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    • 16 hours, 39 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      shortly after I was diagnosed at age 43, went on a date with a T1D who had had it forever. she criticized what I ate, how much insulin I was taking for it (MDI) and when I ordered a Corona, I thought that her head would explode! needless to say there was no second date.
    • 16 hours, 39 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 16 hours, 41 minutes ago
      Lawrence S. likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      At the time we dated and were married my wife was not diabetic. She was diagnosed as T1D during/after her first pregnancy. We shared T1D through the next 37 years and a second pregnancy!
    • 17 hours, 46 minutes ago
      Ahh Life likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered NO, but on reflection, I'm not certain that is correct. Of the many girls/women I dated in the 1950s and early 1960s, the only one I ever told that I have diabetes [Type One naming didn't exist for another 40 years] is the woman to whom I've been married for an eternity. And not one of my many dates told me that she has/had diabetes [of any of the many kinds].
    • 1 day, 8 hours ago
      Anita Stokar likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I put "Never" because I'm 85 and stable. Why change a good thing?
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 9 hours ago
      Janis Senungetuk likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      Ten years ago when I first started seeing her I asked her to work with me as an equal partner in all treatment decisions. She agreed and made a definite effort at every appointment to maintain that commitment. That was a decade ago. Healthcare has changed dramatically along with her caseload. At my 90 day appointment next week I hope she will have the uninterrupted time to allow for an actual pro/con discussion on several issues.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Do you check your blood glucose before driving a car?
      Kind of a bad question, “check” means what, CGM and meter both are used to “check” BG, so it would appear that 60%+ “check”. Maybe it should have been, “How do you check BG before driving?” To get a more specific assessment of the BG checking task.
    • 1 day, 13 hours ago
      ChrisW likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      She recommended having the latest incarnation of Glucagon on hand and Lantus pens in case I have a pump problem.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 16 hours ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 16 hours ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 17 hours ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
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    In the past year, have you been required to change medications because of your health insurance?

    Home > LC Polls > In the past year, have you been required to change medications because of your health insurance?
    Previous

    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Next

    How often do you pre-bolus at least 5 minutes before eating?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    38 Comments

    1. Amber Lathrop

      Novolog to Humalog

      1 year ago Log in to Reply
    2. Donna Condi

      Yes my drug insurance company would only pay for Novalog brand insulin. I had been using insulin aspart previously.

      1 year ago Log in to Reply
    3. Kristi Warmecke

      My insurance want’s me to switch to Humalog (which I’m allergic to) from Novolog (which I’m not allergic to).

      1
      1 year ago Log in to Reply
    4. AimmcG

      My insulin brand is no longer covered. I have gone back and forth between Humalog and Novalog over the years due to insurance changes. Now my current insurance company wants me to change to Lispro.

      1
      1 year ago Log in to Reply
      1. Katrina Mundinger

        A while ago I had to switch from Humalog to Novalog but this year when my husband’s insurance changed, I had to switch to Lispro. Not a big deal, but I had to have my pharmacy call around to find a location that had enough vials for my Rx right before a trip out of town!

        1 year ago Log in to Reply
    5. Anthony Harder

      No, but I have had to fiercely fight to keep them more than once.

      1 year ago Log in to Reply
    6. Kathy Hanavan

      Not in 2023, but in 2024, I need to switch from Humalog to generic lispro. I have Toujeo for back up insulin and they will no longer cover that so I need to change Basaglar instead and they are not equivalent! Thankfully, I don’t need to use long acting often.

      1 year ago Log in to Reply
    7. Dave Akers

      Insurance changed preferred brand of basal insulin from Tresiba to Toujeo.

      1 year ago Log in to Reply
    8. Bob Durstenfeld

      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.

      5
      1 year ago Log in to Reply
    9. Julie Rayden

      I had to go from a brand name to a generic drug when I moved out of state. Goi g on Medicare did not help. Its not as effective that’s for sure but cost for the name brand is prohibitive!

      1
      1 year ago Log in to Reply
    10. Janice B

      Yes but not my insulin. A medication for Rosacea. The previous medication worked really well but the one I have to change to, I know from past experience, does not work as well.

      1 year ago Log in to Reply
    11. RACHEL BLEVINS

      Beginning January 2024, Medicare is not covering Novolog or Humalog. Which are the only drugs FDA approved for insulin pumps.

      1 year ago Log in to Reply
      1. Marty

        Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.

        1
        1 year ago Log in to Reply
    12. Lawrence S.

      My health insurance has not affected my diabetes medications. However, my insurance no longer will cover my Symbicort inhaler (for asthma). I will have to go to the doctor to get a different inhaler.

