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    • 8 hours, 54 minutes ago
      Bob Durstenfeld likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 9 hours, 13 minutes ago
      Anneyun likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 9 hours, 13 minutes ago
      Anneyun likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Post meal spikes!!!
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      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 9 hours, 21 minutes ago
      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 9 hours, 21 minutes ago
      TEH likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 9 hours, 48 minutes ago
      John Barbuto likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Resolving sticky highs (especially when I had the flu) and coping with the erratic data in the first 24 hours of a sensor change.
    • 9 hours, 48 minutes ago
      John Barbuto likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Post meal spikes!!!
    • 10 hours, 30 minutes ago
      Gerald Oefelein likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 10 hours, 38 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Other. Trying to find a blood glucose balance or equilibrium, while dealing with gastroparesis, and celiac disease take a lot of mental energy. I'm on a constant roller coaster. It is exhausting.
    • 10 hours, 38 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 10 hours, 38 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Preventing highs? I found truly waiting for 15 minutes before eating helps a lot. Sometimes it’s not practical. And exercise. I worry as I age that I will get lazier. Keeping my mouth shut also prevents many highs. Nope, for me, Medicare has just been a nightmare, throwing wrenches into my routine.
    • 10 hours, 38 minutes ago
      Vicki Andersen likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      It is the most ironic of ironies. Just as I have seemingly mastered the technical intricacies of gewgaws like CGMs, correction factors, insulin sensitivities, pancreatic enzymes, Kaplen-Meier curves, etc. that I must board the mystery train of insurance/logistics as my favorite form of conveyance. Befuddlement may end up being my BFF. જ⁀➴
    • 10 hours, 52 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Replacing failed sensors from the manufacturer.
    • 10 hours, 53 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Preventing highs? I found truly waiting for 15 minutes before eating helps a lot. Sometimes it’s not practical. And exercise. I worry as I age that I will get lazier. Keeping my mouth shut also prevents many highs. Nope, for me, Medicare has just been a nightmare, throwing wrenches into my routine.
    • 10 hours, 57 minutes ago
      Lawrence S. likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      I find your answers truly humorous but often very informative.
    • 11 hours, 48 minutes ago
      Kathy Hanavan likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      I find your answers truly humorous but often very informative.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      On days when T1D feels more demanding than usual, what helps you get through it?
      I just had a few days of inexplicable highs. I'm literally wiped out. But after brainstorming and problem-solving, I think I found the culprit. I took some airplane rides in rapid succession, apparently, the pressure changes caused a large amount of air to be drawn into the pen chambers. Learned two things: (1) remove all needle tips from pens before flying (2) check the barrels of the pens after each flight for air bubbles.
    • 1 day, 4 hours ago
      kristina blake likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      Day to day I rely entirely on my self knowledge and understanding with over 60 years of experience living in a body with T1D. I do appreciate and rely on CGM technology that enables me to see current BG and trends on pump screen. Other than that, I don't use any bells and whistles apps, or crazy ass algorithms. When i need to I consult with my endo, or more likely, with another T1 PWD who may well have insights from their own real life experience to share.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I've been making diabetes decisions for 70 years, long before there was any adjunct technology. I have been in situations where I had to drop back and manage manually. I worry about my granddaughter with T1D, she has been on a pump and CGM since being diagnosed. She might not have he management skills. I am not sure she has even had to draw up a shot and inject herself.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I change all of my pump settings on my own as needed and override boluses for what I know I’ll need vs what the algorithm low-ball suggests.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I definitely use less insulin using my pump's algorithm than I would using my own guess. However, since I know how much my pump would give me for my typical meal, I would be pretty close to what it deems necessary. My pump is usually pretty correct. However, I do override the bolus the bolus or basal rates as sometimes I know other factors that don't go into the pump's algorithm calculations.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I said unsure. Before my pump and CGM, before using a glucometer, I would try to anticipate the answer. I was rarely spot on. But I see now that glucometer isn’t part of the unknown. Still, without my pump algorithm and especially CGM data which is basically on an app I am reading, I’m afraid my decisions would not lead me to where I am today where foot doc, eye doc, etc. say they would not be able to tell from those body parts whether I was diabetic. My Endo is probably way down the list. Yesterday, I was in-and-out in 10 minutes and ordered a script I told him I did not need.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I have been on this journey for 45 years. I have lots of experience dealing with decisions.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      How confident do you feel making diabetes-related decisions without input from apps, algorithms, or other people?
      I took it that the assumption was having the test data and knowing what you've previously done already, how comfortable are you making a treatment decision. In that case, like you, after decades of doing it (even without the data), I'm fully confident. I'm sure you are too given what we've been through throughout the decades.
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    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Home > LC Polls > How many times in 2023 did you have an appointment with your main T1D healthcare provider?
    Previous

