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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Home > LC Polls > How many times in 2023 did you have an appointment with your main T1D healthcare provider?
    Previous

    If you’ve ever used a connected insulin pen (also known as a “smart pen”), what was your experience like? Tell us more in the comments! A “smart pen” connected insulin pens can offer extra technology with the simplicity of injections, like tracking the timing and dose of insulin, tracking insulin-on-board, and calculating insulin doses based on carbohydrate entries.

    Next

    In the past year, have you been required to change medications because of your health insurance?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    21 Comments

    1. Molly Jones

      2 I had two in person appointments, but I also used the computer and phone three times besides the appointments.

      2 years ago Log in to Reply
    2. Lawrence S.

      I am required to see my Endo every three months by Medicare. Otherwise, I’d probably go 2 times per year.

      1
      2 years ago Log in to Reply
    3. Louise Robinson

      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies….despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being “penny-wise and pound-foolish” by paying for “medically-unnecessary” office visit costs.

      4
      2 years ago Log in to Reply
    4. Gerald Oefelein

      Medicare requires me to see my diabetologist every 90 days to continue receiving pump and CGM supplies.

      1
      2 years ago Log in to Reply
    5. Patricia Kilwein

      This past year my doctor appts were my new social life!

      2
      2 years ago Log in to Reply
    6. KIMBERELY SMITH

      Last month on the 8th

      2 years ago Log in to Reply
    7. George Lovelace

      Schush! I know it’s supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I’m happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.

      3
      2 years ago Log in to Reply
      1. Mick Martin

        @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.

        2
        2 years ago Log in to Reply
    8. Kris Sykes-David

      I answered one, but I intend to make a recurring six-moth appointment when I see my endo in January. It is SO hard to get an appointment without waiting months….

      2 years ago Log in to Reply
    9. Eva

      I would prefer to see my endo twice a year. But insurance requires a visit once every 90 days to obtain an insulin pump and CGM, which is completely illogical. Insulin pump allows for better control soo….

      2
      2 years ago Log in to Reply
    10. William Bennett

      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn’t care what your Dr thinks. Rules is rules.

      4
      2 years ago Log in to Reply
    11. Tina Roberts

      Twice. My dr. Schedules out six months every time.

      2 years ago Log in to Reply
    12. Judy Sabol

      While I only saw my endocrinologist 2 times, I’ve also seen a nutritionist a couple times, a social worker and an exercise physiologist, extremely helpful members of the team

      2 years ago Log in to Reply
    13. mlettinga

      I see the endo 2 times and the NP the other 2 times. So it’s 4 but I marked 2.

      2 years ago Log in to Reply
    14. ConnieT1D62

      I saw my endocrine provider 6 times this year instead of the usual four because I was having pump insertion site absorption issues so she saw me two extra times for problem solving resolution.

      1
      2 years ago Log in to Reply
    15. Becky Hertz

      I think it was 3 but could have been 2.

      2 years ago Log in to Reply
    16. Janis Senungetuk

      I alternate appointments between endo and diabetes educator every three months. This year I’ve had 2 appointments with the MD.

      2 years ago Log in to Reply
    17. John McHenery

      Only one with the Doctor, and that was a video consult. Another seven videoto do with training/transitioning to a closed loop system. A face to face with the consultant in 15 days.

      2 years ago Log in to Reply
    18. Megan S

      Every 3-4 months depending on how busy their schedule is.

      2 years ago Log in to Reply
    19. Patrick Burner

      After 40 years, I do not see an Endocrinologist. I know what I need when I need it and let my PCP handle the paperwork. Last A1C was 5.6.

      2 years ago Log in to Reply
    20. Nicholas Argento

      I am my own provider, though I have a primary doctor for general care, and a colleague endo who I maintain a paper trail w in order to get supplies, since I can’t prescribe myself

      2 years ago Log in to Reply

    How many times in 2023 did you have an appointment with your main T1D healthcare provider? Cancel reply

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