      1 year ago Log in to Reply
    13. Sarah Austin

      Not this year but starting in 2024 I will have to change from Humalog to lispro

      1 year ago Log in to Reply
      1. Mick Martin

        @Sarah Austin. Humalog IS one of the brands sold as Lispro, ma’am. There are, of course, other brands. I also use Insulin Lispro, but that’s Apidra brand (Insulin glulisine).

        Insulin lispro is a fast-acting insulin that starts to work about 15 minutes after injection, peaks in about 1 hour, and keeps working for 2 to 4 hours.

        Admelog, HumaLOG and Lyumjev are other types of insulin lispro. It’s a manufactured form of human insulin where the amino acids lysine and proline have been switched at the end of the B chain of the insulin molecule.

        1 year ago Log in to Reply
    14. Lindsey Whitnell

      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.

      1
      1 year ago Log in to Reply
    15. Jen Farley

      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.

      4
      1 year ago Log in to Reply
      1. Mick Martin

        @Jen Farley. Some MIGHT consider it a rant, ma’am, but being from the ‘other side of the pond’ I’ve ‘lost’ internet friends due to the American Health System when they’ve been in a position where they can’t afford insulin at all.

        1
        1 year ago Log in to Reply
    16. Katherine Kettig

      I quickly contacted my provider and requested an exception and did received one. It has happened 2 times to me. They wanted me to change to a less expensive medication.

      1 year ago Log in to Reply
    17. Annie Wall

      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.

      1
      1 year ago Log in to Reply
    18. TEH

      I didn’t have to change but I couldn’t get a new one from Caremark because it wasn’t on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!

      1
      1 year ago Log in to Reply
    19. lis be

      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan)
      I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!

      1
      1 year ago Log in to Reply
      1. Mick Martin

        @lis be. Wise words for my American cousins, ma’am.

        1 year ago Log in to Reply
    20. T1diabetic

      For 2024 I have to change insurance as my old plan won’t cover Novolog.
      I have to use Novolog with my Tandem pump, so I changed insurance plans.

      1 year ago Log in to Reply
    21. Mick Martin

      I selected “Other” as the response “N/A” appears to be for those that do not have a personal T1D connection.

      I AM Type 1, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where my medications are all paid for by our NHS (National Health Service), which is funded via taxation of all working people that earn more than a given amount.

      1 year ago Log in to Reply
    22. KarenM6

      This year, I was not allowed to start a new med (Afrezza) because it was not on the formulary.
      I lose words when coming up on something like this and can only roll my eyes and shake my head.

      1 year ago Log in to Reply
      1. Bekki Weston

        In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.

        1
        1 year ago Log in to Reply
    23. qachemist

      With Medicare’s change to the cost of insulin, my Part D plan dropped Novolog. $35 “limit” only works if insurers have your medication on their formulary.

      1
      1 year ago Log in to Reply
      1. Kristi Warmecke

        correct, if it’s not on the formulary, expect to pay almost full price.

        1 year ago Log in to Reply
    24. Bruce Johnson

      Yes, several times. Antibiotics umeds changed.

      1 year ago Log in to Reply
    25. Bret Itskowitch

      Yes, I used to take lantus as my basal isulin. My health insurance would not cover it and my endocrinologist changed me to basaglar.

      1 year ago Log in to Reply
    26. Melinda Lipe

      Medicare doesn’t want me to take Plavix daily, so they spoke with my cardiologist to change it to every other day.

      1 year ago Log in to Reply
    27. KIMBERELY SMITH

      Yes

      1 year ago Log in to Reply
    28. Megan S

      Was forced to change one early this year and already have a notice that I will be forced to change another after Jan 1st

      1 year ago Log in to Reply
    29. Joindy23

      Literally every year when I used to be covered by employer-sponsored health insurance, the plan’s PHARMACY BENEFITS MANAGER (NOT the health insurer) would stop covering at least one of my needed prescriptions-either for one of the two types of insulin I use, or my CGM. That’s because the PBMs make a fortune in rebates for limiting patient choices. The PBMs business model should be disallowed.

      1 year ago Log in to Reply
    30. tmeagher

      Had to change from Humalog to the generic version due to insurance requirement.

      1 year ago Log in to Reply
    31. Anita Stokar

      Even though my insurance quit covering one of my medications, my doctor would have switched me anyway as she said there are some potential side effects to the medication I was previously taking.

      1 year ago Log in to Reply

    In the past year, have you been required to change medications because of your health insurance? Cancel reply

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