Sarah Howard
Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.
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In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply
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I always wake up through the night and check my BG level. I use the Libre 2 but do not have the alarms turned on. I have been using an insulin pump for fourteen years and have always done this.
Once I fall asleep, I am usually OUT unless there are many many noises.
My husband is the one who’s sleep is disrupted by my alerts. I woke up once this past week, due to him changing beds due to my device alerts.
The difference in nighttime alarms between the Tandem/Dexcom setup and the Minimed setup is staggering. If I were still using Minimed, I would have answered three or four times a night. I felt the Minimed algorithm punished me for trying to go through the night around 100. Once I fine tuned the Tandem, I go through the night between 100 and 110 with about one alarm per week. Consequently, sailing through the night around 100 has a dramatic impact on A1C values. Mine hover between 5.8 and 6.0 now, and the best I could do on Mini was 7.0. Not to glaze your eyes but the math of maintaining a BS lower by 20 pts for the 10 inactive hrs of the evening, demonstrates the effectiveness of focusing on the night time BS control..
How do you get it to allow you stay around 100? I seem to stay higher than that even though the target is 110.
This is one of the reasons I switched to MDI. I prefer to run around 70 during the night. Not going to happen with any pump I don’t think.
High number. Currently I am undergoing topical steroid application (two weeks on, two weeks off, two weeks on regimen).
Alas and alack, the tSlim X2 has no giant STERPOD button on it. Definitely a design defect. 😖☺
Every three days my OmniPod notifications that the pod needs to be changed in a couple of hours wakes me up. At times hard to go back to sleep
Why don’t you change your pod after dinner, resetting the alarm so it happens during the day?
I took a wild guess and said “4” nights. Honestly, it happens and I forget about it. I specifically remember about 2 times, but it could be more. Low blood glucose, 2 hours ago; high BG, 3 hours ago. Low insulin alert . . .
Sometime a compression low from G7. Especially if I don’t place correctly. This is my main issue with G7. Other is the adhesive which is just awful. Seems counter productive to have a small device and have to put an unsightly patch over it.
I go to bed around the same time every night (+ or – 20 minutes). As part of my bedtime routine, I have a cup of chamomile tea resulting in a bathroom trip around 2AM. Typically, I check my blood sugar and go right back to sleep. About 3 days in the last week, I sipped a little OJ before going back to sleep and still went back to sleep in a flash, thankfully.
I am awakened every night by my G6 usually with a compression low. (Note to Jane: compression lows occur with all CGMs as far as I know.) Otherwise it is for a loss of signal for some reason.
Especially a problem with AID pumps for obvious reasons. I sleep on my side so the only choice for me is to put the sensor toward the inside of my upper arm. Which works for compression lows but can be a problem for Bluetooth reception with a Tandem pump, which has pretty feeble Bt signal that can be blocked by your body. But at least with that it’s a pretty distinctive alarm sound and I just take my pump out of my pocket and lay it right up against the sensor.
I selected the ‘3 times’ option. I included delayed sleep. I had 2 alarms for low alarms just as I was climing into bed. I got up and had a snack and brushed my teath again.
The third time was for a low cartridge so that and the infusion set needed to be changed out.
This has been a rough week and I think this has affected my BGs. Dental work, flu and covid vaccines, change of seasons, less activity than usual, the perversity of diabetes….
Once, it was my own fault. I forgot to change infusion set before bed. My pet peeve, though, is when it wakes me up to tell me that I had a high reading 2 hrs ago. Duh, don’t I know that already???
Last night I stayed up to try lowering a + 300 bg. Two days ago got both flu and COVID vaccines and am now dealing with the side affects.
Only when I lay on my side that has CGM and I get signal interference with my pump sadly.
I was forced to say 0 because despite having been unemployed for over 6 weeks, my body is still stuck on a night shift wake/sleep patter which means that regardless of any device alerts or anything, I’m usually awake more hours during the night than I am during the day, and the question didn’t consider people who are awake all night and sleep during the day!!!
I get up to pee at night so check my T slim x2 pump. Don’t have it on CIQ usually so no alarms unless it is really low and it is not. Too busy to keep track of how many times I do something every night of the week. I have better things to do. I think we need better questions.
These questions are for research purposes, not for your entertainment
This past week was once but that was unusual. I normally don’t have any alarms waking me.
5 nights is a guess. 70-160 is my target. Traveling, eating off plan, enjoying friends late nights, so night is where things beg to be “fixed”.
This week is unusual. Usually, I have alarms early in the night (midnight-2am and then a rise alert around 5am). This week has been nice and level! 🙂
Any disruption, even the slightest is a disruption is not acceptable. Sleep is “sacrosanct”. There must be, must be a better approach…