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    • 1 hour, 22 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 5 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 28 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 51 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 48 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Keith McGinnis

      I always wake up through the night and check my BG level. I use the Libre 2 but do not have the alarms turned on. I have been using an insulin pump for fourteen years and have always done this.

      1
      2 years ago Log in to Reply
    2. Molly Jones

      Once I fall asleep, I am usually OUT unless there are many many noises.
      My husband is the one who’s sleep is disrupted by my alerts. I woke up once this past week, due to him changing beds due to my device alerts.

      2 years ago Log in to Reply
    3. Richard Entrekin

      The difference in nighttime alarms between the Tandem/Dexcom setup and the Minimed setup is staggering. If I were still using Minimed, I would have answered three or four times a night. I felt the Minimed algorithm punished me for trying to go through the night around 100. Once I fine tuned the Tandem, I go through the night between 100 and 110 with about one alarm per week. Consequently, sailing through the night around 100 has a dramatic impact on A1C values. Mine hover between 5.8 and 6.0 now, and the best I could do on Mini was 7.0. Not to glaze your eyes but the math of maintaining a BS lower by 20 pts for the 10 inactive hrs of the evening, demonstrates the effectiveness of focusing on the night time BS control..

      3
      2 years ago Log in to Reply
      1. Kathy Hanavan

        How do you get it to allow you stay around 100? I seem to stay higher than that even though the target is 110.

        2 years ago Log in to Reply
      2. Jane Cerullo

        This is one of the reasons I switched to MDI. I prefer to run around 70 during the night. Not going to happen with any pump I don’t think.

        1
        2 years ago Log in to Reply
    4. Ahh Life

      High number. Currently I am undergoing topical steroid application (two weeks on, two weeks off, two weeks on regimen).

      Alas and alack, the tSlim X2 has no giant STERPOD button on it. Definitely a design defect. 😖☺

      2 years ago Log in to Reply
    5. Janice B

      Every three days my OmniPod notifications that the pod needs to be changed in a couple of hours wakes me up. At times hard to go back to sleep

      2 years ago Log in to Reply
      1. Robert Holman

        Why don’t you change your pod after dinner, resetting the alarm so it happens during the day?

        2 years ago Log in to Reply
    6. Lawrence S.

      I took a wild guess and said “4” nights. Honestly, it happens and I forget about it. I specifically remember about 2 times, but it could be more. Low blood glucose, 2 hours ago; high BG, 3 hours ago. Low insulin alert . . .

      2 years ago Log in to Reply
    7. Jane Cerullo

      Sometime a compression low from G7. Especially if I don’t place correctly. This is my main issue with G7. Other is the adhesive which is just awful. Seems counter productive to have a small device and have to put an unsightly patch over it.

      2 years ago Log in to Reply
    8. Eva

      I go to bed around the same time every night (+ or – 20 minutes). As part of my bedtime routine, I have a cup of chamomile tea resulting in a bathroom trip around 2AM. Typically, I check my blood sugar and go right back to sleep. About 3 days in the last week, I sipped a little OJ before going back to sleep and still went back to sleep in a flash, thankfully.

      2 years ago Log in to Reply
    9. Chip Brookes

      I am awakened every night by my G6 usually with a compression low. (Note to Jane: compression lows occur with all CGMs as far as I know.) Otherwise it is for a loss of signal for some reason.

      2 years ago Log in to Reply
      1. William Bennett

        Especially a problem with AID pumps for obvious reasons. I sleep on my side so the only choice for me is to put the sensor toward the inside of my upper arm. Which works for compression lows but can be a problem for Bluetooth reception with a Tandem pump, which has pretty feeble Bt signal that can be blocked by your body. But at least with that it’s a pretty distinctive alarm sound and I just take my pump out of my pocket and lay it right up against the sensor.

        1
        2 years ago Log in to Reply
    10. TEH

      I selected the ‘3 times’ option. I included delayed sleep. I had 2 alarms for low alarms just as I was climing into bed. I got up and had a snack and brushed my teath again.

      The third time was for a low cartridge so that and the infusion set needed to be changed out.

      2 years ago Log in to Reply
    11. KCR

      This has been a rough week and I think this has affected my BGs. Dental work, flu and covid vaccines, change of seasons, less activity than usual, the perversity of diabetes….

      2 years ago Log in to Reply
    12. Pauline M Reynolds

      Once, it was my own fault. I forgot to change infusion set before bed. My pet peeve, though, is when it wakes me up to tell me that I had a high reading 2 hrs ago. Duh, don’t I know that already???

      2 years ago Log in to Reply
    13. Janis Senungetuk

      Last night I stayed up to try lowering a + 300 bg. Two days ago got both flu and COVID vaccines and am now dealing with the side affects.

      2 years ago Log in to Reply
    14. Amanda Barras

      Only when I lay on my side that has CGM and I get signal interference with my pump sadly.

      2 years ago Log in to Reply
    15. Mark Schweim

      I was forced to say 0 because despite having been unemployed for over 6 weeks, my body is still stuck on a night shift wake/sleep patter which means that regardless of any device alerts or anything, I’m usually awake more hours during the night than I am during the day, and the question didn’t consider people who are awake all night and sleep during the day!!!

      2 years ago Log in to Reply
    16. Jeanne McMillan-Olson

      I get up to pee at night so check my T slim x2 pump. Don’t have it on CIQ usually so no alarms unless it is really low and it is not. Too busy to keep track of how many times I do something every night of the week. I have better things to do. I think we need better questions.

      2 years ago Log in to Reply
      1. Sarah Austin

        These questions are for research purposes, not for your entertainment

        2 years ago Log in to Reply
    17. Anita Stokar

      This past week was once but that was unusual. I normally don’t have any alarms waking me.

      2 years ago Log in to Reply
    18. Bea Anderson

      5 nights is a guess. 70-160 is my target. Traveling, eating off plan, enjoying friends late nights, so night is where things beg to be “fixed”.

      2 years ago Log in to Reply
    19. T1D4LongTime

      This week is unusual. Usually, I have alarms early in the night (midnight-2am and then a rise alert around 5am). This week has been nice and level! 🙂

      2 years ago Log in to Reply
    20. Jeff Balbirnie

      Any disruption, even the slightest is a disruption is not acceptable. Sleep is “sacrosanct”. There must be, must be a better approach…

      2 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

    You must be logged in to post a comment.




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