    If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.

    Next

    In the past year, have you been required to change medications because of your health insurance?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Molly Jones

      2 I had two in person appointments, but I also used the computer and phone three times besides the appointments.

      2 years ago Log in to Reply
    2. Lawrence S.

      I am required to see my Endo every three months by Medicare. Otherwise, I’d probably go 2 times per year.

      1
      2 years ago Log in to Reply
    3. Louise Robinson

      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies….despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being “penny-wise and pound-foolish” by paying for “medically-unnecessary” office visit costs.

      4
      2 years ago Log in to Reply
    4. Gerald Oefelein

      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.

      1
      2 years ago Log in to Reply
    5. Patricia Kilwein

      This past year my doctor appts were my new social life!

      2
      2 years ago Log in to Reply
    6. KIMBERELY SMITH

      Last month on the 8th

      2 years ago Log in to Reply
    7. George Lovelace

      Schush! I know it’s supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I’m happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.

      3
      2 years ago Log in to Reply
      1. Mick Martin

        @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.

        2
        2 years ago Log in to Reply
    8. Kris Sykes-David

      I answered one, but I intend to make a recurring six-moth appointment when I see my endo in January. It is SO hard to get an appointment without waiting months….

      2 years ago Log in to Reply
    9. Eva

      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo….

      2
      2 years ago Log in to Reply
    10. William Bennett

      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn’t care what your Dr thinks. Rules is rules.

      4
      2 years ago Log in to Reply
    11. Tina Roberts

      Twice. My dr. Schedules out six months every time.

      2 years ago Log in to Reply
    12. Judy Sabol

      While I only saw my endocrinologist 2 times, I’ve also seen a nutritionist a couple times, a social worker and an exercise physiologist, extremely helpful members of the team

      2 years ago Log in to Reply
    13. mlettinga

      I see the endo 2 times and the NP the other 2 times. So it’s 4 but I marked 2.

      2 years ago Log in to Reply
    14. ConnieT1D62

      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.

      1
      2 years ago Log in to Reply
    15. Becky Hertz

      I think it was 3 but could have been 2.

      2 years ago Log in to Reply
    16. Janis Senungetuk

      I alternate appointments between endo and diabetes educator every three months. This year I’ve had 2 appointments with the MD.

      2 years ago Log in to Reply
    17. John McHenery

      Only one with the Doctor, and that was a video consult. Another seven videoto do with training/transitioning to a closed loop system. A face to face with the consultant in 15 days.

      2 years ago Log in to Reply
    18. Megan S

      Every 3-4 months depending on how busy their schedule is.

      2 years ago Log in to Reply
    19. Patrick Burner

      After 40 years, I do not see an Endocrinologist. I know what I need when I need it and let my PCP handle the paperwork. Last A1C was 5.6.

      2 years ago Log in to Reply
    20. Nicholas Argento

      I am my own provider, though I have a primary doctor for general care, and a colleague endo who I maintain a paper trail w in order to get supplies, since I can’t prescribe myself

      2 years ago Log in to Reply

    How many times in 2023 did you have an appointment with your main T1D healthcare provider? Cancel reply

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