125 and then only for minutes at most.

      3 years ago Log in to Reply
    11. Lee Johnson

      What are you doing with all of this t1d info that you receive each day from your participating subjects???

      3 years ago Log in to Reply
    12. KIMBERELY SMITH

      It runs high from sweating

      3 years ago Log in to Reply
    13. Wanacure

      I wait at least 2 hrs after injecting a supplemental 1 or 2 units of Humalog (lispro) for bg to normalize. If close to usual pre-meal bolus injection time I add the 1 or 2 units to usual bolus. Up to 149 bg I add one unit. Between 149-200 I add 2 units. 200 to 250 I add 3 units. Never exceed 4 units extra in 4 hours. Just wait; it will come down…unless flu or extreme stress.

      3 years ago Log in to Reply
    14. Jeff Balbirnie

      Any number which does not respond to using short acting insulin. A “stubborn” high could be HIGH or 300, the specific number is irrelevant. When you use any (sic. of the newer) short acting insulins and achieve zero result from that insulin dosage, THAT is a @*(#&@* stubborn high! Readings below 300 while Diabetes text-book “high” are not typically considered anything very serious/meaningful. In a perfect of ideal D universe maybe, but in the real world… 300 is a basic threshold for a typical “high” with ~attitude~ (i.e. stubborn). Rarely happens, but when/if a stubborn reading happens and gives the finger to our best efforts, you CAREFULLY try again, until you find a viable solution.

      3 years ago Log in to Reply
    15. Molly Jones

      The numbers do not make that much of a difference to differentiate “stubborn highs”. Simply the length they last and how they react to variables that should bring them down, although I definitely do not desire the higher numbers.

      3 years ago Log in to Reply
    16. StPetie

      I selected “none of these,” because I have never heard the term ‘stubborn high before.

      3 years ago Log in to Reply
    17. T1D4LongTime

      I define a stubborn high as anything over 200 for any length of time. Once I’ve risen to 200, all my BGs seem to be ‘stubborn’. Yes, I admit I micro-manage, must to my endo’s dismay.

      3 years ago Log in to Reply
    18. Lisa McBride

      I don’t experience “stubborn highs” very often, thankfully. An unexplained high for an extended period of time (more than 2 hours) has always been due to inadequate insulin plus my dawn phenomena effects, or due to a pump insertion problem (catheter bent) or an underlying infection like the beginning of a urinary tract infection or a low grade virus. If I spike a fever, my glucose will also become more difficult. I also change my pump every third day when alerted by my Omnipod pump but sometimes will find that I have a lot of lack of normal effect by insulin (and therefore correct more) in the last 12 hours before changing the pump. I suspect that my insulin then is not absorbing as well at the site due to the fact that my body has mounted an attack by macrophages and other cells around the catheter insertion site. Once I change the site, all clears up. Pumps have helped T1Ds tremendously but the perfect pump or perfect system would be internal and well protected from the onslaught of our immune systems. But, that has remained a huge challenge for medical researchers to solve. One could move from having to inject insulin only to have to start taking antijection drugs or vaccines. So, is our cause really advanced?

      3 years ago Log in to Reply

    Many people with T1D talk about having a "stubborn high" when talking about those frustrating instances of high blood sugar that don’t seem to respond how we would like them to, however this phrase means something different to everyone. Which of the following circumstances would you consider a “stubborn high”? Select all that apply to you. Cancel reply

    You must be logged in to post a comment.




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