Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 29 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past year, have you been required to change medications because of your health insurance?

    Home > LC Polls > In the past year, have you been required to change medications because of your health insurance?
    Previous

    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Next

    How often do you pre-bolus at least 5 minutes before eating?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 days ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 2 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 weeks ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 month ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 1 month ago 1 min read  

    38 Comments

    1. Amber Lathrop

      Novolog to Humalog

      2 years ago Log in to Reply
    2. Donna Condi

      Yes my drug insurance company would only pay for Novalog brand insulin. I had been using insulin aspart previously.

      2 years ago Log in to Reply
    3. Kristi Warmecke

      My insurance want’s me to switch to Humalog (which I’m allergic to) from Novolog (which I’m not allergic to).

      1
      2 years ago Log in to Reply
    4. AimmcG

      My insulin brand is no longer covered. I have gone back and forth between Humalog and Novalog over the years due to insurance changes. Now my current insurance company wants me to change to Lispro.

      1
      2 years ago Log in to Reply
      1. Katrina Mundinger

        A while ago I had to switch from Humalog to Novalog but this year when my husband’s insurance changed, I had to switch to Lispro. Not a big deal, but I had to have my pharmacy call around to find a location that had enough vials for my Rx right before a trip out of town!

        2 years ago Log in to Reply
    5. Anthony Harder

      No, but I have had to fiercely fight to keep them more than once.

      2 years ago Log in to Reply
    6. Kathy Hanavan

      Not in 2023, but in 2024, I need to switch from Humalog to generic lispro. I have Toujeo for back up insulin and they will no longer cover that so I need to change Basaglar instead and they are not equivalent! Thankfully, I don’t need to use long acting often.

      2 years ago Log in to Reply
    7. Dave Akers

      Insurance changed preferred brand of basal insulin from Tresiba to Toujeo.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.

      5
      2 years ago Log in to Reply
    9. Julie Rayden

      I had to go from a brand name to a generic drug when I moved out of state. Goi g on Medicare did not help. Its not as effective that’s for sure but cost for the name brand is prohibitive!

      1
      2 years ago Log in to Reply
    10. Janice B

      Yes but not my insulin. A medication for Rosacea. The previous medication worked really well but the one I have to change to, I know from past experience, does not work as well.

      2 years ago Log in to Reply
    11. RACHEL BLEVINS

      Beginning January 2024, Medicare is not covering Novolog or Humalog. Which are the only drugs FDA approved for insulin pumps.

      2 years ago Log in to Reply
      1. Marty

        Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.

        1
        2 years ago Log in to Reply
    12. Lawrence S.

      My health insurance has not affected my diabetes medications. However, my insurance no longer will cover my Symbicort inhaler (for asthma). I will have to go to the doctor to get a different inhaler.

      2 years ago Log in to Reply
    13. Sarah Austin

      Not this year but starting in 2024 I will have to change from Humalog to lispro

      2 years ago Log in to Reply
      1. Mick Martin

        @Sarah Austin. Humalog IS one of the brands sold as Lispro, ma’am. There are, of course, other brands. I also use Insulin Lispro, but that’s Apidra brand (Insulin glulisine).

        Insulin lispro is a fast-acting insulin that starts to work about 15 minutes after injection, peaks in about 1 hour, and keeps working for 2 to 4 hours.

        Admelog, HumaLOG and Lyumjev are other types of insulin lispro. It’s a manufactured form of human insulin where the amino acids lysine and proline have been switched at the end of the B chain of the insulin molecule.

        2 years ago Log in to Reply
    14. Lindsey Whitnell

      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.

      1
      2 years ago Log in to Reply
    15. Jen Farley

      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.

      4
      2 years ago Log in to Reply
      1. Mick Martin

        @Jen Farley. Some MIGHT consider it a rant, ma’am, but being from the ‘other side of the pond’ I’ve ‘lost’ internet friends due to the American Health System when they’ve been in a position where they can’t afford insulin at all.

        1
        2 years ago Log in to Reply
    16. Katherine Kettig

      I quickly contacted my provider and requested an exception and did received one. It has happened 2 times to me. They wanted me to change to a less expensive medication.

      2 years ago Log in to Reply
    17. Annie Wall

      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.

      1
      2 years ago Log in to Reply
    18. TEH

      I didn’t have to change but I couldn’t get a new one from Caremark because it wasn’t on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!

      1
      2 years ago Log in to Reply
    19. lis be

      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan)
      I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @lis be. Wise words for my American cousins, ma’am.

        2 years ago Log in to Reply
    20. T1diabetic

      For 2024 I have to change insurance as my old plan won’t cover Novolog.
      I have to use Novolog with my Tandem pump, so I changed insurance plans.

      2 years ago Log in to Reply
    21. Mick Martin

      I selected “Other” as the response “N/A” appears to be for those that do not have a personal T1D connection.

      I AM Type 1, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where my medications are all paid for by our NHS (National Health Service), which is funded via taxation of all working people that earn more than a given amount.

      2 years ago Log in to Reply
    22. KarenM6

      This year, I was not allowed to start a new med (Afrezza) because it was not on the formulary.
      I lose words when coming up on something like this and can only roll my eyes and shake my head.

      2 years ago Log in to Reply
      1. Bekki Weston

        In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.

        1
        2 years ago Log in to Reply
    23. qachemist

      With Medicare’s change to the cost of insulin, my Part D plan dropped Novolog. $35 “limit” only works if insurers have your medication on their formulary.

      1
      2 years ago Log in to Reply
      1. Kristi Warmecke

        correct, if it’s not on the formulary, expect to pay almost full price.

        2 years ago Log in to Reply
    24. Bruce Johnson

      Yes, several times. Antibiotics umeds changed.

      2 years ago Log in to Reply
    25. Bret Itskowitch

      Yes, I used to take lantus as my basal isulin. My health insurance would not cover it and my endocrinologist changed me to basaglar.

      2 years ago Log in to Reply
    26. Melinda Lipe

      Medicare doesn’t want me to take Plavix daily, so they spoke with my cardiologist to change it to every other day.

      2 years ago Log in to Reply
    27. KIMBERELY SMITH

      Yes

      2 years ago Log in to Reply
    28. Megan S

      Was forced to change one early this year and already have a notice that I will be forced to change another after Jan 1st

      2 years ago Log in to Reply
    29. Joindy23

      Literally every year when I used to be covered by employer-sponsored health insurance, the plan’s PHARMACY BENEFITS MANAGER (NOT the health insurer) would stop covering at least one of my needed prescriptions-either for one of the two types of insulin I use, or my CGM. That’s because the PBMs make a fortune in rebates for limiting patient choices. The PBMs business model should be disallowed.

      2 years ago Log in to Reply
    30. tmeagher

      Had to change from Humalog to the generic version due to insurance requirement.

      2 years ago Log in to Reply
    31. Anita Stokar

      Even though my insurance quit covering one of my medications, my doctor would have switched me anyway as she said there are some potential side effects to the medication I was previously taking.

      2 years ago Log in to Reply

    In the past year, have you been required to change medications because of your health insurance? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]